Laura Lorenz

Laura Lorenz
Brandeis University · Heller School for Social Policy and Management

PhD, MA, MEd

About

62
Publications
11,601
Reads
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334
Citations
Introduction
LAURA IS A RESEARCHER, EVALUATOR, AND EDUCATOR with international experience communicating program, policy, and research impacts for global audiences. Her areas of expertise include qualitative research methods, narrative and visual research, community-based participatory research, lived experience with chronic conditions, disability policy, advocacy, and translation of research findings to interventions and continuing education... See more at http://www.lslorenz.com/bio.htm
Additional affiliations
November 2013 - present
Brandeis University
Position
  • Researcher

Publications

Publications (62)
Presentation
Full-text available
The issue brief prepared for this health policy forum evaluates the state of the continuum of care for severe acquired brain injuries in the Commonwealth by describing the stages of the continuum of care, from access to emergency and acute rehabilitation care, to post-acute care and community services and supports. Gaps and disparities in access ac...
Book
Full-text available
This groundbreaking text makes an intervention on behalf of disability studies into the broad field of qualitative inquiry. Ronald Berger and Laura Lorenz introduce readers to a range of issues involved in doing qualitative research on disabilities by bringing together a collection of scholarly work that supplements their own contributions and cove...
Book
Full-text available
Description: Although millions of people are affected each year by brain injuries, what it is like to live with these injuries is often misunderstood. Dr Laura Lorenz delves into the experience of acquired brain injury (ABI) to reveal how survivors make sense of their changed circumstances - and how social policies and medical expectations can enh...
Book
Full-text available
This White Paper advocates that communities adopt and expand upon a range of approaches that can improve upon personal, family, and community health outcomes by reducing the harm of alcohol and drug use. The paper provides a range of practice, program, and policy examples from personal health care settings, addiction systems of care, and community...
Article
Full-text available
The Institute of Medicine has targeted patient-centeredness as an important area of quality improvement. A major dimension of patient-centeredness is respect for patient's values, preferences, and expressed needs. Yet specific approaches to gaining this understanding and translating it to quality care in the clinical setting are lacking. From a pat...
Article
Full-text available
In the US and beyond, a paradigm shift is underway toward community-based care, motivated by changes in policies, payment models and social norms. A significant aspect of this shift for disability activists and policy makers is ensuring participation in community life for individuals with disabilities living in residential homes. Despite a U.S. gov...
Article
Full-text available
Acquired brain injury (ABI) is a major global public health problem and source of disability. A major contributor to disability after severe ABI is limited access to multidisciplinary rehabilitation, despite evidence of sustained functional gains, improved quality of life, increased return-to-work, and reduced need for long-term care. A societal mo...
Article
Using photo-elicitation, 17 low-income, post-9/11 Veterans with children residing in/near Houston, TX shared experiences getting food to their table. Limited money, time, and disabilities challenged access to healthy meals. Limited resources decreased choice and control over what Veterans fed their children. Affordable, accessible food fell below n...
Article
Full-text available
Background: Research is needed to inform patient and provider decisions about how to best care for patients who go to the emergency department with complaints of chest pain when their symptoms are due to anxiety rather than a heart problem. However, this research may not be a high priority due, in part, to a lack of awareness for the severity of a...
Article
Interprofessional care is the standard for quality in healthcare. Interprofessional education (IPE) is an accreditation requirement in many health-care fields. This qualitative study evaluated the benefits of an interprofessional education program for Doctor of Physical Therapy (DPT) and Doctor of Pharmacy (PharmD) students in the context of a pro...
Poster
Full-text available
Objective: To gain an understanding of lived experience with brain injury. Design: Qualitative study. Setting: Outpatient rehabilitation and support group. Participants: 11 adult survivors of acquired brain injury living in the community. Intervention: Participants took photographs of their lives and talked about them with the researcher. Main Outc...
Article
Background: Few people with chronic moderate-to-severe brain injury are following recommended physical activity guidelines. Objective: Investigate effects of planned, systematic physical activity while cultivating social and emotional well-being of people with chronic moderate-to-severe brain injury. Hypothesis: Moderate-to-intensive physical...
Presentation
Full-text available
This workshop provides an update on (1) the science-base for community-based programming to maximize physical, cognitive, and social health of individuals with moderate-to-severe disabilities from brain injury; (2) outcomes used to measure benefits of participation in community-based programming; and (3) challenges and supports to program sustainab...
Presentation
Full-text available
Abstract: Background and Purpose Effects of high-intensity group exercise on the endurance, advanced mobility, and gait speed of adults with chronic severe acquired brain injury (ABI) living in brain injury group homes were investigated. In a subsequent qualitative study, supports and barriers related to participation in exercise from the perspecti...
Presentation
Full-text available
The Independent Research Study program at Brandeis University offers an excellent opportunity for undergraduate students to integrate academic learning with faculty sponsored field research to create a holistic and rigorous student faculty learning experience. We will describe and critically reflect on a specific example of this program in action d...
Article
Introduction: Ensuring knowledgeable, skilled HIV providers is challenged by rapid advances in the field, diversity of patients and providers, and the need to retain experienced providers while training new providers. These challenges highlight the need for education strategies, including training and clinical consultation to support translation o...
Data
Full-text available
Article
Background and purpose: Effects of high-intensity exercise on endurance, mobility and gait speed of adults with chronic moderate-to-severe acquired brain injury (ABI) were investigated. It was hypothesized that intensive exercise would be associated with improvements in impairment and activity limitation measures. Participants: Fourteen adults wi...
Presentation
Full-text available
Abstract: Learning Objectives - Following the workshop, participants will be able to: • Describe how a PBE research program can inform decision-making and quality of care; • Engage colleagues in discussing benefits, challenges, and strengths related to developing a PBE research program in their setting; • Identify ways to integrate PBE into local p...
Article
Acquired brain injury (ABI) is a major public health problem in Massachusetts (Hackman et al, 2014) and includes traumatic brain injury (TBI), stroke, ABI-related infectious diseases, metabolic disorders affecting the central nervous system (brain and spinal cord), and brain tumor. Advances in emergency medical care and neurosurgery mean that more...
Article
Objectives: To examine the effects of 3 types of low-cost financial incentives for patients, including a novel "person-centered" approach on breast cancer screening (mammogram) rates. Study design: Randomized controlled trial with 4 arms: 3 types of financial incentives ($15 gift card, entry into lottery for $250 gift card, and a person-centered...
Article
Primary objective: Brain injury survivors experience many transitions post-injury and it is important that they experience these in the most supportive and integrative ways possible. This study provided a group of chronic brain injury survivors the opportunity to share their insights and experience of residential transition and to suggest strategi...
Article
Review at: http://www.tandfonline.com/doi/abs/10.1080/1472586X.2015.1024514
Article
Acquiring a brain injury—whether from a blow or jolt to the head, stroke, tumor, or any one of a number of conditions that affect the brain—can have a devastating impact on an individual’s life and functioning, from cognitive processing in the brain itself, to one’s emotional, psychosocial, and physical well-being. Long-term impacts or disabilities...
Chapter
Book Chapter: Abstract: This paper on children in Army families is the first to examine objective, non-self-report, measures of all health care utilization inclusive of prescription medications among children experiencing the deployment of a parent. It employs a quasi-experimental, pre–post, non-equivalent group design to compare changes in pedia...
Conference Paper
Background. Screening for breast cancer with routine mammography can save lives, but many women do not obtain the screening. Financial incentives for patients hold promise as a way to improve screening rates. This study tested three types of modest financial incentives including a novel patient-choice option that we term person-centered incentives....
Chapter
This chapter describes using photovoice, a type of participatory action research, to generate visual and narrative data to spur action in a community. In Qualitative Research for the Social Sciences, M. Lichtman (Ed), Part-II The Qualitative Research Process Chapter 7, pp 173-178. Thousand Oaks: Sage Publications, Inc. ISBN: 9781412998642
Chapter
This chapter discusses participatory visual methods and their application in different social science research settings for the purpose of engaging individuals and communities in reflecting on and advocating for their subjective perspectives. We introduce the participatory visual methods photo interview and photovoice, which we have used in multi-...
Poster
To give voice to long-term acquired brain injury (ABI) survivor experiences moving to a fully-integrated, independent living model of housing with support services. Design: Qualitative research design Setting: Three community-based supported living residences in eastern Massachusetts. Participants: 21 residents who were at least two years-post acqu...
Article
Book Review: Imagining Illness: Public Health and Visual Culture. Visual Studies, Vol 28, Issue 1, 2013, Available Online Taylor & Francis DOI:10.1080/1472586X.2012.717768. PP. 102-103 Publication Date: 2013 Publication Name: Visual Studies
Article
This excellent book is the 20th volume of the Visible Evidence series published by the University of Minnesota Press. The author was parsimonious in his use of visuals, of which there are just 27 black and white photographs: 24 taken by the author during field work and in the United States while accompanying Bolivian indigenous filmmakers to screen...
Article
Book Review: A Field Guide to a New Meta-field: Bridging the Humanities-Neurosciences Divide. Visual Studies, Vol 28, Issue 1, 2013, Available Online Taylor & Francis DOI:10.1080/1472586X.2012.717769. PP. 95-96
Article
Although millions people of people are affected each year by brain injuries, what it is like to live with these injuries is often misunderstood. Laura Lorenz delves into the experience of acquired brain injury (ABI) survivors to reveal how they make sense of their changed circumstances - and how social policies and medical expectations can enhance,...
Book
Brain injury patients often face a lack of empathy that leads to feelings of being disrespected and powerless. This article explores the use of photo-elicitation as one way to generate empathy in research (and clinical) relationships with acquired brain injury survivors through a re-examination of the process and products of photo-elicitation resea...
Article
Brain injury can affect cognitive, emotional and physical functioning - consequences that pose challenges to understanding survivors' perspectives on their lives. Furthermore, the injury may be invisible, even clinically, causing additional confusion for affected individuals, family members, co-workers and clinicians. The present study used photovo...
Article
Acquired brain injury (ABI) is one example of the chronic conditions that people of varying socioeconomic status must bear. Concerns with identity and self are endemic to surviving brain injury. For this study, a brain tumor survivor injured 17 years earlier, took photographs of her life with brain injury and discussed them with other brain injury...
Poster
Abstract—ACRM 2009 Title: Brain Injury X-Posed: The Survivor’s View Author: Laura S. Lorenz, PhD, Brandeis University Objectives: To gain an understanding of the issues, concerns, and strengths of brain injury survivors living in the community Design: Action research using “photovoice,” for which researchers and participants co-create knowledge as...
Article
Objectives: To show how providing cameras to patients and community residents can be effective at involving the public in generating understanding of consumer, community, and health system problems and strengths. Background: Health-care institutions and systems may seek to include consumer perspectives on health and health care yet be challenge...
Article
This densely scholarly book is a thorough analysis of 50 photographs and their accompanying text produced by Norwegian evangelical missionaries working in Northern Cameroon from the early 1920s to the present day. The images and text serve as a venue for exploring the problematic power relationships between the North and the South, and between give...
Article
Full-text available
Writing up research that used photo-elicitation and narrative analysis methods with adult acquired brain injury survivors in the United States shows the influence of emotions on the processes both of healing from brain injury and of learning by the social science researcher. For three of the 11 brain injury survivors who participated in my study, I...
Article
Acquired brain injury (ABI) is one example of the chronic conditions that people of varying socioeconomic status must bear. Concerns with identity and self are endemic to surviving brain injury. For this study, a brain tumor survivor injured 17 years earlier, took photographs of her life with brain injury and discussed them with other brain injury...
Poster
Background: For quality and health care policy improvement efforts for rehabilitation from brain injury to be realistic and fair, they need to involve all stakeholders, including survivors, in analyzing the situation, exploring possibilities, and evaluating and learning from the policy development process. Failure to include the survivor’s perspect...
Poster
Rehabilitation professionals have long advocated for gaining an insider or patient perspective on living with disability, including brain injury. This poster will provide an overview of a photovoice project with eight members of the Amazing’ Brain Injury Survivor Support Group in Framingham, MA, with support from the Brain Injury Association of Mas...
Presentation
Full-text available
In an exploratory study into lived experience with traumatic brain injury, a survivor took photographs of living with her condition and the people and circumstances that have helped and slowed her recovery, and spoke with the author about her photographs. The analysis of her images and interview text used three narrative analysis methods—looking at...
Presentation
Full-text available
Traumatic brain injury (TBI) is a silent epidemic that affects at least 1.4 million people in the U.S. each year. An estimated 5.3 million Americans are living with disabilities resulting from TBI, and another 80,000 to 90,000 people join their numbers annually. Research that provides a deeper understanding of the patient’s perspective can provide...
Presentation
Full-text available
Abstract: Traumatic brain injury (TBI) is a serious problem affecting not only injured individuals but also their families and communities. The lived experience of people with TBI can inform peers, families, providers, and policymakers of issues related to living with this injury and facilitators and barriers to recovery from the patient’s perspect...
Article
Full-text available
Abstract Traumatic brain injury (TBI) is a serious public health problem in the U.S., with 1.4 million new injuries diagnosed each year, and 80,000 to 90,000 new long-term disabilities. The Institute of Medicine’s Quality Chasm report calls for providing patient-centeredcare that reflects patients’ values, preferences, and expressed needs. Yet brai...
Article
Full-text available
This photo elicitation study of lived experience with brain injury asked adult brain injury survivors to take photographs of living with brain injury from their perspective and talk about them with me. Their resulting visual narratives are evocative portrayals that resist current medical models for rehabilitation from brain injury, engage us in the...
Article
Full-text available
Making Visible the Invisible: Understanding Lived Experience with Acquired Brain Injury through Visual Illness Narratives A Dissertation Presented to the Faculty of the Heller School of Social Policy and Management, Brandeis University, Waltham by Laura S. Lorenz Quality of care for acquired brain injury (ABI) patients is a global issue, and th...
Article
Full-text available
Introduction: Traumatic brain injury (TBI) is a silent epidemic that affects at least 1.4 million people in the U.S. each year. An estimated 5.3 million Americans are living with disabilities resulting from TBI, and another 80,000 to 90,000 people join their numbers annually (Langlois et al, 2005). Research that provides a deeper understanding of t...

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