Kristian Pollock

Kristian Pollock
University of Nottingham | Notts · School of Health Sciences

PhD

About

178
Publications
27,186
Reads
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3,621
Citations
Citations since 2016
107 Research Items
2236 Citations
20162017201820192020202120220100200300400500
20162017201820192020202120220100200300400500
20162017201820192020202120220100200300400500
20162017201820192020202120220100200300400500
Additional affiliations
January 2005 - present
University of Nottingham
Position
  • Professor
Description
  • http://www.nottingham.ac.uk/research/groups/srcc/index.aspx http://www.nottingham.ac.uk/research/groups/srcc/people/kristian.pollock

Publications

Publications (178)
Article
Full-text available
Talking about death and dying is promoted in UK health policy and practice, from a perception that to do so encourages people to plan for their end of life and so increase their likelihood of experiencing a good death. This encouragement occurs alongside a belief that members of the public are reluctant to talk about death, although surveys suggest...
Article
Full-text available
This paper explores how people enact and experience the deathbed vigil when someone close to them is dying. It draws on qualitative interviews with 34 bereaved people carried out as part of a wider study exploring public perceptions of death and dying. Participants were aware of the expectation that they would attend the deathbed and did their best...
Article
Full-text available
Objective: Clinicians' fears of taking away patients' hope is one of the barriers to advance care planning (ACP). Research on how ACP supports hope is scarce. We have taken up the challenge to specify ways in which ACP conversations may potentially support hope. Methods: In an international qualitative study, we explored ACP experiences of patie...
Article
Advance Care Planning (ACP) is widely regarded as a component of good end-of-life care. However, findings from a qualitative international study of patient and family caregiver attitudes and preferences regarding ACP highlight participants’ ambivalence towards confronting the future and the factors underlying their motivation to accept or defer ant...
Article
Full-text available
Mental health ‘recovery narratives’ are increasingly used within teaching, learning and practice environments. The mainstreaming of their use has been critiqued by scholars and activists as a co-option of lived experience for organisational purposes. But how people report their experiences of telling their stories has not been investigated at scale...
Article
Full-text available
Background The ACTION trial evaluated the effect of a modified version of the Respecting Choices´ advance care planning programme in patients with advanced cancer in six European countries. For this purpose, an advance directive acceptable for all six ACTION countries to be used for documenting the wishes and preferences of patients and as a commun...
Article
Background Controlled drugs (CDs) such as opioids and midazolam are commonly used in end-of-life care symptom management for care home residents. Aim To review the published evidence concerning the prescribing, storage, use and disposal of CDs for end-of-life care for care home residents in the UK. Design Systematic review and narrative synthesis...
Article
Background: End-of-life decisions for companion animals can be stressful for veterinarians and owners, and when delayed result in poor animal welfare. Delayed euthanasia has been identified as a particularly prominent issue for horses. This scoping review aimed to identify the available literature on veterinary decision-making models, which can su...
Conference Paper
Background The prescription of injectable anticipatory medications (AMs) is a common community-based end-of-life care intervention. Practice is largely based on clinicians’ beliefs that the availability of AMs in the patient’s home offers reassurance to all involved and effective control of symptoms. Patients and informal caregivers’ views and expe...
Conference Paper
Background There is inequity in the palliative and end of life outcomes for people from minority ethnic backgrounds. Some of this may relate to the practices of health care professionals. We have developed an evidence based training resource to enhance confidence and competence in providing this care. This is part of a wider NIHR funded study explo...
Article
Background Families and professionals caring for children with life-limiting conditions face difficult healthcare decisions. Shared decision-making is promoted in many countries, however little is known about factors influencing these processes. Aim To explore the communication strategies used in shared decision-making for children with life-limit...
Article
Purpose The impact of population ageing is significant, multifaceted and characterised by frailty and multi-morbidity. The COVID-19 pandemic has accelerated care pathways and policies promoting self-management and home-based care. One under-researched area is how patients and family caregivers manage the complexity of end-of-life therapeutic medici...
Article
Full-text available
Background People with advanced cancer often suffer from various symptoms, which can arise from the cancer itself and its treatment, the illness experience, and/or co-morbid conditions. Important patient-reported outcomes such as functional status, symptom severity, and quality of life (QoL) might differ between countries, as countries vary with re...
Preprint
Full-text available
Purpose: Clinicians’ fears of taking away patients’ hope is one of the barriers to advance care planning (ACP). Barriers to ACP were extensively studied, however, research on how advance care planning potentially supports hope is scarce. The concept of hope in the terminally ill is context-specific and difficult to operationalize. This study aimed...
Article
Full-text available
Background Anticipatory medications are injectable drugs prescribed ahead of possible need for administration if distressing symptoms arise in the final days of life. Little is known about how they are prescribed in primary care. Aim To investigate the frequency, timing and recorded circumstances of anticipatory medications prescribing for patient...
Article
Full-text available
Background More effective ways of managing symptoms of chronic and terminal illness enable patients to be cared for, and to die, at home. This requires patients and family caregivers to manage complex medicines regimens, including powerful painkillers that can have serious side effects. Little is known about how patients and family caregivers manag...
Article
Full-text available
Background Managing medications can impose difficulties for patients and families which may intensify towards the end of life. Family caregivers are often assumed to be willing and able to support patients with medications, yet little is known about the challenges they experience or how they cope with these. Aim To explore patient and family careg...
Article
Full-text available
Objective: The aim of this study was to investigate how curator goals influence the design of curation processes for collections of mental health lived experience narratives. The objectives were (1) to characterize the goals of a range of curators of existing collections, and (2) to identify specific working practices impacted by these goals. Res...
Article
Background: The internet enables sharing of narratives about health concerns on a substantial scale, and some digital health narratives have been integrated into digital health interventions. Narratives describing recovery from health problems are a focus of research, including those presented in recorded (eg, invariant) form. No clinical trial ha...
Article
Full-text available
Background Institutional injustice refers to structures that create disparities in resources, opportunities and representation. Marginalised people experience institutional injustice, inequalities and discrimination through intersecting personal characteristics and social circumstances. This study aimed to investigate sources of institutional injus...
Article
Anticipatory prescribing (AP) of injectable medications to manage common symptoms experienced at the end of life (EoL) is recommended practice (National Institute for Health and Care Excellence (NICE), 2015). AP was initially developed to fix healthcare workflow difficulties and enable ready access to medications, especially during out-of-hours per...
Preprint
Full-text available
Background: Anticipatory medications are injectable drugs prescribed ahead of possible need for administration if distressing symptoms arise in the final days of life. Little is known about how they are prescribed in primary care. Aim: To investigate the frequency, timing and recorded circumstances of anticipatory medications prescribing for patie...
Conference Paper
Full-text available
Background Anticipatory medications (AMs) are injectable drugs prescribed to a named patient, ahead of possible need, for administration if distressing symptoms arise in the final days of life. Little is known about how and when drugs are prescribed in primary care. Aim To investigate the frequency, timing and recorded circumstances of injectable...
Article
Full-text available
We welcome the Association of Supportive and Palliative Care Pharmacy’s (ASPCP) recent position statement that the perceived benefit of the anticipatory prescribing of a syringe pump (driver) does not outweigh potential risks. This is an area of practice which has needed clear national guidance for some time. Population-level information is lackin...
Article
Full-text available
Background: Caring for someone with dementia is associated with negative and positive experiences. There is little evidence based on large datasets. Objective: To present data around the experience of caring for someone with dementia, to identify support (emotional and practical) needs, and inform future service provision. Methods: A mixed-met...
Article
Full-text available
Background Advance care planning (ACP) supports individuals to define, discuss, and record goals and preferences for future medical treatment and care. Despite being internationally recommended, randomised clinical trials of ACP in patients with advanced cancer are scarce. Methods and findings To test the implementation of ACP in patients with adv...
Article
Full-text available
Full text open access BJGP Life link: https://bjgplife.com/2020/11/02/unintended-consequences-of-rapid-changes-in-community-palliative-care-practice/ Community palliative care delivery is changing dramatically in response to the Covid-19 pandemic, especially in several of the worst affected countries. (1, 2) In the UK, phone and video end-of-life...
Article
Full-text available
Background: Recorded Recovery Narratives (RRNs) describing first-person lived experience accounts of recovery from mental health problems are becoming more available. Little is known about how RRNs can be used in clinical practice and clinical education. Aims: The aim of this paper is to enable implementation planning for RRN interventions by ident...
Preprint
BACKGROUND The internet enables sharing of narratives about health concerns on a substantial scale, and some digital health narratives have been integrated into digital health interventions. Narratives describing recovery from health problems are a focus of research, including those presented in recorded (eg, invariant) form. No clinical trial has...
Article
Background: Collections of lived experience narratives are increasingly used in health research and medical practice. However, there is limited research with respect to the decision-making processes involved in curating narrative collections and the work that curators do as they build and publish collections. Objective: This study aims to develo...
Article
Full-text available
Background: GPs have a central role in decisions about prescribing anticipatory medications to help control symptoms at the end of life. Little is known about GPs' decision-making processes in prescribing anticipatory medications, how they discuss this with patients and families, or the subsequent use of prescribed drugs. Aim: To explore GPs' de...
Article
Full-text available
Introduction. The PrAISED Randomised Controlled Trial (RCT) is evaluating a home-based, face-to-face, individually tailored, activity and exercise programme for people living with dementia. Social distancing requirements following the COVID-19 pandemic necessitated rapid changes to intervention delivery. Methods and analysis. A mixed methods proce...
Article
Full-text available
Background: Mental health recovery narratives have been defined as first-person lived experience accounts of recovery from mental health problems which refer to events or actions over a period of time and which include elements of adversity or struggle, and also self-defined strengths, successes or survival. They are readily available in invariant...
Article
Full-text available
Background: The management of medicines towards the end of life can place increasing burdens and responsibilities on patients and families. This has received little attention yet it can be a source of great difficulty and distress patients and families. Dose administration aids can be useful for some patients but there is no evidence for their wid...
Article
Full-text available
Patient and public involvement (PPI) in research has become expected practice by funders and Research Ethics Committees. (1-3) Working with public contributors from the outset in designing and undertaking patient-related research aims to ensure that the focus is relevant to and grounded in their lived experiences. (4) Despite sustained UK research...
Article
Full-text available
Open access BMJ full text available at: https://www.bmj.com/content/369/bmj.m1615 Doctors, nurses, and family caregivers worldwide are facing tough decisions concerning the supply and administration of medications to manage symptoms when patients are dying from covid-19 or other conditions in the community or care homes. Proposed changes in practi...
Article
In the current ecology of care, social, rather than medical, support is critical in enabling frail older people to live at home. This paper reports findings from a qualitative study about how home care workers (HCWs) support persons with dementia living in the community. Semi-structured qualitative interviews were carried out in England with 14 fam...
Preprint
Full-text available
Background: The management of medicines towards the end of life can place increasing burdens and responsibilities on patients and families. This has received little attention yet can be a source of great difficulty and distress patients and families. Dose administration aids can be useful for some patients but there is no evidence for their wide sp...
Article
Full-text available
Purpose Narratives of recovery have been central to the development of the recovery approach in mental health. However, there has been a lack of clarity around definitions. A recent conceptual framework characterised recovery narratives based on a systematic review and narrative synthesis of existing literature, but was based on a limited sample. T...
Conference Paper
Full-text available
Background Anticipatory medications (AMs) are injectable drugs prescribed to a named patient, ahead of likely clinical need, for administration by visiting General Practitioners (GPs) and Community Nurses if symptoms arise in the final days of life. While the prescribing of AMs is recommended best practice in the UK, little is known about how they...
Article
Full-text available
Background. Patient and Public Involvement (PPI) in research ensures that publicly funded research reflects the priorities of the people who will be affected by its results. Co-research, a branch of PPI, is equal partnership between academic researchers and members of the public, who steer and conduct research together. Objectives. To propose a m...
Article
Full-text available
Physical activity is beneficial for people with dementia. We previously developed a theoretical model to explain behaviour change in physical activity in dementia. This study aimed to externally validate the model. Validation occurred through the process evaluation of a programme promoting activity in people with dementia (PrAISED 2). Twenty partic...
Preprint
Full-text available
Background: The management of medicines towards the end of life can place increasing burdens and responsibilities on patients and families. This has received little attention yet it can be a source of great difficulty and distress patients and families. Dose administration aids can be useful for some patients but there is no evidence for their wide...
Article
Full-text available
Background: People with dementia progressively lose cognitive and functional abilities. Interventions promoting exercise and activity may slow decline. We developed a novel intervention to promote activity, independence and prevent falls in people with Mild Cognitive Impairment (MCI) or early dementia. We successfully undertook a feasibility random...
Article
Full-text available
Background: Mental health recovery narratives are a core component of recovery-oriented interventions such as peer support and anti-stigma campaigns. A substantial number of recorded recovery narratives are now publicly available online in different modalities and in published books. Whilst the benefits of telling one’s story have been investigated...
Article
Introduction The 'Promoting Activity, Independence and Stability in early dementia and cognitive impairment' (PrAISED 2) is a randomised controlled trial testing the effectiveness of an exercise and physical activity programme for people with mild cognitive impairment and early dementia. Parallel to the trial, our team is conducting a process evalu...
Article
Full-text available
Background: Mental health recovery narratives are stories of recovery from mental health problems. Narratives may impact in helpful and harmful ways on those who receive them. The objective of this paper is to develop a change model identifying the range of possible impacts and how they occur. Method: Semi-structured interviews were conducted wi...
Poster
Introduction. At a time when clinical research funders are seeking greater evidence of Patient and Public Involvement (PPI) in dementia research, still little is known about the practical implications of carrying out co-research alongside experts by lived experience in this field. We aim to report the experience of academic researchers and PPI memb...
Poster
Introduction. We are conducting a randomised controlled trial (Promoting Activity, Independence and Stability in Early Dementia and Mild Cognitive Impairment - PrAISED 2) to test the effectiveness of an intervention to promote activity and independence amongst people with mild cognitive impairment and early dementia. A process evaluation is needed...
Article
Full-text available
Background: In oncology, Health Care Professionals often experience conducting Advance Care Planning (ACP) conversations as difficult and are hesitant to start them. A structured approach could help to overcome this. In the ACTION trial, a Phase III multi-center cluster-randomized clinical trial in six European countries (Belgium, Denmark, Italy,...
Conference Paper
Background The ACTION trial evaluates the effect of the ACTION Respecting Choices (RC) advance care planning (ACP) intervention in patients with advanced cancer in six European countries. Systematic evaluations of such ACP conversations by facilitators are currently lacking. We developed and applied a 10-item facilitator-reported instrument. Metho...
Conference Paper
Background Systematic evaluation of health care use and costs is important to identify the impact of advance care planning (ACP) programs. Such evaluations are currently scarce in Europe. Methods Our study was performed in the context of the ACTION trial, a randomized controlled study to evaluate effects of the ACTION Respecting Choices (RC) ACP i...
Preprint
Full-text available
Background: The management of medicines towards the end of life can place increasing burdens and responsibilities on patients and families. This has received little attention yet it can be a source of great difficulty and distress patients and families. Dose administration aids can be useful for some patients but there is no evidence for their wide...
Article
Full-text available
Background: Patients belonging to marginalised (medically under-served) groups experience problems with medicines (i.e. non-adherence, side effects) and poorer health outcomes largely due to inequitable access to healthcare (arising from poor governance, cultural exclusion etc.). In order to promote service equity and outcomes for patients, the fo...
Article
Full-text available
This article reports on the use of an innovative reflective diary method with paid home care workers caring for people with dementia. It examines the key features of the diary design, recruitment and training of participants, diarists’ approaches and responses to diary-keeping, and evaluates the use of diaries in this context. Following training, 1...
Conference Paper
Full-text available
Background General Practitioners (GPs) have a central role in decisions about prescribing anticipatory medications (AMs) to help control symptoms at the end of life. (Faull, et al. 2013) Little is known about GPs’ decision-making processes in prescribing AMs and the subsequent use of prescribed drugs. Aim To explore GPs decision-making processes i...
Preprint
BACKGROUND Collections of lived experience narratives are increasingly used in health research and medical practice. However, there is limited research with respect to the decision-making processes involved in curating narrative collections and the work that curators do as they build and publish collections. OBJECTIVE This study aims to develop a...
Article
Full-text available
Objectives People who are marginalised (medically underserved) experience significant health disparities and their voices are often ‘seldom heard’. Interventions to improve professional awareness and engagement with these groups are urgently needed. This study uses a co-production approach to develop an online digital educational intervention in or...
Preprint
Background: The management of medicines towards the end of life can place increasing burdens and responsibilities on patients and families. This has received little attention yet it can be a source of great difficulty and distress patients and families. Dose administration aids can be useful for some patients but there is no evidence for their wide...