Khadidja Chougui

Université de Montréal | UdeM · Department of Psychology

BACKGROUND Innovative approaches are needed to address the self-management needs of youth with osteogenesis imperfecta (OI) transitioning into adult-oriented health care systems. Using a sequentially phased research approach, the goal is to design, develop, and test the usability of an innovative e-health program called “Teens Taking Charge”: Manag...

Background: Innovative approaches are needed to address the self-management needs of youths with osteogenesis imperfecta (OI) transitioning into adult-oriented health care systems. Using a sequentially phased research approach, the goal is to design, develop, and test the usability of an innovative eHealth program called “Teens Taking Charge: Manag...

Background Serious ethical problems have been anecdotally identified in the care of children with osteogenesis imperfecta (OI), which may negatively impact their moral experiences, defined as their sense of fulfillment towards personal values and beliefs. Research aims To explore children’s actual and desired participation in discussions, decision...

Background: A three-phase ethnography was conducted at a paediatric orthopaedic hospital exploring the actual and desired participation of children with Osteogenesis Imperfecta in discussions, decisions and actions in the hospital and community. Phase I and Phase II revealed how childhood ethics are understood and practiced in the hospital using a...

Aims To examine the efficacy of an immersive virtual reality distraction compared with an active non‐immersive distraction, such as video games on a tablet, for pain and anxiety management and memory of pain and anxiety in children requiring percutaneous bone pins and/or suture removal procedures. Design Three‐centre randomized clinical trial usin...

The cover image © Shriners Hospitals for Children‐Canada is based on the Original Article The day‐to‐day experiences of caring for children with Osteogenesis Imperfecta: A qualitative descriptive study by Aimee Castro, Argerie Tsimicalis et al.,https://doi.org/10.1111/jocn.15310..

Aims and objectives This study aimed to explore the day‐to‐day experiences of family caregivers who are caring for children with Osteogenesis Imperfecta (OI). Background OI is a rare genetic condition known to cause bone fragility. Family caregivers of children with OI play an important role in helping these children live well at home. Design A q...

Osteogenesis imperfecta (OI) is a rare genetic disorder of the bones caused by a mutation in Type I collagen genes. As adults with OI are aging, medical concerns secondary to OI may arise. This integrative review sought to review, appraise, and synthesize the clinical manifestations faced by adults with OI. Four electronic bibliographic databases w...

Objectives: Family caregivers of children with chronic and complex conditions like OI play a critical role in helping these children thrive at home in the community. A few quantitative studies suggest that caregivers of children with OI may score lower in certain domains of quality of life, but there is limited qualitative research addressing the d...

Pdf of preprint available on MedRxiv: https://www.medrxiv.org/content/medrxiv/early/2019/10/05/19007187.full.pdf Purpose: Osteogenesis Imperfecta (OI) is a rare genetic condition known to cause bone fragility. Family caregivers, such as parents, of children with OI play an important role in helping these children live well at home. This study aime...

Preprint pdf available at: https://nursing.jmir.org/preprint/15924/submitted BACKGROUND Osteogenesis imperfecta (OI) is a rare genetic condition that can lead to frequent debilitating bone fractures. Family caregivers of children with OI face many challenges in providing care, which may include lacking access to information about the condition, fe...

Background: Osteogenesis imperfecta (OI) is a rare genetic condition that can lead to frequent debilitating bone fractures. Family caregivers of children with OI face unique challenges in providing care, which may include limited access to information about the condition, feelings of distress, and experiences of social isolation. Internet-based te...

Purpose: The aims of this study were (1) to review the current body of knowledge on the transition experiences of adolescents with osteogenesis imperfecta (OI) and appraise the evidence available on transfer summary tools, (2) to develop guidelines for the successful transition of adolescents with OI from child to adult healthcare services, and (3...

Background: Pain is a common symptom of osteogenesis imperfecta (OI) among children and adolescents. However, little is currently known of the pain experiences of adults with OI. Aims: To critically appraise the studies assessing OI pain, to synthesize the pain experiences of adults with OI, and to compare the adult OI pain experiences to childhood...