Julia Wager

Julia Wager
Universität Witten/Herdecke · Vestische Kinder- und Jugendklinik Datteln, Universität Witten / Herdecke

PhD

About

137
Publications
8,764
Reads
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1,453
Citations
Citations since 2016
102 Research Items
1215 Citations
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2016201720182019202020212022050100150200250
2016201720182019202020212022050100150200250
2016201720182019202020212022050100150200250
Introduction
Julia Wager is a pediatric psycholgist. She works at the German Paediatric Pain Center, Children's and Adolescents' Hospital Datteln, University Witten / Herdecke. Julia does research on pediatric pain and pediatric palliative care. Her main focus is clinical research and health service research.
Additional affiliations
June 2009 - present
Universität Witten/Herdecke
Position
  • Researcher

Publications

Publications (137)
Article
Full-text available
In children with life-limiting conditions and severe neurological impairment receiving pediatric palliative care (PPC), the degree to which actigraphy generates meaningful sleep data is uncertain. Benchmarked against the gold standard polysomnography (PSG), the applicability of actigraphy in this complex population was to be assessed. An actigraph...
Article
Full-text available
Background For children with life-limiting conditions home care is a key component of pediatric palliative care. However, poor information is available on service coverage and in particular on country-specific pediatric palliative home care characteristics. The aim of the study was therefore to describe the association between pediatric palliative...
Article
Background: For pediatric chronic pain patients, intensive interdisciplinary pain treatment (IIPT) is a well-established treatment. The treatment's short-term effectiveness can be improved by an additive psychosocial aftercare (PAC). However, neither the program's long-term effectiveness nor the patients in particular need have been investigated y...
Article
Full-text available
Aim: Multidrug-resistant organisms (MDRO) deserve special attention in health-care facilities for children with life-limiting conditions because these children have an increased risk for colonisation. To avoid nosocomial transmissions to other inpatients, single-room isolation is usually recommended. In the context of paediatric palliative care (P...
Article
Full-text available
Purpose Fatigue is a common symptom in children and adolescents. Its negative impact on health outcomes is even more pronounced in those with chronic pain. There is currently no fatigue measurement tool in German that is validated for both children and adolescents with and without chronic pain. Therefore, this study aimed to gather quantitative val...
Article
Background In pediatric palliative care, irritability of unknown origin (IUO) in children with severe neurological impairment is a peculiarly complex and challenging symptom, yet its etiology remains poorly understood. Measures A structured IUO diagnostic and therapeutic approach developed in a specialized inpatient pediatric palliative care facil...
Article
Full-text available
According to international studies, children and adolescents with disabilities have more tooth decay, brush their teeth less often twice a day and use preventive dental services less often than children and adolescents without disabilities. With data from the second follow-up to the German Health Interview and Examination Survey for Children and Ad...
Article
Full-text available
Laut internationalen Studien haben Kinder und Jugendliche mit Behinderungen häufiger Karies, putzen seltener zweimal am Tag die Zähne und nehmen seltener zahnärztliche präventive Leistungen in Anspruch als Kinder und Jugendliche ohne Behinderungen. Mit Daten der zweiten Folgeerhebung der Studie zur Gesundheit von Kindern und Jugendlichen in Deutsch...
Article
Chronic non-cancer pain in children and adolescents can be impairing and results in substantial health care costs. Intensive Interdisciplinary Pain Treatment (IIPT), an inpatient or day hospital treatment delivered by a team of three or more health professionals, may be an effective intervention for these children and adolescents. Based on previous...
Article
Full-text available
Using a structured approach and expert consensus, we developed an evidence-based guideline on the treatment and prevention of non-specific back pain in children and adolescents. A comprehensive and systematic literature search identified relevant guidelines and studies. Based on the findings of this literature search, recommendations on treatment a...
Article
Full-text available
A newly developed specialized psychosocial aftercare program (PAC) for pediatric patients with chronic pain following an intensive interdisciplinary pain treatment (IIPT) was found to be significantly more effective than IIPT alone. This qualitative study aimed to gain further insight into the mechanisms and prerequisites for the effectiveness of t...
Article
Full-text available
Using a structured approach and expert consensus, we developed an evidence-based guideline on the diagnosis of back pain and the treatment of non-specific back pain in children and adolescents. The first part comprises etiology, risk factors, and diagnosis. The second part, published in the same issue, includes treatment and prevention. A comprehen...
Article
Background: Young adults find themselves in an unstable phase of life with relationship breaks, falling structures and great challenges in life. Chronic pain makes it difficult to cope with this stage of life due to functional, emotional and social limitations. For this age group there are hardly any target group-specific treatment programs. Obje...
Chapter
Unser klinisches Handeln basiert vor allem auf zwei Aspekten; erstens auf theoretischem Wissen über Erkrankungen und Therapien und zweitens auf erfahrungsbasiertem Wissen, das wir im Wesentlichen durch praktische Erfahrung im Berufsalltag erwerben. Erfahrungsbasiertes Wissen folgt keiner stringenten Systematik, sondern wird vielmehr durch unterschi...
Article
Full-text available
Outcome measurement in pediatric palliative care (PPC) is receiving increasing attention. The FACETS-OF-PPC, a multidimensional outcome measure for children with severe neurological impairment, has been developed and partly validated. This study aimed to conclude the validity of the German version of the FACETS-OF-PPC. A multicenter prospective stu...
Presentation
Hintergrund: Aktuell existiert keine EPA für die SAPPV, welche den Besonderheiten des Settings umfänglich gerecht wird. In der partizipativen Softwareentwicklung besteht die Herausforderung, die individuellen Bedürfnisse und Bedarfe von Nutzer*innen in technische Anforderungen zu übersetzen. Ein verbreitetes Konzept in agilen Softwareprojekten ist...
Article
Full-text available
Importance Severe chronic pediatric pain causes individual suffering and significantly affects social functioning and psychological well-being. For children with high pain severity, intensive interdisciplinary pain treatment (IIPT) is a well-established treatment. However, across specialized centers, it is not sufficient for all patients. Objectiv...
Article
Full-text available
Cerebral palsy (CP) represents the most common motor impairment in childhood. The presence of sleep problems has not yet been investigated with an instrument specifically designed for this population. In this hospital-based, prospective study, N = 100 children (M = 7.9, range: 2–18 years) with CP were included. All patients underwent pediatric neur...
Article
Purpose The current longitudinal observational study aimed to explore how chronic pain among schoolchildren changed before and during the COVID-19 pandemic, and how changes in chronic pain were related to changes in psychological wellbeing and COVID-19-related experiences. Methods Data were collected from N = 777 German schoolchildren (aged 9–17 y...
Article
Objective The combination of parental chronic pain and internalizing characteristics are relevant to chronic pain experiences in their children. A promising unified multifactorial intergenerational model of chronic pain was published in 2019; however, this model was only generalizable to children with severe chronic pain and some factors had limita...
Article
Background and objectivesRecurrent pain in childhood and adolescence is a common health problem. Pediatricians are usually the patients’ first contact person. The current study investigated patients’ and parents’ expectations when consulting a pediatrician and their rating of the treatment.Materials and methodsIn 36 pediatric practices, 224 patient...
Article
Full-text available
Objective Chronic pain in children and adolescents gives rise to high health care costs. Successful treatment is supposed to reduce the economic burden. The objective of this study was to determine the changes in health care utilization and expenditures from one year before (Pre) intensive interdisciplinary pain treatment (IIPT) to the first (Post...
Article
Full-text available
Background: Chronic pain in children is a serious issue, therefore calling for effective prevention/intervention measures. This study aimed to evaluate the efficacy of an educational movie on pain knowledge in school children in general and on pain-related behaviours and pain intensity in those who are affected by chronic pain. Regarding those aff...
Article
Full-text available
Much of the adult chronic pain literature addresses pain in typical pain cohorts of middle-aged to older individuals. To date, little research has focused on chronic pain in younger adults, who likely have a completely different pain experience. This scoping review aimed to address this gap by describing the emerging adult (18–29 years) chronic pai...
Article
Full-text available
Background: Currently, to the best of our knowledge, no findings exist concerning the needs of professionals in specialized pediatric palliative care (PPC) regarding electronic health records (EHRs). Several studies have highlighted benefits concerning the use of EHRs in pediatrics. However, usability is strongly affected by the degree of adaptivi...
Article
Full-text available
More than one-third of adolescents experience recurrent headaches. Usually, these headaches are of primary origin and modulated by different biological and psychosocial factors. While parents are often consulted in scientific research and medical care about the nature of their child’s headache, it is unclear to what extent parents and their childre...
Article
Full-text available
Pediatric chronic headache causes significant impairment to those affected and bears the risk of aggravation into adulthood. Intensive interdisciplinary pain treatment (IIPT) was found to positively affect pain-related and emotional outcomes in pediatric patients with chronic pain up to 4 years after treatment. This study was aimed at investigating...
Article
Full-text available
Background Findings on the short‐ and long‐term effectiveness of intensive interdisciplinary pain treatment (IIPT) for children with severe chronic functional pain are promising. However, a definitive appraisal of long‐term effectiveness cannot be made due to a lack of comparison groups. The aim of the present study was to compare the health status...
Article
Full-text available
Paroxysmal Hemicrania is a rare form of primary headache in children and adolescents, belonging to the group of trigeminal autonomic cephalalgias. Patients suffer from severe, short-lasting unilateral headaches accompanied by symptoms of the autonomic system on the same side of the head. The short duration of attacks distinguishes Paroxysmal Hemicr...
Article
Full-text available
Background Children with life-limiting conditions have a high risk of colonisation with a multidrug-resistant organism (MDRO). To avoid the spread of hospital-aquired infections to other patients, children with a MDRO are moved to an isolated room or ward. However, such isolation prevents social participation, which may reduce the child's quality o...
Article
Objective Sleep problems are common in children and adolescents with chronic pain. The revised Adolescent Sleep–Wake Scale (rASWS) is an internationally well-established instrument to assess sleep quality in adolescents. So far, no German version is available. The study aimed to provide a validated German version of the rASWS, specifically for use...
Article
Full-text available
Currently, no concrete figures on sleep disorders and sleep characteristics in children and adolescents with life-limiting conditions (LLC) and severe neurological impairment (SNI) based on pediatric palliative care professionals’ assessment and following an official classification system such as the International Classification of Sleep Disorders...
Article
Full-text available
Background Comprehensive outcome measurement in pediatric palliative care focusing on the entire unit of care, that is, the affected child and its family, is crucial to depict treatment effects. Despite its increasing relevance, no appropriate multidimensional outcome measures exist for the largest patient group in this field, namely children with...
Article
Full-text available
Zusammenfassung Hintergrund und Ziel der Arbeit Bei der Behandlung chronischer funktioneller Schmerzen im Kindes- und Jugendalter nimmt international sowohl die Anzahl an diagnostischen und therapeutischen Maßnahmen als auch ihre Invasivität zu. Studienziel ist die Erforschung der vor Beginn einer spezialisierten stationären Schmerztherapie durchg...
Article
Objectives: Prevalence estimates of severe chronic pain in pediatric community samples are rare and inconclusive. This study aimed to (1) examine the prevalence of chronic pain severity grades in school children and (2) investigate differences between pain severity grades for pain-related characteristics, including pain locations, sociodemographic...
Article
Background: Multidrug-resistant organisms (MDROs) are an important health care issue. Patients in Western societies often present an increased morbidity of chronic conditions accompanied by poor immune status and the use of devices. In particular, patients in palliative care (PC) are at greater risk of MDRO colonization, due to accompanying special...
Presentation
Das Einbeziehen von Nutzer*innen in die Softwareentwicklung mittels Co-Design ermöglicht individuelle kreative Lösungen, die an die Bedürfnisse der Nutzer*innen angepasst sind [1]. Im Rahmen der Entwicklung einer elektronischen Patient*innenakte (EPA) in der stationären pädiatrischen Palliativversorgung wurde daher Co-Design als methodisches Vorgeh...
Poster
Lebenslimitiert erkrankte Kinder und Jugendliche benötigen oft jahrelange pädiatrische Palliativversorgung (PPV), die durch häufige Sektorenwechsel gekennzeichnet ist. Bislang erfolgt die interprofessionelle, sektorenübergreifende Kommunikation zumeist analog und ist dadurch verzögert und fehleranfällig. Durch die Anwendung elektronischer Patient*i...
Article
Full-text available
Background: Although pediatric chronic pain is common, it is not yet clear which individuals with chronic pain are likely to seek health care for their pain. The aims of this study were to summarize the current evidence of characteristics of children and adolescents with chronic pain who consult a physician or use medication for their pain. Additi...
Article
Parents with chronic pain have a higher likelihood of having depression and anxiety and more often have children with these conditions. Depressive and anxious symptoms in children worsen pain-related disability and may be derived from exposure to their parents' symptoms. We assessed a model of intergenerational chronic pain-related disability that...
Article
Full-text available
To date, there are no specific figures on the language-related characteristics of families receiving pediatric palliative care. This study aims to gain insights into the languages spoken by parents, their local language skills and the consistency of professional assessments on these aspects. Using an adapted version of the “Common European Framewor...
Conference Paper
Fragestellung Welche Anforderungen haben Nutzer*innen an eine EPA in der PP? Studiendesign Qualitative Fokusgruppeninterviews als Grundlage für Co-Design1 Methodik Es wurden zwei Fokusgruppeninterviews (FG) mit je fünf bzw. vier Pflegenden einer Kinderpalliativstation geführt. Die FG wurden digital aufgezeichnet, transkribiert und inhaltsanaly...
Article
Full-text available
The Pain Stages of Change Questionnaire (PSOCQ) measures patients’ willingness to engage in active self-management of their pain. The present study aimed to create validated German short versions of the PSOCQ for adolescents (PSOCQ-A) and their parents (PSOCQ-P). Additionally, an investigation of stages of change regarding pain characteristics and...
Article
Objective: Despite high comorbidity between posttraumatic stress disorder (PTSD) and chronic pain evident in adult populations, little research has been conducted in the pediatric population to assess this association. Therefore, this study aimed to estimate the prevalence of trauma and PTSD in pediatric patients with chronic pain. Additionally, i...
Article
Full-text available
Aim: Nosocomial infections (NIs) and multidrug resistant (MDR) pathogens are an important paediatric healthcare issue. In vulnerable patients such as children with life-limiting conditions, MDR infections can be life-threatening. Additionally, these children have a significantly increased risk for colonisation with MDR pathogens. Therefore, it is v...
Article
Full-text available
Living with bandages: a mixed-methods-study on the view of families of children with epidermolysis bullosa Abstract.Background: Children with epidermolysis bullosa (EB) often need new bandages regularly due to sore skin and blistering. Aim: The question about the experiences of parents and children affected by EB with dressing materials is intended...
Article
Background Chronic pain is a frequent and disabling health problem in children and adolescents and is associated with high health care utilization and costs.Objective The aim of this study was to analyze the direct and indirect costs of chronic pain in children and adolescents in monetary terms before and after multimodal pain therapy from a societ...
Article
Background Epidermolysis bullosa (EB) is a rare genetic disease that soon becomes apparent after a child’s birth. Mechanical stress in particular causes painful skin-blistering that potentially leads to numerous complications. Dressing materials fulfill important functions for children with EB: they help protect the skin, but create problems at the...
Article
Background: Chronic pain is a common issue in adolescents. Prevalence of pain and associated factors present differently in sex and age subgroups, however, the interaction of sex and age combined has not been thoroughly assessed. This study aimed to identify psychosocial and health factors associated with chronic pain in younger and older adolesce...
Article
Background The interest in outcome measurement in pediatric palliative care is rising. To date, the majority of studies investigating relevant outcomes of pediatric palliative care focus on children with cancer. Insight is lacking, however, about relevant outcome domains for children with severe neurological impairment and their families. Aim Th...
Article
Background: Multidrug resistant pathogens are a large-scale healthcare issue. In particular, children with life-limiting conditions have a significantly increased risk of multidrug resistant pathogen colonization. Official hygiene requirements recommend children, who are colonized with multidrug resistant pathogens, to be isolated. In the context o...
Article
Full-text available
Background Multidrug resistant pathogens are a large-scale healthcare issue. In particular, children with life-limiting conditions have a significantly increased risk of multidrug resistant pathogen colonization. Official hygiene requirements recommend children, who are colonized with multidrug resistant pathogens, to be isolated. In the context of...
Article
Full-text available
Introduction@ this protocol describes the objective and methods of a systematic review of the association between quantitative sensory testing (QST) measures and pain intensity or disability in paediatric chronic pain (PCP). The review will also assess whether the relationship strength is moderated by variables related to the QST method and pain co...
Article
Background Emerging adulthood between the ages of 18 and 25 are vulnerable years that offer many opportunities and simultaneously represent huge challenges for autonomy and identity development. Chronic pain in this vulnerable stage of life is associated with long-term negative consequences. So far, knowledge regarding the effectiveness of treatmen...
Chapter
Pain is an individual and purely subjective experience. Pain processing depends on both somatosensory and emotional brain areas (e.g. the limbic system). Therefore, pain is never a purely sensory perception, but always includes emotional determinants. Finally, the family and other social contexts of the child are important determinants of pain perc...
Chapter
Chronic pain in childhood is likely to persist into adulthood, if not treated adequately. At the beginning of this chapter, we shortly present the long-term consequences of no or insufficient treatment of chronic pain in children and adolescents. Then, we discuss the effectiveness of the inpatient treatment programme of the German Paediatric Pain C...
Chapter
By definition, a pain disorder is a biopsychosocial disease. Irrespective of their individual proportion, diagnostics in pain disorders must always assess biological, psychological and social factors. Medical diagnostic procedures explore whether, for example, physical diseases have contributed to the development and maintenance of the pain disorde...
Chapter
The following pages present some practical tools, the most important instructions for their use, and several worksheets used in our education.
Article
Objective: Many children and adolescents with chronic pain report substantial emotional distress, such as symptoms of anxiety and depression, that need to be assessed for successful chronic pain treatment. In the context of pediatric chronic pain, the Revised Children's Anxiety and Depression Scale has been recommended for the assessment of anxiet...
Poster
Full-text available
Introduction: Recurrent pain in paediatric patients can occur in one body region or in multiple body regions concurrently. Objectives: Whether multi-site pain is associated with a more severe pain condition is not yet resolved. Aims: We aimed to determine whether children with multi-site pain had differing levels of pain-related emotional and fun...
Article
Background To date only few studies have addressed the level of intelligence of children and adolescents with chronic pain. The few currently available studies suggest a cognitive performance of pediatric pain patients in the average range (IQ 85–115); however, only little is known about the relationship between pain characteristics and cognitive s...
Article
Background Medically unexplained pain in children and adolescents is a common and increasing health care problem. Primary care is usually the first point of contact for these patients. It is the overall objective of this study to investigate treatment outcome of medically unexplained pain in pediatric primary care and to identify predictors of trea...
Article
Full-text available
Objective: To conduct a systematic review on pain self-efficacy measures in children and adolescents. The review aims: (a) to summarize all self-report measures of pain self-efficacy that have been used with children and adolescents; (b) to rate the quality of these measures; (c) to summarize associations between pain self-efficacy and other const...
Chapter
Eine Schmerzstörung ist per Definition eine biopsychosoziale Erkrankung. Die Diagnostik muss daher unabhängig von der Gewichtung der einzelnen Einflüsse stets auf biologischer, psychologischer und sozialer Ebene erfolgen. Die medizinische Diagnostik überprüft, inwiefern z. B. Erkrankungen zur Entstehung und Aufrechterhaltung der Störung beigetragen...
Chapter
Schmerz ist eine individuelle und ausschließlich subjektive Erfahrung. An der Verarbeitung von Schmerzreizen sind neben somatosensorischen Arealen auch emotionale Areale des zentralen Nervensystems wie z. B. das limbische System beteiligt. Schmerz ist keine rein sensorische Wahrnehmung, sondern hat immer auch emotionale Qualitäten. Schließlich spie...
Article
Full-text available
Context: Opioids administered by various routes are a mainstay of tumour-related pain management. Subcutaneous or intravenous patient-controlled analgesia (PCA) with opioids is an appropriate and safe form of treatment for postoperative pain but studies on this form of administration are sparse in the setting of cancer pain despite widespread use....
Chapter
Im Folgenden werden einige von uns verwendete diagnostische Instrumente, die wichtigsten Instruktionen sowie Arbeitsblätter, die in der Edukation eingesetzt werden, aufgeführt.
Chapter
Unbehandelte oder unzureichend behandelte chronische Schmerzen im Kindesalter persistieren häufig bis ins Erwachsenenalter. Am Anfang dieses Kapitels werden kurz die Langzeitfolgen einer unzureichenden Therapie bzw. Nicht-Behandlung chronischer Schmerzen im Kindes- und Jugendalter beleuchtet. Anschließend wird der Frage nachgegangen, inwiefern Schm...
Article
Background About one quarter of children affected with cancer die. For children and their families, the end-of-life period is highly distressing. Aim This study focused on how end-of-life care in pediatric cancer patients changed over a period of 10 years and if changes in pediatric palliative care structures were associated with quality of care....
Article
Full-text available
Background: Respiratory distress is one of the most common and frightening symptoms of children with life-limiting conditions. Because treatment of the underlying cause is frequently impossible or insufficient, in many children, symptomatic treatment is warranted. The purpose of this study was to describe the circumstances of the use of intranasal...
Article
Objectives: The assessment of pain-related disability in pediatric chronic pain patients plays an important role in research on the effectiveness of pain treatment. The present study aimed to compare the two available measures of pain-related disability in German language, the Functional Disability Inventory (FDI) and Paediatric Pain Disability In...
Article
Full-text available
A high prevalence of sleep problems exists in children and adolescents with life-limiting conditions (LLC) and severe psychomotor impairment (SPMI). This study aimed to compare the impacts of various child-related (pain, epilepsy, repositioning, medical care) and environment-related (light, noise, TV/radio, open door) factors on sleep in this vulne...