Johanna Jonsdottir

Johanna Jonsdottir
Fondazione Don Carlo Gnocchi | Don Gnocchi

Doctor of Science

About

123
Publications
23,731
Reads
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2,306
Citations
Introduction
Johanna Jonsdottir currently works at IRCCS Fondazione Don Carlo Gnocchi, Milan, Italy. Johanna does research in Allied Health Science, Neurology and Rehabilitation Medicine. Their most recent publication is "The impact of the COVID-19 pandemic on physical therapy practice for people with multiple sclerosis: A multicenter survey study of the RIMS network".
Additional affiliations
May 2012 - December 2021
Università degli Studi di Milano
Position
  • Lecturer
January 2004 - present
Fondazione Don Carlo Gnocchi
Position
  • Senior Researcher
Education
September 1992 - April 1999
Boston University
Field of study
  • Applied Kinesiology/Motor Control

Publications

Publications (123)
Article
Full-text available
Introduction: Persons with MS (PwMS) have markedly reduced push-off and toe-clearance during gait compared to healthy subjects (HS). These deficits may result from alterations in neuromotor control at the ankle. To optimize rehabilitation interventions for PwMS, a crucial step is to evaluate if and how altered neuromotor control, as represented by...
Article
Full-text available
Aims: Continuity of care is an important issue in healthcare for persons after stroke. The present multi-center pilot study investigates the feasibility and efficiency of an innovative approach, the Human Empowerment Aging and Disability (HEAD), for digital-health motor and cognitive rehabilitation. The approach is explored within an in-clinic cont...
Article
Full-text available
Background: The International Classification of Functioning, Disability and Health (ICF) parsimonious Generic set can provide identification of functional profiles and recovery after rehabilitation in persons post stroke. Aim: To explore concurrent validity of the ICF Generic-6_Functioning score with the Barthel Index (BI) and responsiveness aft...
Article
Full-text available
Background and objective: Multiple sclerosis is an inflammatory and neurodegenerative disorder of the central nervous system that can lead to severe motor disability. The aim of this study was to verify the health care effects of an integrated telerehabilitation approach involving dual-domains (motor and cognitive) in people with multiple sclerosi...
Article
Background Regular upper limb evaluation in persons with multiple sclerosis to detect early alterations and to monitor possible deterioration, both in gross and fine motor dexterity, is important for optimal levels of participation in life activities across the life span. The purpose of the present study was to inquire upon alterations in bilateral...
Article
Objective To investigate the impact of the COVID-19 pandemic on physical activity (PA) in persons with multiple sclerosis (PwMS). Design and Setting A multi-centre international online survey study was conducted within 11 participating countries. Each country launched the survey using online platforms from May to July 2021. Participants This was...
Article
Background The impact of the COVID-19 pandemic on physical therapy services for people with multiple sclerosis (pwMS) is unknown. Therefore, the Special Interest Group for Mobility (SIG Mobility) of the European Network for Best Practice and Research in Multiple Sclerosis Rehabilitation (RIMS) has undertaken the initiative to examine the impact of...
Article
Full-text available
Myoelectrically Controlled Functional Electrical Stimulation (MeCFES) has proven to be a useful tool in the rehabilitation of the hemiplegic arm. This paper reports the steps involved in the development of a wearable MeCFES device (FITFES) through a user-centered design. We defined the minimal viable features and functionalities requirements for th...
Article
Background: The COVID-19 pandemic has likely had a negative impact on rehabilitation and quality of life (QoL) research in multiple sclerosis (MS). Method: We explored perceived barriers to research among 87 researchers, representing 18 countries, both prior to and since COVID-19. Results: A Wilcoxon signed-rank test found that significantly m...
Article
Background and purpose: Falls are a common and persistent concern among people with neurological disorders (PwND), as they frequently result in mobility deficits and may lead to loss of functional independence. This study investigated the ceiling and floor effects, internal consistency, and convergent validity of 2 patient-reported fall prevention...
Article
Full-text available
Introduction: Postural instability is a cardinal feature of Parkinson's disease, together with rest tremor, rigidity and bradykinesia. It is a highly disabling symptom that becomes increasingly common with disease progression and represents a major source of reduced quality of life in patients with Parkinson's disease. Rehabilitation aims to enabl...
Article
Full-text available
Muscle synergies are hypothesized to reflect connections among motoneurons in the spinal cord activated by central commands and sensory feedback. Robotic rehabilitation of upper limb in post-stroke subjects has shown promising results in terms of improvement of arm function and motor control achieved by reassembling muscle synergies into a set more...
Poster
Persons with Multiple Sclerosis (PwMS) are known to have low levels of physical activity time and increased sedentary behavior (1). One aim of this study was to investigate the level of actual and perceived physical activity during the day in PwMS recovered for rehabilitation. A second aim was to investigate whether a minimalist physical activity (...
Article
Full-text available
Aims: We aimed to identify the significant predictors of ecological memory amelioration after the Human Empowerment Aging and Disability (HEAD) rehabilitation program, a multidimensional treatment for chronic neurological diseases. Materials and Methods: Ninety-three patients with Parkinson disease ( n = 29), multiple sclerosis ( n = 26), and strok...
Article
Background: Functional recovery of the plegic upper limb in post-stroke patients may be enhanced by sequentially applying a myoelectrically controlled FES (MeCFES), which allows the patient to voluntarily control the muscle contraction during a functional movement and robotic therapy which allows many repetitions of movements. Objective: Evaluat...
Article
Full-text available
Parkinson's disease (PD) often leads to multifactorial motor and non-motor disabilities with resultant social restrictions. Continuity of care in this pathology, including a tailored home rehabilitation, is crucial to improve or maintain the quality of life for patients. The aim of this multicenter study was to test in a pilot sample of PD patients...
Article
Full-text available
Goal setting is a core component of physical therapy in multiple sclerosis (MS). It is unknown whether and to what extent goals are set at different levels of the International Classification of Functioning, Disability and Health (ICF), and whether, and to which, standardized outcome measures are used in real life for evaluation at the different IC...
Article
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Background: Guidelines and general recommendations are available for multiple sclerosis rehabilitation, but no specific guidance exists for physical therapists. Describing aspects of physical therapy content and delivery in multiple sclerosis and its determinants and analysing whether general recommendations connected with physical therapy are impl...
Article
Full-text available
Background: Robot-based rehabilitation for persons post-stroke may improve arm function and daily-life activities as measured by clinical scales, but its effects on motor strategies during functional tasks are still poorly investigated. This study aimed at assessing the effects of robot-therapy versus arm-specific physiotherapy in persons post-str...
Article
Full-text available
Background The recent exponential growth of Digital Health (DH) in the healthcare system provides a crucial transformation in healthcare, answering to alarming threats related to the increasing number of Chronic Neurological Diseases (CNDs). New long-term integrated DH-care approaches, including rehabilitation, are warranted to address these concer...
Article
Full-text available
Background: Falls, mobility impairments and lack of social support lead to participation restrictions in people with neurological conditions. The aim of this multicenter, single blinded randomized controlled trial was to test whether an educational program focusing on fall prevention and safe mobility reduces falls and increases social participatio...
Article
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Article
IMPAIRED: arm function and loss of manual dexterity can lead to decreased independence in activities of daily living in persons with Multiple Sclerosis (MS). In this study we verified the feasibility and efficacy of a serious games approach to supervised upper limb rehabilitation of the more affected arm in persons with MS and the cross-over effect...
Article
Objective: To compare mobility in multiple sclerosis (MS), Parkinson's disease (PD) and stroke, and quantify the relationship between mobility and participation restrictions. Design: Multicenter cross-sectional study. Included were compliant subjects with PD, MS and stroke seen for rehabilitation, with no comorbidities interfering with mobility....
Article
Objectives: Treatment for progressive multiple sclerosis (pMS) is a key area of research. To date, whether MS type and the rehabilitation setting are associated with worse or better response to rehabilitation is unclear. We aimed to understand the association between balance and MS type, in/outpatient treatment and specificity of the intervention....
Article
Full-text available
Background Parkinson’s disease impacts health-related quality of life (HRQoL), however no studies inquired on predictors of HRQoL changes after rehabilitation. This study assessed the relationship between mobility domain of HRQoL measured by Parkinson’s Disease Questionnaires-39 (PDQ-39) and clinical-demographic characteristics and developed a mode...
Article
Full-text available
Introduction: Persons with multiple sclerosis (MS) have deficits in many aspects of physical and cognitive functioning that can impact on mobility and participation in daily life. The effect of a 4 week intensive multimodal treadmill training on functional mobility, balance, executive functions and participation in persons with MS with moderate to...
Article
Full-text available
The measurement of users’ perception of functionalities in the use of Serious Games (SGs) along technology implementation phases may lead to effective changes for developing successful user-centered learning tools in the medical field. In the present data article, data about usability functionalities along two cycles of validation of a SG on neuror...
Article
Background: Gait velocity influences the ability of a person to move in different outdoor or indoor contexts and has accordingly been classified through the Modified Functional Walking Categories (MFWC). Community ambulation in persons with multiple sclerosis (PwMS) may give information on their social and productive participation, as well as inde...
Article
The presence of Serious Games (SGs) in the medical educational field is spreading due to their beneficial results in terms of learning outcomes and user' engagement. The effectiveness of these tools for physical therapy students is, however, still to be proven and prototypes for this user target are lacking. We adopted a user-centered design (UCD)...
Chapter
Neurological disorders, such as post stroke or multiple sclerosis (MS), are among the most common causes of long-term disability in the general population. Limitations in mobility of persons post stroke or with multiple sclerosis (MS) frequently present with limitations in reaching and grasping and consequently impact their independence and health...
Article
Background: A wide variety of interventions exists in physical therapy (PT), but knowledge about their use across different geographical regions is limited. This study investigated the use of PT interventions in people with multiple sclerosis (MS) across Europe. It aimed to determine whether regions differ in applying interventions, and explore wh...
Article
The survey was supported by a RIMS grant 2012 and unrestricted educational grant from Novartis Pharma AG to RIMS, 260388/SVV/2017 and Progres Q35.
Article
Full-text available
Purpose Motor recovery of persons after stroke may be enhanced by a novel approach where residual muscle activity is facilitated by patient-controlled electrical muscle activation. Myoelectric activity from hemiparetic muscles is then used for continuous control of functional electrical stimulation (MeCFES) of same or synergic muscles to promote re...
Poster
Full-text available
Living with chronic disability has a crucial impact on quality of life (QoL) due to motor and cognitive difficulties and social restrictions in daily life. The integration of new technology with innovative exercises performed in a virtual reality environment within rehabilitation programs offer to persons with chronic disabilities new effective and...
Article
Objectives: The feasibility and preliminary evidence for efficacy of a serious games platform compared to exergame using the Wii for arm rehabilitation in persons with multiple sclerosis (MS) was investigated. Methods: A pilot single-blind randomized (2:1) controlled in clinic trial was carried out. Sixteen persons with MS participated (age year...
Article
Objective: To calculate percentage of participation restrictions according to disability level in Multiple Sclerosis (MS) and to assess relationship between participation restriction, and cognitive, gait, balance and upper limb deficits. Design: Cross sectional study SETTING: Rehabilitation unit PARTICIPANTS: 105 people with MS and 20 healthy su...
Article
Full-text available
Background Persons with Multiple Sclerosis frequently have gait deficits that lead to diminished activities of daily living. Identification of motoneuron activity patterns may elucidate new insight into impaired locomotor coordination and underlying neural systems. The aim of the present study was to investigate muscle synergies, identified by moto...
Article
Purpose: People with Multiple Sclerosis (PwMS) have a high incidence of accidental falls that have a potentially detrimental effect on their daily life participation. The effect of balance specific rehabilitation on clinical balance measures and frequency of falls in PwMS was studied. Method: A bi-centre randomised rater-blinded controlled trial. P...
Poster
Full-text available
The aim of this study was to verify the effectiveness of the Wii balance board combined with virtual reality exergames in rehabilitation of balance and confront it with a usual care balance treatment in recovered persons with multiple sclerosis (MS). The effectiveness of the two interventions were similar in improving balance in persons with MS sug...
Article
Full-text available
Background Understanding the organisational set-up of physiotherapy services across different countries is increasingly important as clinicians around the world use evidence to improve their practice. This also has to be taken into consideration when multi-centre international clinical trials are conducted. This survey aimed to systematically descr...
Poster
Cervical dystonia (CD) is characterized by involuntary, abnormal movements and postures of the head and neck with pain and reduced quality of life. Current views are that the pathophysiology is “maladaptive plasticity” with a faulty sensory-motor integration. Efficacy of BoNT has been demonstrated and in literature rehabilitative approaches has bee...
Article
Objective: To identify the Minimal Clinically Important Difference (MCID) to define clinically meaningful patient's improvement on the Berg Balance Scale (BBS) in People with Multiple Sclerosis (PwMS) in response to rehabilitation. Design: Cohort study SETTING: Neurorehabilitation institute. Participants: 110 PwMS participated in this study....
Article
Multiple sclerosis (MS), Parkinson's disease (PD) and stroke (ST) subjects show balance impairments due to damage of the balance control system. The objective of the study was to assess the impact of MS, PD and ST on upright posture in eyes open condition and when visual and/or proprioceptive inputs are altered. A total of 188 subjects with MS (n =...
Article
Full-text available
Background: Understanding the organisational set-up of physiotherapy services across different countries is increasingly important as clinicians around the world use evidence to improve their practice. This also has to be taken into consideration when multi-centre international clinical trials are conducted. This survey aimed to systematically desc...
Chapter
Muscle weakness and motor control deficits associated with stroke result in fairly typical hemiparetic gait. This chapter will focus on persons with hemiparesis after stroke in the post-acute and chronic stage, their major movement disorders, and how these affect locomotion. Differences in spatiotemporal, kinematic, and kinetic parameters that comm...
Article
Full-text available
The survey was realised due to support by a RIMS grant 2012 and unrestricted educational grant from Novartis Pharma AG to RIMS, 260045/SVV/2014, 260168/SVV/2015 and PRVOUK P34.
Conference Paper
Full-text available
This paper describes the biomedical, remote monitoring infrastructure developed and currently tested in the EU REHAB@HOME project to support home rehabilitation of the upper extremity of persons post-stroke and in persons with other neurological disorders, such as Multiple Sclerosis patients, in order to track their progress over therapy and improv...
Chapter
This paper presents initial concepts from the REHAB@HOME project investigating the patient-centered design of game environments aimed to raising patients’ motivation and compliance with motor-cognitive rehabilitation programs. During the initial phase of the project a patient’s client was developed to deploy five rehabilitation games through main g...