Joan M Patterson

Joan M Patterson
University of Minnesota Twin Cities | UMN · Division of Epidemiology and Community Health

About

71
Publications
33,372
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8,186
Citations
Citations since 2017
0 Research Items
2262 Citations
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20172018201920202021202220230100200300400
20172018201920202021202220230100200300400
20172018201920202021202220230100200300400
Introduction

Publications

Publications (71)
Article
The purpose of this study was to examine the relationship of strains, resources, feelings, and behaviors about treatment adherence reported by youth with cystic fibrosis (CF) with repeated clinic measures of their pulmonary function and nutritional status. Linear mixed models, stratified by gender, adjusting for age, were used to examine the effect...
Article
Full-text available
We investigated whether uncertainty about the impact of children's chronic health conditions on their daily lives leads to changes in mothers' and fathers' mental and physical health. Three waves of data were collected over three years from parents of 228 children with chronic health conditions. Parents reported their level of uncertainty about how...
Article
Some prior studies have reported that girls with cystic fibrosis (CF) experience higher morbidity and mortality compared to boys. In this study, the authors compared boys' and girls' perceptions of disease-related strains and resources associated with living with CF, and the relationship of these factors to CF treatment feelings and behaviors. All...
Article
The present study examined factors associated with adherence to a strength training (ST) intervention in a randomized controlled intervention trial testing whether twice-weekly strength training over 2 years could prevent age-associated increases in body fat in 80 overweight to mildly obese women, aged 25-44 years. Two sets of focus groups (FGs) we...
Article
Transition to adulthood has not been adequately studied in young adults with cystic fibrosis (CF). Technological advances have extended life expectancy into the thirties, making the young adult CF population a significant group to study. This qualitative study used focus groups to explore the transition into adulthood for female (n = 11) and male (...
Article
To examine the impact of the severity of a child's chronic condition on family functioning from the perspectives of mothers and fathers and to compare their reports with the functioning of families with healthy children. Mothers and fathers in two-parent families of 160 infants and 102 pre-adolescents with a wide range of chronic health conditions...
Article
Many studies report that couples with children who have chronic health conditions have more marital dissatisfaction and depressive symptoms than other parents. However, much of the research is cross-sectional and uses maternal reports. This study addresses prior limitations in the research by using longitudinal data from both parents. Couples who a...
Article
Using a cross-sectional comparison group design, 4,746 ethnically diverse middle and high school students from 31 public schools in a metropolitan area were surveyed about their health, emotional factors (self-esteem, depressive symptoms, and suicidality), and behaviors (tobacco, alcohol, and drug use). Based on regression analyses that adjusted fo...
Article
To explore familial eating patterns and weight-related concerns among families of adolescent girls with type 1 diabetes mellitus (DM) and to examine associations with disordered eating behaviors among the girls. Interviews were conducted with 30 adolescent girls (ages 13-20 years), who had DM for at least 1 year, and separately with their parents....
Article
To assess the relation of physical activity (PA) with feelings of sadness and suicidal thoughts and behaviors among Hispanic and non-Hispanic white adolescent boys and girls. Cross-sectional study using a modified 2001 Youth Risk Behavior Survey. One thousand eight hundred seventy Hispanic and non-Hispanic white adolescents, aged 14 to 18 years, at...
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To discover if area level social cohesion, neighbourhood safety, and home safety are associated with current cigarette smoking among adults after adjustment for concentrations of poverty and low education. Cross sectional survey of a random sample of adults, stratified by 19 geographical areas. SHAPE, Survey of the Health of Adults, the Population,...
Article
This study explored opinions, concerns, and recommendations regarding care of Type 1 diabetes in schools. Thirty adolescent females and their parents participated in semi- structured, individual interviews that were audiotaped, transcribed, coded, and qualitatively analyzed. Responses emerged in three categories: knowledge/training of school staff;...
Article
Clinical research has led to tremendous improvements in treatment efficacy for most childhood cancers; overall 5-year survival is now greater than 75%. Long-term consequences of cure (i.e. adverse medical and psychosocial effects) have only recently begun to emerge as a primary focus of clinical research, including studies of health-related quality...
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Full-text available
To explore parents' perceptions of the impact of type 1 diabetes mellitus (DM) on the family and to better understand parent-child conflict, parental worries, and coping strategies related to the management of DM in adolescence. Semistructured interviews were conducted with the parents of 30 adolescent girls who had DM for at least 1 year. Using st...
Article
The construct, family resilience, has been defined and applied very differently by those who are primarily clinical practitioners and those who are primarily researchers in the family field. In thisarticle, the family resilience perspective is integrated with conceptual definitions from family stress theory using the Family Adjustment and Adaptatio...
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Full-text available
Few research studies have addressed the ways parents participate in their childs medical care, particularly in relation to the cancer experience. The purpose of this study was to explore parents descriptions of their participation in medical care for their children with cancer. For this study, seven focus groups were conducted with 45 parents of 26...
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Full-text available
The resilience perspective is used to examine the risk and protective mechanisms associated with adolescent substance use. First, resilience is defined within an ecological framework of development. Second, resilience processes related to substance use are explored. To ensure the most current review of the literature, the focus is placed on publish...
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Full-text available
This study examines the prevalence of specific weight control practices/disordered eating behaviors and associations with sociodemographic characteristics, BMI and weight perceptions, family functioning, and metabolic control among adolescent females and males with type 1 diabetes. The study population included 70 adolescent females and 73 adolesce...
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Families, as social systems, can be considered "resilient" in ways that parallel descriptions of individual resilience. In this article, the conceptualization of family-level outcomes as a prerequisite for assessing family competence, and hence their resilience, is presented relative to the unique functions that families perform for their members a...
Article
This study aims to identify the relationship between the degree of uncertainty in the preadolescent’s chronic condition and family distress. In-home interviews were conducted with 99 mothers and 86 fathers of 99 preadolescents with chronic physical health impairments. Preadolescents were divided into separate groups, first based on the predictabili...
Article
The objective of this study was to identify the relationship between the degree of uncertainty in the child’s chronic condition and family distress. Data were collected from parents (173 mothers, 150 fathers) of young children (12 to 30 months old) who had been diagnosed with a chronic physical health impairment within the past 12 months. Children...
Article
To identify parents' perceptions of helpful vs unhelpful types of social support received in managing the care of preadolescents with chronic conditions. Multimethod cohort study with 1-year follow-up. General community. Volunteer, consecutive sample of parents of 124 preadolescents with a variety of chronic conditions. In-depth, in-home interviews...
Article
We questioned parents of 182 young children with a variety of chronic health conditions concerning the amount of emotional, informational, and tangible social support they received from the family, community, and service providers. We also asked parents to describe nonsupportive or hurtful behaviors received from family or community members. Both m...
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Full-text available
For those of us who have adopted a biopsychosocial model of healthcare, we are well aware that illness events happen in a context. For readers of this journal, the family is the social context that has received most of our attention. We recognize and acknowledge that the diversity we observe in families is influenced, in many ways, by the cultures...
Article
To review the literature on risk and protective factors as applied to children with chronic and disabling conditions so as to assist the health care professional in developing clinical strategies and interventions. Literature review. Risk factors (eg, emotional problems, school failure) and protective variables (eg, family cohesion, school involvem...
Article
Data about health and educational services were collected from 187 families with young children (under two years) who have chronic illnesses and disabilities. The purpose was to assess parents' satisfaction with services their families received and to identify families' unmet service needs as well as the reasons for these unmet needs. Although fami...
Article
To develop recommendations for effectively informing families about their child's chronic illness or disability. The sample included 43 families of infants with Down syndrome and/or congenital heart disease who were participating in Project Resilience, which is a multisite longitudinal research project. Family interviews were transcribed verbatim a...
Article
Although a large body of research demonstrates that the family has a powerful influence on physical health, the evidence for the effectiveness of family interventions in physical illness is less conclusive. Family therapy and other family interventions appear to be most effective in chronic childhood illnesses such as asthma and diabetes. Family in...
Article
All families experience many different life events, strains, and hassles over their life spans. Stress emerges in the family when demands exceed capabilities. When this imbalance persists and becomes larger, children and other family members often show signs and symptoms of distress, including health-related problems. Pediatricians are increasingly...
Article
Major stressful life events, particularly those that have chronic hardships, create a crisis for families that often leads to reorganization in the family's style of functioning. A major factor in this reorganization is the meaning the family gives to the stressful event. Often the meaning extends beyond the event itself and leads to a changed view...
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Full-text available
Forty-eight mothers and fathers caring for a medically fragile child at home completed questionnaires and were interviewed about the impact of this caregiving on their family and about their relationship with home care professionals. Factors contributing to a positive parent-professional relationship were professional competence, genuine caring for...
Article
Full-text available
In this article, a family systems theoretical framework is described for understanding the reciprocal relationships between chronic illness in a family member and the structure and functioning of the family system. The reciprocal impacts between the illness, individual development, and family functioning continue dynamically in a circular pattern o...
Article
A focus on disability and chronic illness within the disciplines of health, education, and social services has usually assumed a dominant cultural ethos grounded in European-American values. Indicators of social and psychological competence, normative behavior, response to stress and to illness, and even adaptation to life have been assumed to comp...
Article
In this study, 33% of the variance in the 10-year trend of forced expiratory volume in 1 second (FEV1), used as an index of pulmonary health, was explained by differences in family characteristics at the start of the study. Balanced family coping, a family emphasis on personal growth, and compliance with treatment for 91 children with cystic fibros...
Article
Cognitive coping is a set of strategies that encourages individuals and families to successfully confront daily challenges of disability. "Cognitive Coping, Families, and Disability" provides insights into this powerful method of adjustment and its significance in the area of family research. Through a participatory research process, this book re...
Article
focus on cognitive factors influencing the adaptation of families to the stressful experience of living with a chronic illness or disability / focus is on cognitive adaptation / discuss the process by which beliefs and meanings come to be held and the role of these meanings in the adaptation process for the family / of particular importance is the...
Article
The health status of 48 families providing home care for their medically fragile children was studied. Mothers, as the primary caregivers, experienced a greater decline in their physical health than did fathers or siblings. When the financial burden of providing care was greater and when the relationship with care providers was more strained, famil...
Article
This report describes the development of the Coping Health Inventory for Children (CHIC), an instrument designed to provide a systematic assessment of coping behaviors of chronically ill school-aged children. Using a hierarchical approach to the organization of behavior, 45 specific coping behaviors used by chronically ill children were identified...
Article
Children with special health needs have an added risk for mental health problems. These problems may be preventable in many cases by focusing on the development of competence in children and their family members in adapting to the chronic condition demands. Five strategies for developing competence are discussed: (a) encourage normal life experienc...
Article
In this paper, a family systems approach is advocated as an optimal model for managing the health care of youth with disabilities. The impact of the youth's disability on family functioning and, reciprocally, the impact of the family system on the course of the disability and the youth's development are reviewed. These two effects are viewed as mut...
Article
The distress of 52 parents with a technology-dependent child at home is measured using a standardized psychological inventory. Fifty-eight percent of these parents report enough symptoms to classify them as needing psychiatric intervention. Cost savings to third-party payers are accelerating the trend toward home care (rather than institutionalized...
Article
Family stress, family and personal resources, and parental coping were operationalized from self-report questionnaires completed by mothers and fathers in 72 two-parent families who had a child with cystic fibrosis (CF). Three-month and 15-month changes in clinically recorded measures of the CF child's height and weight data and pulmonary functioni...
Article
Reviews the literature published 1980–1989 on the relationship between individual health/illness and family functioning. Issues discussed include family in the etiology and/or maintenance of illness, effects of illness and its treatment on family, and conceptualization and measurement of family variables. (PsycINFO Database Record (c) 2012 APA, all...
Article
A qualitative analysis of conjoint interviews with 10 male patients (aged 42–68 yrs) undergoing bypass surgery or angioplasty and their spouses (aged 40–61 yrs) revealed specific beliefs about the causes of heart disease and beliefs about what and who would aid recovery. In addition to poor lifestyle habits, strained relationships with adult childr...
Article
Family practitioners consider social support to be a significant resource for individuals and family members encountering stress. There has, however, not been an adequate way to assess an individual's or a family's perception of the social support they are receiving. A new definition of social support is presented, along with a way to measure two d...
Article
Presents a family stress model, the family adjustment and adaptation response (FAAR) model, and suggests conceptual links to other models of stress. The FAAR model focuses on 3 systems: the individual, the family, and the community. The family system and its efforts to maintain balanced functioning by using its capabilities (resources and coping be...
Article
The developmental tasks associated with adolescence pose a unique set of stressors and strains. Included in the normative tasks of adolescence are developing and identity, differentiating from the family while still staying connected, and fitting into a peer group. The adolescent's adaptation to these and other, often competing demands is achieved...
Article
This study examines the relationships among the major variables of the Double ABCX model of family stress and adaptation. The theoretical model is translated into an empirically testable model using data on Army families' adaptation to the crisis of relocation overseas, and the data is analyzed by structural equation models with latent (unobserved)...
Article
Reviews the book, Health and ways of living: The Alameda County study by Lisa F. Berkman and Lester Breslow (1983). This volume reports the findings of a nine-year epidemiological study conducted in Alameda County, California, by the Human Population Laboratory to determine the relationships between various ways of living and levels of health. The...
Article
The author of this investigation focused on 72 two-parent families who had one or more children with cystic fibrosis living at home to determine what critical family factors are associated with the family's ability to comply with prescribed home treatment. Using the FAAR Model to conceptualize and operationalize the critical variables of demands, r...
Article
Contents Introduction * The Family Stress Process: The Double ABCX Model of Adjustment and Adaptation * Critical Transitions Over the Family Life Span: Theory and Research * Family Stress as Community Frame * Family Problem Solving and Family Stress * Individual Coping Efforts and Family Studies: Conceptual and Methodological Issues * Social Suppor...
Article
This investigation examined the relationship of gender-role orientation as a psychological resource and specific behavioral coping responses as mitigators of distress for wives experiencing a long-term separation from their military spouses. Although an androgynous gender-role orientation was not directly associated with nondistress, it appeared to...
Article
Are there coping patterns parents use to manage family life and health successfully when a child member has a chronic illness? In the present study, data were collected on 100 families who have a child with cystic fibrosis. By factor analyzing scaled responses to behavior items on the Coping Health Inventory for Parents (CHIP), three parental copin...
Article
This investigation examined the relationship between a pile-up of family life events (family stress) and changes in the health status of a child member with cystic fibrosis. The data collected from 100 parents and from clinic records of their children's height, weight, and pulmonary functioning revealed that a decline in pulmonary functioning was a...
Article
Recent developments in family stress and coping research and a review of data and observations of families in a war-induced crisis situation led to an investigation of the relationship between a stressor and family outcomes. The study, based on the Double ABCX Model in which A (the stressor event) interacts with B (the family's crisis-meeting resou...
Article
Hill's ABCX family crisis framework has continued to serve as the foundation for the research and theory building efforts of the past decade of family stress investigations. Research conducted to date reveals a concerted effort to identify which families, under what conditions, with what resources, and involving what coping behaviors are better abl...
Article
in this chapter, a revision of the FAAR [family adjustment and adaptation response] model is introduced with two objectives in mind first, there is an effort to revise and clarify concepts based on more recent empirical findings second, there is an attempt to clarify further the linkages to physiologic, psychologic, and sociologic models of str...
Article
in this chapter chronic childhood illnesses are examined from generic perspective as opposed to disease specific a systemic approach is taken, examining the reciprocal impacts of the illness of the family as well as how characteristics and changes in the family system influence the course of illness over time demands in families with chronicall...

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