Jed Jerwood

University of Birmingham · Institute of Clinical Sciences

No Barriers Here © No Barriers Here: for people excluded by identity, culture, ethnicity and race A research study exploring a different approach to advance care planning, using arts-based methods to deepen conversations, relationships and gain understanding of the experiences and preferences of people excluded by identity, culture, ethnicity and r...

Background The COVID-19 pandemic highlighted the health inequalities experienced by people from Black, Asian and minority ethnic people and communities in the UK (Chidiac, Feuer, Flatley, et al., 2020. Palliat Med. 34:1241). There is a lack of understanding of the needs of different BAME communities in the palliative care workforce (Hussain, Koffma...

Background Roma communities are one of the most marginalised in the UK, experiencing systematic barriers, structural racism and health inequity that results in lower life expectancy and inequitable access to palliative care. There is little evidence of research around advance care planning and Roma people. Aims • Work in co-production to explore...

In the UK there are more than 1.5 million people with an intellectual disability. Many experience health inequalities, have a lower life expectancy, and die avoidable deaths (Emerson, Baines, Allerton, et al., 2012). Despite Advance Care Planning (ACP) being an essential part of palliative care, health care professionals frequently avoid end of lif...

An easy read version of the abstract to accompany the oral presentation is available from the first named author.An abstract for the oral presentation (O-8) is available on page A3 of this supplement.

Background and Aim: People with severe mental illness (SMI) have a life expectancy of up to twenty years less than the general population and many live with incurable physical health conditions. Yet, they continue to experience barriers when trying to access palliative and end of life care (PEOLC). Little research has been carried out which include...

Background People with severe mental illness (SMI) have a life expectancy of up to twenty years less than the general population. They also experience poor physical health and higher rates of many life-limiting conditions. Research on the specific needs of people with SMI in palliative and end of life care is extremely limited and focuses on descri...

Clinical academic careers programmes have developed in England and Wales to enable clinical staff outside of medical and dentistry-namely Nurses, Midwives, Allied Health Professionals, Pharmacists and Healthcare Scientists (NMAHPPS) to develop their academic and research skills alongside clinical practice. These schemes have complemented pre-existi...

Background People with severe mental illness (SMI) have a life expectancy of up to twenty years less than the general population which is one of the biggest health inequalities in the UK. People with SMI and terminal illnesses also face multiple barriers, including stigma and prejudice from clinical staff, when accessing palliative and end of life...

The first study reporting the views of patients (and their carers) with severe mental illness and terminal conditions on palliative and end of life care

Background Research which concerns the experiences and expectations of people with mental illnesses and terminal conditions is extremely limited both in the UK and internationally. What is known is that people with mental ill health experience higher rates of many physical health issues, later diagnosis and poorer prognosis than the general popula...

Adults with severe mental illness (SMI) experience higher rates of physical ill health and have a life expectancy 10–20 years lower than that of the general population.¹ They are also more likely to live in poverty, to live in poor housing or be homeless, and find it harder to stay in employment than the general population. People with SMI also exp...

Background People with mental illness experience higher rates of many life-limiting conditions and die on average twenty years earlier than the general population. A literature review was carried out which revealed limited understanding of the end of life needs of this patient group. The role of clinical staff was highlighted as a key factor, yet t...

People with mental illness experience higher rates of many life-limiting conditions and die on average twenty years earlier than the general population. The researcher observed that people with mental illness appeared to be under-represented in hospice care. A literature review was carried out which revealed limiting research concerning the end of...