James E. Andrews

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Verified

James verified their affiliation via an institutional email.

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• PhD
• Professor (Full) at University of South Florida

Motivated in many ways by the rapid evolution of information and communication technologies along with the shift toward increased patient decision-making and empowerment, changes in healthcare have had critical implications for clinical research. This chapter explores the developments impacting health consumers from various perspectives, with some...

This chapter introduces in this third edition of Clinical Research Informatics the overview of important constructs and methods within the subdomain of clinical research informatics now. The chapter sets the tone and scope for the text, highlights important topics and themes, and describes the content and organization of chapters.KeywordsClinical r...

Objective: This study aims to better understand health behaviors, particularly health information seeking, and how this impacts cancer care within underserved minority populations in a specific catchment area in Florida. Methods: We conducted an analysis of survey data from a 2019 community health survey conducted by the Moffit Cancer Center (MC...

This study explored the intention to adopt various AI and related technologies by academic and public librarians. A survey was disseminated through various library organization lists to collect input on issues surrounding AI attitude and intentions among librarians in North America. We utilized the Unified Theory of Acceptance and Use of Technology...

Purpose This study aims to understand how artificial Intelligence (AI) and related technologies are currently being utilized in public and academic libraries and how librarians perceive the adoption of new technologies in their relative libraries. Design/methodology/approach Using an online survey questionnaire, the authors collected survey respon...

PURPOSE To evaluate timing and outcomes of BRCA testing and definitive surgical treatment among patients with newly diagnosed breast cancer. METHODS Patient-reported (n = 1,381) and deidentified health-plan (n = 2,369) data were analyzed from a consecutive national series of 3,750 women whose healthcare providers ordered BRCA testing between March...

Rapid increase in the rate of information and communication technology innovations resulted in the Big Data phenomenon and, in turn, led to challenges in data curation, management, processing, access, preservation, and dissemination. To effectively address these challenges, synergistic collaborations and partnerships between researchers and practit...

The need for data science education has grown recently among Library and Information Science schools to better prepare information professionals for the world of big data. However, there are many challenges to providing education on data science in Library and Information Science schools. For example, developing curricula and models for managing fa...

The culmination of the changes in healthcare, motivated in many ways by the rapid evolution of information and communication technologies in parallel with the shift toward increased patient decision-making and empowerment, has critical implications for clinical research, from recruitment and participation to, ultimately, successful outcomes. This c...

This chapter provides essential definitions and overviews important constructs and methods within the subdomain of clinical research informatics. The chapter also highlights theoretical and practical contributions from other disciplines. This chapter sets the tone and scope for the text, highlights important themes, and describes the content and or...

This extensively revised new edition comprehensively reviews the rise of clinical research informatics (CRI). It enables the reader to develop a thorough understanding of how CRI has developed and the evolving challenges facing the biomedical informatician in the modern clinical research environment. Emphasis is placed on the changing role of the c...

This research seeks to understand social media activities surrounding the United States Supreme Court's Myriad Genetics, Inc. June 13, 2013 decision and its impact on direct-to-consumer genetic testing and gene patenting. The study collected twitter messages posted immediately before and subsequent to the announcement of the Supreme Court's decisio...

This research presents a Bayesian statistical model to examine spatio-temporal effects for Twitter use when reporting important events or news. The proposed model tests the Twitter News data surrounding the United States Supreme Court's Myriad Genetics, Inc. June 13, 2013 decision and its impact on direct-to-consumer genetic testing and gene patent...

Background PubMed is a widely used database for scientists to find biomedical-related literature. Due to the complexity of the selected research subject and its interdisciplinary nature, as well as the exponential growth in the number of disparate pieces of biomedical literature, it is an overwhelming challenge for scientists to define the right se...

Importance: BRCA genetic testing has substantial public health impact, yet little is known of the real-world experiences of the more than 100 000 Americans undergoing testing annually. Objective: To identify factors associated with use of BRCA testing, assess whether delivery of genetic counseling and testing services adheres to professional gui...

Research to date regarding identification and management of hereditary breast and ovarian cancer syndrome (HBOC) in the U.S. has been confined primarily to academic center-based studies with limited patient engagement. To begin to understand and address the current gaps and disparities in delivery of services for the appropriate identification and...

The increased availability of genetic information online has led to growing concerns regarding health disparities among racial and ethnic groups and the need to examine the role of race/ethnicity in genetic testing awareness. Online users from a national representative sample were analyzed to explain the racial/ethnic differences in genetic testing...

Intended for students interested in careers as health sciences librarians, this insightful book presents a current view of trends and issues in the field of health librarianship from leading scholars and practitioners. With health care reform and the Affordable Care Act driving up demand for ready access to health and biomedical information by both...

Patient registries are often a helpful first step in estimating the impact and understanding the etiology of rare diseases - both requisites for the development of new diagnostics and therapeutics. The value and utility of patient registries rely on the use of both well-constructed structured research questions and relevant answer sets accompanying...

1608 Background: An estimated 100,000 individuals currently undergo genetic testing for hereditary susceptibility to breast and ovarian cancer annually in the U.S., yet little is known about their characteristics, testing experience or outcomes. Research in this high-risk group has been limited to patients recruited at academic medical centers wher...

Bioinformatics journals publish research findings of intellectual synergies among subfields such as biology, mathematics, and computer science. The objective of this study is to characterize the citation patterns in bioinformatics journals and their correspondent knowledge subfields. Our study analyzed bibliometric data (impact factor, cited-half-l...

The culmination of the changes in health care, motivated in many ways by the rapid evolution of information and communication technologies in parallel with the shift toward increased patient decision making and empowerment, has critical implications for clinical research, from recruitment and participation to, ultimately, successful outcomes. For t...

This chapter provides essential definitions and overviews important ­constructs and methods within the emerging subdomain of clinical research ­informatics. The chapter also highlights theoretical and practical contributions from other disciplines. This chapter sets the tone and scope for the text, highlights ­important themes, and describes the co...

Clinical research informatics (CRI) is the application of informatics principles and techniques to support the spectrum of activities and business processes that instantiate clinical research. Informatics, defined generally as the intersection of information and computer science with a health-related discipline, has a foundation drawn from many wel...

Purpose This study aims to examine factors influencing information‐seeking intentions and support for restrictions related to the threat of arsenic‐contaminated frying oil. Design/methodology/approach A telephone survey using a systematic random sample of 566 respondents in Taiwan was employed to test all hypotheses proposed in this study. Findin...

The Patient Registry Item Specifications and Metadata (PRISM) library was developed with funds from the American Recovery and Reinvestment Act (ARRA) with the primary purpose of supporting the use of standardized questions in rare disease patient registries. A patient registry is for a method of collecting, storing, retrieving and using a clearly d...

Purpose – The melamine milk scandal caused a crisis of confidence in food containing dairy products. The purpose of this paper is to explore the determinants of precautionary behaviour to avoid food containing dairy products among Taiwanese college students. Design/methodology/approach – Of the total respondents selected using a multistage cluster...

Patient registries are important for understanding the causes and origins of rare diseases and estimating their impact; and they may prove critical developing new diagnostics and therapeutics. This paper introduces the [RD] PRISM resource <http://rdprism.org>, an NIH-funded project to develop a library of standardized question and answer sets to su...

Patient registries are a valuable research tool for understanding disease and can support new therapies. Diverse registry models, sponsors, and data requirements complicate efforts for the standardisation of registry Questions And Answer Sets (QAS). Bottom-up standardisation can be achieved by facilitating the re-use of existing questions through t...

Question and answer sets are the core of clinical research. The [RD] PRISM (Patient Registry Item Specifications and Metadata for Rare Disease) project will provide a library of standardized questions across a broad spectrum of rare diseases that can be used for a variety of clinical information and data collection purposes, such as registries. Que...

Background: This study explores optimistic bias and information seeking in prostate cancer patients and how they impact intention to undergo prostate cancer screening. Methods: A national sample of 427 Taiwanese male adults aged at least 45 years (mean (M) = 57) were recruited to complete a telephone-based survey questionnaire between April 30 a...

Objective: A continual problem confronting the implementation of standardized vocabularies such as SNOMED CT is that their expressive flexibility and power provide more than one way to represent a given concept. The goal of this study was to investigate how the CliniClue Expression Transformer tool could be used to help in discerning similarities...

Purpose – The aim of this paper is to investigate predictors of online medical research by nurses. Design/methodology/approach – A cross‐sectional study was conducted and a representative sample of nurses was selected from three Taiwanese hospitals from 1 January to 31 March 2007. A total of 274 female nurses completed the questionnaire. Findings...

Semantic interoperability requires consistent use of controlled terminologies. However, non-terminology experts (although perhaps experts in a particular domain) are prone to produce variant coding. We examine this problem by investigating SNOMED CT coding variation for other findings reported on case report forms from a clinical research study on...

This study explores factors influencing international students' likelihood of using the Internet to seek disaster-related information should a disaster affect their countries. A cross-sectional survey was conducted in two universities in America between August 1 and September 30, 2005. Two hundred twenty-nine (n = 229) students completed the self-a...

To compare consistency of coding among professional SNOMED CT coders representing three commercial providers of coding services when coding clinical research concepts with SNOMED CT. A sample of clinical research questions from case report forms (CRFs) generated by the NIH-funded Rare Disease Clinical Research Network (RDCRN) were sent to three cod...

Research is limited regarding the potential of genetic testing for cancer risk in rural Appalachia. This study examined perceptions of genetic testing in a population sample of Kentuckians, with a focus on Appalachian and rural differences. The goals were to examine cultural and psychosocial factors that may predict intentions to test for hereditar...

This article reports the development and evaluation of a physician-parent communication skills training program designed to improve communication regarding antibiotic prescribing for children. Four pediatricians and 81 parents participated in the study, which involved audiotaping "sick child" office visits and then coding transcripts for evidence o...

To estimate the coverage provided by SNOMED CT for clinical research concepts represented by the items on case report forms (CRFs), as well as the semantic nature of those concepts relevant to post-coordination methods. Convenience samples from CRFs developed by rheumatologists conducting several longitudinal, observational studies of vasculitis we...

This research contrasts two different conceptions, fields and pathways, of individual information behavior in context. These different approaches imply different relationships between actors and their information environments and, thus, encapsulate different views of the relationship between individual actions and contexts. We discuss these differe...

How have theorists and empirical researchers treated the human tendency to avoid discomforting information? A historical review (1890-2004) of theory literature in communication and information studies, coupled with searches of recent studies on uptake of genetic testing and on coping strategies of cancer patients, was performed. The authors' revie...

Objective. The public has a high interest in seeking personal genetic information, which holds implications for health information seeking research and health care policy. Rapid advances in cancer genetics research promise early detection, prevention and treatment, yet consumers may have greater difficulty finding and using the information they may...

The intersection of the genetics era and information age poses unique and daunting challenges for health consumers who may not have the health literacy to keep pace. While rapid advances in genetics research promise enhanced care, the inherent complexities and individualistic nature of genetic information have resulted in a challenging information...

The aim of this study was to examine the information-seeking behaviors (e.g., information resource usage patterns, access to types of sources and to medical libraries, and use of particular information technologies) of members in a primary care practice-based research network (PBRN) to inform future efforts supporting primary care practitioners in...

The diffusion of the Internet has radically expanded the readily available sources for information of all types. Information that was once obtained second-hand from friends and acquaintances--the traditional "two-step flow"--is now found easily through the Internet. The authors make use of survey data to explore this thesis in regards to informatio...

To examine the current levels of information technology (IT) use in a primary care practice-based research network (PBRN) in order to inform future development of its infrastructure. Every primary care practitioner who is a member of the Kentucky Ambulatory Network (KAN),as well as the office managers of each practice. Practitioners included family...

This study presents the results of an author co-citation analysis of the interdisciplinary field of medical informatics. An author co-citation analysis was conducted for the years 1994 to 1998, using the fifty most-cited American College of Medical Informatics fellows as an author population. Co-citation data were calculated for every author pair,...

This poster outlines an interactive, dynamic GUI based on a Markov model for clinical literature retrieval that responds to end-user inputs for specific clinical or patient needs.

Health-related topics are relevant to a diverse array of people, which makes health information seeking a rich area in which to study how people look for information and to create interventions to aid in their searches. Cancer genetics is an important health context because information acquisition can positively impact an individual's morbidity and...

The Internet has created new opportunities for librarians to present literature search results to clinicians. In order to take full advantage of these opportunities, libraries need to create locally maintained bibliographic databases. A simple method of creating a local bibliographic database and publishing it on the Web is described. The method us...

This paper is motivated by the problems of dealing with large data sets in information retrieval. The authors suggest an information retrieval framework based on mathematical principles to organize and permit end-user manipulation of a retrieval set. By adjusting through the interface the weights and types of relationships between query and set mem...

Discusses the development of a model for providing user-centered access to collections of information that uses a standard terminology to represent the information collection and a set of possibly overlapping user domains to represent a social network. Describes results of a pilot study using the Metathesaurus of the Unified Medical Language System...

The Kress Study Collection Virtual Museum Project was designed for the course "Information Storage and Retrieval," which introduced graduate students in the School of Library and Informational Science at the University of Missouri-Columbia to concepts of electronic storage and retrieval of documents, images, and data, with an emphasis on the design...

Thesis (Ph. D.)--University of Missouri-Columbia, 2000. Vita. Includes bibliographical references (leaves 159-165). Microfiche.