Jaci Huws

Bangor University · School of Medical & Health Sciences

STRUCTURED Summary Background Registered nurses perform numerous functions critical to the success of antimicrobial stewardship but only 63% of pre-registration nursing programmes include any teaching about stewardship. Updated nursing standards highlight nurses require antimicrobial stewardship knowledge and skills. Aim To explore the delivery o...

Objectives This study assessed antimicrobial stewardship (AMS) and infection prevention (IP) interventions targeting healthcare-associated Clostridioides difficile and carbapenem-resistant Klebsiella pneumoniae (CRKP) infections, their key outcomes and the application of behaviour change principles in these interventions. Design This scoping revie...

Aim The occurrence of measles outbreaks has increased, and previously measles-free countries are experiencing a resurgence, making measles elimination by 2020 unlikely. Therefore, outbreak prevention and rapid response strategies will need to be intensified. This systematic review therefore examines whether contact tracing (CT) as compared to no CT...

Background Health professionals were trained to deliver adapted psychological interventions for depression to people with learning disabilities and depression alongside a supporter. Exploring the delivery of psychological interventions can help increase access to therapy. Method Twenty‐seven participants took part in six focus groups, and the data...

This article describes a co-design study to develop a sleep hygiene education tool for children with developmental disabilities and behavioural sleep problems. The tool is underpinned by a programme theory, which explains how sleep hygiene education should work to improve children’s sleep. In three co-design workshops, eight parents and six practit...

Objectives: This study assessed antimicrobial stewardship (AMS) and infection prevention (IP) interventions targeting healthcare-associated Clostridioides difficile and carbapenem-resistant Klebsiella pneumoniae (CRKP) infections, their key outcomes and the application of behaviour change principles in these interventions. Design This scoping rev...

Accessible summary • Sleep hygiene education (SHE) is a “behavioural” intervention which helps parents create the best sleeping conditions for their child. It is often used to improve sleep problems that children with developmental disabilities have. • SHE includes advice around creating bedtime routines, creating a calming bedroom environment and...

Evidence for the effectiveness of mindfulness-based interventions for children and young people’s well-being is growing, particularly within educational settings. To date, very few studies have explored how children experience and apply mindfulness. This qualitative study investigated how children who received long-term mindfulness training applied...

Background: Sleep hygiene education (SHE) is a familiar intervention for addressing behavioural sleep problems in children with developmental disabilities that involves advising parents on sleep‐promoting behaviours; however, it is supported by a limited evidence base. Materials and methods: This exploratory study aimed to enhance qualitative unde...

This qualitative study develops a programme theory demonstrating the complexity embedded in sleep hygiene education (SHE) as an intervention to improve sleep problems in children with developmental disabilities. In co-design workshops, eight parents and six sleep practitioners deliberated themes developed from findings of an earlier exploratory stu...

Background: Little evidence exists to show the exact impact of the link nurse role in promoting best practice in infection prevention. This paper is a report of the implementation and evaluation of a link nurse programme for community hospitals across one NHS organisation. Aim/objectives: The main aim of the study was to implement and evaluate a...

This study explored the experience of young adults having a parent with young-onset dementia. In-depth interviews were undertaken with five participants aged between 23 and 36 years of age and these were analysed using interpretative phenomenological analysis. Participants were found to experience a number of stresses in relation to their parent's...

Aim: The global acceptance of the benefits of healthy eating underlines the need to explore the perspectives of individuals with intellectual disabilities (ID). Method We developed six questions about healthy eating that were piloted at a conference for people with ID. A university researcher and a researcher with ID conducted and filmed semi-struc...

Background: The perceptions of individuals with Down syndrome are conspicuously absent in discussions about the use of prenatal testing. Method: Eight individuals with Down syndrome were interviewed about their views and experience of the topic of prenatal testing. Results: Interpretative phenomenological analysis revealed two major themes wit...

Background: Policy developments and their implementation have improved the lives of people with autism in the UK (Autism Act 2009; WAG, 2009; DOH,2010). However, some people continue to encounter inequitable access to health and social care (DOH 2014), thus countering recommendations for putting citizens first by providing effective, timely and qua...

This grounded theory study explores conceptualisations of chronic fatigue syndrome/myalgic encephalomyelitis from semi-structured interviews with 10 health-care professionals working with children and adolescents.The findings suggest that a lack of a clear empirical understanding of chronic fatigue syndrome/myalgic encephalomyelitis leads to ‘worki...

Aim: The ‘Question-Aires’ are an inclusive research group funded by the Welsh Government’s Learning Disabilities, Autism, and Neurodevelopmental Network and Involving People. We comprise people with a learning disability, volunteers, staff from Bangor University, Conwy Connect and Mencap Cymru. We aim to do research that people with learning disabi...

http://www.ldancymru.org.uk/question-aires/documents/IASSIDDViennaQuestionAirespresentation120714RWW.pdf

The present qualitative study comprised interviews with nine young people with autism (aged 16-21 years) about their perceptions of autism. Using interpretative phenomenological analysis, three underlying themes were illuminated, and all these formed the superordinate theme Making Comparisons: (a) Changes over time: 'I'm really glad this is develop...

Acceptance of pain has been found to play an important role in adjusting to chronic pain, and the evidence-base is growing with regards to the effectiveness of acceptance-based interventions such as acceptance and commitment therapy, mindfulness and contextual cognitive behavioural therapy within pain management settings. Despite the growing intere...

Purpose- To gain information regarding the experiences of Acquired Brain Injury (ABI) family caregivers who attended an acceptance based group intervention. Design - A qualitative study design was used, using Interpretative Phenomenological Analysis (IPA). Findings - Five key themes were identified: Increasing personal awareness; The dialectic of e...

Objectives: The objective of this study was to gain an insight into how people with autism spectrum disorder (ASD) view the concept of autism and how they view society’s reactions to people with this diagnosis. Methods: Nine students attending a specialist college for individuals with an ASD were interviewed about their views on the nature of autis...

Background: Psychiatric conceptualisations of autism have been criticised for a narrow perspective based on an overly medicalised and diagnostic view of the condition. We were interested in exploring the views of psychiatrists when asked to reflect on their understanding of the concept. Methods: In-depth semi-structured interviews were conducted wi...

There is a paucity of research that explores the use of touch within psychotherapy from therapists’ perspectives. This qualitative study explored clinical psychologists’ accounts of offering or excluding touch within therapeutic practice. Semi-structured interviews were conducted with six clinical psychologists working within adult mental health se...

Individuals with Down syndrome are at increased risk of congenital heart conditions (CHCs), and mortality is higher in people with Down syndrome and a CHC than those without (J. C. Vis et al., 2009). As a consequence, parents of children with Down syndrome and a CHC are more likely to outlive their child. In this research, semistructured interviews...

The prevalence of autism spectrum disorders is believed to be higher than that of other conditions such as Down syndrome or diabetes, yet few studies explore the ideas lay people have about autism. Semi-structured interviews were used to explore how ten lay people with no knowledge or experience of autism conceptualised autism. Interpretative pheno...

Past research indicates that newspaper representations of developmental disability reinforce negative stereotypes. The aim of this study was to examine depictions of autism in British newspapers. A qualitative content and discourse analysis of newspaper accounts of autism was conducted over four 1-month time points, every 3 years, between May 1999...

Therapist self-disclosure of sexuality can be therapeutically beneficial when both therapist and client identify as gay. This study attempted to explore the views and experiences of gay male clinical psychologists disclosing their sexuality to gay male clients. Five gay male clinical psychologists were interviewed, and subsequent transcriptions wer...

Background Individuals with intellectual disability are at higher risk of premature death compared with individuals without intellectual disability, and therefore parents of people with intellectual disability are more likely to outlive their children. However, there has been relatively little research investigating the bereavement experiences of p...

Although there is extensive research examining parental experiences of assessment and diagnosis of autism, there is a paucity of research from the perspective of individuals with autism. Semi-structured interviews were conducted with nine young people with high functioning autism who were capable of providing a verbal account of their perceptions o...

Inequalities in health care and other risk factors mean that children with intellectual disabilities are more likely to predecease their parents. Research on the effects on family members when a child with intellectual disability dies is sparse. In the present review, the authors describe 5 studies of bereavement in intellectual disability and then...

Five first-hand web page accounts of unusual sensory perceptual experiences written by persons who claimed to have high-functioning autism were selected,for qualitative analysis. Four core categories emerged, turbulent sensory perceptual experiences, coping mechanisms, enjoyable sensory perceptual experiences, and awareness of being different, sugg...

Parents of children with autism have difficulties obtaining adequate information and support to guide them in the care of their children. However, the growth of communication technologies such as email has created greater opportunities for accessing such resources. This article presents a grounded theory analysis of the messages sent to an email gr...

Internet-based first-hand accounts of five people who describe themselves as 'high functioning autistic' were analysed using a thematic analytic approach. Four central themes were identified. These were a sense of alienation, a sense of frustration, depression as a central emotion, and a pervasive sense of fear or apprehension. The findings not onl...

Social support: Parents of children with autism using an e-mail group.