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8
Publications
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Introduction
Isaäc Bos currently retired. The most recent publication is 'The prevalence and severity of disease-related disabilities and their impact on quality of life in neuromuscular diseases'.
Skills and Expertise
Publications
Publications (8)
Purpose: People with neuromuscular disease experience lower quality of life levels than people from the general population. We examined the prevalence and severity of a broad range of neuromuscular disease-related disabilities and their impact on health-related quality of life.
Materials and methods: A cross-sectional postal survey study was conduc...
Background
The aim of this study was to examine the stability and relative validity (RV) of the Neuromuscular Disease Impact Profile (NMDIP) using criterion-related groups. In a previous study the NMDIP-scales showed good internal consistency, convergent and discriminant validity. Known-groups analysis showed that the NMDIP discriminates between ca...
Objective: To adapt and to combine the self-report Upper Extremity Functional Index and Lower Extremity Function Scale, for the assessment of disability severity in patients with a neuromuscular disease and to examine its psychometric properties in order to make it suitable for indicating disease severity in neuromuscular diseases.
Design: A cross-...
Objectives:
To develop a measure that is based on the International Classification of Functioning, Disability and Health (ICF) and reflects the prevalence and severity of disabilities related to neuromuscular disorders, and to evaluate the psychometric properties of this measure.
Methods:
A preliminary questionnaire was developed, based on the c...
Objective:
This study explores, based on the International Classification of Functioning, Disability and Health, the consequences of different operationalizations of participation in regression models predicting participation in one sample of patients.
Design:
Cross-sectional, comparative study.
Setting:
Department of Neurology of a University...
Objective:
To examine the influence of stigma on the quality of life of patients with a neuromuscular disease.
Design:
Cross-sectional postal survey.
Setting:
Outpatient clinic of the Department of Neurology, University Hospital Groningen, the Netherlands.
Subjects:
Patients diagnosed with a neuromuscular disease.
Measures:
The Stigma Scal...
Background:
Understanding of the consequences of a neuromuscular disease (NMD) can improve when a valid sample of disease-specific categories based on the International Classification of Functioning, Disabilities, and Health (ICF) is available.
Objective:
To examine the content validity of the initial ICF Core Set for neuromuscular diseases (NMD...
Questions
Question (1)
