Hélène Mellerio

Hélène Mellerio
French Institute of Health and Medical Research | Inserm · ECEVE UMR1123, CIC EC 1426, Hôpital R.Debré, Paris

MD, PhD
Pediatrician & Practitioner in adolescent medicine in Robert Debre Hospital (Paris, France)

About

43
Publications
5,071
Reads
How we measure 'reads'
A 'read' is counted each time someone views a publication summary (such as the title, abstract, and list of authors), clicks on a figure, or views or downloads the full-text. Learn more
203
Citations
Citations since 2017
20 Research Items
155 Citations
2017201820192020202120222023010203040
2017201820192020202120222023010203040
2017201820192020202120222023010203040
2017201820192020202120222023010203040

Publications

Publications (43)
Article
Full-text available
The use of transition readiness questionnaires is strongly recommended in adolescents with chronic conditions. The aim of our study was to validate “Good2Go,” the first French-language transition readiness questionnaire. We analyzed the data from 2 multicentric studies (Canada and France) involving adolescents with chronic conditions (type 1 diabet...
Article
Background: The last 20 years have seen many attempts to improve transition to adult healthcare for adolescents with chronic disease, but there is currently no established consensus on generic practices. Our goal was to identify relevant and pragmatic guidelines for transition practice for each step of this process (before, during and after transf...
Article
Full-text available
Background: In France, chronic diseases affect 3 million children. In children with chronic conditions, long-term somatic outcome has been well described, but little is known about the psychosocial aspects of well-being. Methods: Our aim was to build a self-administered questionnaire of global well-being in adults who had a chronic disease since...
Article
Full-text available
Objective To explore the methodologies employed in studies assessing transition of care interventions, with the aim of defining goals for the improvement of future studies. Design Systematic review of comparative studies assessing transition to adult care interventions for young people with chronic conditions. Data sources MEDLINE, EMBASE, Clinic...
Article
Full-text available
Our objective was to assess the value of transition preparation consultations (TPC) offered by the AD’venir unit (R. Debré hospital, Paris) as a new service of transitional care, from the perspective of adolescents with chronic conditions (CCs) and their referring healthcare providers (RHCPs). TPCs included a face-to-face interview with pediatricia...
Article
Objective. To evaluate the effect of a new care organisation on multiple outcomes of transition success and its cost-effectiveness in patients with any endocrine or metabolic disease diagnosed during childhood and transferred to adult care. Design. Non-randomized controlled trial in a French University Hospital. Methods. Patients transferred to adu...
Chapter
Full-text available
Cet ouvrage collectif en hommage à Françoise Héritier rassemble des textes d’anthropologues qui ont en commun d’avoir suivi le séminaire « Corps et affects » qu’elle avait dirigé avec Margarita Xanthakou au Laboratoire d’Anthropologie Sociale et d’avoir commencé leurs recherches en Afrique. Tous les auteurs développent leurs réflexions sur des élém...
Article
Full-text available
La transition entre la pédiatrie et la médecine pour adultes est une période charnière pour les adolescents et jeunes adultes porteurs d’une maladie chronique : elle comporte un fort risque de rupture du parcours de soins et de dégradation de l’état de santé à court et long termes. Pour accompagner ce passage, plusieurs plateformes de transition on...
Article
Full-text available
Background Long-term psychosocial outcomes and health-related quality of life (HRQOL) in adults with pediatric onset of frequently relapsing or steroid-dependent idiopathic nephrotic syndrome (FRNS or SDNS) remain to be determined.Methods In this prospective cohort study, 59 adults with pediatric onset of FRNS/SDNS and persistent active glomerular...
Preprint
Full-text available
The objective of the study was to assess the clinically relevant features of the pre-transition consultation (PTC) offered in AD’venir transition unit (R.Debré hospital, Paris) to all adolescents with a chronic condition. PTCs include a face-to-face interview with pediatricians trained in adolescent medicine, exploring the past (disease history), p...
Conference Paper
Introduction Le syndrome néphrotique idiopathique cortico-dépendant (SNICD) apparu dans l’enfance constitue une maladie chronique faite de phases de poussées et de rémissions. Toutefois, son impact global (insertion socio-professionnelle, qualité de vie, transition) à long terme est mal connu. Méthodes Les données de 59 adultes (20 services de nép...
Conference Paper
Full-text available
L'enfant porteur de syndrome néphrotique idiopathique : quel devenir à l'âge adulte ? Si pour certains enfants le syndrome néphrotique idiopa-thique (SNI) restera un épisode unique, cette pathologie évo-luera pour la majorité d'entre eux par des phases de poussée de la maladie entrecoupées de phases de rémission obte-nues sous l'effet des corticoïd...
Conference Paper
Full-text available
• La transition est un processus lent et progressif :-la préparation doit être globale et investiguer les différents aspects de la vie du jeune (vie familiale et sociale, projets professionnels, loisirs, consommations, sexualité… ; la checklist heaaDssss est utile pour la conduite d'une consultation avec un adolescent) ;-le passage doit être planif...
Article
Introduction: A dozen innovative care clinics have recently opened in France to support the transition of adolescents with chronic conditions between pediatric and adult healthcare units through various interventions. Some patients' associations have set up specific programs for adolescents and young adults (AYAs) in order to facilitate the transi...
Conference Paper
Introduction Dans leur parcours de soins, les jeunes porteurs de maladies chroniques sont confrontés à une étape de transition de leur suivi médical des services pédiatriques aux services de soins pour adultes. L’objectif de cette transition est de maximiser le potentiel de chaque jeune en lui donnant accès à des services de santé appropriés à chaq...
Article
Full-text available
Managing the transition from childhood to adulthood in people with chronic disease. In young people with chronic condition, the transition from childhood to adulthood is a double challenge: challenge of adolescent development, impaired by disease or disability, and challenge of transition from pediatric to adult healthcare. To avoid discontinuity o...
Book
Full-text available
Cet ouvrage est né de la rencontre et de la discussion entre des anthropologues et des médecins impliqués dans des activités de recherche en milieu clinique. Une demande croissante de ces cliniciens et des épidémiologistes émerge afin de développer des volets qualitatifs au sein de leurs recherches, sans qu'ils aient pour autant une idée claire des...
Conference Paper
Introduction En France, 15 % des enfants et adolescents, soit trois millions, sont atteints de maladie chronique. À l’adolescence, ils sont confrontés à une étape de transition des structures pédiatriques aux structures de soins adulte, dont le succès ou l’échec peut avoir des conséquences durables sur la santé (risque accru de décompensation ou de...
Article
Introduction Dans leur parcours de soins, les jeunes porteurs de maladies chroniques sont confrontés à une étape de transition de leur suivi médical des services pédiatriques aux services de soins pour adultes. L’objectif de cette transition est de maximiser le potentiel de chaque jeune en lui donnant accès à des services de santé appropriés à chaq...
Conference Paper
Introduction En France, 15 % des enfants et adolescents, soit trois millions, sont atteints de maladie chronique. À l’adolescence, ils sont confrontés à une étape de transition des structures pédiatriques aux structures de soins adulte, dont le succès ou l’échec peut avoir des conséquences durables sur la santé (risque accru de décompensation ou de...
Book
Cet ouvrage est né de la rencontre et de la discussion entre des anthropologues et des médecins impliqués dans des activités de recherche en milieu clinique. Une demande croissante de ces cliniciens et des épidémiologistes émerge afin de développer des volets qualitatifs au sein de leurs recherches, sans qu'ils aient pour autant une idée claire des...
Thesis
Full-text available
DeveniràDevenirà l'ˆ age adulte des enfants porteurs de pathologie chronique Héì ene Mellerio (lagrange) To cite this version: Héì ene Mellerio (lagrange). DeveniràDevenir`Devenirà l'ˆ age adulte des enfants porteurs de pathologie chronique : Exemples de la transplantation rénale pour insuffisance rénale terminale et du diabète de type 1. Santé pub...
Article
Full-text available
This study describes the socio-professional outcomes, health-related quality of life (HRQOL) and sexuality of adults with childhood-onset type 1 diabetes (T1D). The study participants (n=388), recruited from a nationwide registry (age: 28.5±3.1 years; T1D duration: 17.0±2.7 years), completed a questionnaire (198 items); the results were compared wi...
Article
Full-text available
Little is known about the socioprofessional situation of adult-aged kidney-transplanted children. This nationwide French cohort study documented the socioprofessional outcomes of adults who underwent kidney transplantation before age 16 years between 1985 and 2002. Of 890 patients, 624 were eligible for a questionnaire and 374 completed it (respons...
Article
Full-text available
Most of the cardiovascular risk factors strongly associated with obesity and overweight vary with age and gender. However, few reference values are available for healthy European children. Our objective was to establish pediatric reference ranges for waist circumference, systolic and diastolic blood pressures, fasting lipid levels (total cholestero...
Article
Many disorders have been described in infants exposed to carbimazole during the first weeks of pregnancy. The most common of them are congenital aplasia cutis, choanal atresia and esophageal atresia. Rather unspecific dysmorphic features and developmental delay have also been reported. This set of congenital malformations suggests the existence of...
Article
Many disorders have been described in infants exposed to carbimazole during the first weeks of pregnancy. The most common of them are congenital aplasia cutis, choanal atresia and esophageal atresia. Rather unspecific dysmorphic features and developmental delay have also been reported. This set of congenital malformations suggests the existence of...

Network

Cited By

Projects

Projects (5)
Project
Mix-methods research : - To characterize the engagement of adolescents with somatic chronic conditions recognized as ALD (affection de longue durée) into Risk behaviors (QUANTITATIVE component) -->survey questionnaires // comparision to the French general population (ENclass/HBSC and Portrais d'Adolescents data) --> n expected =500 adolescents (recrutment in progress, 12 centers in France) - To elicite strategies of preventive action of risk behaviors in this population (QUALITATIVE component) --> focus groups
Project
Describe their sexual health, with a focus on adolescents living with HIV since childhood.
Project
to explore experience of adolescents and their parents during transition from pediactric to adult heathcare and to develop and evaluate interventions to enhance the empowerment of these adolescents