Gillian Colville

Gillian Colville
St George's, University of London | SGUL · Population Health Research Centre

MPhil

About

70
Publications
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1,641
Citations

Publications

Publications (70)
Article
Objectives: To identify the risks of developing post-traumatic stress disorder (PTSD) and/or depression in parents following their child's PICU admission using a brief screening instrument and to examine the associations with these risks. Design: A cross-sectional parental survey. Setting: A general 13-bed PICU at a large teaching hospital. S...
Article
Background: Although bereaved parents suffer greatly, some may experience positive change referred to as post-traumatic growth. Objective: Explore the extent to which parents perceive post-traumatic growth after their child's death in a pediatric intensive care unit (PICU), and associated factors. Design: Longitudinal parent survey conducted 6 and...
Conference Paper
Full-text available
Aims Medically unexplained symptoms (MUS) are distressing somatic experiences that appear to be of physical origin, but are medically unexplained. Despite evidence from the adult literature that these cases are associated with high utilisation of health care resources, little is known about the impact on services of MUS in children. The aim of this...
Article
Full-text available
Introduction Annually in the UK, 20 000 children become very ill or injured and need specialist care within a paediatric intensive care unit (PICU). Most children survive. However, some children and their families may experience problems after they have left the PICU including physical, functional and/or emotional problems. It is unknown which chil...
Article
Semistructured interviews were conducted with patients and family members (n = 18) postdischarge to examine how they managed their recovery in the year following a child's intensive care unit admission. Data were analyzed using the grounded theory. Participants described an ongoing need to develop and adapt their narratives about admission and reco...
Article
Objective To determine the prevalence of work-related psychological distress in staff working in UK paediatric intensive care units (PICU). Design Online (Qualtrics) staff questionnaire, conducted April to May 2018. Setting Staff working in 29 PICUs and 10 PICU transport services were invited to participate. Participants 1656 staff completed the...
Conference Paper
Aims Working in a Paediatric intensive care unit (PICU) is stressful. Staff may be at risk of post-traumatic stress disorder (PTSD), burnout and moral distress. These impact on staff well-being, staff retention and patient care. The aim of this study was to determine the prevalence of these conditions in healthcare professionals across the UK PICU...
Article
Objectives: Adults report high levels of fatigue after intensive care, but little is known about pediatric survivors. This study aimed to explore rates of self-reported fatigue in children after critical illness. Design: Prospective cohort study. Setting: Tertiary children's hospital. Patients: Ninety-seven children aged 7-17 years old. Int...
Article
Elevated rates of burnout and post-traumatic stress have been found in staff working in critical care settings, but the aspect of moral distress has been harder to quantify until a recent revision of a scale previously designed for nurses, was adapted for use with a range of health professionals, including physicians. In this cross-sectional survey...
Conference Paper
Background and aims There is a high burden of mental health (MH) problems among children with epilepsy. The relationship between MH problems and epilepsy is bidirectional with shared risk factors. Our key aims were: • To determine the prevalence of MH difficulties among the patients of our Secondary Paediatric Epilepsy Service. • To ascertain if m...
Conference Paper
Background Technological advances have decreased PICU mortality but increased the number of children surviving with disability or technologically-dependent. Death in PICU most frequently follows withdrawal of life-sustaining therapy (LST), increasingly after prolonged admissions for invasive organ support. Disagreements with families about cessatio...
Article
Context: Over the past several decades, advances in pediatric critical care have saved many lives. As such, contemporary care has broadened its focus to also include minimizing morbidity. Post-Intensive Care Syndrome, also known as PICS, is a group of cognitive, physical and mental health impairments that commonly occur in patients after intensive...
Article
Objective: To study the role of parental resilience, emotions accessed during admission and perceived stress in predicting the degree of parental posttraumatic stress disorder (PTSD), anxiety and depression symptoms after a child's treatment in intensive care. Methods: This was prospective longitudinal cohort study. A total of 196 parents of ped...
Conference Paper
Aims To assess whether the improved service provision introduced under the new Paediatric Diabetes Best Practice Tariff, which includes increased contact with the multi-disciplinary team and greater access to psychology support, has impacted positively on the quality of life of young people with diabetes. Method In 2011 n=55 children and young peo...
Article
Objectives: To examine the associations with symptoms of 1) burnout and 2) work-related posttraumatic stress, in adult and pediatric intensive care staff, focusing on the particular contributions of resilience and coping strategies. Design: Point prevalence cross-sectional study. Setting: Three adult ICUs and four PICUs. Subjects: Three hund...
Article
There is increasing evidence that a significant number of parents are affected by symptoms of posttraumatic stress and anxiety for many months after their children’s serious illnesses or accidents. It is important, therefore, that psychological treatments for use with this population are tried and evaluated for effectiveness with this population. T...
Article
Recent improvements in mortality rates in pediatric intensive care have led to an increasing focus on the physical and psychological morbidity of pediatric patients. In this review, guidance on the acute psychological management of children, during and shortly after their intensive care treatment, is provided. This is informed by the current state...
Article
This study aimed to assess whether prospectively screening parents for psychological vulnerability would enable beneficial targeting of a subsequent follow-up clinic. Parents of children consecutively admitted to a PICU were assessed for risk of developing posttraumatic stress disorder at discharge using the Posttraumatic Adjustment Scale. High-ris...
Article
As a child psychologist I am sometimes asked to see children in families where a death is anticipated. The assumption is that I will help them understand more about the illness and provide a safe space in which they can express their feelings about what is happening. But surprisingly often my young patients have made it quite clear that this is not...
Article
Full-text available
The objectives of this survey were to establish the prevalence of symptoms of post-traumatic stress in mixed staff groups working in adult and paediatric intensive care settings and to examine the main themes in staff descriptions of the most traumatic event they had experienced at work.
Article
Full-text available
Dear Editor,The extent of work-related stress reported by intensive care staff has been described as being at the level of an epidemic [1] and yet little is understood about the relative impact of resilience and coping in relation to these outcomes [2].In a survey of 120 health professionals working in a tertiary hospital paediatric intensive care...
Conference Paper
Introduction: Referral: The father of a child who had been hospitalized for two years, was referred for psychological support by a pediatric community nurse, six months after hospital discharge. He was expressing continuing anxiety about the child's health and was having difficulty relaxing and sleeping. Formulation: The case formulation was that t...
Article
Full-text available
Aims Working on intensive care (ICU) can be stressful, Adult-ICU studies demonstrate staff burnout and post-traumatic stress disorder, (PTSD) although resilience is associated with a healthier psychological state in ICU nurses. This study aims to determine whether resilience is related to the prevalence of burnout and PTSD symptoms in PICU/NICU sta...
Article
OBJECTIVES:: Study was to establish children's own views of their outcome. DESIGN:: Prospective cohort study: A number of studies have reported on parental/clinician reports of children's quality of life after intensive care treatment. The aim of this SETTING:: Twenty-one bed PICU in a tertiary Children's Hospital. PATIENTS:: Ninety-seven children...
Article
To establish longitudinal rates of post-traumatic stress in a cohort of child-parent pairs; to determine associations with poorer outcome. This was a prospective longitudinal cohort study set in a 21-bed unit. In total 66 consecutive admissions aged 7-17 years were screened with one parent at 3 and 12 months post-discharge. Measures used were the C...
Article
Until relatively recently it was assumed that as long as they were appropriately sedated, children on intensive care units were unaware of what was happening to them. But new evidence is emerging that they, like adult intensive care patients, can be troubled by disturbing memories of their treatment or of the circumstances that brought them into th...
Article
Paediatric intensive care has a significant impact on the children and families who experience it. This effect continues post-discharge as the family attempt to recover from their ordeal. This article begins with an exploration of what makes a Paediatric Intensive Care Unit (PICU) admission potentially so traumatising and then examines current mode...
Article
Full-text available
A number of studies have reported on parental/clinician reports of children's health-related quality of life (HRQoL) after intensive care treatment [1]. The aim of this study was to establish children's own views as to their outcome in this regard.
Article
The aim of this prospective study was to establish the degree to which parents report post-traumatic growth after the intensive care treatment of their child. Prospective cross-sectional cohort study. Paediatric Intensive Care Unit (PICU). A total of 50 parents of children, admitted to PICU for >12 h. Parents provided stress ratings as their child...
Article
In this study, parents were asked which aspects of their experience of having a child in intensive care had caused them the most distress and how they continued to be affected by these experiences. Semi-structured interviews held with 32 mothers and 18 fathers of children admitted to a paediatric intensive care unit 8 months earlier, were audiotape...
Article
There is growing literature on the psychologic impact on parents and families of having a child on the pediatric intensive care unit (PICU), but less is known about the child's experience. In this article the relevant literature is explored and illustrated with examples from the author's research. Recurring themes are the persistence of distress in...
Article
Delusional memories are significantly associated with post-traumatic stress in adult patients after intensive care. In this study, we attempted to establish whether this relationship was found in children. We also examined the association between factual memory and distress. One hundred two consecutive children, aged between 7 and 17 years, were in...
Article
To evaluate the effect of a psychological approach on distress and sedation rates in children undergoing dimer captosuccinic acid-labelled with technetium-99 (99mTc) DMSA imaging. Baseline data, on a retrospective consecutive sample of children examined using DMSA over a 6-month period (n = 81), were collected via medical note search and postal que...
Article
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Article
The aim of this study was to establish rates of posttraumatic stress symptoms in mothers after a child's admission to a Paediatric Intensive Care Unit (PICU) and their views on the potential value of a follow up appointment with PICU staff. Thirty-four mothers completed the Parental Stressor Scale:PICU, the General Health Questionnaire (GHQ-28) and...
Article
Full-text available
Self injury has not been previously reported in an intensive care setting. Two cases are presented of ventilator dependent children with high spinal cord lesions who exhibited an unusual form of self mutilation, namely lip biting. The key to extinguishing this behaviour was to address the children's psychological needs.
Article
In this retrospective study, a sample of 233 parents were surveyed, by means of a postal questionnaire, about their experience of a specialised paediatric retrieval service (median time interval after child's retrieval=10 months). Although all parents were routinely provided with written information about the retrieval service, only 46% remember re...
Article
This paper highlights the many complex psychological needs of paediatric patients in intensive care. The literature on the experience of children in intensive care and their relatives is reviewed and related to the work of a paediatric psychologist. Case examples are given of direct work with children and suggestions are made of ways in which the p...
Article
Full-text available
Sanfilippo syndrome is a rare degenerative disorder which has severe intellectual and behavioural sequelae, commonly including sleep problems. A parental questionnaire was used to gather information on the sleep patterns of 80 children with Sanfilippo syndrome (mean age 10 years 2 months). The majority were found to have sleep problems (78%). Many...
Article
The findings of an international questionnaire study of 258 children, affected by the four main subtypes of mucopolysaccharidosis, are presented. Questionnaires were completed by a parent or main carer and all subjects were alive at the time of contact and suffering from Hurler, Hunter, Sanfilippo or Morquio syndrome. A significant proportion of pa...
Article
This paper reports a study of the nature and prevalence of behaviour problems in 258 children with mucopolysaccharide disorders. Questionnaire data obtained through the post was supplemented by home visits to 42 families in the sample and by regular discussions with families at meetings of the Society for Mucopolysaccharide Diseases. High rates of...

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