Geert Van Hove

Geert Van Hove
Ghent University | UGhent · Faculty of Psychology and Educational Sciences

Prof.Dr.

About

216
Publications
56,011
Reads
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2,838
Citations
Citations since 2017
58 Research Items
1650 Citations
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Introduction
Geert Van Hove: Professor at Ghent University, my field of research is Disability Studies and Inclusive Education. I am the 2013 Gunnar Dybwad Award winner of the AAIDD. I am a jazz and basketball lover. I was the Disability Studies Professor of the Endowed Chair of Disability Studies at VUmc Amsterdam , Department of Medical Humanities 2013-2018. At the Disability Studies in Education Conference (2017) in Minneapolis I received the Steven Taylor Memorial Senior Scholar Award.
Additional affiliations
December 2013 - present
Amsterdam University Medical Center
Position
  • Endowed professor
Description
  • Endowed professor disability studies installed by DSIN
May 1989 - present
Ghent University
Position
  • Head of Department

Publications

Publications (216)
Article
In Flanders, we are searching to implement inclusion in our educational systems, knowing that we have a strong focus on segregation and specialisation. Parents are often missing in the debate, while they are confronted with experiences of exclusion and discrimination. Our aim was to hear the parents’ voices on high-quality childcare for children wi...
Preprint
Full-text available
Background Co-creation is a method to develop acceptable, contextually appropriate and potentially more effective interventions. Adolescents with intellectual disabilities (ID) seldomly participate in research and program development due to the assumption that they lack the capacity to understand and discuss the related topics. Objective This stud...
Chapter
Inclusive education has been recognized as the best principle and practice for addressing issues of equity and diversity. While the notion of inclusive education is present in policies and legislations worldwide (Artiles and Dyson, 2005), unsettling trends have been identified. This contribution attempts to address shortcomings of inclusive educati...
Chapter
Full-text available
Making Higher Education more inclusive for students with Intellectual and Developmental Disabilities can bring significant benefits for the students themselves and for the academic community, in general. Family involvement is essential for the successful transition to post-scholar life, namely Higher Education. This paper presents and discusses the...
Article
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Ehlers-Danlos syndrome and hypermobility spectrum disorder affect daily life. There is a lack of research that investigates how the disease affects aspects of participation. This study investigates whether there is a difference in the level of participation in society in persons with vascular EDS (N = 18), hypermobile EDS (N = 20), classical EDS (N...
Article
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Background: Professional support for people with intellectual disabilities is increasingly delivered remotely. Understanding what support workers do to support people with intellectual disabilities remotely, and how they do this, is therefore important. The purpose of this study was to gain insight into the remote support practice of the support st...
Article
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Inclusive research practices can lead to progress towards an inclusive society. With this study, we aimed to gain insight into dilemmas and catalysing processes within the long-term collaboration of an inclusive research duo: one non-academic researcher who lives with the label of intellectual disabilities and visual impairment, and one academic re...
Article
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The original adage of the movement of people with disabilities ‘Nothing about us without us’ is fortunately more and more adopted in the research world. There is, for example, increasing recognition of the importance and value of actively involving people with intellectual disabilities in research projects on topics that are relevant to them. In a...
Article
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Background People with Ehlers-Danlos Syndromes and Hypermobility Spectrum Disorders are hampered in their social participation, especially in the social relationships they have. Objective The aim of this study is to research the impact of hypermobile Ehlers-Danlos Syndrome (hEDS) and Hypermobile Spectrum Disorders (HSD) on interpersonal interactio...
Article
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Background: Professional support for people with intellectual disabilities is increasingly provided remotely. This study explores what support staff of the Dutch remote support service DigiContact experience as distinctive aspects of their job as a remote support professional. Method: Semi-structured interviews were held with 10 DigiContact supp...
Article
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Implementing inclusive education has proven problematic all over the world. The reasons are multiple, but one of them can presumably be related to the way students with disabilities are “created”, viewed, and responded to as “special education students” within schools. To challenge this, we need to understand students’ position within the school. I...
Article
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Creativity and affect in families with a family member, who is labelled as disabled, is central in this article. These families are often pinned down to individual, closed categories where everything revolves around the label “disability.” Our research goes beyond binary thinking in terms of abled/disabled and other linear explanations by using art...
Article
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eHealth applications are increasingly being used in services for people with intellectual disabilities (ID). DigiContact is an online support service that uses videoconferencing techniques to enable people with ID to contact a team of specially trained support workers 24/7. In this qualitative and participatory study we aimed to explore the experie...
Article
This paper engages with conversations with two teachers who each build socially just pedagogies and engage in minor gestures in response to the socio-educational-political reality they were confronted with – namely, a pupil disappearing from the classroom when her parents’ application for immigration was rejected. In an assemblage connecting the co...
Article
This study engages with children sharing experiences of belonging at school, of receiving access and of exploring complex relationalities along shifting borders in educational spaces. Their understandings offer a magnifying glass on normativity, difference and social positions in school spaces. Through ‘flattening and folding’ with material and the...
Article
Inclusive education is affirmed in Icelandic laws and regulations although, at upper secondary school level, schools can apply to establish special programmes for students who have been labelled as disabled. The application process for these programs differs from the one in the mainstream regarding arrangement and time. In this article, special att...
Article
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It is barely taken into account that a visually impaired child might one day become a parent. Research on the insider perspectives of parents on parenting with a visual impairment is scarce. This exploratory study reports on how six mothers and seven fathers living with a visual impairment experience parenthood. An individual or paired open intervi...
Article
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jats:p>Two women have become mothers. They both make art. They both grew up in a family with a sibling labelled as disabled. Ted, a visual artist, has made photographic and video work about her youngest sister. Marieke, an ethnographic filmmaker, created a short film about her eldest brother which fuelled her PhD about non-normative family lives. I...
Article
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In these research notes, we present the results of a roundtable and a subsequent process of reflection on the challenges facing researchers in disability studies using creative methods. The roundtable took place at a conference on disability, “Diversity & Belonging: Celebrating Difference” in Athens in 2018. The aim of the roundtable was to explore...
Article
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To understand the impact of the COVID-19 public health response on families of children with disabilities in Central Uganda we conducted phone interviews with parents and children during the first 5 months of the outbreak (March - July 2020). Most parents and children were well informed about COVID-19 and were keen to adhere to government preventio...
Article
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There is need to learn from indigenous knowledge and concepts when studying disability and inclusion in resource-constrained settings. We describe the development and testing of the ‘Obuntu bulamu’ intervention, a peer-to-peer support disability inclusion intervention, starting from indigenous interpretations of belonging and humanity. ‘Obuntu bul...
Article
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1.1 Background Researchers collected questions and needs for training from 10 inclusive research projects in the Netherlands. Based on literature research and the information collected, six training modules were developed. Researchers sought to learn how to develop and provide training and coaching to inclusive teams on organising collaboration in...
Article
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Background During the COVID-19 outbreak, service providers in the Netherlands had to switch towards providing remote support for people with intellectual disabilities living independently. This study aims to provide insight into the use of online support during the outbreak.
Article
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When it comes to disability, powerful ideas are articulated in and circulated through the media. Through framing analysis, this study examines how the media portray disability and people with disabilities in a sample of Flemish print news and entertainment magazines. The study aims to understand the dominant and alternative frames related to disabi...
Article
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jats:p> A panel convened around the idea of intersubjectivation, loosely conceived as a process of actively, consciously, and reciprocally adjusting the structures and power dynamics of our social relations, thereby mutually (and consensually) reconfiguring our subjectivities and, over time, our wider cultures. Through a series of explorations of h...
Article
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Background During the COVID‐19 outbreak, service providers in the Netherlands had to switch towards providing remote support for people with intellectual disabilities living independently. This study aims to provide insight into the use of online support during the outbreak. Methods We analysed quantitative data on planned and unplanned contacts b...
Article
This article takes a post-qualitative stance upon the construction and taking up of certain positions in research by children and adults, and explores how emergent assemblages of (non-)human agents shape how children’s voices are expressed and genuinely listened to within intra-active research encounters. Plugging in post-qualitative concepts as ‘l...
Article
Service organizations for people with intellectual and developmental disabilities (IDD) increasingly use telecare applications to improve their services. This study explored the usefulness of offering the 24/7 online support service DigiContact within a broader mix of professional services for people with IDD living independently. We employed a qua...
Article
Full-text available
Background: Due to a predominant focus on mothers, fathers of children with disabilities are greatly overlooked in research. One could argue that there is a lack of research on the multifaceted nature of fatherhood altogether. Therefore, this study aims to gain insight into the perceived experiences of fathers of children with disabilities. Metho...
Article
In this article, we begin with a story in which a teacher is perceived as cruel, a boy experiences exclusion, and a support worker feels guilty for not responding. Working together with students, we have written a play script that explores the entangled intra-active perceptions of the various players. The script was used in the professional develop...
Article
Every family culture is ruled by unspoken codes. Throughout the short film Lode’s Code, Marieke Vandecasteele (the first author) searches for these codes within her own family in a visual-ethnographic way. In traditional research, families with a family member with a disability are often pinned down to individual categories linked with linear expla...
Article
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Notwithstanding the benefits of studying or conducting an internship abroad, to date, students with disabilities hardly participate in international mobility programmes (IMPs). As little research has investigated the barriers to participation experienced by these students, the current study included the participation of 74 students with disabilitie...
Article
Background: “Ehlers–Danlos syndrome” (EDS) is a heritable connective disorder influencing multiple aspects of daily life. Most studies have focused on describing the physical symptoms and level of disability, but little knowledge exists about the psychosocial effects of the pathology. Participation in employment is an aspect that strongly influence...
Technical Report
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This reports highlights and updates the current status of inclusive education regarding students with intellectual disability in Spain
Article
Inclusive education interventions in low-income countries are dominated by definitions and frameworks from disability studies and educational research scholars from high-income countries. Disability studies scholars have argued for valuing diverse understandings and a different discourse when studying disability and inclusion in low-income countrie...
Article
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This editorial will at first present the thirteen different articles published in the issue. On a second level, we will focus on “overarching themes”. Those themes should be understood as links between the different articles in this volume.
Article
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Psychological wellbeing has received attention from academics and policymakers worldwide. Initiatives to improve psychoeducation, campaigns to raise awareness, and charity projects have been established as part of efforts to change public attitudes and behaviors toward mental health problems. The common goal of these initiatives is the prevention o...
Article
This article explores what (working with) matter can tell us that language cannot or does not completely tell, about becoming a sensual, sexual woman free to move smoothly in and with her body. It explores how (working with) matter can transform living in, with and through a body, and how it affects and is affected. The text is centred around “touc...
Article
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Objectives To synthesize the evidence on the psychometrics functional capacity evaluation (FCE) methods. Methods A systematic literature search in nine databases. The resulting articles were screened based on predefined in- and exclusion criteria. Two reviewers independently performed this screening. Included studies were appraised based on their m...
Article
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With inclusive research being an emerging field of interest, there is growing recognition that establishing collaborative relationships between researchers with and without ID entails specific demands. However, since studies on collaboration in inclusive research merely provide individual reports on experiences and challenges in one particular rese...
Article
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Background: This paper considers the voices of deaf children and their parents in Belgium’s Flemish community. Methods: This study is part of a larger longitudinal project on early interventions in families with deaf children. We open up questions of identity and belonging for empirical examination by exploring the unrecognized borderlands of a p...
Article
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This study aimed to describe problem behaviors and psychosocial strengths, examine the problem-strength interrelations, and evaluate profiles of problems and strengths in youth with Down syndrome (DS). The community-based sample consisted of 67 parents of children with DS aged between 4 and 19 years. Parents reported about the developmental age (Vi...
Article
Background: Studies on health related quality of life (HRQOL) of children with disabilities in low income countries are limited. Objective: To inform interventions for children with spina bifida in low income countries, HRQOL of children with spina bifida and siblings, predictors, relationships between HRQOL and parental stress in Uganda were ex...
Article
The movement towards inclusion comes together with a neoliberal audit mentality whereby individuals are held responsible for the transformations. The Special Educational Needs Coordinators (SENCOs) are seen as ‘change agents’ whose task it is, to support teachers in adapting their approach to optimise the chances for children with special needs in...
Book
Dit boek is opgedragen aan en belicht het levenswerk van prof. dr. Eric Broekaert (1951-2016), die gedurende zijn hele loopbaan verbonden is geweest aan de Vakgroep Orthopedagogiek van de Universiteit Gent. Het is geen ‘klasssiek’ liber amicorum geworden, maar een boek waarin een aantal belangrijke (in het Nederlands vertaalde) peer-reviewed artike...
Conference Paper
Full-text available
Universal Design, UD in learning, Inclusivity, Training, Stigma Prevention, Job opportunities and Talent development
Article
Background: The consequences of the Ehlers-Danlos Syndrome hypermobility type (EDS-HT) affect many aspects of daily life. "Living with limitations" is a central theme in the life of patients affected by this heritable disorder of connective tissue. The aim of the present study was to explore the lived experiences of women with EDS-HT concerning di...
Article
In our daily lives, we tend to put people - others and ourselves - in boxes (such as social categories, professional conduct, research participant samples, braces), especially when variation becomes associated with unruliness and triggers the reflex to manage/control/contain to prevent further deviation. This leaves little space for listening, crea...
Article
Community perceptions of people with disabilities are not uncommon and also have impact on access to services. This article discusses the results from interviews, participant observations as well as field notes with 62 participants (people with disabilities, families of people with disabilities, regular school teachers and principals, community-bas...
Article
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In Uganda, public health and education services are poorly equipped to respond to needs of children with spina bifida. Such children are highly dependent on their families for care and support. In this study, we explore the children's and their siblings' perceptions of family relationships, support, restrictions and care to inform policy and practi...
Article
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This study investigates cognitive abilities of pre/primary school children without and with spina bifida in Uganda. Qualitative semi structured interviews and quantitative functioning scales measurements were combined and conducted with 133 parents, 133 children with spina bifida, and 35 siblings. ANCOVA was used to test for differences in cognitiv...
Article
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New-born screening programs for congenital disorders and chronic disease are expanding worldwide and children “at risk” are identified by nationwide tracking systems at the earliest possible stage. These practices are never neutral and raise important social and ethical questions. An emergent concern is that a reflexive professionalism should inter...
Article
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Background: Despite an increase in HIV Counselling and Testing (HCT), few young people have been tested. It has been suggested that they do not test because formal health services (where HCT is provided) are often not youth friendly. The World Health Organisation describes a youth-friendly health service (YFHS) as one which is accessible, equitabl...
Article
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This paper describes experiences of living and belonging from the perspectives of Ugandan children with spina bifida and their siblings and parents. We explored belonging at micro, meso and macro level taking into consideration African Childhood Disability Studies, central concepts of family, cultural conceptions of disability, poverty, and the not...
Article
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Despite all the policies in place implementation of inclusive education remains limited at grass root level in Uganda. This paper explores accessibility and inclusion of children with spina bifida in primary schools with parents and teachers. Qualitative semi structured interviews and school observations were combined and conducted with 63 parents...
Article
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This article draws explicitly on the fieldwork challenging experiences of an ongoing PhD study which seeks to explore the role of the community in the inclusion of people with disabilities in the Northwest Region of Cameroon. It is apparent that every qualitative researcher undertaking fieldwork anticipate being confronted with challenges and diffi...
Article
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Background Children with disabilities in Sub-Saharan Africa depend for a large part of their functioning on their parent or caregiver. This study explores parental stress and support of parents of children with spina bifida in Uganda. Objectives The study aimed to explore perceived stress and support of parents of children with spina bifida living...
Article
Full-text available
The inclusion of the visually impaired in regular schools necessitates that braille is provided to them. Nonetheless, there is a likelihood or possibility in actuality for the visually impaired not being included in the learning that goes on in the regular secondary schools unless appropriate measures are taken to ensure their inclusion. This artic...
Article
Although some initiatives are implemented in the education of students with hearing impairments in the regular school, challenges are still encountered in their education. This article which is part of the results from an ongoing qualitative study in the North-West region of Cameroon addresses the different initiatives and challenges involved with...
Article
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Background: The ICF reflects a bio-psycho-social paradigm and is increasingly used in outpatients rehabilitation settings. The component of participation is in the ICF the manifestation of a bio- psycho-social reasoning. Different participation measures have already been developed and were operationalized through objective and/or a limited set of...
Article
Full-text available
Background HIV counselling and testing (HCT) is an essential element in the response to the HIV epidemic. There are still major research gaps about the best ways to provide HCT, especially to the youth, and school-based HCT is a model that has been suggested. To make HCT youth friendly and to enhance access to the service, the particular needs of t...
Research
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Purpose: To share experiences of living and belonging of children with spina bifida in Uganda. Methods: Semi structured interviews were held with 97 children with spina bifida between 4 and 14 years of age, and 132 parents in 5 locations in Uganda. Home and/or school observations were conducted for 36 of the children. We used thematic analysis. R...
Research
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Introduction This study compares daily functioning and inclusion of 57 children with spina bifida and hydrocephalus (SBH) in northern Uganda with 166 children from other regions in Uganda. Methods In total 57 children with SBH between 4 and 12 years of age and their parents from the Acholi and Lango sub-regions were assessed using the Vineland Ada...
Article
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The intake of folic acid before conception and during the first trimester of pregnancy can prevent spina bifida. This paper describes folic acid intake in women in Gulu district in northern Uganda. Structured interviews were held with 394 women attending antenatal care (ANC), 15 mothers of children with spina bifida, and 35 health workers in 2012 a...
Article
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Kinderen met een mentale beperking hebben een verhoogd risico op gedragsproblemen. Het is echter onduidelijk wat de precieze aard en mate is van problemen bij kinderen met specifieke syndromen, zoals kinderen met Downsyndroom. Er is bovendien ook onvoldoende kennis over de sterktes van deze kinderen. Deze vragenlijststudie beschrijft zowel de gedra...
Article
Full-text available
Background: HIV counselling and testing (HCT) is an essential element in the response to the HIV epidemic. There are still major research gaps about the best ways to provide HCT, especially to the youth, and school-based HCT is a model that has been suggested. To make HCT youth friendly and to enhance access to the service, the particular needs of...
Article
Full-text available
This article describes the findings of a qualitative study on knowledge, beliefs, attitudes, and practices towards children with spina bifida and hydrocephalus in four regions of Uganda. Focus group discussions and semi-structured interviews were held with parents of children with spina bifida and hydrocephalus, policy-makers, and service providers...