Franco A Carnevale

Franco A Carnevale
McGill University | McGill · School of Nursing

www.mcgill.ca/voice

About

238
Publications
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4,029
Citations
Citations since 2017
79 Research Items
2044 Citations
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Publications

Publications (238)
Article
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Background Following the SARS pandemic, jurisdictions around the world began developing ethical resource allocation frameworks for future pandemics—one such framework was developed by Thompson and colleagues. While this framework offers a solid backbone upon which decision-makers can rest assured that their work is driven by rigorous ethical proces...
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In Canada, Medical Assistance in Dying (MAiD) is legal for many Canadians based on several criteria, though minors who are deemed sufficiently capable to make medical decisions (ie, mature minors) remain ineligible. In this article, we provide insight into recent philosophical and legal evidence related to MAiD for mature minors. We begin by provid...
Article
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Children with medical complexity have been defined within the literature as chronically ill and medically fragile children with complex care needs. Care for these children raises significant ethical and moral considerations. Therefore, this participatory ethnographic study conducted with eight children and their families aimed to better understand...
Article
Résumé Contexte La littérature sur la gestion des troubles graves du comportement (TGC), chez les patients présentant une déficience intellectuelle (DI) et/ou des troubles du spectre autistique (TSA), suggère que l’environnement de travail des professionnels de santé est éprouvant pour prodiguer les soins dans des conditions de sécurité suffisante...
Article
This Viewpoint aims to question the value of compliance-oriented programs’ principles as they apply to traumatized children and youth.
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The experiences of nurses who blew the whistle during the COVID‐19 pandemic have exposed gaps and revealed an urgent need to revisit our understanding of whistleblowing. Aim The aim was to develop a better understanding of whistleblowing during a pandemic by using the experiences and lessons learned of Quebec nurses who blew the whistle during the...
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Objectives to identify and analyze nurses’ patterns of knowing and experiences with the preparation of families for disclosure to children living with HIV seropositivity. Methods thirteen pediatric nurses from Rio de Janeiro participated in the research using the sensitive creative method. Data were treated with Orlandi’s discourse analysis and Ca...
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Objectives: to identify and analyze nurses' patterns of knowing and experiences with the preparation of families for disclosure to children living with HIV seropositivity. Methods: thirteen pediatric nurses from Rio de Janeiro participated in the research using the sensitive creative method. Data were treated with Orlandi's discourse analysis an...
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Background Serious ethical problems have been anecdotally identified in the care of children with osteogenesis imperfecta (OI), which may negatively impact their moral experiences, defined as their sense of fulfillment towards personal values and beliefs. Research aims To explore children’s actual and desired participation in discussions, decision...
Article
Background: A three-phase ethnography was conducted at a paediatric orthopaedic hospital exploring the actual and desired participation of children with Osteogenesis Imperfecta in discussions, decisions and actions in the hospital and community. Phase I and Phase II revealed how childhood ethics are understood and practiced in the hospital using a...
Article
The gold standard for medical decision-making in pediatrics involves determining the “best interests” of the child and making the decisions accordingly. Accurately assessing the ethical concerns of children can assist care providers, such as parents, clinicians, and other healthcare professionals, in making care and discharge planning relevant to a...
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The COVID-19 pandemic has impacted the lives of children and adolescents around the world. Hence, this study aimed to examine how the pandemic has impacted children and adolescents in Brazil through an ethical analysis. An interpretive analysis of Brazilian research on child and adolescent health during the pandemic was conducted. Recognizing this...
Article
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The COVID-19 pandemic has impacted the lives of children and adolescents around the world. Hence, this study aimed to examine how the pandemic has impacted children and adolescents in Brazil through an ethical analysis. An interpretive analysis of Brazilian research on child and adolescent health during the pandemic was conducted. Recognizing this...
Article
Nursing scholars have called for nursing approaches with children that ensure the promotion of their childhood, contesting dominant adult‐based approaches that are adapted for practice with children. Although the nursing literature includes many important advances in the promotion of child‐centered approaches, there are still significant gaps in fu...
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Background: The management of challenging behaviours in inpatient with intellectual disability and/ or autism spectrum disorders can lead to an escalation of control measures. In these complex situations where patients have an intellectual disability/autism spectrum disorder accompanied by a psychiatric comorbidity, the experiences of caregivers re...
Article
Drawing on a hermeneutic ethnographic methodology, we studied the everyday moral experiences of young people aged 11 to 16 and how these related to expressions of agency. Our results revealed that young people's agency was manifested through three interrelated dimensions: their aspirations, concerns, and capacities. Agential expression was context...
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Objectives To investigate how life-sustaining treatment (LST) decisions are made and identify problematic ethical concerns confronted by physicians and nurses in pediatric intensive care within Italy. Methods An 88-question online survey was created, based on a previous qualitative study conducted by this team. The survey was designed to identify...
Article
Within his earliest contributions to the human sciences, Charles Taylor challenged dominant behavioral views by advancing a hermeneutical conception of human agency. For Taylor, persons continually navigate their meaningful worlds and make sense of things and act in light of background horizons of significance and social imaginaries. Yet, conceptio...
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In response to new and exacerbated challenges imposed by the COVID-19 pandemic, Indigenous children and youth in Canada have developed innovative and holistic solutions to amplify their voices, continue cultural engagement and combat social isolation for themselves and their communities as a whole. In this analysis, we have selected three Indigenou...
Article
This study was developed to guard against the imposition of settler‐based colonial ethnocentric conceptions of moral development by exploring the everyday moral experiences of children in an Anishinaabeg community. A focused ethnography of 33 children over 3.5 months was conducted, which included participant observation, group activities and indivi...
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Introduction: Nursing theories are essential for orienting nursing practice. To date, three models for nursing practice have been developed in Italy. In addition, significant epistemological reflections have been published, sparking a rich professional debate regarding the theoretical foundations of nursing in Italy. However, conceptual models fro...
Article
Youths experience an increased prevalence of mental health issues, while access to timely and quality services remains problematic. This study examined the experiences of adolescents and their parents surrounding mental health care access. A 4-month focused ethnography was conducted at a mental health clinic for adolescents experiencing difficultie...
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Introduction: Children's oral health is a prevalent health concern in Indigenous communities in Canada and globally. Compared to an early childhood caries prevalence rate of 57% in non-Indigenous Canadian school-age children, some Indigenous communities face rates exceeding 90%. Despite the high prevalence rates of caries and other oral health conc...
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There is a paucity of research examining children’s experiences with cancer in India. Childhood ethics is an emerging field, focusing on the moral dimension of children’s experiences, to promote children’s participation in their health care. A focused ethnography, using a moral experience framework, was conducted to better understand children’s par...
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There is a growing body of knowledge about children as moral agents and their capacity and interest to participate in healthcare and research discussions/decisions that affect them. Although this has led to some research and practice improvements that have better-recognized children’s voices, this trend has not been globally embraced, especially wi...
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During the COVID-19 pandemic, the lives of children and adolescents in resource-limited countries have been significantly impacted in complex ways, while largely having their interests overlooked. The purpose of this colloquium is to examine these impacts across seven resource-limited nations and apply an ethical lens to examine the ways in which c...
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The aim of this pilot study was to develop a research design and refine data collection and analysis methods to examine moral experiences of children in an education context. We piloted two data collection methods: participant observation and one-on-one interviews in preschool classrooms and with school-aged children, respectively. Our thematic ana...
Article
Background Moral distress, the phenomenon in which an agent is constrained in acting on their ethical choice, is a reoccurring theme in the literature on nurses' experiences of end-of-life care (EOLC). Understanding moral engagement solely through a lens of moral distress can be limiting—as such, we sought to explore the diverse experiences nurses...
Article
We describe an ontological approach to childhood studies that we refer to as Childhood Ethics. This involves an interdisciplinary hermeneutic orientation towards examining the morally meaningful dimensions of matters that affect young people. We draw on our empirical research with young people from 3‐ to 17‐years old, examining their experiences in...
Article
Medical assistance in dying (MAID) legislation in Canada followed much deliberation after the Supreme Court of Canada’s ruling in Carter v. Canada . Included in this deliberation was the Special Joint Committee on Physician Assisted Dying’s recommendation to extend MAID legislation beyond the inclusion of adults to mature minors. Children's agency...
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Objectives: The aim of this review was to identify and summarize how the moral experiences of children with medical complexity are being expressed within the Brazilian health-related literature and discuss research gaps and directions for future research. Methods: A scoping review was performed using the methodological framework of Arksey and O’Ma...
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Restraints and seclusion are routinely used in child mental health settings for conflict and crisis management, but raise significant ethical concerns. Using a participatory hermeneutic ethnographic framework, we studied conflict and crisis management in a child mental health setting offering care to children aged 6–12 years old in Quebec, Canada....
Chapter
This chapter outlines ten ethical principles for neonatal palliative care: neonatal palliative care can improve the quality of life of all newborns; ethics promotes a broad conception of what is right, good, just; newborns are children, too; technologies can be assistive in promoting inclusion in community life; promoting family well-being should b...
Article
In this article, the nursing health history is revisited with a hermeneutic lens to uncover means by which this tool can better serve nursing practice. It is argued that further distanciation from the developmental and medical model is necessary to accurately uncover health and history in the nurse–client encounter. Based on the works of prominent...
Article
Introduzione: Il confronto con le realtà infermieristiche di altri paesi ha messo in luce che in Italia è ancora poco sviluppata la fase di teorizzazione, in particolare per quanto concerne la ricerca e lo sviluppo di aspetti teorici dell’infermieristica. I bisogni e le esperienze di salute della popolazione e gli approcci infermieristici in rispos...
Chapter
Research ethics norms are primarily centered on respect for autonomy operationalized through informed consent. Significant ethical challenges can arise when conducting research with persons who have “cognitive impairments” that may limit their decisional autonomy. These challenges are additionally complex in research involving children with “cognit...
Article
Objectives: There is limited evidence to guide oral health policy and services for the 25,000 refugees and asylum seekers who arrive in Canada yearly. The purpose of this study was to explore and understand the pre-migration use of dental services, oral health knowledge, and the effects of oral disease among newly arrived humanitarian migrants in...
Article
Interprofessional education (IPE) is essential to prepare future professionals for interprofessional collaboration (IPC). Learning together is essential for students because it is a way to understand the roles of other colleagues, improve their skills, knowledge, competencies, and attitudes to collaborate with the interprofessional teams. To explor...
Article
Nel 2010 è stata emanata in Italia la Legge 38, che punta a migliorare formazione e tirocini nel campo delle cure palliative, sebbene al momento non esista un sistema nazionale di monitoraggio di tali pratiche su scala nazionale. A livello internazionale l’eutanasia si è andata sempre più configurando come trattamento possibile fra le cure di fine...
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Interprofessional education (IPE) is essential to prepare future professionals for interprofessional collaboration (IPC). Learning together is essential for students because it is a way to understand the roles of other colleagues, improve their skills, knowledge, competencies, and attitudes to collaborate with the interprofessional teams. To explor...
Article
Introduction: Comparison of the state of nursing in Italy with other countries has shown that theory development in Italian nursing remains quite undeveloped. Theory development in Italian nursing will need to consider local cultural and professional aspects, specific to the Italian practice context, by drawing on known health needs, experiences a...
Article
Purpose: To identify orientations in Italian nursing research regarding nursing practice, highlighting strengths, needs for improvement, as well as suggestions and recommendations for promoting the future development of nursing knowledge. Method: An extensive review of the literature was conducted (scoping review) by consulting the following dat...
Article
Objective To understand the oral healthcare experiences of humanitarian migrants in Montreal and their perceptions of ways to improve access to oral healthcare. Methods We used focused ethnography informed by a public health model of the dental care process. The adapted McGill Illness Narrative Interview (MINI) guided interviews of a purposeful sa...
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Canada received over 140,000 refugees and asylum seekers between 2015 and 2017. This paper presents a protocol with the purpose of generating robust baseline data on the oral health of this population and build a long-term program of research to improve their access to dental care in Canada. The three-phase project uses a sequential mixed methods d...
Article
A child's death is a traumatic life experience for parents. Health-care professionals (HCPs) have sought guidance on how to intervene with grieving parents, particularly with fathers. Having therapeutic conversations is an effective way for HCPs to support grieving fathers. In our previous study, fathers identified core beliefs that influenced thei...
Article
Sexual health is a signficant dimension of health among children and youth in Tanzania. Local discourses highlight concerns regarding HIV/AIDS and sexual violence. The aim of this study was to examine the experiences and participation of children and youth in sexual health-related discussions, decisions, and actions in Njombe; a Tanzanian rural com...
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Increasingly, it is becoming evident that qualitative research methodologies have much to contribute to producing health knowledge. Notwithstanding such advances, some would say the “paradigm war” continues, privileging postpositivist epistemologies. Our own experiences working within a post-positivist-dominated health research arena inspired the i...
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Inconsistencies have been noted in how moral agency is conceived in childhood, leading to variations in children’s levels of inclusion/exclusion from discussions and decisions affecting them in children’s services and research. Through a scoping review of 261 articles, we examined the different ways in which children’s moral agency is imagined in t...
Article
Context: The management of severe behavioral disorders (SBD) in people with autism and intellectual disability (ID) can lead to an escalation of seclusion and restraints, even to abuse. In this context, we offer a literature review regarding the use of personal protective equipment (PPE), as well as the practical experiences associated with their u...
Article
Context: The management of severe behavioral disorders (SBD) in people with autism and intellectual disability (ID) can lead to an escalation of seclusion and restraints, even to abuse. In this context, we offer a literature review regarding the use of personal protective equipment (PPE), as well as the practical experiences associated with their u...
Article
As part of the invited supplement on Death and Dying in the PICU, we reviewed ethical, cultural, and social considerations for the bedside healthcare practitioner prior to engaging with children and families in decisions about limiting therapies, withholding, or withdrawing therapies in a PICU. Clarifying beliefs and values is a necessary prerequis...
Poster
Full-text available
Personal protective equipment in the management of challenging behaviors in inpatients with autism and intellectual disability
Article
There is developing evidence that more effective means for preventing violence should involve social development programs for youths. A focused ethnographic study was conducted over 8 months in a social development program situated in Montreal (Quebec, Canada), aimed at providing support to youths who have been exposed to violence as actors, recipi...
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1 Background The purpose of this concept analysis was to examine how the concept of personhood has been used in the nursing literature. The person is central to nursing, as the object of nursing work, or care, and a key element of theory. Health and illness confront conventional notions of personhood based on the Western philosophy, in delineating...
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This research aimed to know the anguish experienced by nurses who work with patients in risk or in dying process in a hematology-oncology unit. A clinical-qualitative study, conducted through individual interviews. The participants were 06 nurses from hematology-oncology unit of a university hospital. The results were grouped into five categories,...
Article
There is a paucity of published research and normative standards to guide health care providers in managing issues related to children’s confidentiality. In this article, we examine challenges regarding the respect for confidentiality with children and youth in health care and offer guiding principles for clinical practice. We present an ethical fr...
Article
Objectives: To describe the experience and sources of comfort and discomfort in tracheostomy patients, when they communicate with nurses in the Intensive Care Unit. Research methodology/design: Benner's interpretive phenomenology. Data were collected through: a) semi-structured interviews conducted with the patients after leaving the intensive c...
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This research aimed to know the anguish experienced by nurses who work with patients in risk or in dying process in a hematology-oncology unit. A clinical-qualitative study, conducted through individual interviews. The participants were 06 nurses from hematology-oncology unit of a university hospital. The results were grouped into five categories,...
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In an ethical dilemma, there is always an option that can be identified as the best one to be chosen. When it is impossible to adopt such option, the situation can lead professionals to experience moral distress. This review aims to define the issue of moral distress and propose coping strategies. Systematic searches in the MEDLINE/PubMed and SciEL...
Article
When conducting ethics research with children in health care settings, studying children’s experiences is essential, but so is the context in which these experiences happen and their meaning. Using Charles Taylor’s hermeneutic philosophy, we developed a methodological framework for health ethics research with children that bridges key aspects of et...
Article
Background: Pediatric nursing care involves many significant ethical challenges. Although nurses are broadly recognized as professionals with relevant knowledge about children and families, little is known about how nurses experience ethical concerns in their everyday practice. Objective: The objective of this study was to better understand the...
Article
The experiences of children related to conflict and crisis management in child mental health settings, especially those aged 12 and below, have been rarely studied. This study examined the moral experiences of children related to conflict and crisis management and the related use of restraint and seclusion in a child mental health setting. A 5-mont...
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This article presents a qualitative research protocol to explore and understand the interprofessional collaboration (IPC) preparation process implemented by clinical tutors and students of different professions involved in interprofessional education (IPE). Many studies have shown that IPE initiatives improve students’ understanding of the roles an...
Article
Children with complex health care needs are an emerging population that commonly requires long-term supportive services. A growing body of evidence has highlighted that these children and their families experience significant challenges. Many of these challenges involve ethical concerns that have been under-recognized. In this article, we (a) outli...
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div class="page" title="Page 1"> A focused ethnography was conducted in an after-school academic support program serving vulnerable populations in Montreal, Quebec, Canada. The aim of this study was to explore the moral experiences of children living in poverty to inform on their daily experiences and moral lives. Our results highlighted that thes...
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Background: A growing number of frameworks for the practice of clinical ethics are described in the literature. Among these, hermeneutical frameworks have helped highlight the interpretive and contextual nature of clinical ethics practice. Objectives: The aim of this article is to further advance this body of work by drawing on the ideas of Char...
Article
Background: In recent year, conceptions of childhood have been evolving towards an increased recognition of children as active agents, capable of participating in the determination of their wellbeing. In pediatric dentistry, the extent to which these conceptions are being discursively endorsed is not well known. Aim: The aim of this investigatio...
Article
While the systematic review process is intended to maximize objectivity and limit researchers' biases, examples remain of discordant recommendations from meta-analyses. Current guidelines to explore discrepancies assume the variation is produced by methodological differences, and thus focus only on the study process. Since heterogeneity of interpre...
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CONTEXT: Hospital experiences of nurses face the process of dying have been related to the potentiation of suffering, especially when the professional does not develop coping strategies, interfering with assistance provided. OBJECTIVE: To conduct a meta-synthesis about the hospital experiences of nurse face of death and the dying process. METHOD: m...
Article
Acute hospital units are a common location of death. Curative characteristics of the acute medical setting make it difficult to provide adequate palliative care; these characteristics include an orientation to life-prolonging treatment, an emphasis on routine or task-oriented care and a lack of priority on emotional engagement with patients. Indeed...
Article
Background: In some clinical settings, nurses have difficulty describing the outcomes of their caring activities. Understanding the reasons for this could help nurse leaders to improve the effectiveness and visibility of nursing practice and safeguard nurses' working conditions. Objective: The aims of this study were to understand how nurses wor...
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Over the last 30 to 40 years, improvements in technology, as well as changing clinical practice regarding the appropriateness of long-term ventilation in patients with “non-curable” disorders, have resulted in increasing numbers of children surviving what were previously considered fatal conditions. This has come but at the expense of requiring ong...
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Objective: to identify and analyse children’s voices in healthcare decision making in the discourse of Brazil’s child protection laws. Method: Documentary normative analysis of Brazil’s child protection legislation (1988-2012) based on the content analysis of nine texts, conducted in 2015. Results: The legislation acknowledges and stresses the voic...
Article
Background: The research question for this study was as follows: Is the Code of Ethics for Nurses in Italy (Code) a valid or useful decision-making instrument for nurses faced with ethical problems in their daily clinical practice? Method: Focus groups were conducted to analyze specific ethical problems through 11 case studies. The analysis was...
Article
The death of a child is traumatic for parents. The grief of bereaved fathers is inadequately understood since most studies on this subject have focused primarily on mothers. The goal of this phenomenological study was to understand fathers' experiences following the death of their child. Interviews were conducted with 13 fathers whose child (aged 1...
Article
The aim of this article is to highlight the under-recognized merits of clinical ethics committees (CECs), to help ensure that the development of roles for clinical ethics consultants do not unwittingly compromise the valuable contributions that CECs can continue to provide. I argue that CECs can offer distinctive contributions to the clinical ethic...
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Seventy six senior academics from 11 countries invite The BMJ’s editors to reconsider their policy of rejecting qualitative research on the grounds of low priority.They challenge the journal to develop a proactive, scholarly, and pluralist approach to research that aligns with its stated mission
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Objective: this article reports on the experience of using the interpretive phenomenological framework of Patricia Benner in a Brazilian context. Benner's interpretive phenomenology, based on existential and interpretative philosophy, aims to understand human experiences in the particular worlds of research participants. Data were collected throug...
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Objective to identify and analyse children’s voices in healthcare decision making in the discourse of Brazil’s child protection laws. Method Documentary normative analysis of Brazil’s child protection legislation (1988-2012) based on the content analysis of nine texts, conducted in 2015. Results The legislation acknowledges and stresses the voice...
Article
The capacity of children to act as agents is being increasingly recognized and has important implications for health research and practice. However, there are various discrepancies in how children's agency is defined in the literature. The aim of this analysis was to examine the concept of children's agency within the health-related literature, usi...
Article
The United Nations Convention on the Rights of the Child has inspired numerous initiatives to recognize children's health-related rights. Whereas children's rights have served as the dominant moral framework for child health concerns in Europe, pediatric bioethics has emerged as the principal framework used in North America. Despite their similarit...
Article
Objective: Against medical advice, head and neck cancer (HNC) patients have been shown to continue to smoke and misuse alcohol post-diagnosis and treatment. This study aimed to better understand the barriers to and facilitators of health behavior change (HBC) in HNC patients. Method: We conducted nine focus groups following a standard protocol....
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The continuous, rapid evolution of medical technology, the public need for ever more complex health-care services and the stagnant global economic situation have posed difficult new challenges for the nursing profession. The need to integrate knowledge, technical skill and ethical conduct in nursing practice has become ever more evident, particular...
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This Viewpoint discusses moral distress among health care professionals in the pediatric intensive care unit and ways to successfully resolve it. Moral distress is the term increasingly used by health care professionals to name the angst they experience when they feel unable to practice as they should. Jameton¹ introduced this concept, distinguish...
Article
An interdisciplinary faculty development workshop on cultural competency (CC) was implemented and evaluated for the Faculty of Medicine at McGill University. It consisted of a 4-hour workshop and 2 follow-up sessions. A reflective practice framework was used. The project was evaluated using the Multicultural Assessment Questionnaire (MAQ), evaluati...