
Erica K JohnsonUniversity of Washington | UW · Health Promotion Research Center
Erica K Johnson
PhD
About
46
Publications
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Introduction
Additional affiliations
September 2008 - January 2015
September 2008 - present
Publications
Publications (46)
Objective
Explore relationships between the years of education, mood, and anxiety with self-efficacy and self-management in Spanish-speaking people with epilepsy (PWE). Higher education was hypothesized to be associated with higher Epilepsy Self-Efficacy Scale (ESE) and Epilepsy Self-Management (ESM) scores, while lower mood and anxiety may be link...
Rationale:
The promotion of evidence-based self-management support for people living with chronic conditions such as epilepsy is a public health priority. Epilepsy self-management encompasses three general areas: (1) treatment management, (2) seizure management, and (3) lifestyle management. Interventions focusing on self-management have increased...
Rationale
Project UPLIFT is an evidence-based epilepsy self-management program shown to prevent and treat depression through an 8-session, group telehealth intervention. Since 2012, the program has been disseminated by training community-based providers to deliver UPLIFT to people with epilepsy (PWE). Limited research has described the adoption, im...
Objective
The Managing Epilepsy Well (MEW) Network conducts epilepsy self-management (ESM) intervention development, testing, and archival clinical trials data analyses in the MEW Network Integrated Database (MEW-DB). However, not all trial participants fully benefit from ESM due to prematurely discontinuing program participation. This analysis sou...
Objective
To develop a classifier that predicts reductions in depression severity in people with epilepsy after participation in an epilepsy self-management intervention.
Methods
Ninety-three people with epilepsy from three epilepsy self-management randomized controlled trials from the Managing Epilepsy Well (MWE) Network integrated research datab...
Objective
Although psychiatric disorders are more common among people with epilepsy,² depression and suicidal ideation among Hispanics with epilepsy remain understudied. We examined the prevalence and correlates of depression and suicidal ideation among Hispanic adults with epilepsy who participated in self-management studies in the Managing Epilep...
Epilepsy self-management (ESM) is the summative set of behaviors that people with epilepsy use to cope with seizures and optimize health. This report describes the implementation and evolution of the Managing Epilepsy Well Network Database (MEW DB), an integrated data resource intended to advance knowledge on ESM. The MEW DB utilizes a three-tiered...
RATIONALE - The self-management needs of Spanish-speaking adults with epilepsy are under-researched. To effectively address healthcare access, co-morbidity, and psychosocial adjustment to chronic illness/disability, more specialized interventions are needed. The Program for Active Consumer Engagement in Self-management (PACES) in Epilepsy is an 8-s...
Objective
The Program of Active Consumer Engagement in Self‐Management in Epilepsy (PACES) is an evidenced‐based self‐management intervention for adults with epilepsy. Prior randomized controlled trial (RCT) data show that PACES reduces depression and improves self‐management, self‐efficacy, and quality of life for 6 months postprogram. The objecti...
Aim
There are limited data on psychological outcomes in older people with epilepsy (PWE). This analysis, from a large pooled dataset of clinical studies from the Managing Epilepsy Well (MEW) Network, examined clinical variables including depressive symptom severity, quality of life and epilepsy self-management competency among older (age 55+) vs yo...
Purpose:
Seizures have a variety of significant physical, cognitive, and social effects upon the individual. Depression has been linked to an increase in seizure activity, and Project Using Practice and Learning to Increase Favorable Thoughts (UPLIFT) was shown to reduce depressive symptoms. Project UPLIFT, based upon mindfulness-based cognitive t...
Objective
To assess depressive symptom outcomes in a pooled sample of epilepsy self‐management randomized controlled trials (RCTs) from the Managing Epilepsy Well (MEW) Network integrated research database (MEW DB).
Methods
Five prospective RCTs involving 453 adults with epilepsy compared self‐management intervention (n = 232) versus treatment as...
Vocational rehabilitation—The profession of vocational rehabilitation counseling, or rehabilitation counseling, began in the early 1920s but gained crucial momentum in the United States after World War II as an effort to help veterans with disabilities access employment or return to work after disabling injury (Leahy and Szymanski, J Couns Dev 74:1...
Depression and worse quality of life (QOL) are significantly associated with epilepsy. However, limited descriptive data on depression and quality of life among African Americans with epilepsy are available. This study sought to describe the prevalence of depression among African Americans with epilepsy participating in self-management studies and...
Introduction
Epilepsy has been reported by the CDC to have a prevalence of 1.2% in the United States, which accounts for roughly 3.4 million adults in 2015. Nearly 1 million of those adults are aged 55 or older.¹ Epilepsy is more likely to develop in older adults because risk factors for epilepsy are more common as people age including stroke/cardi...
Depression is a common comorbidity in people with epilepsy (PWE) that negatively affects self-management and a variety of health outcomes. Suicidal ideation is also more common among PWE than the general population. We examined correlates of depressive symptoms and suicidal ideation in adults using pooled data from epilepsy self-management studies...
While self-management (S-M) skills of people living with epilepsy (PWE) are increasingly recognized as important for daily functioning and quality of life, there is limited information on overall skill levels, specific areas needing improvement, or associated correlates. The purpose of this study was to provide evidence on the S-M skills of PWE and...
Background and purpose:
Epilepsy is a chronic neurological disease that represents a tremendous burden on both patients and society in general. Studies have addressed how demographic variables, socioeconomic variables, and psychological comorbidity are related to the quality of life (QOL) of people with epilepsy (PWE). However, there has been less...
Given the paucity of information available regarding self-management, the aims of this paper are to synthesize the literature on factors associated with and measures to assess self-management in pediatric epilepsy.
Inclusion criteria:
youth birth to 18 years with a seizure disorder or an epilepsy diagnosis and/or their caregivers, published 1985-...
Epilepsy, a complex spectrum of disorders, affects about 2.9 million people in the U.S. Similar to other chronic disorders, people with epilepsy face challenges related to management of the disorder, its treatment, co-occurring depression, disability, social disadvantages, and stigma. Two national conferences on public health and epilepsy (1997, 20...
Objective:
To respond to recommendations put forth by the Institute of Medicine to improve self-management resources for youth with epilepsy by conducting a systematic review of the self-management literature in pediatric epilepsy.
Methods:
Inclusion criteria: youth birth to 18 years with a seizure disorder or an epilepsy diagnosis and/or their...
Objective:
Self-management challenges facing adults with epilepsy include limited understanding of the condition and treatment, associated psychosocial issues, and lack of community integration. Self-management interventions improve patients' medical, life role, and emotional management. Previous interventions, developed from expert opinion, indic...
Objective:
Depression affects about 16% of the U.S. population over a lifetime. People with chronic diseases have especially high rates of comorbid depression; 32% to 48% of people with epilepsy experience depression. This study evaluated the efficacy of a mindfulness-based cognitive therapy intervention for preventing major depressive disorder (M...
People with multiple sclerosis (MS) must manage the day-to-day effects of the disease on their lives. Self-management interventions may be helpful in this challenge. An international, multidisciplinary consensus conference was held on November 15, 2010, by the University of Washington's Rehabilitation Research and Training Center for Multiple Scler...
A consistent and serious empirical issue in the epilepsy self-management literature involves dropout and attrition in intervention studies. One explanation for this issue revolves around "top-down" intervention designs (i.e., interventions generated by epilepsy clinicians and researchers) and the potential for disparity with patient interests, capa...
The Managing Epilepsy Well (MEW) Network was created in 2007 by the Centers for Disease Control and Prevention's (CDC) Prevention Research Centers and Epilepsy Program to promote epilepsy self-management research and to improve the quality of life for people with epilepsy. MEW Network membership comprises four collaborating centers (Emory Universit...
Individual and collective responses to trauma influence the way scholars and clinicians think about the stress response and the survivor network. Stress-coping concepts are integral to the manner in which individuals and communities cope with trauma in post-conflict societies. The salience of social support and psychological resilience, as addition...
This study examined salient disability, demographic, psychosocial, and neuropsychological variables as predictors of employment stability for vocational rehabilitation clients with MS served at the University of Washington (1998-2003). Although a number of variables were initially significantly related to vocational stability (e.g., Personal Capaci...
Measurement of clinically significant change is critical for rehabilitation research because it can enhance the credibility of rehabilitation efforts and guide evidence-based practices. The practical appeal of clinically significant change is that it can bridge research and clinical practice by focusing on individual rather than group differences....
To provide a comprehensive and up-to-date literature review of social support and a description of available assessment measures in order to facilitate a theoretical and operational framework for incorporating social support in rehabilitation interventions.
An overview of the different theoretical models and conceptual dimensions and a description...
To determine the independent effects of depression and anxiety on health-related quality of life (HRQOL) in epilepsy as well as the relative explanatory power of psychiatric comorbidity compared with demographic and clinical epilepsy variables (e.g., seizure frequency, severity, and chronicity).
Subjects (n = 87) with temporal lobe epilepsy complet...
Objective: To establish the utility of an economic neuropsychological battery for use in multiple sclerosis (MS) vocational rehabilitation. Design: Review of prior batteries, test selection and use with consecutive referrals, descriptive statistics, and review of normative data. Participants: Thirty-seven individuals with MS consecutively referred...
To attain a better understanding of the benefits and barriers faced by persons with multiple sclerosis (MS) in the workplace.
Qualitative research methodology comprising a series of semistructured interviews.
Community-based setting.
Fourteen women and 2 men with MS living in the community who were employed or recently employed at the time of inter...
Johnson KL, Yorkston KM, Klasner ER, Kuehn CM, Johnson E, Amtmann D. The cost and benefits of employment: a qualitative study of experiences of persons with multiple sclerosis. Arch Phys Med Rehabil 2004;85:201–9.
Although a number of innovative vocational rehabilitation (VR) demonstration projects have been completed with MS populations, there remains a lack of clarity as to a profile of these VR participants. An effort is made in this article to carefully describe the demographic and occupational characteristics of people with MS seeking vocational service...