Erica K Johnson

Erica K Johnson
University of Washington Seattle | UW · Health Promotion Research Center

PhD

About

43
Publications
7,628
Reads
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1,323
Citations
Citations since 2016
20 Research Items
822 Citations
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2016201720182019202020212022020406080100120140
2016201720182019202020212022020406080100120140
2016201720182019202020212022020406080100120140
Additional affiliations
September 2008 - January 2015
Western Washington University
Position
  • Senior Instructor
September 2008 - present
University of Washington Seattle
Position
  • Research Associate

Publications

Publications (43)
Article
Objective The Managing Epilepsy Well (MEW) Network conducts epilepsy self-management (ESM) intervention development, testing, and archival clinical trials data analyses in the MEW Network Integrated Database (MEW-DB). However, not all trial participants fully benefit from ESM due to prematurely discontinuing program participation. This analysis sou...
Article
Objective To develop a classifier that predicts reductions in depression severity in people with epilepsy after participation in an epilepsy self-management intervention. Methods Ninety-three people with epilepsy from three epilepsy self-management randomized controlled trials from the Managing Epilepsy Well (MWE) Network integrated research datab...
Article
Objective Although psychiatric disorders are more common among people with epilepsy,² depression and suicidal ideation among Hispanics with epilepsy remain understudied. We examined the prevalence and correlates of depression and suicidal ideation among Hispanic adults with epilepsy who participated in self-management studies in the Managing Epilep...
Article
Epilepsy self-management (ESM) is the summative set of behaviors that people with epilepsy use to cope with seizures and optimize health. This report describes the implementation and evolution of the Managing Epilepsy Well Network Database (MEW DB), an integrated data resource intended to advance knowledge on ESM. The MEW DB utilizes a three-tiered...
Poster
Full-text available
RATIONALE - The self-management needs of Spanish-speaking adults with epilepsy are under-researched. To effectively address healthcare access, co-morbidity, and psychosocial adjustment to chronic illness/disability, more specialized interventions are needed. The Program for Active Consumer Engagement in Self-management (PACES) in Epilepsy is an 8-s...
Article
Objective The Program of Active Consumer Engagement in Self‐Management in Epilepsy (PACES) is an evidenced‐based self‐management intervention for adults with epilepsy. Prior randomized controlled trial (RCT) data show that PACES reduces depression and improves self‐management, self‐efficacy, and quality of life for 6 months postprogram. The objecti...
Article
Full-text available
Aim: There are limited data on psychological outcomes in older people with epilepsy (PWE). This analysis, from a large pooled dataset of clinical studies from the Managing Epilepsy Well (MEW) Network, examined clinical variables including depressive symptom severity, quality of life and epilepsy self-management competency among older (age 55+) vs...
Article
Purpose: Seizures have a variety of significant physical, cognitive, and social effects upon the individual. Depression has been linked to an increase in seizure activity, and Project Using Practice and Learning to Increase Favorable Thoughts (UPLIFT) was shown to reduce depressive symptoms. Project UPLIFT, based upon mindfulness-based cognitive t...
Article
Objective: To assess depressive symptom outcomes in a pooled sample of epilepsy self-management randomized controlled trials (RCTs) from the Managing Epilepsy Well (MEW) Network integrated research database (MEW DB). Methods: Five prospective RCTs involving 453 adults with epilepsy compared self-management intervention (n = 232) versus treatment...
Chapter
Vocational rehabilitation—The profession of vocational rehabilitation counseling, or rehabilitation counseling, began in the early 1920s but gained crucial momentum in the United States after World War II as an effort to help veterans with disabilities access employment or return to work after disabling injury (Leahy and Szymanski, J Couns Dev 74:1...
Article
Depression and worse quality of life (QOL) are significantly associated with epilepsy. However, limited descriptive data on depression and quality of life among African Americans with epilepsy are available. This study sought to describe the prevalence of depression among African Americans with epilepsy participating in self-management studies and...
Article
Introduction Epilepsy has been reported by the CDC to have a prevalence of 1.2% in the United States, which accounts for roughly 3.4 million adults in 2015. Nearly 1 million of those adults are aged 55 or older.¹ Epilepsy is more likely to develop in older adults because risk factors for epilepsy are more common as people age including stroke/cardi...
Article
Depression is a common comorbidity in people with epilepsy (PWE) that negatively affects self-management and a variety of health outcomes. Suicidal ideation is also more common among PWE than the general population. We examined correlates of depressive symptoms and suicidal ideation in adults using pooled data from epilepsy self-management studies...
Article
While self-management (S-M) skills of people living with epilepsy (PWE) are increasingly recognized as important for daily functioning and quality of life, there is limited information on overall skill levels, specific areas needing improvement, or associated correlates. The purpose of this study was to provide evidence on the S-M skills of PWE and...
Article
Full-text available
Background and purpose: Epilepsy is a chronic neurological disease that represents a tremendous burden on both patients and society in general. Studies have addressed how demographic variables, socioeconomic variables, and psychological comorbidity are related to the quality of life (QOL) of people with epilepsy (PWE). However, there has been less...
Article
Given the paucity of information available regarding self-management, the aims of this paper are to synthesize the literature on factors associated with and measures to assess self-management in pediatric epilepsy. Inclusion criteria: youth birth to 18 years with a seizure disorder or an epilepsy diagnosis and/or their caregivers, published 1985-...
Article
Full-text available
Epilepsy, a complex spectrum of disorders, affects about 2.9 million people in the U.S. Similar to other chronic disorders, people with epilepsy face challenges related to management of the disorder, its treatment, co-occurring depression, disability, social disadvantages, and stigma. Two national conferences on public health and epilepsy (1997, 20...
Article
Objective: To respond to recommendations put forth by the Institute of Medicine to improve self-management resources for youth with epilepsy by conducting a systematic review of the self-management literature in pediatric epilepsy. Methods: Inclusion criteria: youth birth to 18 years with a seizure disorder or an epilepsy diagnosis and/or their...
Article
Objective: Self-management challenges facing adults with epilepsy include limited understanding of the condition and treatment, associated psychosocial issues, and lack of community integration. Self-management interventions improve patients' medical, life role, and emotional management. Previous interventions, developed from expert opinion, indic...
Article
Full-text available
Objective: Depression affects about 16% of the U.S. population over a lifetime. People with chronic diseases have especially high rates of comorbid depression; 32% to 48% of people with epilepsy experience depression. This study evaluated the efficacy of a mindfulness-based cognitive therapy intervention for preventing major depressive disorder (M...
Article
Full-text available
People with multiple sclerosis (MS) must manage the day-to-day effects of the disease on their lives. Self-management interventions may be helpful in this challenge. An international, multidisciplinary consensus conference was held on November 15, 2010, by the University of Washington's Rehabilitation Research and Training Center for Multiple Scler...
Article
A consistent and serious empirical issue in the epilepsy self-management literature involves dropout and attrition in intervention studies. One explanation for this issue revolves around "top-down" intervention designs (i.e., interventions generated by epilepsy clinicians and researchers) and the potential for disparity with patient interests, capa...
Article
The Managing Epilepsy Well (MEW) Network was created in 2007 by the Centers for Disease Control and Prevention's (CDC) Prevention Research Centers and Epilepsy Program to promote epilepsy self-management research and to improve the quality of life for people with epilepsy. MEW Network membership comprises four collaborating centers (Emory Universit...
Chapter
Individual and collective responses to trauma influence the way scholars and clinicians think about the stress response and the survivor network. Stress-coping concepts are integral to the manner in which individuals and communities cope with trauma in post-conflict societies. The salience of social support and psychological resilience, as addition...
Article
Full-text available
This study examined salient disability, demographic, psychosocial, and neuropsychological variables as predictors of employment stability for vocational rehabilitation clients with MS served at the University of Washington (1998-2003). Although a number of variables were initially significantly related to vocational stability (e.g., Personal Capaci...
Article
Full-text available
Measurement of clinically significant change is critical for rehabilitation research because it can enhance the credibility of rehabilitation efforts and guide evidence-based practices. The practical appeal of clinically significant change is that it can bridge research and clinical practice by focusing on individual rather than group differences....
Article
Full-text available
To provide a comprehensive and up-to-date literature review of social support and a description of available assessment measures in order to facilitate a theoretical and operational framework for incorporating social support in rehabilitation interventions. An overview of the different theoretical models and conceptual dimensions and a description...
Article
To determine the independent effects of depression and anxiety on health-related quality of life (HRQOL) in epilepsy as well as the relative explanatory power of psychiatric comorbidity compared with demographic and clinical epilepsy variables (e.g., seizure frequency, severity, and chronicity). Subjects (n = 87) with temporal lobe epilepsy complet...
Article
Full-text available
Objective: To establish the utility of an economic neuropsychological battery for use in multiple sclerosis (MS) vocational rehabilitation. Design: Review of prior batteries, test selection and use with consecutive referrals, descriptive statistics, and review of normative data. Participants: Thirty-seven individuals with MS consecutively referred...
Article
To attain a better understanding of the benefits and barriers faced by persons with multiple sclerosis (MS) in the workplace. Qualitative research methodology comprising a series of semistructured interviews. Community-based setting. Fourteen women and 2 men with MS living in the community who were employed or recently employed at the time of inter...
Article
Full-text available
Although a number of innovative vocational rehabilitation (VR) demonstration projects have been completed with MS populations, there remains a lack of clarity as to a profile of these VR participants. An effort is made in this article to carefully describe the demographic and occupational characteristics of people with MS seeking vocational service...

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