Emma Tumilty

Emma Tumilty
Deakin University · School of Medicine

PG Dip Heal Sci (Bioethics); PhD (Bioethics)

About

59
Publications
20,335
Reads
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300
Citations
Additional affiliations
April 2019 - present
University of Texas Medical Branch at Galveston
Position
  • Professor (Assistant)
March 2017 - March 2019
University of Texas Medical Branch at Galveston
Position
  • PostDoc Position
September 2016 - September 2016
University of Otago
Position
  • Guest Lecturer
Description
  • Single lecture to outline ethical theories and frameworks that are used when considering animal ethics/rights and how these relate to Animal-Assisted Therapies, Interventions and Activities
Education
July 2013 - August 2016
University of Otago
Field of study
  • Bioethics
February 2010 - November 2012
University of Otago
Field of study
  • Bioethics
February 2001 - November 2004
University of Otago
Field of study
  • Philosophy

Publications

Publications (59)
Article
Full-text available
Until recently, community organisations in Aotearoa New Zealand (NZ) have not had any avenue for ethical review of research involving human participants unless they were connected to researchers involved with health and disability research (narrowly-defined), or tertiary education institutions. The New Zealand Ethics Committee (NZEC), a recent comm...
Conference Paper
Full-text available
Health equity is a complex goal and is influenced by healthcare policy, provision, research and social conditions. Evidence-based policy and provision depend on health research to provide “evidence” for decision-making. Current research does not inform policy and services adequately. Evidence generation is distorted due to various factors influenci...
Article
Full-text available
Purpose The article reflects on the findings of this special issue and discusses the future challenges for policy, research and society. The findings suggest that challenges emerge as a result of legitimacy deficits of both consensus and contestatory modes of public involvement in health priority setting. Design/methodology/approach The article dr...
Article
Purpose The paper summarizes data from twelve countries, chosen to exhibit wide variation, on the role and place of public participation in the setting of priorities. It seeks to exhibit cross-national patterns in respect of public participation, linking those differences to institutional features of the countries concerned. Design/methodology/app...
Article
We are a diverse collective of researchers who are committed to improving the health and wellbeing of marginalised individuals. This article is a response to, and critique of, the DentalSlim Diet Control research. This device revises a controversial 1970s weight-loss technology connected to poor health outcomes, which is indicative of a culture tha...
Article
This article provides pragmatic advice for organizations interested in creating a research ethics consultation service (RECS). A robust RECS has the potential to build capacity among investigators to identify and consider the ethical issues they encounter while conducting their research. Determining whether to establish an RECS should begin with an...
Article
Objective To explore rural nurse experiences of ethical issues and their management of these as a first step in a programme of work to address rural nurses' ethical needs. Design This study was qualitative, using mixed qualitative techniques to gather data, which was analysed using a general inductive approach. Setting Primary health care in 2 re...
Article
Full-text available
Purpose - This paper demonstrates the limited efficacy procedural ethics has for qualitative research. Ethics committee’s instructions have a short shelf life given the research question qualitative researchers create is volatile; that is, likely to change due to the inductive, emergent, informant-led nature of qualitative research. Design - This a...
Article
Full-text available
INTRODUCTIONChronic obstructive pulmonary disease (COPD) is a common chronic condition managed in primary care. AIMTo understand how patients with severe COPD living in the Southern Health Region (Otago and Southland) experience and cope with the condition. METHODS Semi-structured interviews were undertaken with 23 patients with severe COPD (define...
Article
Full-text available
OBJECTIVES/GOALS: Innovative educational approaches and training modalities are important for training a diverse workforce in the authentic skills needed to advance all phases of clinical and translational research. Endeavors to study and develop policies that promote the translational science spectrum are steeped in value judgments. Learning how t...
Article
Full-text available
OBJECTIVES/GOALS: We aimed to explore the students’ assessments of workload distribution by comparing personal reflective commentaries and team documents defining division of labor in a team science setting. METHODS/STUDY POPULATION: The Interprofessional Research Design course models the team science experience by bringing together MD and PhD stud...
Article
We examined health care utilisation and needs of people with severe COPD in the low-population-density setting of the Southern Region of New Zealand (NZ). We undertook a retrospective case note review of patients with COPD coded as having an emergency department attendance and/or admission with at least one acute exacerbation during 2015 to hospita...
Article
Full-text available
Objectives Chronic obstructive pulmonary disease (COPD) is a common chronic disease with significant morbidity and mortality, particularly for Māori, which places a large burden on the New Zealand (NZ) health system. We undertook a qualitative study as part of a mixed-methods implementation research project which aimed to determine the barriers and...
Article
Debates regarding clinical ethicists' scope of practice are not novel and will continue to evolve. Rapid changes in health-care delivery, outcomes, and expectations have necessitated flexibility in clinical ethicists' roles whereby hospital-based clinical ethicists are expected to be woven into the institutional fabric in a way that did not exist i...
Poster
Full-text available
OBJECTIVES/SPECIFIC AIMS: We aimed to explore the impact of leadership training on student’s abilities to work in interprofessional research teams successfully. The Translational Research Design and Interprofessional Skills Development Course (shortened, Interprofessional Research Design) brings together students from different disciplines (science...
Article
Full-text available
Objectives To explore the process of implementation of an online health information web-based portal and referral system (HealthPathways) using implementation science theory: the Consolidated Framework for Implementation Research (CFIR). Setting Southern Health Region of New Zealand (Otago and Southland). Participants Key Informants (providers an...
Article
Purpose In order to create sustainable health systems, many countries are introducing ways to prioritise health services underpinned by a process of health technology assessment. While this approach requires technical judgements of clinical effectiveness and cost effectiveness, these are embedded in a wider set of social (societal) value judgement...
Poster
Full-text available
Primary Author: Dr Jeffrey S. Farroni, UTMB (not on Researchgate): Balancing a patient’s autonomy with the fiduciary obligation to maximize clinical benefit (while minimizing harms) may pose a challenge to the care team for a medically complex patient. A common reason for requesting an ethics consult is when a team has difficulty in navigating such...
Article
Research on children’s rights in oral health care is lacking, and this study aims to partially fill this gap. In 2015, we conducted research in one region of New Zealand using video methods to explore the rights of 22 children during a specific oral health treatment, the placement of stainless steel crowns. Our findings show that many children did...
Poster
Full-text available
OBJECTIVES/SPECIFIC AIMS: To outline 4 categories of ethics needs identified at a translational science center. To map how research ethics has been further integrated into the center’s culture in response to these needs. To provide insights into how research ethics can be integrated into the translational team science environment. METHODS/STUDY POP...
Chapter
In this chapter we outline the need to develop ethical frameworks to guide research on the role of animal-orientated health, therapeutic, and service interventions. We discuss findings from our research on uses of animals in therapeutic settings and benefits of human–canine interactions for human health. These stories from the field reveal that cur...
Chapter
Our relationships with nonhuman animals are changing, and consequently, these changes are being investigated via an increasing body of research. Therapeutic human-animal interaction studies call for a revision of our conception of the non-human animal in research. Such studies require the application of new thinking both for researchers and ethics...
Article
Full-text available
Whilst social services have traditionally operated from a humanist informed practice perspective, social service interventions are increasingly including non-human animals as a key part of rehabilitation, therapy and assistance activities. While there is extensive literature documenting the human-animal bond and the benefit to social service client...
Poster
Full-text available
The National Academies of Science, Engineering, and Medicine in their report “Fostering Research Integrity” call, amongst other recommendations, for institutions to “significantly improve practices and policies” in their promotion of research integrity. While part of ensuring research integrity is supporting best practice, part is also safeguarding...
Article
Full-text available
Background Multimorbidity is a major issue for primary care. We aimed to explore primary care professionals’ accounts of managing multimorbidity and its impact on clinical decision making and regional health care delivery. Methods Qualitative interviews with 12 General Practitioners and 4 Primary Care Nurses in New Zealand’s Otago region. Thematic...
Article
Full-text available
Background: The Midwifery First Year of Practice programme (MFYP) is a fully government- funded programme aimed at supporting newly qualified midwives in their first year of practice. This formalised programme provides mentor support, professional continuing education and quality assessment and reflection. Aim: This research was designed to assess...
Article
Full-text available
PURPOSE: The paper summarizes data from twelve countries, chosen to exhibit wide variation, on the role and place of public participation in the setting of priorities. It seeks to exhibit cross-national patterns in respect of public participation, linking those differences to institutional features of the countries concerned. DESIGN/METHODOLOGY/APP...
Conference Paper
In 2012, the International Confederation of Midwives (ICM) identified the need for resources to support member associations in achieving independent midwifery regulation. We undertook the development of a regulation toolkit on behalf of the ICM and this presentation outlines our approach. NZ is one of the few countries to have robust midwifery regu...
Article
Full-text available
Purpose The paper introduces the special issue on improving equitable access to health care through increased public and patient involvement (PPI) in prioritization decisions by discussing the conceptualization, scope and rationales of PPI in priority setting that inform the special issue. Design/methodology/approach The paper employs a mixed-meth...
Conference Paper
As part of a PhD exploring the Capabilities Approach (Sen, 2001) as a transformative framework to underpin health research in addressing health inequity in Aotearoa New Zealand, an institutional ethnography of researchers working with disadvantaged populations who suffer health inequity was undertaken. An institutional ethnography aims to uncover t...
Conference Paper
Content and aims Multimorbidity is a major issue in primary care internationally and leads to poorer health outcomes for patients. Chronic disease management is also predominantly delivered using a single disease model which means people with multimorbidity receive fragmented, inefficient and duplicate health care delivery. We aimed to explore gene...
Data
New Zealand's Health and Disability Ethics Committees are accredited committees that review the majority of clinical and health research (some exclusions). This is a list of all applications reviewed by these committees between 2005 and 2013 based on their annual reports (taken directly from the reports). Citation format for this source is: Tumilt...
Conference Paper
Full-text available
text The transition from student midwife to working as a confident autonomous midwife can be challenging. In New Zealand the Midwifery First Year of Practice programme (MFYP) is a structured programme of support for new graduate midwives. The programme provides a mentor midwife chosen by the new graduate and financial assistance for education durin...
Conference Paper
Health inequity is affected by policy and service provision, and these are dependent on the available ‘evidence-base’. The current system of evidence generation significantly disadvantages certain groups of the population who fair badly in relation to health inequity. This is happening for the following reasons: 1) Mainstream evidence is not genera...
Conference Paper
Full-text available
Article
the transition from undergraduate midwifery student to working as a confident midwife can be challenging for many newly qualified midwives. Supporting a smooth transition may have a positive impact on the confidence and retention of the new graduates within the workforce. In New Zealand the Midwifery First Year of Practice programme (MFYP) was intr...
Data
All funding awardees as made available on the Health Research Council New Zealand website between 2006 and 2013 inclusive including year, awardee, organisation, type, amount, duration, etc. Citation format for this source is: Tumilty, Emma (2016): Health Research Council of New Zealand Funding 2006-2013 (Open).xlsx. figshare. https://doi.org/10.608...
Conference Paper
Full-text available
Priority setting, both in the research and service domains takes a mixture of health service/economic data and published research to establish the current state of affairs and address that state using the best available evidence, where evidence means research of an acceptable kind. Often accommodations need to be made for the lack of "evidence" aro...
Article
Full-text available
‘Evidence-based’ is the key criterion for decision making not only in medicine and other health professions, where it originated and revolutionized what was previously subjective, opinion-based practice, but also across policy and service development. The ‘evidence-based’ epistemology uses the hierarchy of evidence – a qualitative ranking of inform...
Article
Full-text available
The Ethics Application Repository is an open access, online repository of exemplary Institutional Review Board (ethics committee) application forms donated by scholars who want to gift some of their expertise and wisdom to novice researchers in the spirit of a public good. This article describes the background for the genesis of the project, the bu...
Article
Full-text available
Leading the way with a health research repository As an advocate of the growing movement towards open and free access to data and information, both in the publication arena, as well as other information initiatives such as those put forward by David Healey (RXisk.org) and Ben Goldacre (alltrials.net), I'd like to put forward a suggestion to New Zea...
Conference Paper
Background: The transition from undergraduate student to working as a fully competent health practitioner is challenging for many newly qualified practitioners. The Midwifery First Year of Practice Programme (MFYPP) was designed as a structured programme of support for midwives in their first year of practice. It commenced in February 2007 with nat...
Conference Paper
Guidelines written to aid researchers in presenting and explaining ethically sound projects to ethics committees leave many questions unanswered, especially for the inexperienced researcher. To cover all areas of research, guidelines sacrifice depth for range and there is an expectation that gaining ethics approval takes months. The ethics committe...

Questions

Questions (5)
Question
Both seem literature poor, but the latter particularly so. There is a literature review, handbook for medical professionals and a few articles on clinical ethics in the rural setting. I'm particularly interested in the New Zealand setting, but obviously would love to get recommendations from any setting.
Question
I sit on two ethics committee/insitutional review boards which largely look at work in the social sciences, and more specifically often practitioner researcher where the applicant is undertaking work in their specific work setting by design (i.e. part of the qualification). I have been developing a tool to help them make explicit the various roles and relationships they have in such a situation prior to completing ethics in order to help them become aware of the issues they need to address in designing an ethical project.  The "Power Map" specifically asks them to set out their roles and relationships visually (like an influence map or mind map), showing the connections between all the various parties involved in their project and how power flows between them.  I wondered if anyone else was also using this kind of tool already or had another solution? 

Network

Cited By

Projects

Projects (4)
Archived project
PhD work examining the relationship between the health research system, health research practices, use of health research and health disparities in Aotearoa New Zealand
Project
1. To determine health care utilisation and health care and social support needs of people with severe COPD (Study 1a and Study 1b). 2. To determine the barriers and enablers to the provision of high quality, patient-centred and integrated care for people with severe COPD (Study 2). 3. To develop clear implementable evidence-based recommendations for clinical practice and care delivery for people with severe COPD in Southern Region (Study 3).
Project
Transparent and fair decision-making in health is a public good. We want to conduct a research project with the aim of examining how health agencies in Aotearoa New Zealand (NZ) make important decisions about research allocation and priority setting in health by piloting an internationally developed audit tool and conducting interviews with both health agencies and the community. By doing this we can assess what currently works well and what does not and compare our decision-making practices against those of other health sectors internationally, while also informing further improvements where these are necessary. We will use an internationally developed tool (DMAT – Decision-Making Audit Tool), that assesses decision-making based on key criteria regarding procedural justice and the inclusion of social values and patient/public involvement. Making decision-making processes more transparent and fair using such an assessment tool will provide the public with key information that they can then use when accepting a decision about priority setting in health care.