Emily M Boxell

Emily M Boxell
pH Associates · Patient-Centred Outcomes

BSc (Hons), MSc PhD

About

16
Publications
1,202
Reads
How we measure 'reads'
A 'read' is counted each time someone views a publication summary (such as the title, abstract, and list of authors), clicks on a figure, or views or downloads the full-text. Learn more
108
Citations
Citations since 2016
9 Research Items
87 Citations
201620172018201920202021202202468101214
201620172018201920202021202202468101214
201620172018201920202021202202468101214
201620172018201920202021202202468101214
Introduction
I have been conducting research in a health setting for over ten years via my work evaluating and developing services for patients in academic, charity and NHS settings. In my current role as a Senior research associate I lead the development and implementation of national patient surveys for CQC and NHS England. My PhD research (completed in 2017) focused on the experience of living with age-related macular degeneration (AMD) for the patient and their caregiver.
Additional affiliations
August 2017 - present
pH Associates
Position
  • Project Manager
December 2012 - March 2013
October 2012 - March 2013
Breast Cancer Care
Education
April 2013 - July 2017
Royal Holloway, University of London
Field of study
  • Health Psychology
September 2009 - September 2010
University of Bath
Field of study
September 2005 - June 2008

Publications

Publications (16)
Article
Full-text available
Objectives To investigate whether people with age-related macular degeneration (AMD) are able to self-detect symptoms and, if so, what symptoms they experience, from whom they first seek help, whether help is sought within the 1 week recommended by the Royal College of Ophthalmologists’ guidelines and reasons for any delay. Methods and analysis A...
Article
Full-text available
Abstract Objective: To investigate healthcare experiences of patients with age-related macular degeneration (AMD) and determine whether a previous survey and Royal College of Ophthalmologists (RCOphth) management guidelines brought improvements. Design: Cross-sectional survey of Macular Society members in 2013 compared with previous 1999 survey. S...
Article
Full-text available
Provision of written information may improve awareness of cancer symptoms and encourage timely presentation in primary care. This study assessed changes in symptom knowledge, perceived barriers to help-seeking, anxiety and intention to seek help, following exposure to a leaflet to raise awareness of gynaecological cancer symptoms. Women (N = 484)...
Article
Full-text available
Introduction Improved models of care are needed to meet all the support needs of people with cancer, which encompass psychological, emotional, physical, spiritual, sexual, occupational, social and existential needs. The aim of this article is to (a) evaluate short- and long-term impacts of using a whole person approach to support people with cancer...
Conference Paper
Full-text available
BACKGROUND: Launched in 2010, the two day ‘Living Well with the Impact of Cancer’ course (LWC), run by Penny Brohn Cancer Care (PBCC), provides people with cancer and their supporters a toolkit of self-management techniques to help support physical, emotional and spiritual wellbeing. A mixed-methods longitudinal service evaluation was carried out t...
Conference Paper
Full-text available
BACKGROUND: The ‘Living Well’ 2 day course supports any person and their supporter, living with or beyond cancer, at any stage of the cancer journey. The course aims to provide support and education on an emotional, physical, psychological, spiritual, social and financial level. This project evaluated the impact of the Living Well course and th...
Technical Report
Full-text available
Acknowledgments We would like to thank the participants of this service evaluation who took the time to respond to the questionnaires with honesty and courage when sharing their experiences of how the Living Well course has impacted on their cancer journey. The James Tudor Foundation for supporting the Research and Information Department at Penny B...
Article
Health literacy may influence the efficacy of print-based public health interventions. A key part of the U.K. cancer control strategy is to provide information to the public on earlier diagnoses with a view to improving the United Kingdom's relatively poor 1-year cancer survival statistics. This study examined the effect of health literacy on the e...
Article
Complex regional pain syndrome (CRPS) is difficult to diagnose and is characterised by burning pain in one or more limbs. Treatment is palliative not curative and focuses on improving function. This requires patients to make long-term changes to their behaviour. As with all such regimens, adherence is often poor. This study explored the lived exper...

Network

Cited By

Projects

Projects (5)
Archived project
A National Awareness and Early Diagnosis Initiative (NAEDI) funded project, evaluating the effectiveness of a leaflet designed to increase knowledge of gynaecological cancer symptoms and encourage early presentation in primary care.
Project
A National Awareness and Early Diagnosis Initiative (NAEDI) funded project, evaluating the effectiveness of a leaflet designed to increase knowledge of gynaecological cancer symptoms and encourage early presentation in primary care.