Christine Kelly

Christine Kelly
University of Manitoba | UMN · Department of Community Health Sciences

PhD

About

36
Publications
7,982
Reads
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267
Citations
Additional affiliations
April 2014 - December 2015
University of Ottawa
Position
  • Banting Postdoctoral Fellow

Publications

Publications (36)
Article
Directly funded (DF) home care provides funding to home care recipients to coordinate their own care and supports, and is available across all Canadian provinces. Current research on DF home care focuses on the experiences of adults with disabilities self-directing their own care, but less is known about the experiences of family members managing s...
Article
Full-text available
Directly funded (DF) home care, or consumer directed home care, gives program users a budget to choose their own services. Set in the Canadian province of Manitoba, our study examines the local DF program “Self and Family Managed Care”, which does not allow program users to hire and pay a family member. Incorporating a disability lens into care and...
Article
Full-text available
Intersectionality is a widely adopted theoretical orientation in the field of women and gender studies. Intersectionality comes from the work of black feminist scholars and activists. Intersectionality argues identities such as gender, race, sexuality, and other markers of difference intersect and reflect large social structures of oppression and p...
Article
Emerging evidence suggests adults with intellectual and/or developmental disabilities (IDD) may be at risk of inequities in cancer experiences and outcomes. Individuals with IDD may experience multiple barriers that could worsen outcomes and experience. These barriers may be connected to features of IDD or the healthcare system overall. Future rese...
Article
Ageism is arguably one of the least challenged forms of discrimination globally and manifests in many obvious and subtle ways. Situating our conversation within the context of COVID-19, we discuss peculiar and unchallenged forms of ageism in current times as well as the intersections with other forms of discrimination such as ableism, racism, sexis...
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Disability, mad and d/Deaf arts are motivated to transform the arts sector and beyond in ways that foreground differing embodiments. But how do we know if such arts-based interventions are actually disrupting conventional ways of experiencing and consuming art? This article presents three themes from a critical literature review relevant to curatin...
Article
Full-text available
Home care systems have undergone major transformation in the last twenty years, manifesting as a volatile series of policy changes in Ontario, Canada. This includes increasing attention to direct funding (DF) home care where individuals receive cash transfers to arrange their own services. Through a textual analysis of 101 media and grey literature...
Article
Full-text available
Violence can lead to physical and psychological harm, emotional exhaustion, and burnout for paid and unpaid carers. Concomitantly, being regarded as violent, aggressive, or difficult can have a direct impact on older adults’ sense of self, care relationships, and quality of care. Current research on violence and aging lacks systemic understanding o...
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Full-text available
Background: A key component of the implementation process is identifying potential barriers and facilitators that need to be addressed. The Theoretical Domains Framework (TDF) is one of the most commonly used frameworks for this purpose. When applying the TDF, it is critical to understand the context in which behaviours occur. Intersectionality, w...
Article
Full-text available
Direct Funding (DF) provides individuals with a budget to arrange their own home care instead of receiving publicly arranged services. DF programs have evolved in a number of countries since the 1970s. In Canada, while small-scale DF programs have existed since the early 1970s, the research on these programs remains limited. Responding to gaps iden...
Article
This study examined the elevated risk of intimate partner violence (IPV) among persons with mental health-related disabilities (MH-RD) and the extent to which known risk factors accounted for this phenomenon. Data were drawn from a nationally representative sample of 33,127 Canadians collected in 2014 as part of Statistics Canada’s General Social S...
Preprint
Full-text available
Background A key component of the implementation process is identifying potential barriers and facilitators that need to be addressed. The Theoretical Domains Framework (TDF) is one of the most commonly used frameworks for this purpose. When applying the TDF, it is critical to understand the context in which behaviours occur. Intersectionality, whi...
Preprint
Full-text available
Background: A key component of the implementation process is identifying potential barriers and facilitators that need to be addressed. The Theoretical Domains Framework (TDF) is one of the most commonly used frameworks for this purpose. When applying the TDF, it is critical to understand the context in which behaviours occur. Intersectionality, wh...
Preprint
Full-text available
Background A key component of the implementation process is identifying potential barriers and facilitators that need to be addressed. The Theoretical Domains Framework (TDF) is one of the most commonly used frameworks for this purpose. When applying the TDF, it is critical to understand the context in which behaviours occur. Intersectionality, whi...
Preprint
Full-text available
Background: A key component of the implementation process is identifying potential barriers and facilitators that need to be addressed. The Theoretical Domains Framework (TDF) is one of the most commonly used frameworks for this purpose. When applying the TDF, it is critical to understand the context in which behaviours occur. Intersectionality, wh...
Preprint
Full-text available
Background A key component of the implementation process is identifying potential barriers and facilitators that need to be addressed. The Theoretical Domains Framework (TDF) is one of the most commonly used frameworks for this purpose. When applying the TDF, it is critical to understand the context in which behaviours occur. Intersectionality, whi...
Article
Full-text available
Directly funded home care provides funds to individuals to arrange their own services. We ask, what is unique about being a directly funded home care worker? Our qualitative case study in Manitoba, Canada, included an online survey of 95 directly funded workers and interviews with 13 key informants, 24 clients and/or family managers, and 23 workers...
Article
Full-text available
Introduction There is increasing attention on the cancer burden for adults with intellectual and developmental disabilities (IDD). Emerging evidence suggests there are differences in cancer experiences and outcomes for individuals living with IDD, from risk through survivorship. These differences may be attributed to features of the IDD, such as co...
Article
Full-text available
This article explores the economic and political landscape involved in the shifting policies of directly funded home care in Ontario, including organizational structures, agenda-setting, actors, and interest groups.
Article
Full-text available
In many developed contexts, home‐care services have been overhauled with the intent of increasing control and flexibility for those using social and health services. This change is associated with providing funds directly to individuals, and sometimes their families and supports, to arrange at home‐care assistance with the activities of daily livin...
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Full-text available
Drawing on the turn in feminist disability studies toward notions of time and futurity, this article presents themes from a study of disability and health-related organizations and youth engagement in Ottawa, Canada. This article asks: what types of futures are imagined by youth with disabilities? How do they resemble or differ from the future visi...
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Full-text available
There is growing attention to the training and education of Personal Support Workers, or PSWs, who work in community, home and long-term care settings supporting older people and people with disabilities. In Ontario, Canada, amid a volatile policy landscape, the provincial government launched an effort to standardise PSW education. Using qualitativ...
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Full-text available
Personal support workers (PSWS) provide hands-on assistance in a variety of long-term care and community settings. The question of whether psws should become regulated similar to other self-regulating health professions is a perennial concern in policy circles, especially because of the intimate nature of their work and the potential for abuse of c...
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Following the 2008 financial crisis, all levels of Canadian government implemented austerity measures that dramatically restructured welfare, employment, and social service infrastructures. This has significantly affected how disabled people access services. We argue that this restructuring has been an impetus for new forms of disability activism a...
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Full-text available
In July 2014, the Ontario Ministry of Training, Colleges and Universities (MTCU) released the Personal Support Worker (PSW) Program Standard. Prior to this, there were three educational standards, inconsistently applied across a multitude of education and employment settings, governed by three distinct pieces of legislation. The primary goal of the...
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Professional encounters bestow moral esteem upon professional helpers while denigrating those who access services. Yet society is arranged in such a way that professional services are indispensable for many to survive, and service users can experience them as simultaneously helpful and oppressive. We explore the ambivalent figure of the professiona...
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This article enters into conversations about "care" among feminist and disability scholars through a qualitative study on the Ontario Direct Funding program. In some ways, the findings reflect Independent Living perspectives as the program and interactions between attendants and self-managers are positioned as "not care." Yet, there are areas that...
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This article uses elements of autoethnography to theorize an in/formal support relationship between a friend with a physical disability, who uses attendant services, and me. Through thinking about our particular “frien-tendant” relationship, I find the common scholarly orientations toward “care” are inadequate. Starting from the conversations betwe...
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There are a limited number of academic accounts of disability movements in Canada; however, the existing literature provides relatively consistent descriptions. According to this literature, the disability movement seeks incremental, rather than radical, change through government-led policy, legislation and legal challenges. This work explicitly or...
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Full-text available
As with many movements operating in neoliberal regimes, Canadian disability movements struggle to maintain momentum and engage youth leadership. Drawing on feminist disability studies, this article presents the findings of a participatory research project on the Youth Activist Forum, an event which brought together 38 youth with and without disabil...
Article
Full-text available
Disability scholars and activists argue that ‘care’ is a complex form of oppression and reject it as a term and concept. I explore the possibility of salvaging care from its oppressive medical and charitable legacies through a discussion of personal assistance. While not arguing for a return to terming personal assistance ‘care’, I argue care can b...
Article
With disability representing a diverse array of experiences and identities, it seems unlikely that advocacy groups would be able to agree on concrete policy issues. And yet, there does appear to be consensus in the global North on a number of topics. This paper explores one such example, advocacy around direct funding models of personal assistance...
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Full-text available
Support provision is a personal and important element of daily life for many disabled people. This study examines the ways in which organisational mandates and philosophies shape interactions between disabled people and support providers at two unique organisations in Winnipeg, Canada: a L’Arche community for people with intellectual disabilities a...

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Project (1)
Project
This project aims to create knowledge regarding the development and evolution of directly funded (also termed self managed or family managed) home care programs in Canada. Direct funding provides individuals with cash to hire and arrange their own services instead of receiving government provided home care. This project asks: How do directly funded programs shape care experiences and, working conditions, and what are its implications for the policy landscape of home care, particularly in consideration of population aging?