Carine Khalil

Carine Khalil
Paris Descartes, CPSC | Paris 5 · Département Informatique (INFO)

PhD in Management and Information Systems

About

58
Publications
9,338
Reads
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347
Citations
Citations since 2016
51 Research Items
338 Citations
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Introduction
I am a Health Services Research Scientist at Cedars-Sinai-CORE and an associate professor and researcher at Paris Descartes University. I hold a PhD in Management and Information Systems from Telecom ParisTech. My research interests evolve around design thinking, patient-centered approaches, the use and adoption of IT in the health sector. I am interested in understanding how users make sense of, interpret, adopt, use and implement innovations in specific context settings. I am specialized in qualitative research methodologies. I believe that reality is constructed through subjective perceptions and interpretations of reality. Qualitative research is therefore essential to capture this reality and understand it from people's perspectives, thoughts, shared-meanings, and interactions.

Publications

Publications (58)
Article
Background : Filipinos have lower colorectal cancer (CRC) screening rates and worse outcomes versus non-Hispanic Whites. As Filipinos are understudied on how they perceive CRC screening, we conducted focus groups examining their attitudes, enablers, and barriers to screening. Methods : In August and September 2021, we recruited Filipinos aged 40-7...
Preprint
UNSTRUCTURED Background/Aims: Inflammatory bowel disease (IBD) patients are at increased risk of infections, bone fractures and skin cancers. We developed preventive health videos using a patient-centered approach, and tested their impact on preventive health uptake. Methods: Five animated videos explaining preventive health recommendations in IBD...
Article
Objective: Interstitial Cystitis/Bladder Pain Syndrome (IC/BPS) is a debilitating chronic condition that disproportionately affects women at a ratio 5:1. We sought to capture women's experiences with IC/BPS by conducting a large-scale digital ethnographic analysis of anonymous posts on internet forums. Methods: Online posts were identified using...
Article
Objective This qualitative study included a sample of healthcare workers (HCWs) at a tertiary care center providing direct care to patients with COVID-19 to explore experiences and perceptions regarding care delivery during the COVID-19 pandemic as well as factors that helped HCWs cope with the challenges of the pandemic. Methods Grounded theor...
Article
BACKGROUND & AIMS In 2021, the US Preventive Services Task Force lowered the colorectal cancer (CRC) screening age to 45y. We used conjoint analysis—a method that assesses complex decision making—to update our understanding on people’s CRC screening test preferences in the context of new guidelines. METHODS We conducted a conjoint analysis survey...
Article
Introduction: To broadly disseminate 5 user-centered educational videos for patients with inflammatory bowel disease and their family and friends on social media. Methods: Relevant social media users were iteratively identified based on their online behavior. For each video, 2 different accompanying texts were tested. Results: We reached 4.2 m...
Article
Background Current qualitative literature about the experiences of women dealing with urinary tract infections (UTIs) is limited to patients recruited from tertiary centers and medical clinics. However, traditional focus groups and interviews may limit what patients share. Using digital ethnography, we analyzed free-range conversations of an online...
Article
INTRODUCTION Crohn’s perianal fistulae (CPF) impact the physical, emotional, and social wellbeing of patients. Despite the high biopsychosocial burden of CPF, limited data exist regarding how patients navigate challenges associated with this complication of CD and how they perceive treatments. Social media offers a rich opportunity to gain an in-de...
Article
Background: Although gut-directed psychotherapies are effective for IBS, they are rarely prescribed given a paucity of trained clinicians. Virtual reality (VR) offers a solution by allowing patients to self-practice these techniques in a standardized manner. Methods: A multidisciplinary team developed IBS/VR, a program that transports users into...
Article
Full-text available
Importance Delaying critical care for treatable conditions owing to fear of contracting COVID-19 in the emergency department (ED) is associated with avoidable morbidity and mortality. Objective To assess and quantify how people decided whether to present to the ED during the COVID-19 pandemic for care unrelated to COVID-19 using conjoint analysis,...
Article
Objective We developed five educational videos through a user-centered approach for patients with inflammatory bowel diseases (IBD) and their family and friends. Here, we assessed if IBD patient activation and family and friends’ abilities to understand IBD patients’ thoughts, feelings, and behaviors (i.e., perspective taking) changed after watchin...
Article
Full-text available
Background Many patients with irritable bowel syndrome (IBS) experience acute and unexpected pain episodes over and above chronic background symptoms, and there are emerging medications designed to treat such pain. We aimed to use conjoint analysis—a technique that elucidates how people make complex decisions—to examine patient preferences for emer...
Article
Full-text available
Objective To assess women’s knowledge, patient experience, and treatment decision making regarding overactive bladder (OAB) using digital ethnography.Methods Online posts were identified using a data mining service. Two hundred randomized posts were reviewed and coded using grounded theory. We then applied a latent Dirichlet allocation (LDA) probab...
Article
Full-text available
Background Recent drug approvals have increased the number of therapies available for inflammatory bowel disease (IBD), making it difficult for patients to navigate available treatment options. We examined patient decision-making surrounding biologic and small-molecule therapies in an international cohort of patients from the United States, Canada,...
Article
Full-text available
Background: Important knowledge gaps have been identified related to the causes and symptoms of inflammatory bowel disease (IBD) and medical treatments and their side effects. Patients with IBD turn to social media to learn more about their disease. However, such information found on the web is misleading and often of low quality. Objective: This s...
Article
Full-text available
Objective: To characterize the decision-making process and illness experience of women with pelvic organ prolapse (POP) using large-scale social media analysis. Methods: Digital ethnographic analysis of online posts identified through data mining was performed. Grounded theory methodology was applied to 200 posts via traditional hand coding. To...
Article
Full-text available
BACKGROUND & AIMS Abdominal pain is the most common gastrointestinal symptom reported in ambulatory clinics, but little is known about its prevalence and burden of illness in the general community. We conducted a population-based survey to determine the epidemiology, clinical characteristics, and healthcare-seeking behavior of persons with abdomina...
Article
Objectives To evaluate the level of evidence behind recommendations on social media for disease prevention in five lower urinary tract symptoms. Materials and Methods We conducted a digital analysis of anonymous online posts on social media sites collected by a social media data mining service. One thousand posts about pelvic organ prolapse (POP),...
Preprint
BACKGROUND Important knowledge gaps have been identified related to the causes of IBD, symptoms, medical treatments, and side-effects. IBD patients turn to social media to learn more about their disease. However, such information found online is often low-quality and misleading. OBJECTIVE The aim of this study was to gain an in-depth understanding...
Article
Full-text available
Knowledge represents a sustainable asset for innovative firms and specifically software industries working in unpredictable environments. Until the late 90’s, the most widely used software development approaches advocated extensive documentation and traceability. The emphasized knowledge is mainly explicit. However, with the dynamics of progress of...
Article
Full-text available
Objectives: Chronic idiopathic constipation (CIC) is characterized by unsatisfactory defecation and difficult or infrequent stools. CIC affects 9%-20% of adults in the United States, and although prevalent, gaps in knowledge remain regarding CIC healthcare seeking and medication use in the community. We recruited a population-based sample to deter...
Article
Full-text available
INTRODUCTION AND OBJECTIVE: Life expectancy (LE) is a critical but often overlooked factor in prostate cancer treatment decision making, as evidenced by high rates of overtreatment among those with limited LE. There is a lack of data regarding patient perspectives on how LE information ought to be communicated in treatment consultations. We sought...
Poster
Full-text available
Background Patients with inflammatory bowel disease (IBD) can have knowledge gaps regarding their disease and its management, which may lead to anxiety and reduced quality of life. They often use social media as a tool to seek information and manage their chronic disease. The goal of this study was to develop a series of educational videos optimize...
Article
Full-text available
Background Patients with inflammatory bowel disease (IBD) can have knowledge gaps regarding their disease and its management, which may lead to anxiety and reduced quality of life. They often use social media as a tool to seek information and manage their chronic disease. The goal of this study was to develop a series of educational videos optimize...
Article
Full-text available
Objective: To capture the complete patient experience, knowledge and perceptions among women with stress urinary incontinence (SUI) by conducting a large-scale digital ethnographic analysis of anonymous online posts. Methods: Online posts were identified through data mining. First, 200 randomized posts were analyzed using grounded theory qualita...
Article
Full-text available
Background: Women with gestational diabetes mellitus (GDM) require regular follow-ups and overall management to normalize maternal blood glucose and improve pregnancy outcomes. With the advancements made in the digital field, telemedicine is gaining popularity over traditional health care approaches in different medical fields. As for GDM, telemoni...
Article
Full-text available
INTRODUCTION AND OBJECTIVES: Characterizing women’s perceptions of urinary tract infections (UTI) helps patients achieve a better understanding of their disease and increases the likelihood of treatment success. Focus groups, interviews, and surveys are designed by providers and limited by their sample size. Online-community research allows for an...
Article
Full-text available
Background Women with gestational diabetes mellitus (GDM) require regular follow-ups and overall management to normalize maternal blood glucose and improve pregnancy outcomes. With the advancements made in the digital field, telemedicine is gaining popularity over traditional health care approaches in different medical fields. As for GDM, telemonit...
Preprint
Full-text available
BACKGROUND Therapeutic virtual reality (VR) has emerged as an efficacious treatment modality for a wide range of health conditions. However, in spite of encouraging outcomes from early stage research, a consensus is needed for how best to develop and evaluate VR treatments within a scientific framework. OBJECTIVE We sought to develop a methodologi...
Article
Full-text available
Background: Therapeutic virtual reality (VR) has emerged as an efficacious treatment modality for a wide range of health conditions. However, in spite of encouraging outcomes from early stage research, a consensus is needed for how best to develop and evaluate VR treatments within a scientific framework. Objective: We sought to develop a methodolo...
Article
Objective Few studies have examined ankylosing spondylitis (AS) patients’ concerns and perceptions of biologic therapies outside of traditional surveys. In this study, we used social media data to examine AS patients’ knowledge, attitudes, and beliefs regarding biologic therapies. Methods We collected posts from 601 social media sites made between...
Chapter
Full-text available
The number of research studies and surveys on software project management is constantly growing. However, the state of the practice of software project management methodologies is still disparate and confusing. Therefore, project teams are often confused by whether or not they should adopt agile methodologies, or keep on working in a “traditional”...
Article
Full-text available
Even though the number of agile adopters in software organizations keeps on growing, many challenges are still encountered during the integration of agile practices across software projects. Only few succeed in becoming agile especially when the organizational context is not aligned with agile philosophy and principles. There is an evident need for...
Chapter
Full-text available
There is a general agreement that knowledge represents a sustainable competitive advantage for enterprises working in turbulent and unpredictable environments (Drucker, 1993; Grant, 1996; Alavi and Leidner, 2001). As knowledge becomes essential, organizations are restructuring themselves in order to better use this valuable asset. The implementatio...
Article
Full-text available
The transition to an "agile" organization remains a challenge. Despite the increasing number of empirical researches regarding "agile" software development, "agile" management and engineering practices are still difficult to implement within large organizations. To our knowledge, there is no specific framework that organizations can rely on to beco...
Conference Paper
Full-text available
Knowledge management systems contribute to the emergence of new organizational forms such as post-bureaucratic and decentralized organizations. Hence, these systems affect the control and autonomy of organizational actors. On one side, they enhance horizontal communication and encourage self-organizing and self-managing teams. On the other side, th...
Article
Full-text available
Management innovation is becoming essential for addressing the challenges faced in software industries. New managerial approaches have been progressively developed over the last two decades in order to cope with the inevitable market changing demands. These managerial innovations known as agile methods enhance team's ability to adapt to unpredictab...
Article
Full-text available
Agile philosophy emphasizes constant interactions and close collaboration between team members. This emergent management philosophy relies on a set of practices that aim at creating an environment in which teams are able to respond rapidly to customer's needs and to deal effectively with changing situations. From this perspective, agile practices c...
Article
Full-text available
Until the late 90's, the most widely used software development methods were based on sequential approaches often referred to as plan-driven or document-driven methods. This type of development approach emphasizes upfront requirements definition, documentation and extensive plans. In order to adapt and rapidly react to technological competitive mark...

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