Carina Berterö

Carina Berterö
  • Professor, PhD
  • Professor at Linköping University

About

197
Publications
106,998
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Introduction
The overall objective of my studies is to develop nursing science. There are different ways to accomplish this, for instance through identifying and clarifying the theory and empirics of nursing science; through identifying and applying the perspective of patients, next of kin and healthcare professionals on i.e. symptoms/other discomforts and how disease/poor health affects a person’s quality of life/life situation and well-being.
Current institution
Linköping University
Current position
  • Professor
Additional affiliations
January 1980 - December 1986
Länssjukhuset Ryhov
Position
  • Registered nurse
August 2003 - present
Linköping University
Position
  • Professor
January 2003 - December 2019
Federal University of Rio de Janeiro
Position
  • Professor

Publications

Publications (197)
Article
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Objective: To explore patients’ experiences of dental staff recognising their dental anxiety. Material and Methods: Semi-structured interviews were conducted with 10 adults who identified themselves as dentally anxious. The sampling of study participants was purposive, and the audio-recorded interviews were transcribed verbatim. Classical grounded...
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Introduction Obesity is associated with several co-morbidities in women, including disturbed sex hormone regulation with menstrual disturbances, subfertility, hirsutism, and central fat dispersion, all with an impact on sexual function and quality of life. There are few investigations regarding women’s experiences of obesity-related altered sex hor...
Article
Background: Previous research indicates disparities in the care of bereaved parents and siblings following a stillbirth in the family. The aim of this systematic review was to assess the effects of interventions aimed at reducing psychological distress among parents or siblings in high-income countries after experiencing a stillbirth. Methods: The...
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Introduction Approximately 2 million babies are stillborn annually worldwide, most in low- and middle-income countries. Present review studies of the parental and healthcare providers’ experiences of stillbirth often include a variety of settings, which may skew the findings as the available resources can vary considerably. In high-income countries...
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Being cared for in an intensive care unit affects both the patient being cared for and the family in various ways. The family is of great importance for the recovery of the former intensive-care patient. The aim is to explore family functioning and family hardiness in families of former intensive care patients. A cross-sectional study using two sel...
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Objectives The study aimed to explore the lived experiences of women with severe obesity before and after undergoing bariatric surgery with a special focus on possible effects of changed sex hormone levels. Design A qualitative interview study with transcribed text analysis based on Gadamer’s hermeneutics. Setting Regional hospital and outpatient...
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Objectives: In order to provide a deeper understanding of family functioning, the aim of this study was to identify, describe and conceptualise the family functioning of families where a formerly critically ill family member had stayed at the intensive care unit, with the impact of a pandemic. Research methodology/design: The study has a grounde...
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The aim was to explore the patient’s experiences to get insights into their living habits prior to gastrointestinal cancer surgery. An interpretative phenomenological analysis (IPA) approach was used. Six in-depth interviews with participants recruited from a hospital in southeast Sweden. The IPA analysis identified 3 themes: The influence of the c...
Article
Objectives Severe chronic obstructive pulmonary disease affects and changes the lives of both affected persons and next of kin. There is a need for support and a sense of coherence to manage the life situation and minimize the symptom and caregiver burden. The aim of this study was to diverge or converge views of symptom burden, caregiver burden, t...
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Background: Chronic obstructive pulmonary disease (COPD) is an inflammatory and irreversible lung disease. For next of kin caregiver burden can be a consequence of the situation of being close to a person affected by a chronic disease and in need of help. When there is an imbalance between stressors and resources to cope with the situation, caregi...
Article
Texts about theory in nursing often refer to theory construction by using inductive methods in a rigid way. In this paper, it is instead argued that theories are created, which is in line with most philosophers of science. Theory creation is regarded as a creative process that does not follow a specific method or logic. As in any creative endeavour...
Article
The aim of this study was to explore interaction of interprofessional hospital trauma teams. A theory about how team cognition is developed through a dynamical process was established using grounded theory methodology. Video recordings of in-real-life resuscitations performed in the emergency ward of a Scandinavian mid-size urban hospital were coll...
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Introduction and Objective There is a knowledge gap in how dental clinicians recognise dental anxiety. The aim of this study was to identify, describe and generate concepts regarding this process. Materials and Methods Eleven semi-structured interviews were conducted with dental clinicians from the public dental service of Östergötland, Sweden. Pur...
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Introduction The primary aim of this study was to determine the incidence of patient‐reported pain 1 year after hysterectomy for benign gynecological conditions in relation to occurrence of preoperative pain. The secondary aim was to analyze clinical risk factors for pain 1 year after the hysterectomy in women with and without preoperatively report...
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Introduction Resistance training may be an effective intervention to improve menopausal symptoms and increase women’s quality of life. However, most postmenopausal women do not perform regular resistance training. The purpose of this study was to explore postmenopausal women’s experiences of participation in a resistance-training intervention to fi...
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Background: The incidence of hepatocellular cancer (HCC) has continually increased. To achieve optimal supportive cancer care for HCC patients, it is important to consider patients' experiences and preferences. Objective: This meta-synthesis aims to critically interpret how patients with HCC experience symptoms and the impact of the disease on d...
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Introduction: When a family member has been critically ill and cared for at an intensive care unit the individual family member as well as the family system are affected and in need of support. The aim of this study was to compare and contrast the responses from 2 different types of follow-up interventions for families of critically ill persons, fo...
Preprint
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Purpose There is limited in-depth understanding of patients’ views and experiences with physical training, nutritional care, psychological support, and smoking/alcohol cessation prior to gastrointestinal cancer surgery. Therefore, patients' thoughts and influences regarding prehabilitation components are of interest in the effort to provide optimal...
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Purpose: Transmasculine persons may experience stigma, which increases the risk of psychological distress. They may need reproductive, perinatal, and sexual health care; however, qualitative studies addressing transgender individuals' experiences are scarce. This study aimed at interpreting and describing the experiences of transmasculine persons i...
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The Enhanced Recovery After Surgery program aims to transfer much of the responsibility for postoperative recovery to the patient and their next of kin. The aim of the study was to identify and describe women’s experiences of care within this program in relation to gynecological abdominal surgery. A qualitative approach was employed where 16 women...
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Objective: The aim of this meta-synthesis was to synthesize and interpret the available qualitative studies to increase our understanding and extend knowledge about how women with endometriosis experience health care encounters. Methods: The literature review was carried out using CINAHL, Psychinfo, Academic Search Premier, PubMed, and Scopus, from...
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Qualitative studies are often found to be accompanied by quotations from interviews or similar data sources. As with any methodological tradition, it is essential to critically explore the general principle of including quotations in scientific papers: what is the purpose and justification for including quotations? Are there standards and, in that...
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Background: The health care-seeking behaviour among Somali women is different from Swedish women's behaviour, and this may have consequences for birth giving. The aim of the study was to identify and describe Somali women's lived experience of birth giving in Sweden. Methods: Qualitative individual interviews were conducted in Swedish with seven...
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Background. Parkinson’s disease is a neurodegenerative condition with both physical and mental consequences that affect many aspects of everyday life. Persons with Parkinson’s disease and their care partners want guidance from healthcare services in order to develop skills to adjust to life with a long-term condition. The Swedish National Parkinson...
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Persons with Parkinson's disease and their care partners want support from healthcare to develop the skills to handle everyday life with disease. Earlier findings indicate that participants of the self‐management program Swedish National Parkinson School experience several benefits of the program. The purpose of this qualitative observational study...
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Objective: To increase the understanding of women who experience negative effects on sexual function when using hormonal contraception. Methods: We performed 24 in-depth interviews with women who had previously experienced negative sexual function effects while using hormonal contraceptives. The thematic analysis method was used. Results: ‘After ex...
Article
Objective: In the present study, we aimed to assess sense of coherence (SOC) and health-related quality of life (HRQOL) during and after adjuvant chemotherapy by mobile phone-based reporting in patients with colorectal cancer experiencing neurotoxicity. Methods: In this prospective descriptive cohort study, a mobile phone-based system was used t...
Article
Objective The objective of this study was to identify and describe mutual components during healthcare encounters between women with endometriosis and physicians. Methods Secondary analysis of data was obtained from two original face-to-face interview studies, one with nine women with endometriosis and one including 16 physicians. Data in this sec...
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Background The whole family is affected if one family member is critically ill. The Family Health Conversation Intervention may give the family tools that support healthier family functioning. Aims and objectives The aim of this study was to identify which components of family function are affected when families participate in Family Health Conver...
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Background Chronic obstructive pulmonary disease (COPD) is a prevalent illness that, due to its symptoms and treatment, entails a significant burden for the affected person, and his/her family, health care and private finances. Today, knowledge and understanding are sparse regarding COPD-affected persons’ own lived experiences and about the symptom...
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Introduction: Endometriosis is a gynecological disorder that may cause considerable pelvic pain in women of fertile age. Determining pain mechanisms is necessary in order to optimize the treatment of the disease. The objective of the study was to evaluate pain thresholds in women with persistent pelvic pain with and without confirmed endometriosis...
Article
Background: Oxaliplatin (OXA) is frequently used in the treatment of patients with colorectal cancer, and OXA-induced neurotoxic side effects are common. Reports on real-time patient-reported neurotoxic side effects and impact on the patient's daily activities are sparse in existing studies. Objective: The aim of this study was to identify and a...
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PURPOSE: To identify and describe experiences of patients with colorectal cancer (CRC) who have neurotoxic side effects early in the oxaliplatin treatment period, and how neurotoxicity affects their daily lives. PARTICIPANTS & SETTING: 10 patients with stage II-III CRC were included. All were treated with adjuvant oxaliplatin postoperatively a...
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Aims and objectives The aim of this study was to test the theoretical conceptualization of the co‐creative process in home care nursing encounters over time. Method and design This was a multiple case study with a deductive analysis of qualitative data over time, using interviews and observations collected from three cases. Results The co‐creativ...
Article
Objective: To identify and understand women's lived experiences of contraceptive counselling given at the same time as abortion counselling. Methods: We interviewed 13 women aged 20-39 who had experienced an abortion and the related counselling. The women were recruited from five hospitals in Sweden. Interviews were analysed using an interpretat...
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Aim The aim of this study is to develop a comprehensive definition of facticity, applicable to dementia nursing. Methods Walker and Avant's Concept Analysis was used to analyse facticity. Published literature found in PubMed, CINAHL, PsycInfo, and Scopus using the search term facticity and nursing, as well as books and dictionaries and empirical d...
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Aims and objective: To identify and describe experiences valuable for managing daily life after participation in the NPS self-management intervention. The second part was to explore the applicability of the Self- and family management framework by Grey and colleagues for persons with Parkinson's Disease and their relatives. Background: The impac...
Article
Background: The study objective was to analyze and compare patient-reported experience measures (PREMs) and patient-reported outcome measures (PROMs) after hysterectomy in women with and without a preoperative complaint of pelvic pain associated with and without a confirmed diagnosis of endometriosis. Methods: Retrospective nationwide register s...
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Purpose: This qualitative study aims to interpret and describe how young women diagnosed with a breast cancer uses blogs to manage daily life. Methods: 14 blogs written by women diagnosed with breast cancer aged between 25 and 38 years. These blogs were analysed using qualitative thematic analysis. Results: Four themes were identified in the data b...
Article
Aims and objectives: To identify and describe the experience of healthcare encounters among women with endometriosis. Background: Endometriosis is a "hidden" chronic gynaecological disease appearing in every 10th woman of fertile age. Different manifestations of pain are the main symptoms, often leading to impaired physical and mental health, an...
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Purpose: The purpose of this study was to explore the experiences of oxaliplatin-induced neurotoxic side effects among patients with colorectal cancer (CRC) and how these side effects influenced their daily lives over time. Methods: To assess neurotoxic side effects, ten patients were repeatedly interviewed. The patients were recruited from two...
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ABSTRACT Background: In cancer care, mobile phone-based systems are becoming more widely used in the assessment, monitoring, and management of side effects. Objective: To explore the experiences of patients with colorectal cancer on using a mobile phone-based system for reporting neurotoxic side effects. Methods: Eleven patients were interviewed...
Article
Aim: The purpose of this article is to discuss the attempts to justify concepts analysis as a way to construct theory - a notion often advocated in nursing. Background: The notion that concepts are the building blocks or threads from which theory is constructed is often repeated. It can be found in many articles and well-known textbooks. However...
Article
Objective: To identify and describe first-time fathers' experiences of normal childbirth. Design: A qualitative interview study using a thematic analysis for analysing the transcripts. Participants: purposeful sampling was used. Eight men were interviewed two to six months after experiencing childbirth. Participants were men who had become fat...
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Objective: The aim of the study was to identify and describe the experiences of healthcare professionals when meeting women with symptoms that might indicate endometriosis. Methods: Semi-structured interviews were conducted with 10 gynecologists, six general practitioners and nine midwives working at one university hospital, one central hospital...
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Purpose The purpose of this study was to test the reliability of the Swedish version of the Oxaliplatin-Associated Neurotoxicity Questionnaire (OANQ) administrated throughout a self-reported mobile phone-based system, a pilot study. Methods Twenty-three patients from two university hospitals and two regional hospitals who had been treated with oxal...
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An ongoing process in qualitative research aims at contributing to a deeper understanding of human experiences and behaviour, and the behavioural world of applied practice. This process also aims to improve the usefulness of the findings by giving evidence for practical action. Interpretive description, an alternative to the conventional qualitativ...
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The purpose of the study was to identify the role of the Parkinson's disease specialist nurse in providing support both for people with Parkinson's disease (PD) and their spouses. PD is a neurodegenerative disease with symptoms that affect many aspects of daily life. In Sweden, specialised nurses called Parkinson's disease specialist nurses (PD spe...
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Purpose: There has been a great deal of qualitative research conducted that has examined the impact of breast cancer on the concept of Quality of Life (QoL); however, there has been little effort to analyse the psycho-social components of QoL findings from a meta-perspective. Method: Computer searches in electronic databases, search date from 2000...
Article
In nursing today, it remains unclear what constitutes a good foundation for qualitative scientific inquiry. There is a tendency to define qualitative research as a form of inductive inquiry; deductive practice is seldom discussed, and when it is, this usually occurs in the context of data analysis. We will look at how the terms ‘induction’ and ‘ded...
Article
Objective: It seems that traditional gender norms influence young women's and men's sexuality differently. However, little attention has been paid to ideal images of sexual situations. This study identifies young heterosexual men's ideal images of sexual situations and their expectations of themselves in sexual situations. Study design: The pres...
Article
Aims and objectivesTo identify and describe the lived experience of persons living with faecal incontinence and show how it affects daily life.Background Faecal incontinence is a relatively common condition, with a prevalence ranging from 3–24%, not differing between men and women. There is an under-reporting due to patients’ reluctance to talk abo...
Article
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Patients with colorectal cancer (CRC) can have chemotherapy with oxaliplatin postoperatively. Oxaliplatin can cause acute and chronic neurotoxicity. It is important to be aware of neurotoxic side effects so they can be documented and action taken at an early stage. The study aimed to identify and explore neurotoxic side effects documented in the me...
Article
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Patients with colorectal cancer (CRC) can have chemotherapy with oxaliplatin postoperatively. Oxaliplatin can cause acute and chronic neurotoxicity. It is important to be aware of neurotoxic side effects so they can be documented and action taken at an early stage. The study aimed to identify and explore neurotoxic side effects documented in the me...
Article
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The aim of this study is to demonstrate how parents of children who are victims of sexual assault experience the legal process from the children's and parents' perspective. Nine parents, identified in the records of three public prosecution offices in three cities in Sweden, were interviewed. The parents described feelings of shame and guilt over w...
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Background: Understanding life transitions is important to help people to achieve their develop-mental needs. No studies have examined the patterns of responses to life transitions, eliciting the experiences of growing old of retired Brazilian older adults. Aim: To identify and describe the pat-terns of responses to life transitions of retired Braz...
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Diabetes (DM) requires self-care that is demanding and may cause stress. Social support can buffer effects of stress. No previous study has been found comparing perceptions of foreign-born persons with DM, concerning the content of and need for social support with a population of origin. The aim was to compare the meaning of support and its impact...
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Early detection and improvements in treatment have increased survival after colorectal cancer (CRC), but studies investigating the multidimensional nature of treatment-related symptoms are rare. The aim of this study was therefore to describe the prevalence, frequency, and severity of symptoms and the distress they cause during the early treatment...
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Continued refinement of resources for patient information, education and support is needed. Considering the rapid development of new communication practices, the perspectives of young people themselves warrant more attention using a wide research focus. The purpose of this study was to understand information-seeking behaviours, Internet use and soc...
Article
This study explored gynecological patient perceptions of previous pelvic examinations (PE), a learning session about PE prior to a scheduled PE consultation, and the impact of the learning session on the PE during the consultation. Twelve informants were purposefully sampled from women with scheduled gynecologist appointments at a Swedish Universit...
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Background: Continued refinement of resources for patient information, education and support is needed. Considering the rapid development of new communication practices, the perspectives of young people themselves warrant more attention using a wide research focus. The purpose of this study was to understand information-seeking behaviours, Internet...
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Background Due to the armed conflicts in the Balkans in the 1990s many families escaped to other countries. The main goal of this study was to explore in more detail the complexity of various family members’ experiences and perceptions from their life before the war, during the war and the escape, and during their new life in Sweden. There is insuf...
Article
Objective: To apply and test the concept of childbirth self-efficacy to expectations of the upcoming birth in the context of severe fear of childbirth (SFOC). Design: Qualitative study using semistructured interviews. Setting: A region in the southeast of Sweden. Participants: Nulliparous pregnant women (N = 17) with SFOC. Method: The inte...
Article
To identify and describe patients' experiences of a preoperative information session with a nurse, as part of the enhanced recovery after surgery (ERAS) concept, and its impact on patient participation in their own care. Enhanced recovery after surgery is a standardised, multimodal treatment programme for elective colorectal surgery, leading to fas...
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Purpose: The aim of this study was to explore primary healthcare (PHC) professionals' experiences of the sick leave process. Methods: This is an explorative study using data from four semi-structured focus group discussions with a purposeful sample of PHC professionals in Östergötland County, Sweden. Content analysis with an inductive approach w...
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Prostate cancer and its outcomes are a real threat for health and well-being for men living in the Western world. The number of men with a diagnosis of prostate cancer, before the age of 65 years, has increased in recent decades. The aim of this study was to explore how some of these Swedish men experienced and talked about their sexuality. Four fo...
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Little is known about the views of young patients themselves on interactive Web portal services provided by pediatric practitioners. We aimed to explore their perceptions of a real-world diabetes portal that offers facts and contact with peers and practitioners; e.g., discussion forums, blog tools, self-care and treatment information, research upda...
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Health care professionals' attitudes can be a significant factor in their acceptance and efficient use of information technology, so they need to have more knowledge about this resource to enhance their participation. We explored practitioners' perceptions of using an open-access interactive Web portal tailored to young diabetes type 1 patients and...
Article
To gain a deeper understanding of how undergraduate male medical students experience a pelvic examination learning concept and performing the first pelvic examination (PE) on a professional patient. A qualitative study. In-depth interviews with 12 male medical students' after their involvement in a learning session about the PE, with professional p...
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Concept analysis of temporality. To develop a comprehensive definition of temporality applicable to nursing care. Published literature. Temporality is a central component of our experience of the world. Phenomena such as the passage of time, time cycles, the trajectory of aging, transitions toward something, something being, and life as a limited t...
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Background : Colorectal cancer is one of the most common types of tumour in the world. Treatment side effects, together with the tumour symptoms, can result in a ‘symptom burden’. To understand the patient’s burden during chemotherapy treatment and plan effective symptom relief there is a need for more knowledge about the experience of symptoms fro...
Article
The aim of this study was to identify young women's ideal images of sexual situations and expectations on themselves in sexual situations. We conducted audio-taped qualitative individual interviews with 14 women aged 14 to 20 years, visiting two youth centers in Sweden. Data were analysed with constant comparative analysis, the basis of grounded th...
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In this study we explored how men diagnosed with prostate cancer experienced their sexuality from a lifeworld perspective. One essential meaning was identified: “having the elixir of life stolen.” This essential meaning had four constituents: “something that no longer exists,” “the threat to manhood,” “intimacy,” and “staged manhood.” The lifeworld...
Article
Purpose: To identify symptoms/distress among patients with colorectal cancer undergoing chemotherapy, from the viewpoint of the next of kin, and to establish whether there are any barriers to reporting these problems. Methods: Individual face-to-face interviews with fourteen next of kin were conducted. Qualitative content analysis was used to an...
Article
To better understand the approach of caring in nursing and the role of theory in practice, we wanted to consolidate the caring theory of Watson with the empirical findings from the three studies performed to reveal nurses' caring intentions and their lived experience of reflecting caring theory in practice. Through a simultaneous concept analysis o...
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We hereby confirm that all three contributing authors approve of this manuscript. All three authors have performed active contribution to the conception, analysis, and interpretation of the manuscript. All three authors have taken a final approval of the submitted manuscript. PROBLEM. To better understand the approach of caring in nursing and the r...
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In earlier studies we have shown that abuse in health care (AHC) is commonly reported among both male and female patients. In this study, we present an evaluation of an intervention against AHC based on Forum Play. The evaluation was conducted by means of pre- and postintervention interviews with the staff at a woman's clinic. The interviews were a...
Article
To identify factors which improve glycaemic control measured as HbA(1c) in children and adolescents with diabetes treated at paediatric departments. Through data from the Swedish paediatric diabetes quality registry, SWEDIABKIDS, five centres respectively with the lowest, highest, and largest decrease in centre mean HbA(1c) (Low, High, Decrease HbA...
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The purpose of this study was, using secondary analysis on data collected from previous empirical studies, to focus on improving the quality of life due to the new possibilities for living after a cancer diagnosis. No matter how long or short the life will be, quality of life in palliative care is about "living in the best way" until death. The dat...
Chapter
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Purpose:The concepts of health and sexuality are complex and the discussion of how to clarify them seems to be ongoing. This continuing work is essential also according to the joined concept sexual health as it is central in national and international public health programs. Hence, the aim of this paper was to clarify the concept of sexual health b...
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The purpose of the present study was to interview prosecutors, based on their experiences working with children who have been sexually abused. The informants were seven prosecutors identified from the records of three public prosecution offices in three cities in Sweden. The informants' experiences were elicited via individual in-depth semi-structu...
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The aim of the study was to identify nurses’ ethical values, which become apparent through their behaviour in the interactions with older patients in caring encounters at a geriatric clinic. Descriptions of ethics in a caring practice are a problem since they are vague compared with the four principles of autonomy, beneficence, non-maleficence, and...
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Caring theories are the description and conceptualization of the care that is given in caring practise by nurses and other professional caregivers with the aim of verbalizing and communicating caring phenomena. Intermittently, a theory –practice gap is given expression- that theory does not go along with clinical practice in caring. The aim of this...
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The aim of this study was to synthesize the concepts from empirical studies and analyze, compare and interrelate them with normative ethics. The International Council of Nurses (ICN) and the Health and Medical Service Act are normative ethics. Five concepts were used in the analysis; three from the grounded theory studies and two from the theoretic...
Article
Background: Sense of coherence is a theoretical construct which is used to measure the degree to which a person finds the world comprehensible, manageable and meaningful. Aim: The main aim of the present study was to assess the hypothesis of Antonovsky that meaningfulness is the most crucial component in sense of coherence. The second aim was to ex...
Article
The aim of this study was to assess changes in the sense of coherence of patients who had suffered their first myocardial infarction. Out of 100 patients at the start of the study, these changes were evaluated in 66 men and 18 women aged 36-70 years. Generally, the sense of coherence was found to be stable among the whole group, but there were sign...
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The purpose of this study was to identify and describe the experiences of quality of life/life situation among those who were next of kin to persons with inoperable lung cancer. Data were collected in qualitative interviews, where 11 next of kin articulated their lived experiences, and were interpreted through interpretive phenomenology. Four theme...
Article
KLAESON K., SANDELL K. & BERTERÖ C.M. (2011) European Journal of Cancer Care20, 728–737 To feel like an outsider: focus group discussions regarding the influence on sexuality caused by breast cancer treatment The aftermath of breast cancer treatment, especially the sexual side effects, appears to be a neglected issue in developed society. The purpo...
Article
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The aim of this study was to identify and describe young women's experiences of pelvic examination (PE). Qualitative interviews were conducted with nine women aged 18-23 years, who had undergone at least one PE. Data were analysed using an interpretative phenomenological approach. Three general themes were identified: (1) relinquishing and regainin...
Article
The aim of the present study was to identify core components in the care of immigrants with psychosis in Sweden. Experts (n=43) from different perspectives (immigrants, families, and health-care staff) were assembled and used to score the importance of statements regarding components in the care for a person with psychosis in three questionnaire ro...

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