Boris Zernikow

Boris Zernikow
Universität Witten/Herdecke · Department of Children's Pain Therapy and Paediatric Palliative Care, Faculty of Health, School of Medicine

Professor

About

511
Publications
30,257
Reads
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5,909
Citations
Citations since 2016
160 Research Items
3591 Citations
20162017201820192020202120220100200300400500600
20162017201820192020202120220100200300400500600
20162017201820192020202120220100200300400500600
20162017201820192020202120220100200300400500600
Introduction
Working at the German Paediatric Pain Center I am interested in intensive interdisciplinay pain treatment. As head of the Paediatric Palliative Care Centre my research interests are complex interventions to reduce suffering in children with life-limiting mainly non-cancer conditions.
Additional affiliations
January 2008 - present
Witten/Herdecke University, Faculty of Health, School of Medicine
Position
  • Chair
Description
  • Chair for Children's Pain Therapy and Paediatric Palliative Care; responsible for research and education
January 2002 - present
Children's Hospital Datteln, Witten/Herdecke University
Position
  • Medical Doctor
Description
  • Director of the Department; 37 beds for pediatric pain and palliative care; outreach PPC team; outpatient pediatric pain department; 500 inpatients and 1500 outpatients/year; age range 0-25 years;

Publications

Publications (511)
Article
Full-text available
In children with life-limiting conditions and severe neurological impairment receiving pediatric palliative care (PPC), the degree to which actigraphy generates meaningful sleep data is uncertain. Benchmarked against the gold standard polysomnography (PSG), the applicability of actigraphy in this complex population was to be assessed. An actigraph...
Article
Full-text available
Background For children with life-limiting conditions home care is a key component of pediatric palliative care. However, poor information is available on service coverage and in particular on country-specific pediatric palliative home care characteristics. The aim of the study was therefore to describe the association between pediatric palliative...
Article
Full-text available
Pediatric palliative care (PPC) patients with a severe neurologic impairment (SNI) suffer considerable morbidity and increased mortality from lower respiratory tract infections (LRTIs). The indication and choice of antibiotic therapy for bacterial LRTIs are often challenging given the lack of evidence-based treatment recommendations for this vulner...
Article
Background: For pediatric chronic pain patients, intensive interdisciplinary pain treatment (IIPT) is a well-established treatment. The treatment's short-term effectiveness can be improved by an additive psychosocial aftercare (PAC). However, neither the program's long-term effectiveness nor the patients in particular need have been investigated y...
Article
Full-text available
"What is the big deal about back pain in children and adolescents? Doesn't it just go away if you give it time and rest?" [...].
Article
Full-text available
Aim: Multidrug-resistant organisms (MDRO) deserve special attention in health-care facilities for children with life-limiting conditions because these children have an increased risk for colonisation. To avoid nosocomial transmissions to other inpatients, single-room isolation is usually recommended. In the context of paediatric palliative care (P...
Article
Background In pediatric palliative care, irritability of unknown origin (IUO) in children with severe neurological impairment is a peculiarly complex and challenging symptom, yet its etiology remains poorly understood. Measures A structured IUO diagnostic and therapeutic approach developed in a specialized inpatient pediatric palliative care facil...
Article
Full-text available
Fourteen months after the implantation of a ventriculoperitoneal shunt catheter, a six-year-old boy developed recurrent, severe headaches and vomiting every three weeks. The attacks were of such severity that hospitalizations for analgesic and antiemetic therapies and intravenous rehydration and electrolyte substitution were repeatedly required. Th...
Article
Full-text available
Background: Paediatric palliative care (PPC) is a noncurative approach to the care of children and adolescents with life-limiting and life-threatening illnesses. Electronic medical records (EMRs) play an important role in documenting such complex processes. Despite their benefits, they can introduce unintended consequences if future users are not...
Article
Chronic non-cancer pain in children and adolescents can be impairing and results in substantial health care costs. Intensive Interdisciplinary Pain Treatment (IIPT), an inpatient or day hospital treatment delivered by a team of three or more health professionals, may be an effective intervention for these children and adolescents. Based on previous...
Article
Full-text available
Using a structured approach and expert consensus, we developed an evidence-based guideline on the treatment and prevention of non-specific back pain in children and adolescents. A comprehensive and systematic literature search identified relevant guidelines and studies. Based on the findings of this literature search, recommendations on treatment a...
Article
Full-text available
A newly developed specialized psychosocial aftercare program (PAC) for pediatric patients with chronic pain following an intensive interdisciplinary pain treatment (IIPT) was found to be significantly more effective than IIPT alone. This qualitative study aimed to gain further insight into the mechanisms and prerequisites for the effectiveness of t...
Article
Full-text available
Using a structured approach and expert consensus, we developed an evidence-based guideline on the diagnosis of back pain and the treatment of non-specific back pain in children and adolescents. The first part comprises etiology, risk factors, and diagnosis. The second part, published in the same issue, includes treatment and prevention. A comprehen...
Article
Background: Young adults find themselves in an unstable phase of life with relationship breaks, falling structures and great challenges in life. Chronic pain makes it difficult to cope with this stage of life due to functional, emotional and social limitations. For this age group there are hardly any target group-specific treatment programs. Obje...
Article
Full-text available
Background: Electronic medical records (EMRs) play a key role in improving documen- tation and quality of care in paediatric palliative care (PPC). Inadequate EMR design can cause incorrect prescription and administration of medications. Due to the fact of complex diseases and the resulting high level of medical complexity, patients in PPC are vuln...
Article
Full-text available
Pediatric palliative care (PPC) patients require years of care across professions and sectors. Sharing treatment-related information and communicating among different PPC professionals is critical to ensure good quality of care. In Germany, this communication is mostly paper-based and prone to errors. Therefore, an electronic cross-facility health...
Chapter
Unser klinisches Handeln basiert vor allem auf zwei Aspekten; erstens auf theoretischem Wissen über Erkrankungen und Therapien und zweitens auf erfahrungsbasiertem Wissen, das wir im Wesentlichen durch praktische Erfahrung im Berufsalltag erwerben. Erfahrungsbasiertes Wissen folgt keiner stringenten Systematik, sondern wird vielmehr durch unterschi...
Chapter
Die palliative Versorgung von schwerkranken und sterbenden Menschen erlebt in Deutschland seit fast drei Jahrzehnten eine große Entwicklung. Indikatoren dafür sind die stetig wachsende Anzahl von Palliativstationen, Hospizen und SAPV-Teams im Erwachsenen- und Kinderbereich. Mit dieser dynamischen Entwicklung steigt auch der Bedarf an adäquater Bild...
Chapter
Familien mit lebenslimitiert erkrankten Kindern stehen vor mannigfaltigen Herausforderungen. Neben der ständigen Sorge um ihr krankes Kind müssen sie sich mit Veränderungen in ihrem sozialen und privaten Umfeld auseinandersetzen. Das Kapitel beleuchtet die Situation der Familie insgesamt sowie jeweils von Eltern und Geschwistern im Einzelnen. Eine...
Chapter
Pädiatrische Palliativversorgung ist eine aktive und umfassende Versorgung, die physische, emotionale, soziale und spirituelle Bausteine miteinander verbindet. Der Schwerpunkt liegt auf der höchstmöglichen Lebensqualität für das Kind und auf einer umfassenden Unterstützung der Familie. Zur Versorgung gehört die Therapie belastender Symptome, das Vo...
Chapter
Das Spektrum an lebenslimitierenden Erkrankungen im Kindesalter ist sehr breit gefächert. Es reicht von seltenen genetischen Erkrankungen, angeborenen/erworbenen Anomalien und (Mehrfach-) Behinderungen über neurologische Symptomenkomplexe bis hin zu Krebserkrankungen. Genauso weit sind auch das Altersspektrum pädiatrischer Palliativpatienten und so...
Chapter
Lange Zeit waren die Theorien über Todeskonzepte bei gesunden Kindern und Jugendlichen durch die – aus heutiger Zeit – unzureichenden Erkenntnisse Freuds und Piagets geprägt, die beide beschrieben, dass jüngere Kinder kein Todeskonzept verinnerlicht haben. Mittler weile gibt es gesicherte Kenntnisse darüber, dass Kinder und Jugendliche altersgemäße...
Article
Full-text available
Outcome measurement in pediatric palliative care (PPC) is receiving increasing attention. The FACETS-OF-PPC, a multidimensional outcome measure for children with severe neurological impairment, has been developed and partly validated. This study aimed to conclude the validity of the German version of the FACETS-OF-PPC. A multicenter prospective stu...
Presentation
Hintergrund: Aktuell existiert keine EPA für die SAPPV, welche den Besonderheiten des Settings umfänglich gerecht wird. In der partizipativen Softwareentwicklung besteht die Herausforderung, die individuellen Bedürfnisse und Bedarfe von Nutzer*innen in technische Anforderungen zu übersetzen. Ein verbreitetes Konzept in agilen Softwareprojekten ist...
Article
Full-text available
Importance Severe chronic pediatric pain causes individual suffering and significantly affects social functioning and psychological well-being. For children with high pain severity, intensive interdisciplinary pain treatment (IIPT) is a well-established treatment. However, across specialized centers, it is not sufficient for all patients. Objectiv...
Article
Full-text available
Background: Pediatric palliative care (PPC) patients experience years of multisectoral and professional care. An electronic cross-facility health record (ECHR) system can support the immediate exchange of information among PPC professionals. Based on a needs assessment, a prototype ECHR system was developed. Methods: To evaluate potential users’ pe...
Article
Full-text available
Cerebral palsy (CP) represents the most common motor impairment in childhood. The presence of sleep problems has not yet been investigated with an instrument specifically designed for this population. In this hospital-based, prospective study, N = 100 children (M = 7.9, range: 2–18 years) with CP were included. All patients underwent pediatric neur...
Article
Purpose The current longitudinal observational study aimed to explore how chronic pain among schoolchildren changed before and during the COVID-19 pandemic, and how changes in chronic pain were related to changes in psychological wellbeing and COVID-19-related experiences. Methods Data were collected from N = 777 German schoolchildren (aged 9–17 y...
Article
Pediatric palliative care (PPC) is different from palliative care (PC) for adults. However, conceptualizing PPC remains cumbersome due to the high heterogeneity of often rare diseases, the high diversity of disease trajectories, and the particular difficulty to predict the future of an individual, severely ill child. This article aims to provide an...
Article
Full-text available
Electronic medical records (EMRs) offer a promising approach to mapping and documenting the complex information gathered in paediatric palliative care (PPC). However, if they are not well developed, poorly implemented EMRs have unintended consequences that may cause harm to patients. One approach to preventing such harm is the involvement of users...
Article
Full-text available
Background: Pediatric palliative care (PPC) is characterized by years of multisectoral and multi-professional care. Sharing information between PPC professionals is, therefore, essential for quality care. The evidence shows that electronic cross-facility health records (ECHRs) provide useful support in this context. To our knowledge, no ECHRs have...
Article
Full-text available
Objective Chronic pain in children and adolescents gives rise to high health care costs. Successful treatment is supposed to reduce the economic burden. The objective of this study was to determine the changes in health care utilization and expenditures from one year before (Pre) intensive interdisciplinary pain treatment (IIPT) to the first (Post...
Preprint
BACKGROUND Pediatric palliative care (PPC) is characterized by years of multisectoral and multiprofessional care. The exchange of information through effective communication between various PPC professionals is essential for high-quality care. Evidence shows that electronic cross-facility health records (ECHRs) provide useful support in this contex...
Article
Full-text available
Much of the adult chronic pain literature addresses pain in typical pain cohorts of middle-aged to older individuals. To date, little research has focused on chronic pain in younger adults, who likely have a completely different pain experience. This scoping review aimed to address this gap by describing the emerging adult (18–29 years) chronic pai...
Article
Full-text available
Background: Currently, to the best of our knowledge, no findings exist concerning the needs of professionals in specialized pediatric palliative care (PPC) regarding electronic health records (EHRs). Several studies have highlighted benefits concerning the use of EHRs in pediatrics. However, usability is strongly affected by the degree of adaptivi...
Article
Full-text available
Pediatric chronic headache causes significant impairment to those affected and bears the risk of aggravation into adulthood. Intensive interdisciplinary pain treatment (IIPT) was found to positively affect pain-related and emotional outcomes in pediatric patients with chronic pain up to 4 years after treatment. This study was aimed at investigating...
Article
Full-text available
Background Findings on the short‐ and long‐term effectiveness of intensive interdisciplinary pain treatment (IIPT) for children with severe chronic functional pain are promising. However, a definitive appraisal of long‐term effectiveness cannot be made due to a lack of comparison groups. The aim of the present study was to compare the health status...
Article
Full-text available
Paroxysmal Hemicrania is a rare form of primary headache in children and adolescents, belonging to the group of trigeminal autonomic cephalalgias. Patients suffer from severe, short-lasting unilateral headaches accompanied by symptoms of the autonomic system on the same side of the head. The short duration of attacks distinguishes Paroxysmal Hemicr...
Article
Full-text available
Background Children with life-limiting conditions have a high risk of colonisation with a multidrug-resistant organism (MDRO). To avoid the spread of hospital-aquired infections to other patients, children with a MDRO are moved to an isolated room or ward. However, such isolation prevents social participation, which may reduce the child's quality o...
Article
Full-text available
Currently, no concrete figures on sleep disorders and sleep characteristics in children and adolescents with life-limiting conditions (LLC) and severe neurological impairment (SNI) based on pediatric palliative care professionals’ assessment and following an official classification system such as the International Classification of Sleep Disorders...
Book
Palliativversorgung von Kindern, Jugendlichen und jungen Erwachsenen fängt bei grundlegenden Aspekten der Organisation, der Konzepte, ethischen und rechtlichen Fragen an. Die 3. Auflage legt den Fokus auf diese Grundlagen und widmet sich ausführlich den Fragen jenseits von konkreter Schmerztherapie und Symptomkontrolle, die in einem zweiten Buch vo...
Article
Full-text available
Pediatric Palliative Care (PPC) addresses children, adolescents, and young adults with a broad spectrum of underlying diseases. A substantial proportion of these patients have irreversible conditions accompanied by Severe Neurological Impairment (SNI). For the treatment of pain and dyspnea, strong opioids are widely used in PPC. Nonetheless, there...
Article
Full-text available
Background Comprehensive outcome measurement in pediatric palliative care focusing on the entire unit of care, that is, the affected child and its family, is crucial to depict treatment effects. Despite its increasing relevance, no appropriate multidimensional outcome measures exist for the largest patient group in this field, namely children with...
Article
Full-text available
Zusammenfassung Hintergrund und Ziel der Arbeit Bei der Behandlung chronischer funktioneller Schmerzen im Kindes- und Jugendalter nimmt international sowohl die Anzahl an diagnostischen und therapeutischen Maßnahmen als auch ihre Invasivität zu. Studienziel ist die Erforschung der vor Beginn einer spezialisierten stationären Schmerztherapie durchg...
Article
Background: Multidrug-resistant organisms (MDROs) are an important health care issue. Patients in Western societies often present an increased morbidity of chronic conditions accompanied by poor immune status and the use of devices. In particular, patients in palliative care (PC) are at greater risk of MDRO colonization, due to accompanying special...
Presentation
Das Einbeziehen von Nutzer*innen in die Softwareentwicklung mittels Co-Design ermöglicht individuelle kreative Lösungen, die an die Bedürfnisse der Nutzer*innen angepasst sind [1]. Im Rahmen der Entwicklung einer elektronischen Patient*innenakte (EPA) in der stationären pädiatrischen Palliativversorgung wurde daher Co-Design als methodisches Vorgeh...
Poster
Lebenslimitiert erkrankte Kinder und Jugendliche benötigen oft jahrelange pädiatrische Palliativversorgung (PPV), die durch häufige Sektorenwechsel gekennzeichnet ist. Bislang erfolgt die interprofessionelle, sektorenübergreifende Kommunikation zumeist analog und ist dadurch verzögert und fehleranfällig. Durch die Anwendung elektronischer Patient*i...
Article
Full-text available
To date, there are no specific figures on the language-related characteristics of families receiving pediatric palliative care. This study aims to gain insights into the languages spoken by parents, their local language skills and the consistency of professional assessments on these aspects. Using an adapted version of the “Common European Framewor...
Article
In Reply I greatly appreciate the comments from Gelfand and Goadsby. For many years they have striven to lessen the pain of children with chronic headaches. Their letter in response to my Editorial¹ on the excellent article from Locher et al² provides me with the opportunity to differentiate my biopsycho-social perspective on migraine.
Conference Paper
Fragestellung Welche Anforderungen haben Nutzer*innen an eine EPA in der PP? Studiendesign Qualitative Fokusgruppeninterviews als Grundlage für Co-Design1 Methodik Es wurden zwei Fokusgruppeninterviews (FG) mit je fünf bzw. vier Pflegenden einer Kinderpalliativstation geführt. Die FG wurden digital aufgezeichnet, transkribiert und inhaltsanaly...
Article
Full-text available
The Pain Stages of Change Questionnaire (PSOCQ) measures patients’ willingness to engage in active self-management of their pain. The present study aimed to create validated German short versions of the PSOCQ for adolescents (PSOCQ-A) and their parents (PSOCQ-P). Additionally, an investigation of stages of change regarding pain characteristics and...
Article
Full-text available
Aim: Nosocomial infections (NIs) and multidrug resistant (MDR) pathogens are an important paediatric healthcare issue. In vulnerable patients such as children with life-limiting conditions, MDR infections can be life-threatening. Additionally, these children have a significantly increased risk for colonisation with MDR pathogens. Therefore, it is v...
Article
Full-text available
Living with bandages: a mixed-methods-study on the view of families of children with epidermolysis bullosa Abstract.Background: Children with epidermolysis bullosa (EB) often need new bandages regularly due to sore skin and blistering. Aim: The question about the experiences of parents and children affected by EB with dressing materials is intended...
Article
Pediatric primary headache is one of the leading health care issues in high-income countries that is rising in prevalence.¹ Frequent headaches are strongly associated with a lower quality of life and poorer academic performance and are a leading cause of school absence.² The classification system of the International Headache Society provides a nav...
Article
Background Chronic pain is a frequent and disabling health problem in children and adolescents and is associated with high health care utilization and costs.Objective The aim of this study was to analyze the direct and indirect costs of chronic pain in children and adolescents in monetary terms before and after multimodal pain therapy from a societ...
Article
Background Epidermolysis bullosa (EB) is a rare genetic disease that soon becomes apparent after a child’s birth. Mechanical stress in particular causes painful skin-blistering that potentially leads to numerous complications. Dressing materials fulfill important functions for children with EB: they help protect the skin, but create problems at the...
Article
Background: Chronic pain is a common issue in adolescents. Prevalence of pain and associated factors present differently in sex and age subgroups, however, the interaction of sex and age combined has not been thoroughly assessed. This study aimed to identify psychosocial and health factors associated with chronic pain in younger and older adolesce...
Article
Background The interest in outcome measurement in pediatric palliative care is rising. To date, the majority of studies investigating relevant outcomes of pediatric palliative care focus on children with cancer. Insight is lacking, however, about relevant outcome domains for children with severe neurological impairment and their families. Aim Th...
Article
Background: Multidrug resistant pathogens are a large-scale healthcare issue. In particular, children with life-limiting conditions have a significantly increased risk of multidrug resistant pathogen colonization. Official hygiene requirements recommend children, who are colonized with multidrug resistant pathogens, to be isolated. In the context o...
Article
Full-text available
Background Multidrug resistant pathogens are a large-scale healthcare issue. In particular, children with life-limiting conditions have a significantly increased risk of multidrug resistant pathogen colonization. Official hygiene requirements recommend children, who are colonized with multidrug resistant pathogens, to be isolated. In the context of...
Article
Full-text available
Introduction@ this protocol describes the objective and methods of a systematic review of the association between quantitative sensory testing (QST) measures and pain intensity or disability in paediatric chronic pain (PCP). The review will also assess whether the relationship strength is moderated by variables related to the QST method and pain co...
Article
Background Emerging adulthood between the ages of 18 and 25 are vulnerable years that offer many opportunities and simultaneously represent huge challenges for autonomy and identity development. Chronic pain in this vulnerable stage of life is associated with long-term negative consequences. So far, knowledge regarding the effectiveness of treatmen...