Aurélie Godard-Marceau

Centre Hospitalier Régional et Universitaire de Besançon | CHRU de Besançon · CIC

Objectives Whilst euthanasia and assisted suicide are forbidden by French Law, patients at the end of their life, hospitalized in Palliative Care Units (PCU) sometimes express such requests. The “DESA study” focused on the expression of patients’ requests for euthanasia and assisted suicide, i.e. how patients worded their wishes. The aim is to iden...

Résumé Les pharmaciens d’officine sont à la fois des experts du médicament et des professionnels de santé de proximité. Ces caractéristiques en font des ressources potentiellement clés dans l’organisation des soins palliatifs à domicile. Toutefois, leur rôle auprès des patients en fin de vie, de leur entourage ou des autres professionnels de santé...

Résumé Objectifs Des demandes d’euthanasie ou de suicide assisté sont parfois exprimées par des patients en fin de vie. Notre recherche avait pour objectif d’analyser l’évolution de ces demandes. Patients, matériels et méthodes Cette étude de cohorte prospective, d’une durée d’un an, menée auprès des professionnels de santé salariés et libéraux d...

Introduction Assessment of decision-making capacity (DMC) is essential in daily life as well as for defining a person-centred care plan. Nevertheless, in ageing, especially if signs of dementia appear, it becomes difficult to assess decision-making ability and raises ethical questions. Currently, the assessment of DMC is based on the clinician’s ev...

Certaines hospitalisations de personnes âgées sont qualifiées de « non pertinentes » parce qu’elles y reçoivent une prise en charge médicale, paramédicale et sociale qui pourrait être rendue à domicile ou dans des structures plus efficientes et mieux adaptées à leurs besoins ou à leurs situations. L’étude PAGE a pour objectif de comprendre les rais...

Background Shared decision-making is a process that involves collaborative discussions between a patient and a care team to ensure informed healthcare decisions. This process becomes more complex when the older person’s decision-making capacities are affected. In these situations, surrogate decision-making processes are used to define a person-cent...

Objectives. Many types of conditional cash transfer (CCTs) programs have been developed and their effects demonstrated, including programs to improve prenatal care, but ethical critiques have included paternalism and lack of informed choice. These criticisms were levelled at the French NAITRE randomized clinical trial, which is assessing a CCT prog...

Résumé Introduction La transfusion de concentrés plaquettaires en fin de vie en onco-hématologie ne fait pas l’objet de recommandations et dépend des représentations partagées par les patients, les infirmiers et les hématologues. L’objectif de cette étude est de décrire ces représentations de la transfusion plaquettaire dans un contexte d’hémopath...

Background: Economic incentives have been used in several countries to improve pregnancy follow-up, to encourage families to bring their infants to see a doctor, and to promote school attendance. However, these conditional cash transfer programs (CCTs) are often subject to criticism. The NAITRE study, which is currently underway in France, assesses...

Résumé Les composantes sociales sont au cœur des études qualitatives en médecine palliative. Malgré l’usage fréquent du terme de « représentation(s) », un faible nombre d’études font appel à la théorie des représentations sociales. Pourtant, l’analyse de la structure proposée par cette théorie pourrait venir enrichir les données des études de conte...

Résumé L’article a pour objectif de porter un regard critique sur la suspension de peine médicale souvent considérée comme une loi « humaniste ». À partir d’une recherche menée sur l’expérience des personnes détenues en fin de vie, il ressort que de nombreux critères plus ou moins objectifs, interviennent dans la prise de décision de la sortie de p...

Exome sequencing (ES) has revolutionized diagnostic procedures in medical genetics, particularly for developmental diseases. The variety and complexity of the information produced has raised issues regarding its use in a clinical setting. Of particular interest are patients’ expectations regarding the information disclosed, the accompaniment provid...

The data used in this chapter were gathered during a series of interdisciplinary surveys performed in Guinea-Conakry between 2003 and 2005. The population of this region is multi-ethnic with a deep-rooted history that has modelled the relations existing between the groups, each of which is a distinct model: Peul, Nalu, Diakhanke. For instance, wher...

The data used in this chapter were gathered during a series of interdisciplinary surveys performed in Guinea-Conakry between 2003 and 2005 on a purposive sample of eight villages of the sub-Prefectures of Mankountan and Kanfarandé (Petit V (ed): Rapport du séminaire de présentation des résultats préliminaires de l’enquête Population, pauvreté, envi...

The French Law of 4 March 2002 permits seriously ill or dying inmates to obtain suspended sentences. This kind of “compassionate release” entitles French prisoners to request release if they are very ill while incarcerated. Inmates are not always able to obtain release on compassionate grounds. Most dying inmates are hospitalized in secure inpatien...

The question of withdrawing artificial nutrition and hydration from people in a permanent vegetative state sparks considerable ethical and legal debate. Therefore, understanding the elements that influence such a decision is crucial. However, exploring perceptions of artificial nutrition and hydration is methodologically challenging for several rea...

Background: Ensuring adequate end-of-life care for prisoners is a critical issue. In France, data investigating the impact of laws allowing release of seriously ill prisoners are lacking. Aim: To assess the number and characteristics of prisoners requiring palliative care in French prisons. Design: A prospective, national survey collecting dat...

Every year in France 100 inmates die in prison from illness, but their experiences with end of life (EOL) have not been investigated to date. The purpose of this article is to highlight the realities regarding inmates at the end of life, putting into perspective the viewpoints of the sick prisoners with those of the health and correctional professi...

Research questions: In France, in 2011, 125 inmates died in prison because of illness. Since 2002, the French law allows disabled inmates or inmates with terminal illness to request a suspended sentence for medical reasons. However, some requests are not granted and some inmates do not even request such a release. The PARME national study aims to d...

Background: Little is known about what is at stake at a subjective level for the oncologists and the advanced cancer patients when they face the question whether to continue, limit or stop specific therapies. We studied (1) the frequency of such questioning, and (2) subjective determinants of the decision-making process from the physicians' and th...

e19623 Background: ASCO highlighted the need to improve communication with and decision making for pts with advanced cancer. This study explores the decision-making process for pts with advanced cancer when the question to WH/WD ACT is raised, with a cross-analysis of physicians and pts points of view. Methods: Multi-center qualitative study in 5 o...