Amanda Bingley

Lancaster University | LU · Division of Health Research

The authors have used action research methods to investigate ways of helping survivors of torture and other human rights abuses benefit from creative activities as part of a holistic rehabilitation programme. This chapter aims to describe good practice guidelines for introducing survivors to a range of arts-based activities, including painting, col...

This article reflects on a funded participatory artmaking project that engaged displaced people whose traumatic experiences prior to exile in the UK necessitated referral for psychological support. Reflections are informed by action research method involving a cyclical reflexive feedback loop, augmented by intra-action and deterritorialisation. Wit...

Context: Many jurisdictions around the world have passed medical aid in dying laws allowing competent, eligible individuals facing life-limiting illness to self-administer prescribed medication to control timing of death. These laws do not prevent some patients who are receiving hospice services from dying by suicide without assistance. Objective...

Background: Laws allowing assisted suicide and euthanasia have been implemented in many locations around the world but some individuals suffering with terminal illness receiving palliative care services are hastening death or die by suicide without assistance. This systematic review aims to summarise evidence of palliative care professionals' expe...

Art of Recovery explores the potential of a participatory arts engagement with place to contribute toward the recovery and reconnection of refugees who experience trauma. The study responded to the international challenge of refugees’ mental health as a global priority as they experience higher prevalence rates of severe mental health disorders in...

Stimulating active, social interactions for people with dementia is an important and timely challenge that merits continuing attention in design research. The idea of using participatory co-design to engage people with dementia is attracting increased interest. In this paper, we draw on our qualitative study that used a playful, participatory arts...

Little is known about how children and young people are affected by evacuation following flooding. Participatory research using creative methods allowed us to elicit flood stories and recovery pathways over time. We found that children's relationships with space and place were severely challenged following evacuation from home. They suffered losses...

At the end of life, silence often takes increasing prominence in caregiving encounters. Valued in spiritual and religious traditions, silence lends itself to the spiritual and existential dimensions of healthcare but lack of familiarity with the phenomenon can lead to anxiety or avoidance. Greater understanding of the contribution of silence to car...

This article reports on a project, led jointly by Lancaster University and Save the Children UK, that used mobile, creative, and performance-based methods to understand children's experiences and perceptions of the 2013-2014 UK winter floods and to promote their voices in flood risk management. We argue that our action-based methodology situated th...

An international challenge is presented by the unprecedented number of refugees worldwide, many of whom have undergone psychological and social stresses associated with migration and who consequently experience mental health disorders. A growing number of organizations recognize the role of art in supporting refugees to support recovery from trauma...

Background At the end of life silence seems to take increasing prominence in encounters between professional caregivers, patients and their family members but its value as an element of spiritual care has been little explored. Whilst silence lends itself to spiritual and existential dimensions of care, unfamiliarity with the phenomenon can lead to...

Background: In interactions between professional caregivers, patients and family members at the end of life, silence often becomes more prevalent. Silence is acknowledged as integral to interpersonal communication and compassionate care but is also noted as a complex and ambiguous phenomenon. This review seeks interdisciplinary experience to deepe...

Following a series of recent devastating storms across England with large numbers of homes and businesses evacuated, and despite widespread consensus that further severe flooding is expected, a large section of the population continues to be excluded from developments in flood risk management. We argue that the absence of children and young people...

An increasing interest in exploring how digital innovation could support dementia care has been a leading research responding to e-health movements, from caregiving and medical perspectives. Little research has included perspectives of people with dementia; even fewer are concerned with the emotional side of the research experience per se. The aim...

Objective: Little is known about caregiver attitudes and perceptions towards snacking by toddlers and preschool children outside of the U.S. This qualitative study examined caregiver attitudes and perceptions towards the provision of both foods and beverages in-between meals, along with what constitutes a snack, or snacking occasion, amongst Swiss...

Background Young children depend upon caregivers to make healthy food and beverage choices on their behalf. Research to understand caregiver perspectives may help develop interventions to improve diets and offer new insights for healthcare professionals and future nutrition studies. The main study aim was to explore caregiver feeding experiences, w...

Objective Young children, particularly in the years before going to school, depend on caregivers to choose and prepare healthy foods and beverages on their behalf. Little is known about caregiver experiences, attitudes and perceptions about the portioning of foods and beverages for toddlers and preschool children in Switzerland. This research aims...

Much has been written on the beneficial, restorative qualities of 'natural' (non-built) rural or urban 'green' space, including woodland, in promoting mental and physical health when accessed for leisure, sport and education. In contrast, with the exception of rural health studies, there is relatively little debate about the health benefits of 'gre...

Aims: This research considered the clinical and organisational issues for integrative medicine from the multiple viewpoints of its primary stakeholders: GPs, Clinics, Patients and the CAM therapist, studying the interface between complementary and orthodox practitioners working together. Methodology: Two National Health Service (NHS) primary care c...

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In the United Kingdom, one in five of the population is an older man, many of whom live alone. Loneliness and social isolation is a growing issue for many of these older men, one that has been associated with elevated blood pressure, poor physical health, increased mortality and mental ill-health, including depression, suicide and dementia. Lone dw...

This chapter examines the resilience of palliative care providers working in resource-poor settings. Health professional working in these areas face many challenges including the negative impact of globalization, political and military conflicts, and environmental hazards. This chapter investigates the strategies and limits of individual and commun...

Narrative methods have played a minor role in research with dying patients to date, and deserve to be more widely understood. This article illustrates the utility and value of these methods through the narrative analysis of semi-structured interview data gathered in a series of interviews with two terminally ill cancer patients and their spouses. T...

Palliative care development and services were reviewed in the region represented by the six members of the Middle East Cancer Consortium: Cyprus, Egypt, Israel, Jordan, the Palestinian Authority, and Turkey. The multimethod review synthesized evidence from ethnographic field visits to inpatient units, home care hospice teams and free-standing hospi...

The phenomenon of the 'illness narrative' is well-documented, in the last 25 years, of increasing interest to researchers in health and social sciences. Personal stories about the experience of facing the end of life also have an established history of particular relevance for palliative care clinicians. In this article, we review and describe a ra...

In recent years, there has been a substantial increase in mental health problems amongst young adults in the UK, prompting the British Government to seek to identify services and preventative measures to combat the problem. At the same time, the policy agenda around woodland has shifted away from the agro-forestry agenda that dominated much of the...

The Cancer Experiences Collaborative (CECo) began in 2006 as a five year funded programme. It is a partnership between five UK universities to develop research capacity in supportive and palliative care. The narrative theme is independent and interdependent with two other themes: ‘older adults’ and ‘complex symptoms’. Narratives have much to teach...

In this contribution we discuss the advantages of using multi-sensory methodologies in our study into the long-term mental health effects of different kinds of childhood play space. Working with a small group of young people aged 16–21 years old; we used a multi-method approach including practical workshops where the young people took part in a day...

This article reviews a sample of narratives written since 1950 by people knowingly facing death as a result of cancer and other diseases, in order to compare experiences and show how these relate to wider changes in practice in end of life care. A bibliographic search of libraries, archives, journals and internet sources located English spoken lite...

Aim: A systematic review of palliative care professionals' written accounts of caring for people with cancer who are knowingly facing death; in order to provide another source of evidence on patients' needs.Methods: Systematic review methodology was utilised to locate published 'reflective narratives' (not original research) written by palliative c...

To date, solicited diaries have been relatively neglected as a social science research method. This is particularly true within the field of health research. Yet, these narrative approaches can provide invaluable insights into the health behaviours of individuals and how these are played out across time and space. To illustrate this, we draw on rec...

While gardening is seen, essentially, as a leisure activity it has also been suggested that the cultivation of a garden plot offers a simple way of harnessing the healing power of nature (The therapeutic garden, Bantam Press, London, 2000). One implication of this is that gardens and gardening activity may offer a key site of comfort and a vital op...

Early childhood experience of Self in relation to Other may profoundly influence subsequent perception and experience of landscape as an adult. Yet, these past and present spatial relationships are often held in unconscious levels of the psyche, which are difficult to articulate when approached by conventional qualitative methods. Engaging with psy...

Thesis (Ph. D.)--University of Edinburgh, 2002.