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Introduction
Dr. Bogossian is an associate professor at Université de Montréal, École de travail social. She is a licensed social worker (MSW) and completed a PhD at McGill University and a postdoctoral fellowship at the Pragmatic Health Ethics Research Unit of the Institut de recherches cliniques de Montreal. Her research focuses on the everyday ethical situations encountered by young people with chronic health conditions and disabilities, their caregivers and healthcare providers.
Current institution
Publications
Publications (40)
Plusieurs enjeux marquent le quotidien des travailleuses sociales et des travailleurs sociaux (T.S.) dans les hôpitaux du Québec ces dernières années. Parmi ceux-ci figurent la prolifération des professionnel·le·s dans les unités de soins qui complexifie la compréhension du rôle de chacun tant pour les personnes hospitalisées que pour les membres d...
Moral or ethical questions are vital because they affect our daily lives: what is the best choice we can make, the best action to take in a given situation, and ultimately, the best way to live our lives? Health ethics has contributed to moving ethics toward a more experience-based and user-oriented theoretical and methodological stance but remains...
Le partenariat parental est une préoccupation centrale dans l’intervention, et un élément-clé lorsque les parents doivent prendre en charge les soins et l’intervention auprès de leurs enfants ayant des troubles neurodéveloppementaux. C’est un processus dynamique et complexe où les facteurs contextuels interfèrent et influencent l’interaction entre...
Introduction
Transition from pediatric to adult healthcare is a multifaceted and consequential process with important health implications for youth. Although research on transition has grown significantly, research on transition for patients living with an inborn error of immunity (IEI) is scarce. We undertook a qualitative study to better understa...
Refugee fathers have been largely ignored by family researchers and service providers. This article presents an interpretive phenomenological analysis (IPA) of data from semi-structured interviews conducted between November 2020 and March 2021 with 17 Syrian refugee fathers resettled in Canada. The interviews focused on the meanings refugee men gav...
Children and adolescents are a population at particular risk of experiencing adverse mental health repercussions related to pandemics. To understand vulnerability factors and repercussions of pandemics and related sanitary measures on children and adolescents’ mental health, we performed a scoping review to examine and synthesize literature. In tot...
Devant l’urgence d’adapter et d’innover la pédagogie – en réponse à la nouvelle réalité de l’apprentissage à distance imposée à toutes les instances éducatives pendant la pandémie de COVID-19 –, les autrices de cet article, regroupant des professeures, chargées de cours, étudiantes et praticiennes affiliées à deux écoles de travail social, se sont...
Topic:
Public health measures implemented in response to the COVID-19 pandemic severely disrupted children and adolescents' (C&A) lives, affecting their sense of structure, predictability, and security.
Purpose:
To examine C&A' experiences during the COVID-19 pandemic to better understand how this context and its associated public health measure...
Background
Moral questions are vital questions because they concern what is esteemed to be the best action, the best choice and, ultimately, the best life to live. Health ethics which aims to address these moral questions has contributed to moving ethics toward more experience-based and user-oriented ethics theory and methodology. Despite this, cur...
La pandémie mondiale de COVID-19 a eu des impacts profonds et a aggravé les fragilités et inégalités existantes dans plusieurs endroits dans le monde (Dubost et al. , 2020 ; Côté et al. , 2020 ; Bozon, 2020). Ce contexte d’urgence sanitaire n’a pas pour autant fait cesser l’avènement de multiples catastrophes humaines et naturelles dont les effets...
Although parenting a child with a neurodisability (i.e., autism, cerebral palsy, or epilepsy) can be a life-altering experience, fathers have been generally underrepresented in research on parenting and their unique experiences underexplored. The aim of this study was to explore feelings, emotions and their management through a secondary analysis o...
IMPLICATIONS
Social Determinants of Health provides a conceptual framework for understanding the social causes and consequences of health and ill-health at the population level.
In childhood neurodisability, however, it is important to consider pluralistic notions of “well-being” and living a daily “life of quality” that may relate, but are not l...
Background: Being a parent of a child with a developmental disability (DD; e. g., cerebral palsy, autism) comes with great challenges and apprehensions. Mothers and fathers of children with DD are experiencing heightened levels of psychological distress, physical health problems, financial difficulties, social isolation, and struggles with respect...
Across societies, cultures, and political ideologies, autonomy is a deeply valued attribute for both flourishing individuals and communities. However, it is also the object of different visions, including among those considering autonomy a highly valued individual ability, and those emphasizing its relational nature but its sometimes-questionable v...
Participatory research can change the view of children from research subjects to active partners. As active partners, children can be recognized as agents who can contribute to different steps of the research process. However, “participatory research” is an umbrella term that covers both the collection of data with children and children’s participa...
Background
People with fetal alcohol spectrum disorder (FASD) and women who drink alcohol while pregnant can experience stigma, possibly exacerbated by stereotyped media portrayals.
Method
To understand experiences of FASD stakeholders and reactions to news coverage, we conducted twelve focus groups across three categories: (1) people with FASD; (...
Youth with neurologic conditions experience multiple life transitions. The transfer from pediatric to adult health care systems exemplifies one such complex and multifaceted transition that occurs in parallel with developmental, legal, and social changes that may influence the roles and responsibilities of youth and their caregivers. As a result, e...
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Bioethics has made a compelling case for the role of experience and empirical research in ethics. This may explain why the movement for empirical ethics has such a firm grounding in bioethics. However, the theoretical framework according to which empirical research contributes to ethics—and the specific role...
There is little research that explores how fathers protect their children in the context of political violence. Drawing upon exploratory qualitative research with 18 Palestinian families, this article proposes a model of paternal protection composed of three dimensions: (1) method of protection (how fathers protect their children), (2) focus of pro...
Introduction
As adolescents with neurodisabilities near adulthood, they and their caregivers will face the challenge of transferring from paediatric to adult healthcare systems. Despite the growing number of programmes designed to support healthcare transitions, little is known about practices that result in positive outcomes or how ethical issues...
Children with complex health care needs are an emerging population that commonly requires long-term supportive services. A growing body of evidence has highlighted that these children and their families experience significant challenges. Many of these challenges involve ethical concerns that have been under-recognized. In this article, we (a) outli...
Background: In the past thirty years, theoretical and empirical scholarship on father involvement has emerged and firmly established itself. Efforts to define, measure, and explore outcomes related to father involvement in the context of childhood neurodisability are evident but less well established. The purpose of this study was to systematically...
Introduction:
Quality of life (QoL) is an important outcome of health interventions for children and youth with cerebral palsy (CP). When planning interventions it is fundamental to understand what constitutes a good QoL, a subjective construct, and what factors are important to consider from both parents' and children's perspectives.
Methods:
W...
Social scientists have been interested in studying families of children with neurodevelopmental disorders (NDD) for decades. Theoretically, parenting occurs in a family context. Yet, little is known about this relationship from an empirical standpoint among parents of children with NDD. This project draws on studies selected from the larger Parenti...
