Agneta Bergsten Brucefors

Karolinska University Hospital | Karolinska

Aim: The CFQ-R is one of the most established disease-specific, health-related quality of life (HRQOL) measurements for patients with cystic fibrosis (CF). The aim was to evaluate the psychometric properties of the Swedish translation of CFQ-R in adults. Method: A total of 173 CF patients answered the CFQ-R. The CFQ-R was evaluated with regard t...

The aim was to examine depression and anxiety among parents of children with Cystic Fibrosis and the association between the parents’ symptoms and the child’s quality of life as rated by the parents. Parents completed HADS (Hospital Anxiety and Depression Scale), and CES-D (Center of Epidemiologic Studies Depression Scale), and assessed the childre...

The inclusion of health-related quality of life (HRQoL) as an outcome measure in cystic fibrosis (CF) clinical trials can supply important patient-reported information not captured by other endpoints. Both an appropriate HRQoL measure and sound methodology are required in order to draw valid inferences about treatments and HRQoL. This paper provide...

Scand J Caring Sci; 2011; 25; 365–372 Mental health and sense of coherence among Swedish adults with cystic fibrosis The purpose of this study was to describe mental health among adult Swedish patients with cystic fibrosis (CF) and to study if mental health and the salutogene factor sense of coherence (SOC) intercorrelate with good medical status....

To describe the attitudes among parents towards including cystic fibrosis (CF) in the newborn screening programme and towards the potential knowledge of their own carrier status. A questionnaire with three to five response categories and an information leaflet was posted to 143 CF parents, 3 matched diabetes and 3 matched population parents, the re...

Since 1988, self-reported mental health problems in Sweden have increased more among young people than in any other age group. Young adults aged 18 - 29 with minor mental health problems were welcomed to four (at most) counselling sessions led by psychotherapists. The present study aimed to evaluate the method's appropriateness and usefulness. The...

The psychometric properties of a Swedish translation of Spreitzer's (1995a) empowerment scale were assessed. Three parallel assessments were made of data from 1,107 female registered nurses, 758 female assistant nurses, and 107 male registered and assistant nurses. The analyses indicated that the psychometric properties of the scale can be consider...

Both theoretical arguments and empirical findings imply a negative relationship between psychological empowerment and ill health. The aim of the present study was to expand the empirical knowledge concerning the relationship between psychological empowerment at the workplace and three aspects of ill health.A total of 2011 registered and assistant n...

The purpose of the study was to investigate psychosocial issues concerning puberty and motherhood among CF adult females, to see how they had obtained and conceived information on these matters and how they would like information to be given. Fourteen adult CF females were interviewed. The majority of the women felt socially accepted and did not re...

In a longitudinal study, age at menarche for Swedish girls was recorded by school nurses. Some four years after the event the girls were asked to recall the date. The correlation between actual and recalled age at menarche for 339 girls was r = 0-81 +/- 0-05. 63 per cent of the girls recalled the date within +/- 3 months. It is concluded that recal...

The secular trend in physical growth of Swedish school children aged 10-17 years is shown by comparing growth data from three investigations, of 1883, 1938-39 and 1965-71. These data include height and weight as well as height and weight velocity. A proportionally larger increase in height than in weight was detected which is more pronounced for gi...

From a longitudinal sample of 202 children studied from birth to 8 years of age, two extreme groups were selected. One group had a more rapid development than normal and the other a slower development when tested with Brunét-Lézine and Terman-Merrill tests. From the first measurement occasion at the age of 3 months to the last one at the age of 8 y...