Lab

ECT Patient Safety & Rehabilitation

Featured projects (1)

Project
Create a comprehensive rehabilitation assessment and treatment plan for people with a history of electroconvulsive therapy (ECT) to improve quality of life after repeated exposure to low-voltage/high field strength electricity.

Featured research (5)

Original research discussing acquired communication disorders caused by electrical trauma which pose unique communication barriers due to their evolving symptom manifestation. As the person ages away from the initial injury, communication barriers can become more pronounced with age. This presentation provides details explaining how electrical trauma, repeated electrical trauma and lengthy exposure to other forms of non-ionizing radiation can impact speech and communication. Following both UK's National Radiological Protection Board and United States Gulf War Hearing recommendations to study electroconvulsive therapy recipients to better understand the heterogeneity of amyotrophic lateral sclerosis (ALS) and other neurodegenerative diseases. I present four different case studies: Functional NeuroCognitive Imaging results and videos of ECT recipients now living with the neurological sequela of electrical injury which impacts speech and communication. It provides insights into the potential interventions which successfully work for the presenter who lives with speech and communication disorders as a result of chronic electroconvulsive therapy. It identifies strategies to make alternative augmentative communication (AAC) less fatiguing for people who live with a history of chronic exposure to non-ionizing radiation. The presentation concludes with ideas for future research. -Non-ionizing radiation exposures and subsequent neurodegenerative diseases (Progressive supranuclear palsy and Myoneural Disorders: Amyotrophic Lateral Sclerosis, Motor Neuron Disease and Muscular Sclerosis). -Immediate and delayed consequences of Electrical Injury/Electromagnetic injury -Repetitive mild to moderate Traumatic Brain Injuries -Cognitive communication disorder -Anoxia/Hypoxia -Trigeminal, vagal and other cranial nerve dysfunction. -Electroporation -Motor Neuron Dysfunction/Motor Neuron Loss -Demyelination -Episodic Paroxysmal Neuromuscular Disorders -Acquired Channelopathies -Thiols -Aphasia -Verbal Apraxia -Dysarthria, Anarthria -Preserving residual voice -Barriers to accessing AAC -Voice Banking -AAC Recommendations The presentation is available with 1.0 CEU through "AAC in the Cloud" website (https://presenters.aacconference.com/videos/UXpVd1FUSXk=)
This presentation was given at the international "A Disorder for Everyone" annual festival, September 17, 2021. It answers the following questions: -Is all ECT the same? -Is ECT Safe? Does ECT work? -Does ECT cause permanent Brain Damage? -Does ECT cause permanent memory loss? -Does ECT cause a repetitive mild traumatic brain injury? -Does ECT cause a repetitive moderate traumatic brain injury? -Can ECT be considered an acquired brain injury? -Does ECT cause an Electrical Injury? -What are some of the potential long-term consequences of ECT? -What is low-voltage electrical injury sequalae? -What does Dr. Bennet Omalu have to say about ECT? -Can ECT damage be seen on a brain scan? -What are acquired channelopathies? -What causes ECT damage? -What is irreversible electroporation? -Where can I get additional information on support for Life after ECT? -If I have ECT for depression, schizophrenia, bipolar disorder, borderline personality disorder, autism, anxiety, chronic pain, sleep issues, schizoaffective disorder, parkinsonism, akathisia or any other diagnosis, what can I expect? -What should be included in electroconvulsive therapy's legal informed consent process? -What does the US FDA say about ECT's long term safety and efficacy? -Are medical device manufacturers required by the FDA to warn patients about anything? -How many people get Shock treatment each year? For more information: **International Patient Safety Petition www.Change.Org/PatientSafetyECT **Listen to the Sarah’s Interview on The Depression Files Podcast https://allevin18.podbean.com/e/al-in... Recent articles in the Psychiatric Times **ECT: Dangerous on either side of the Pond https://www.psychiatrictimes.com/view... **Raising Doubts About ECT https://www.psychiatrictimes.com/view... **St. John's Rehab an electrical injury rehabilitation program in Toronto, Canada run by Dr. Marc Jeschke https://sunnybrook.ca/content/?page=s... **www.NORAvisionRehab.org **Follow @PsychRecovery @ClinpsychLucy @ReadReadj @CunliffeSue’s and #AuditECT on Twitter **www.LifeAfterECT.com
Twelve key concerns left unaddressed by mainstream psychiatry's research on electroconvulsive therapy based on recent peer-reviewed literature, device manufacturer's user manual and regulatory update, SAMHSA facility directory and US insurance reimbursement practices.
This article details concerns about electroconvulsive therapy's use. Concerns detailed include: legal informed consent, international lack of universal administration methods, rate of use, regulatory measures to in place ensure patient safety, Medicare insurance reimbursements, absence of routine comprehensive ECT outcome tracking, absence of routine comprehensive assessment for severe adverse events and access to brain injury rehabilitation and other measures required to improve quality of life after treatment as needed.
This is a working literature review detailing research detailing how repeated exposure to high field strength electricity deteriorates voltage gated ion channels resulting in acquired channelopathies. It provides a window of understanding into the episodic paroxysmal neuromuscular symptoms patients manifest or describe experiencing specific to episodic paroxysmal dyskenisia, Acquired Periodic Paralysis, episodic dystonia, episodic ataxia, sodium-dysregulation driven atypical hemipelagic migraines, calcium-dysregulation Tetanic (non-epileptic) seizures, Arrhythmia, long QT, etc. This information is relevant for neuromuscular specialists, neurologists, psychiatrists, emergency room doctors, general practitioners, and dentists treating patients with medication which acts on ion channels (lidocaine and other amino amines, albuterol inhalers). People with the highest exposure to repetitive low-voltage electrical injury are electricians, welders, veterans, or other professionals repeatedly exposed to high field strength electricity in work environments, people exposed to low-voltage/high field strength electrical injury in the home, and patients prescribed repeated exposure to high field strength electricity (Electroconvulsive Therapy (ECT)/Electroshock treatment, Transcranial Magnetic Stimulation (TMS), etc.)

Lab head

Sarah Price Hancock
About Sarah Price Hancock
  • Psychiatric Rehabilitation, assessment, electrical injury sequalae (low-voltage/high field strength), Presently working to identify comprehensive rehabilitation assessment and treatment plan for people living with a history of low-voltage/high field strength electrical injury sequalae. Method: Literature Review Past research: Historical context of vocational rehabilitation and sheltered workshops (literature review); family and peer support in Mental Health services (literature review and RWE).

Members (4)

John Read
  • University of East London
Lucy Johnstone
  • Self employed trainer
Chris Harrop
  • West London Mental Health NHS Trust
Sue Cunliffe
  • ECT pro safety campaign