119 reads in the past 30 days
Key Informants in Applied Qualitative Health ResearchDecember 2023
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1,093 Reads
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24 Citations
Published by SAGE Publications Inc
Online ISSN: 1552-7557
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Print ISSN: 1049-7323
Disciplines: Evaluation Studies; Gezondheidszorg; Habitudes sanitaires; Health; Health Services Research; Health behavior; Kwalitatieve methoden; Onderzoek; Research Design; Santé
119 reads in the past 30 days
Key Informants in Applied Qualitative Health ResearchDecember 2023
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1,093 Reads
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24 Citations
84 reads in the past 30 days
Artificial Intelligence Augmented Qualitative Analysis: The Way of the Future?June 2024
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202 Reads
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27 Citations
55 reads in the past 30 days
New Mothers With Postpartum Depression: A Qualitative Exploration of Healthcare Decision-MakingFebruary 2024
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960 Reads
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4 Citations
45 reads in the past 30 days
Understanding the Process of Drug Addiction Recovery Through First-Hand Experiences: A Qualitative Study in the Netherlands Using Lifeline InterviewsAugust 2023
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320 Reads
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7 Citations
44 reads in the past 30 days
Prompts, Pearls, Imperfections: Comparing ChatGPT and a Human Researcher in Qualitative Data AnalysisMay 2024
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323 Reads
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5 Citations
Qualitative Health Research is an international, interdisciplinary, refereed journal for the enhancement of health care and to further the development and understanding of qualitative research methods in health care settings. We welcome manuscripts in the following areas: the description and analysis of the illness experience, health and health-seeking behaviors, the experiences of caregivers, the sociocultural organization of health care, health care policy, and related topics. We also seek critical reviews and commentaries addressing conceptual, theoretical, methodological, and ethical issues pertaining to qualitative enquiry.
February 2025
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5 Reads
Xiong Zhang
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Min Zhou
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Huilin Zhou
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[...]
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Fang Ma
Heart failure is a severe and terminal stage of various heart diseases characterized by complex clinical syndromes. With regard to the management of HF, the patient’s family is the most common and essential resource. The manner in which the family copes with the disease can lead to effective or ineffective management. It is necessary to explore how families of patients with heart failure as a whole are coping with the disease. Our qualitative descriptive study involved 18 families of patients with HF, including 18 patients and 13 family members. Based on the trichotomy of coping strategies proposed by Weiten, the text of the interviews was analyzed via content analysis. Four categories emerged from the data: (1) problem-oriented coping, (2) appraisal-oriented coping, (3) emotion-oriented coping, and (4) family dynamic–oriented coping. Nine subcategories were extracted: fighting the disease during an episode; managing the disease in daily life; embarking on a journey for support; understanding the disease in a diverse way; accepting the disease or not, optimistic; worried and powerlessness; alternating role responsibilities; and adjusting family interactions. The identification of the predominant category of ‘family dynamic–oriented coping’ in our study has significant implications for health care professionals. By recognizing and addressing the unique dynamics of family interactions and coping mechanisms, health care providers can develop targeted strategies to improve overall outcomes for both patients and their families impacted by HF.
February 2025
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5 Reads
Eliana Miura Zucchi
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Dulce Ferraz
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Ramiro Fernandez Unsain
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[...]
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Márcia Thereza Couto
We aimed to understand how COVID-19 impacted LGBTQIA+ adolescents’ and young people’s well-being and to explore self-care strategies developed by them to address such effects. A qualitative investigation was conducted with adolescents and young people including 39 men who have sex with men and transgender women aged 15–22 years in Brazil. Data collection comprised digital-based diaries and semi-structured interviews and occurred during physical distancing measures. We adopted an iterative thematic analysis from an intersectional lens to examine how participants’ multiple social identities—such as gender, sexuality, race, and class—influenced their self-care practices. The process of reflecting on and adapting to COVID-19-related restrictions prompted participants to recognize experiences that impacted their well-being throughout their lives, such as stigma, discrimination, and violence. Social class emerged as the primary factor in social differentiation, rather than race, leading to varied effects of the pandemic on participants’ lives. In their quest for a sense of wholeness, participants became more critical of their relationships, often choosing to end toxic and abusive connections while seeking new sources of social support as a key strategy for protecting their well-being. Transgender participants noted that certain aesthetics within the transgender community could be oppressive rather than emancipatory. Engaging with new social media circles and participating in volunteer work were important forms of community engagement, particularly among Black participants. Future research on the long-term effects of COVID-19 on the well-being of adolescents should prioritize articulating structural drivers of inequality in qualitative health research.
January 2025
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10 Reads
Autoethnography is an increasingly used method to promote individual and group reflexivity in research, not the least in healthcare. However, autoethnography’s uptake among practitioners is impeded by the fact that it has not been adequately adapted to practitioner settings from its academic origins. This article analyzes the experience of a research team comprised of practitioners/surgeons and social scientists using primarily oral-based autoethnographic practices to promote reflexive collaboration in a longitudinal research and innovation project on selection and training of surgical residents. Based on our case of innovative adaptation and application of autoethnography, which we term autoethnorality, several modifications in autoethnographic practice are suggested to make it more amenable to practitioner settings. These include adopting the collaborative and analytic forms of autoethnography and developing oral-based modalities for autoethnographic practice. The case also shows how these strategic choices along with successive adoption of autoethnographic practices can facilitate the resolution of tensions deriving from the differing timeframes, skillsets, and interests of practitioners on the one hand and academic researchers on the other, as well as paradigmatic differences in theory of science between the medical and social sciences. A table summarizing the advantages and disadvantages of different strategic choices and adaptations regarding autoethnography along with actionable recommendations is presented.
January 2025
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5 Reads
parkrun is a free, weekly organized mass participation physical activity event providing a remarkable example of at-scale dissemination, with over 1 million participants and 150,000 volunteers in Australia. This qualitative study draws on stakeholders’ experiences to explore how parkrun succeeded with its dissemination and sustainability in Australia. Maximum variation and snowball sampling methods were used to select interviewees representing three parkrun stakeholder groups: parkrun Australia employees; volunteer organizers (event directors and ambassadors); and local external stakeholders (e.g., running clubs and landowners). Semi-structured interviews were conducted with 67 adult stakeholders in two phases (February–May and August–October 2023). We conducted a reflexive thematic analysis of interview data to explore contextual factors and mechanisms of parkrun growth and sustainability. We identify four themes to explain the growth and sustainability of parkrun in Australia: “Belief in an essential parkrun” comprises varied but overlapping ideas of what parkrun is fundamentally about; “Fluidity of movement” reflects the way individuals move freely in and out of the parkrun model, between roles and events; “Organizational and individual evolution” describes individuals’ engagement journey and how the organization adapted with growth; and “Shared custodianship” reflects the dispersed leadership and shared responsibility across time, place, and people. These themes illustrate elements of the parkrun model that create broad buy-in, foster stakeholder commitment and longevity, and maximize resources for enhanced reach, dissemination, and sustainability. Our findings contribute practice-based evidence that may inform scale-up and sustainment of similar public health interventions.
January 2025
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8 Reads
COVID-19 impacted many men’s intimate partner relationships, with distressed and disrupted partnerships consistently featured in commentaries with linkages to mental health challenges. The current study draws from interviews with 23 Canadian-based men, 19–50 years old, who experienced a break-up during COVID-19. Addressing the research question, “What are the connections between masculinities, men’s mental health, and intimate partner relationship break-ups during COVID-19?”, three thematic findings were derived: (1) Virtually Together and Growing Apart, (2) Mentally Trapped, and Failing Fast and Slow, and (3) Introspections and Moving On. Virtually Together and Growing Apart describes two contexts wherein men were either challenged by being physically apart from their partner or increasingly estranged while cohabitating with their partner during COVID-19. Mentally Trapped, and Failing Fast and Slow speaks to the stresses of being socially isolated and anxieties about the future with those tensions flowing to and from men’s relationships. Featured were fast-tracked endings in terms of many participants knowing early-on the partnership was over, amid drawn out finishes wherein men’s relationships gradually ended with the easement of COVID-19 restrictions. Introspections and Moving On varied in that many men were intent on processing and deconstructing all that happened in (and to end) their relationship. Men’s learnings were leveraged through accessing professional and peer supports to promote self-growth and purposefully build healthier intimate partnerships. The study findings affirm the need for gender-responsive mental health promotion programs to equip men with relationship skills, while also underscoring the necessity for services dedicated to addressing post-COVID-19 injuries.
January 2025
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3 Reads
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1 Citation
While the early mental health of girls and boys is similar, as children age, girls tend to report worse mental health than boys. Explanations for these gendered disparities remain elusive. This study seeks to understand the social context in which mental health experiences are shaped. Utilizing a qualitative, constructivist approach to grounded theory, we conducted virtual semi-structured interviews with young people between ages 11 and 17 years ( n = 20). Our major finding was that girls in particular experience incongruence between expectations about gender equality and everyday experiences of stereotypes, barriers, and discrimination. Girls reported pressures to satisfy multiple gender norms, such as traditional ideals about being feminine (kind and physically attractive) and modern ideas about being high achieving and “smarter than boys.” Findings suggest that young people are unequipped to navigate the incongruence between the expectation that they live in a gender-equal world and their experiences of gender-based constraints, nor do they appear to have the skills to critically identify the structural patterns that undergird their experiences. Explanations for gendered disparities in mental health may be related to the underlying context of discrimination, and both traditional and emerging gendered norms, barriers, and constraints. Finally, we highlight the responsibility of adults to facilitate child development in ways that are responsive to the changing faces of gender discrimination, which readily adapts to social discourse in new and subtle ways.
December 2024
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16 Reads
Multimodal critical discourse analysis is a dynamic approach to qualitative data analysis that expands critical discourse analysis to include multiple communicative modes—such as images, graphics, video, and sound/music—into the semiotic analysis of ideology and power relations within contemporary forms of communication. We reflect on the potential of multimodal critical discourse analysis to be combined with arts-based health research as an analytic method to deconstruct discourses that shape the health and well-being of marginalized communities. Specifically, we frame this potential within our research about men’s body image based a project using cellphilming and the deconstruction of cis-heteronormative and related ideologies.
December 2024
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16 Reads
Autoethnographic accounts of mental illness (MI) are sparse in academic scholarship, despite generating valuable insights into how MI can be experienced and coped with in real-life contexts. First-person accounts from men are especially lacking, possibly linked to historic trend for masculine stoicism stifling male MI discussions. Some scholarships explore video-gaming as a positive, escapist aid benefiting individuals experiencing major depressive disorder (MDD). However, no research exists presenting in-depth perspectives on possible positive effects, self-identified and articulated by actors engaging with gaming to cope with MDD. This research adopts a novel qualitative perspective, representing an in-depth autoethnographic examination of my experiences playing the personal computer game DeusEx, during a period of my life where I was under treatment for MDD. My positions as both a psychologist specializing in research prioritizing feminist theory as applied to understand men, masculinities, and mental health, and someone themselves recurrently treated for MDD over longer than 22 years, construct a unique dual-positionality perspective. Explicit discussions of my MDD experiences and my experiences concerning the value of video-gaming as a positive, escapist aid during MDD are presented, alongside personal deconstructions of the lasting influences of hegemonic masculinity upon men speaking up about MI. Arguments are presented for future scholars utilizing autoethnographic methods to generate realist perspectives, normalizing mental health discussions, particularly the sharing of underrepresented male experiences. Implications for future scholarship, building upon learnings generated by this research, are developed and put forward.
December 2024
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9 Reads
The stage is set for a new era of precariousness in modern medicine, driven by the increasing failure of a key pharmaceutical pillar—antimicrobials. In the context of sexually transmitted infections (STIs), the rise of antimicrobial resistance is introducing urgent questions around what might constitute “best practice” in a rapidly evolving scene, including the value of asymptomatic screening (test and treat), and the consequent downstream collateral damage emerging from over-use of our diminishingly effective antimicrobial resources. Drawing on interviews with clinicians, experts, and industry representatives, we examine resistance as a site of emerging and co-constitutive moral, temporal, and economic dilemmas. Such dilemmas, as illustrated in participants’ accounts, involve complexities regarding prioritization between competing health demands; doing good work while meeting business requirements; considering trade-offs between visibility and amplifying the problem; difficulties balancing presents and futures; reconciling divergent clinical opinions and expertise; and managing patient subjectivities, while considering the implications of clinical practices for resistance. Importantly, centering dilemmas in context of antibiotic-resistant STIs open greater theoretical scope to consider the challenging spaces that key actors such as clinicians and decision-makers occupy, as they attempt to curb resistance while caring for individuals and the community.
December 2024
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3 Reads
This article considers responsibilities and challenges inherent in the research relationship, from the position of a researcher who is also a counselling practitioner. It draws on my experience of undertaking a qualitative interview-based doctoral research study with adult survivors of childhood sexual abuse, engaging critically with the debates in the research literature concerning researcher–practitioner role boundaries and comparable (and distinct) areas of practice between research and counselling. I suggest that within well-held, monitored boundaries, practitioner identities and contextual knowledge are invaluable to the research relationship and that a collaborative fluidity can operate between researcher and professional (in this case, counsellor) identities rather than them being in conflict. Though the issues addressed here arise from the researcher as counselling practitioner, I believe they have a wider relevance for all qualitative researchers. What happens in the research relationship is complex, involving the various identities (personal and professional selves), emotions, and subjectivities of both researchers and research contributors. Our personhood in research can help to generate rich sources of understanding and at the same time demands our critical reflexivity to interrogate our subjectivities and their influence. In undertaking research which asks individuals to reflect in detail and depth on intimate areas of their lives, researchers need to be prepared for the potential emergence of distress and feel equipped, through training, support, and contextual-based knowledge, to be able to respond appropriately. It calls for reflexive relational competence at the heart of qualitative research.
December 2024
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5 Reads
Epistemic injustice is an analytical framework that is used to describe a wrong done to someone in their capacity as a knower. Epistemic injustice is well-documented across the healthcare spectrum, particularly in relation to the patient’s capacity to understand, and thus derive meaning from, the experience of illness. This article contributes to the body of scholarship exploring how to achieve pathocentric epistemic justice by way of ethnographic case study. Findings draw on fieldwork conducted at a small, publicly funded chronic pain clinic. At MB clinic, pain care is delivered in a group setting. Patients and doctor exhibit a playful attitude: they lean into uncertainty, tell jokes, and eschew the concept of mastery. This produces an epistemic environment that departs from the kind critiqued in studies wherein epistemic injustice is present. By way of case study, this article provides support for the broad claim that there is a link between playfulness and epistemic well-being. Therefore, playfulness may be applied as a strategy to combat pathocentric epistemic injustice.
December 2024
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32 Reads
Gay and bisexual men (GBM) engaging in chemsex can face various health and well-being-related challenges, the extent of which remains unknown given the limited research in the context of the COVID-19 pandemic. This paper examines the pandemic impacts on the health needs of GBM who engaged in chemsex and their experiences with related services. We applied interpretive description to produce knowledge with direct implications for improving practices and policies. Data were collected between July 2020 and January 2021 using in-depth semi-structured interviews with eight key informants who held chemsex expertise and 13 GBM with chemsex lived experiences. Interviews were transcribed, anonymized, and analyzed thematically, yielding three interrelated themes. First, participants argued that the COVID-19 public health response was heteronormative and moralizing, reinforcing feelings of shame among GBM who engaged in chemsex and further isolating them. This added a layer of stigma and exposed them to increased drug-related risks by obstructing harm reduction practices. Second, participants contended how the pandemic worsened the scarcity and shortcomings of chemsex-specialized services. The mandatory shift to online services made it harder to form meaningful therapeutic relationships, especially given the unique sensitivity and stigma associated with chemsex, further heightened during the pandemic. Third, this online shift simultaneously facilitated access to personalized and culturally sensitive care, especially for those with less urgent needs. Our findings’ implications emphasize the importance of adopting a comprehensive approach in chemsex care, integrating both in-person and online methods, to counteract health iniquities reinforced by the pandemic and the institutional responses to it.
December 2024
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17 Reads
There is a scarcity of health human resources worldwide. In occupational therapy (OT), physical therapy (PT), and speech-language pathology (S-LP), attrition and retention issues amplify this situation and contribute to the precarity of health systems. Therefore, we aimed to investigate retention strategies for rehabilitation professionals in Quebec. We present an analysis from individual interviews with rehabilitation professionals and focus groups with stakeholders. We used purposeful sampling (maximum variation approach) to recruit participants from Quebec, Canada. We conducted interviews with 51 OTs, PTs, and S-LPs (2019–2020) and four focus groups with managers, professional education programs, professional associations, and regulatory bodies (2022). Cultural-historical activity theory provided the theoretical scaffolding for these interpretive description studies. Inductive and deductive approaches and constant comparative techniques were used for data analysis. Five sets of retention strategies were developed: (1) ensuring that work aligns with values; (2) improving alignment of work parameters with needs and interests of rehabilitation professionals; (3) modifying physical, social, cultural, and structural aspects of a workplace; (4) addressing how the profession is governed; and (5) offering informal and formal benefits. Multi-systemic retention strategies with intersectoral partnerships were deemed essential to effectively change rehabilitation professionals’ work and work environments and to increase public awareness of the added value of rehabilitation professionals. Our findings emphasize a critical need to design targeted, multi-systemic retention strategies to influence the work experiences of rehabilitation professionals and to ensure the availability of OTs, PTs, and S-LPs for present and future rehabilitation needs.
December 2024
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11 Reads
During the COVID-19 pandemic, there were months of delay in deploying community pharmacies for the National COVID-19 Vaccination Programme in Ireland. We aimed to explore what may have accounted for this delay between 15th December 2020 (publication of policies) and 14th June 2021 (commencement of community pharmacy–based vaccination). We carried out a multi-method qualitative case study that involved engaging with 11 stakeholders, reviewing 246 documents, and conducting semi-structured interviews with 11 policy elites. Using reflexive thematic analysis, we developed three themes. The first provides evidence that the delay was, in part, due to operational barriers related to the logistical and safety aspects of the Programme. The second, on the other hand, presents a perspective that the delay was unreasonable as it was based on perceived deficits in community pharmacies. Finally, the third highlights the inability of the pharmacy profession to influence health policy due to a lack of strategic and cohesive leadership and the dominance of the medical profession. Overall, we argue that the delay can be explained by a complex interplay between technical, socio-political, institutional, and regulatory factors, underpinned by a chronic lack of strategic direction for pharmacy in the Irish health system.
December 2024
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39 Reads
Alberta is home to one of Canada’s fastest growing populations of Black people, driven by an influx of African immigrants to major metropolitan areas such as Edmonton and Calgary. As the Black population in Alberta continues to grow, it is crucial to the well-being of these communities that we understand their health service needs. Black women are a vulnerable group within the Black population due to inequities in social determinants of health such as access to healthcare. In Canada, little is known about the healthcare access experiences of Black women despite reported disparities in their health outcomes. As such, we undertook a qualitative study to examine access to health services for Black women in Alberta. Semi-structured interviews were completed with 30 Black women from Edmonton and Calgary. We applied intersectionality as an analytical framework to guide our understanding of how interconnected social processes shape Black women’s experiences of accessing healthcare. Following our thematic analysis, we identified two major barriers to healthcare access: patient–provider discordance and negative healthcare encounters. We identified two key facilitators: positive patient–provider dynamics and individual and social network strengths. Our findings suggest that Black women have distinct experiences of accessing the healthcare system which are best understood as a confluence of their race, gender, and other aspects of their personhood.
December 2024
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77 Reads
This paper explores the use of participatory video (PV) in a case study conducted in Arcoverde, Brazil, to address the call for greater participation of individuals with disabilities in health and social care planning and research. PV is grounded in similar concepts to the Disability Rights Movement’s principle of “Nothing About Us, Without Us” and serves as a potential collaborative tool for individuals with disabilities to shape their narratives and contribute to research. The study was part of a multi-methods research project on healthcare access, with the PV research focusing on primary healthcare in Arcoverde. The researcher emphasizes the action-oriented and community-based approach, to foster an inclusive environment through workshops, story circles, and video-making. Ethical considerations prioritize informed consent and identity protection. The results underscore the potential empowering impact of PV, fostering community awareness and practical awareness among participants. The discussion emphasizes the ethical considerations, challenges, and the need for reflexivity in participatory video research.
December 2024
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11 Reads
Relatives are increasingly recognized as important in the care of people with a serious mental health condition, such as major depressive disorder, bipolar disorder, or schizophrenia. Research indicates that in providing care, relatives use so-called treatment pressures, such as persuasion, interpersonal leverage, inducements, or threats, to promote the treatment compliance of their family member. This grounded theory study investigated why relatives use treatment pressures by analyzing the experiences of relatives of people with a serious mental health condition before, during, and after mental health crises of their family member. We conducted 11 semi-structured, problem-centered interviews with such relatives in Germany between October 2019 and January 2020. Our analysis showed that the key category of relatives’ experiences is a predicament characterized by feeling responsible to take action while experiencing a limited range of action. Relatives’ perceived responsibility to take action had three dimensions: relatives’ worries about their family member and other members of the family, societal norms and expectations, and the transfer of responsibility from the mental healthcare system to relatives. The limitation of relatives’ scope of action also had three dimensions: their family member’s opposition to treatment, legal criteria for involuntary commitment or treatment, and their dependency on mental healthcare professionals and the mental healthcare system. We reconstructed three different ways in which relatives may deal with this predicament: assuming responsibility for their family member’s treatment, which involved exerting treatment pressures, staying out of their family member’s mental health–related matters, and focusing on their own well-being.
December 2024
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30 Reads
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1 Citation
Public awareness campaigns on palliative care aim to tackle limited public knowledge and negative perceptions of palliative care. However, little is known about their public reception. This study examined how existing campaigns are interpreted, evaluated, and engaged with by members of the general public. Three public campaigns, launched in Flanders or the Netherlands between 2020 and 2023, were discussed in 10 focus groups (total of 65 participants). The analysis was guided by Schrøder's multidimensional audience reception model. Our results show that campaigns were interpreted, evaluated, and engaged with in highly divergent ways. People with personal experiences surrounding serious illness were generally more open toward campaign messages, while a sense of personal relevance was lacking for others. Campaigns that centered on the perspectives of seriously ill individuals while portraying them in active and resilient positions were more positively evaluated. Moreover, they were more successful in broadening perceptions of palliative care beyond being hospital-based end-of-life care for severely ill and care-dependent persons. Conversely, materials that neglected the patient’s voice while framing palliative care as enabling moments of joy “despite serious illness” generally fortified prior perceptions and were often rejected. Additionally, a preference for highlighting the social context surrounding the patient was repeatedly expressed. We conclude that diversified strategies, optimizing a sense of personal relevance, are needed to more effectively influence public understanding and engagement toward palliative care. Destigmatizing palliative care also involves destigmatizing persons with serious illness, and representing them with an emphasis on their agency and strength is vital to this shift.
December 2024
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13 Reads
Experience-based co-design (EBCD) is a qualitative form of participatory action research supported by a toolkit providing guidance and recommendations. The toolkit is intentionally non-prescriptive, allowing EBCD practitioners the freedom to flex the approach to cater to the needs of their specific populations and contexts. For less experienced researchers, the lack of specificity can be a challenge when navigating activities such as data analysis, particularly as wider literature provides limited insights to methods, processes, methodological critique, and lessons learned. Despite increasing use of EBCD, few practitioners publish details of their methods, processes, or decision-making for how they adapt EBCD for their studies, focusing more often on findings and outcomes. This can impact understanding and development of rigor in EBCD literature. In this methodology paper, we respond to this gap by providing a case example and step-by-step guide for application of reflexive thematic analysis to EBCD, with consideration of reflexivity, a conceptual framing for interpreting experiences, opportunities for greater participant involvement, and strengths and challenges of using reflexive thematic analysis within EBCD.
December 2024
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4 Reads
As the global population of patients undergoing maintenance hemodialysis continues to grow, more than half are experiencing the psychological distress associated with learned helplessness, a condition potentially linked to adverse outcomes such as depression and suicidal ideation. However, the triggers contributing to learned helplessness in these patients remain poorly understood. This study employs an interpretative phenomenological approach to explore the experiences and triggers of learned helplessness among 26 maintenance hemodialysis patients across five hospitals in China. The analysis of participants’ narratives reveals that learned helplessness in these patients is influenced by a combination of physiological, psychological, and social factors. Physical discomfort and psychological changes contribute to their sense of helplessness. Despite seeking support from family and healthcare providers, their distress often goes unnoticed. Additionally, the social stigma of being perceived as a “special group” further exacerbates their learned helplessness. Based on the findings, the following recommendations are provided to effectively mitigate learned helplessness: Healthcare professionals must reduce symptom burden, provide psychological assessment and support, and assist in rebuilding positive patient cognition. It is also crucial to enhance connections between patients, their families, and social support groups, reduce misunderstandings and stigmatization, and strengthen community support systems.
December 2024
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3 Reads
Schizophrenia, a mental disorder characterized by delayed onset, high relapse rates, and significant disability, ranks among the top 20 contributors to the global burden of disease and poses a substantial public health challenge. Effective self-management is crucial for the recovery of individuals with schizophrenia, with medication experience playing a vital role. However, the underlying mechanisms and logical relationships remain elusive, hindering the development of effective self-management and enhancement strategies from the perspective of medication experience. This research aimed to illuminate these aspects by conducting semi-structured interviews to delve into the impacts of medication experience on self-management behaviors among individuals with schizophrenia. The goal was to elucidate the role of medication in self-management and to identify potential barriers and facilitators via patient narratives. We employed interpretive phenomenological analysis to examine interview transcripts from 12 participants diagnosed with schizophrenia. This analysis yielded three superordinate themes: “Medicine isn’t just medicine,” “Experience is a catalyst for action,” and “Action shaped by experience.” We discuss these themes in the context of existing literature and theoretical frameworks and propose specific recommendations, such as motivational interviewing for clinicians, tailored psycho-educational programs, and supportive systems respecting patient autonomy. This study offers a contextual understanding of the medication experience for individuals with schizophrenia, enhancing our knowledge of self-management behaviors and how they can be promoted in this population.
December 2024
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13 Reads
Medical congresses play a pivotal role in the continuing medical education of healthcare professionals (HCPs), particularly in light of the rapid advancements in medical knowledge and technology. Notwithstanding, little is known about the internal dynamics of such events and how they contribute to the learning processes in communities of health professional practice. This study aims to uncover and elucidate what motivates HCPs to participate in medical congresses and how they experience their participation through a qualitative study. Attending six in-person medical congresses in Western Europe in 2023, we collected data through a combination of eth-nographic methods including 69 in-situ interviews, 17 in-depth interviews, and extensive participant observations. We analyzed the role of the physical environment, participant motivation, interdisciplinarity, and participant diversity for medical congress attendance, ultimately identifying four types of congress participants: Explorers, Newcomers, Drivers, and Updaters, each characterized by unique patterns of professional experience and engagement within the professional communities. Our findings elucidate the complex motivational landscape of medical congress participants, where the desire for learning is routinely complemented by the pursuit of peer recognition. Our insights and the qualitative typology of medical congress participants introduced have the potential to optimize continuous medical education and shape the structure of future medical congresses by shedding light on the evolving needs of HCPs in diverse medical fields.
December 2024
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10 Reads
With the escalating number of people diagnosed with chronic disease globally, research aimed at supporting their adjustment and coping is invaluable. Reconstructing a sense of self is core to the psychosocial adjustment of people with chronic disease (PwCD), and meaning making is central to their coping with the diagnosis. Despite the growing number of PwCD living productive lives, their identity work is underexplored. This article reports on an in-depth multiple case study that explored the identity work of PwCD from a meaning-making perspective. Data were gathered from three cases using semi-structured interviews, document analysis, and diaries. Data analysis entailed interpretative phenomenological analysis and flexible pattern matching. Three themes describe participants’ identity work process: First, they narrate a broken identity, having experienced identity disruption, discontinuity, and loss; second, they envision an ideal identity through existential reflection; and third, they reconstruct a meaningful identity. Reconciling the broken self with an ideal self leads to the construction of a meaningful self. The meaningful self is conceptualized in participants’ application of Frankl’s meaning-making principles, as they constructed a purposeful self (creative), a connected self (experiential), and a determined self (attitudinal). The article discusses the implications for helping professionals and organizations in supporting PwCD as they work toward rebuilding a meaningful self, facilitating their identity work in the search of a meaningful self.
December 2024
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5 Reads
Guillain–Barre syndrome is a rare neurological condition. Research has increased our understanding of the etiology, prognosis, and effective medical treatment of the illness. There is a lack of understanding regarding the psychological effects and what could help patients. This study aimed to begin to address this using constructivist grounded theory. Eleven interviews were conducted with participants who had received a diagnosis of Guillain–Barr´ e syndrome in the preceding 4 years. The model that emerged identi ed two key processes:“Loss, determination, and adjustment” and “The unknown.” “Receiving support,” “Obtaining knowledge,” and“Experiencing hope” assist in navigating these psychological effects. The ndings emphasize the all-encompassing effects of Guillain–Barr´ e syndrome, illustrating the need for rehabilitation professionals to alleviate uncertainty and foster practices that could facilitate patients’ navigation through the illness. Recommendations for further research are provided.
December 2024
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2 Reads
Approximately 2500 people receive electroconvulsive therapy (ECT) annually in the United Kingdom; however, there is growing evidence of long-term adverse effects. Few studies have focused on people’s experience of ECT, particularly over the long term. The experience of ECT is known to be complex, requiring qualitative exploration. Therefore, this study aimed to explore the long-term adverse experiences of ECT, including psychological impacts, meaning-making, and coping. Narrative analysis considered thematic, structural, and performative elements of seven people’s stories. Themes were explored across the timeline of participants’ experiences. Before ECT, participants felt misinformed regarding ECT and misunderstood by healthcare professionals. They noticed immediate changes in their cognition, memory, and mood after ECT. Returning home was important in participants’ discovery of differences. Long-term impacts were loss (of ability, memory, humanity, and connection), the realization that ECT had been damaging, and understanding ECT to have caused brain damage. The extensive nature of loss experienced by participants was comparable to the concept of ambiguous loss. They experienced a lack of follow-up care and denial of their experiences, which could contribute to psychological iatrogenic harm. Participants coped with adverse experiences by using prompts and strategies and connecting with others. Further research is needed into the adverse long-term effects of ECT, especially considering cognitive effects, memory loss, and how these contribute to a changed sense of self. Service development is urgently required, especially for ECT follow-up care.
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Østfold University College,, Norway