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Background: The high levels of unmet needs in relation to provision of self-care information reported by women living with breast cancer suggests that pre-chemotherapy education is suboptimal. Chatbots are emerging as a promising platform to provide education to patients helping them self-manage their symptoms at home. However, evidence from empir...

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... 78 Os efeitos colaterais do tratamento oncológico podem variar de leves a severos e impactar a vida diária das pacientes. A gestão adequada desses efeitos é importante não apenas para o bemestar físico, mas também para o suporte emocional das pacientes (Tawfik;Ghallab;Moustafa, 2023). ...
... 78 Os efeitos colaterais do tratamento oncológico podem variar de leves a severos e impactar a vida diária das pacientes. A gestão adequada desses efeitos é importante não apenas para o bemestar físico, mas também para o suporte emocional das pacientes (Tawfik;Ghallab;Moustafa, 2023). ...
... 78 Os efeitos colaterais do tratamento oncológico podem variar de leves a severos e impactar a vida diária das pacientes. A gestão adequada desses efeitos é importante não apenas para o bemestar físico, mas também para o suporte emocional das pacientes (Tawfik;Ghallab;Moustafa, 2023). ...
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Objetivou-se analisar os eventos marcantes na vida de mulheres mastectomizadas. Estudo quantitativo, descritivo-analítico e transversal, desenvolvido em um hospital oncológico de Minas Gerais, no período de novembro de 2022 a fevereiro de 2023, com 164 mulheres que realizam mastectomia. Constatou-se uma média de idade de 52,50 anos, 43,3% se identificaram como pardas, 41,5% como brancas e 15,2% como pretas, a maioria morava fora do município onde realizava o tratamento (88,4%). Dentre as participantes, 69,6% relataram um evento marcante na vida, sendo o mais citado, o diagnóstico de doença em si, 35,3%, e o segundo, a perda(morte) de uma pessoa querida (31,3%). Aponta-se que 10,8% das participantes relataram a ocorrência de um evento marcante positivo. Reconhecer as cicatrizes visíveis e invisíveis que marcam a existência dessas mulheres, considerando sua diversidade e necessidades singulares, é essencial para construir um sistema de saúde mais equitativo, integral e eficaz.
... Most of the studies originate from the United Kingdom (Whitford et al. 2017;Fleeman et al. 2022;Ojha et al. 2020;Gurusamy et al. 2014;McDonald et al. 2015; Van-Velthoven et al. 2013;Ream et al. 2020;Early et al. 2017;Schofield-Robinson et al. 2018) followed by the United States Schofield-Robinson et al. 2018;Gentry et al. 2013;Ream et al. 2020;Roblin et al., 2017), Australia (East et al., 2019;McDonald et al. 2015;O'Brien et al. 2015), Canada (Ojha et al. 2020;East et al., 2019;O'Brien et al. 2015), China Chan et al., 2015), and Germany Reiter et al. 2021;Fleischer et al. 2014;Schofield-Robinson et al. 2018). Only one study each was from Croatia ( Van-Velthoven et al. 2013;Zulec et al., 2022), Turkey Ertürk and Ünlü, 2018;Ünver et al. 2018), Egypt (Tawfik et al. 2023 Ojha et al. (2020), for example, defined care counseling in the area of nutrition as "any combination of educational strategies, accompanied by environmental supports (...)". According to Ojha et al. (2020), the consultations can be carried out by nursing staff with the help of various media with patients and their relatives. ...
... The duration of the nursing counseling interventions in the studies varies greatly, which illustrates the diversity of nursing counseling. In the study by Schofield-Robinson et al. (2018), for example, four counseling sessions were conducted on consecutive days, while in the study by Tawfik et al. (2023), three consecutive counseling sessions were conducted, each lasting approximately 45 min. In the study by Chan et al. (2015), a 3-min telephone consultation was also conducted before an examination appointment in combination with a 3-min face-to-face consultation during the appointment. ...
... The included studies focused on nursing consultations in various specialist areas. Most studies (n = 5) described consultations in pediatrics (Fleeman et al. 2022;Whitford et al. 2017;Ojha et al. 2020;East et al. 2019;O'Brien et al. 2015) followed by oncology (n = 4; Ream et al. 2020;Komatsu and Yagasaki 2014;Tawfik et al. 2023;Reiter et al. 2021 ...
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Background Demographic changes are leading to a significant shortage of skilled nurses, with a 50% increase in care needs predicted by 2030. By 2035, an additional 493,000 nurses will be needed in Germany, particularly in inpatient care. After the introduction of a new concept of long-term care needs in Germany in 2017 and the associated formulation of care-related tasks, nursing consultation is becoming increasingly important for care professionals. There is a call for an enhanced integration of nursing consultation in Germany to improve care quality amid these challenges. Aims The aim of this work is to show the diversity and necessity of nursing advice in the inpatient setting. Method A systematic literature search was conducted of the databases PubMed and Cochrane, focusing on title and abstract with the keywords “patient,” “relatives,” “nursing consultation,” and “inpatient setting” based on the PCC scheme (Patient, Concept, Context). After removing duplicates, 443 articles remained and were filtered according to the inclusion and exclusion criteria. A total of 26 studies investigating the topics and effects of nursing consultation on patients and relatives were selected for inclusion in the review. The selected studies were summarized with regard to the research questions and evaluated according to their quality. Results The studies encompass a broad spectrum of nursing consultations across various specialist fields, with notable emphasis on pediatrics, oncology, and intensive care. Thematically, the consultations addressed a diverse range of care phenomena, most frequently focusing on anxiety, family-centeredness, HIV, and cancer. The studies showcased a variety of counseling formats, including group and individual sessions, telephone consultations, and multimedia telemedicine, underscoring the adaptability of nursing consultations to patient needs. Notably, the outcomes of nursing consultations were positive, showcasing significant improvements in mental health, patient compliance, nutritional status, and overall quality of life, among other benefits. Conclusion Recommendations for nursing practice can be derived from the review, suggesting a focus on prevalent nursing phenomena for counseling across patient populations to improve outcomes. While nursing consultations are well-established in oncology and pediatrics, there is potential for expansion in other specialized areas, such as intensive care. Notably, certain aspects like family-centered care are not adequately covered, indicating a need for further research.
... Traditional educational methods, such as pamphlets and face-to-face interactions, have limitations for addressing the diverse information needs of patients and for ensuring information retention and accuracy [5,6]. Research has demonstrated that patients forget 50 to 80% of the health information provided to them by healthcare professionals by the time they reach home [7,8]. To increase understanding and the retention of acquired knowledge, health information should be accessible anytime and anywhere [9,10]. ...
... Patients living with breast cancer often face challenges such as difficulty in self-care and maintaining quality of life, chemotherapy side effects, and depression; thus, patients with breast cancer should receive education that meets their needs [7]. Therefore, personalized education is essential for empowering patients to make informed decisions and manage their disease effectively [11,12]. ...
... The emergence of chatbots has revolutionized information dissemination and access. Initially, chatbots relied on basic keyword-matching techniques such as retrieval or rule-based approaches [7]. Chatbots evolved over time with advancements in artificial intelligence, machine learning, and natural language processing (NLP), making them more effective in mimicking human conversation. ...
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Background Effective education and awareness regarding breast cancer are critical. Traditional educational methods often fail to meet the diverse information needs of patients. Patients should be provided with tailored, accessible information to improve their retention and understanding of disease-related information. Purpose This systematic review and meta-analysis evaluated the effectiveness of chatbots for providing breast cancer education. By examining patient satisfaction with and the usability and efficacy of chatbot interventions, this study seeks to support the integration of chatbot technology into cancer education. Methods This review, which was conducted in accordance with PRISMA guidelines, included studies from MEDLINE, Embase, and the Cochrane Library up to May 2024. The main inclusion criterion was chatbot interventions for breast cancer education. Meta-analysis was performed using Review Manager and Open Meta-Analyst software. Results Of the 208 articles initially identified, 6 studies met the inclusion criteria, involving a total of 1342 women with early-stage or at-risk hereditary breast cancer. The meta-analysis revealed that most participants (85 to 99%) reported high satisfaction with chatbot interventions for breast cancer education, with no significant differences in satisfaction compared to genetic counselors or physicians. The chatbot interventions also showed positive effects on knowledge acquisition (mean proportion = 90.8%) and alleviated patients’ symptoms significantly more than routine care. Conclusion This study demonstrated that chatbots can effectively provide personalized and interactive educational support, enhancing patients’ understanding and retention of disease-related information. The integration of chatbot technology into educational programs can empower patients, ultimately promoting breast cancer awareness and prevention.
... LLMs and chatbots have had a large increase in interest and uptake in public and health care domains, 74 particularly because of the availability of ChatGPT, BingAI, and other publicly available LLMs. 75 In this review, we found LLM and chatbots were used for monitoring the symptoms of women with metastatic breast cancer and providing management advice, monitoring symptoms and educating patients with lung cancer, and monitoring symptoms and providing advice for women with breast cancer undergoing chemotherapy. 32,39,47,48,[51][52][53] Chatbots almost exclusively provided highly effective performance. For example, Tawfik et al 51 found that a chatbot, called ChemoFreeBot, designed to converse with people receiving chemotherapy and offer personalized support, performed better than both a nurse-led education group and routine care. ...
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PURPOSE The adoption of artificial intelligence (AI) in health care may afford new avenues for personalized and patient-centered care. This systematic review explored the role of AI in symptom monitoring for adult cancer survivors. METHODS A comprehensive search was performed from inception to November 2023 in seven bibliographic databases and three clinical trial registries. This PROSPERO registered review (ID: CRD42023476027) assessed reports of empirical research studies of AI use in symptom monitoring (physical and psychological symptoms) across all cancer types in adults. RESULTS A total of 18,530 reports were identified, of which 41 met review criteria and were analyzed. Included studies were predominantly published between 2021 and 2023, originated in the United States (39.0%) and Japan (14.6%), and primarily used cohort designs (80.5%), followed by cross-sectional designs (12.2%). The mean sample size was 617.14 (standard deviation 5 1,401.37), with most studies primarily including multiple tumor types (31.7%) or breast cancer survivors (26.8%). Machine learning algorithms (43.9%) was the most used AI method, followed by natural language processing (29.3%), AI-driven chatbots (17.1%), and decision support tools (9.8%). The most common inputs to the AI algorithms were textual data, patient-reported symptoms, and physiologic measurements. The most examined symptom was pain (34.2% of studies), followed by fatigue and nausea (17.1% of studies each). Overall, the review showed increasing AI technology use in the prediction and monitoring of cancer symptoms. CONCLUSION AI is being used to enhance symptom monitoring in various cancer settings. When considering integration into clinical practice, standardization of data capture, the use of analytics, investing in infrastructure, and the end-user experience should be considered for successful implementation and monitoring the improvement of patient outcomes.
... LLMs and chatbots have had a large increase in interest and uptake in public and health care domains, 74 particularly because of the availability of ChatGPT, BingAI, and other publicly available LLMs. 75 In this review, we found LLM and chatbots were used for monitoring the symptoms of women with metastatic breast cancer and providing management advice, monitoring symptoms and educating patients with lung cancer, and monitoring symptoms and providing advice for women with breast cancer undergoing chemotherapy. 32,39,47,48,[51][52][53] Chatbots almost exclusively provided highly effective performance. For example, Tawfik et al 51 found that a chatbot, called ChemoFreeBot, designed to converse with people receiving chemotherapy and offer personalized support, performed better than both a nurse-led education group and routine care. ...
Article
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Purpose The adoption of artificial intelligence (AI) in health care may afford new avenues for personalized and patient-centered care. This systematic review explored the role of AI in symptom monitoring for adult cancer survivors. Methods A comprehensive search was performed from inception to November 2023 in seven bibliographic databases and three clinical trial registries. This PROSPERO registered review (ID: CRD42023476027) assessed reports of empirical research studies of AI use in symptom monitoring (physical and psychological symptoms) across all cancer types in adults. Results A total of 18,530 reports were identified, of which 41 met review criteria and were analyzed. Included studies were predominantly published between 2021 and 2023, originated in the United States (39.0%) and Japan (14.6%), and primarily used cohort designs (80.5%), followed by cross-sectional designs (12.2%). The mean sample size was 617.14 (standard deviation = 1,401.37), with most studies primarily including multiple tumor types (31.7%) or breast cancer survivors (26.8%). Machine learning algorithms (43.9%) was the most used AI method, followed by natural language processing (29.3%), AI-driven chatbots (17.1%), and decision support tools (9.8%). The most common inputs to the AI algorithms were textual data, patient-reported symptoms, and physiologic measurements. The most examined symptom was pain (34.2% of studies), followed by fatigue and nausea (17.1% of studies each). Overall, the review showed increasing AI technology use in the prediction and monitoring of cancer symptoms. Conclusion AI is being used to enhance symptom monitoring in various cancer settings. When considering integration into clinical practice, standardization of data capture, the use of analytics, investing in infrastructure, and the end-user experience should be considered for successful implementation and monitoring the improvement of patient outcomes.
... 28,29 Chatbots were also shown to be noninferior to physicians and associated with better symptom management and self-care advice compared with a nurse-led model tested among patients with breast cancer. 30,31 Our study discovered that although patients were asked not to use SM for acute care, 2.4% still used SM for urgent issues. Proactive monitoring of patient needs through cost-effective measures such as patient-reported outcomes, 32 lay health workers, 33 or artificial intelligence (AI) with a teams-based triaging system may effectively capture after-hours and emergency SM. ...
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Background: Widespread adoption of secure messaging (SM) provides patients with cancer with unprecedented access to medical providers at the expense of increased workload for oncologists. Herein, we analyze oncology SM clinical content and acuity and translate these to estimated cost savings from reduced appointments. Methods: This population-based retrospective cohort study examined the content of patient-initiated SM threads exchanged through the patient portal website or app over 1 year (June 1, 2021-May 31, 2022) at 21 Kaiser Permanente Northern California oncology practices, which typically do not have patient copayments associated with SM. A random sample of 500 SM threads were reviewed and categorized by message content, acuity, and appropriate level of service. Cost and time estimates were used to compare the cost of SM management by oncologists alone versus assisted by medical assistants and nurses. Results: During the study, 41,272 patients initiated 334,053 unique SM threads to 132 oncologists. Of the SM threads reviewed, only 26.8% required oncologist expertise. Based on thread content, the remaining 73.2% may have been better managed by a nurse (38.2%), medical assistant (28.4%), primary care physician (5.4%), or another subspecialty provider (1.2%). Emergency care was recommended in 2.4% of the threads reviewed. Significant medical care was provided to patients in 24.4% of the reviewed threads that would typically require an appointment. We estimate that the SM exchanges provided 11.2millionincare,including11.2 million in care, including 3.6 million in avoided out-of-pocket copayment costs to patients and $7.6 million in missed billing codes. Conclusions: High utilization of SM generates additional workload for oncologists that could mostly be appropriately managed by alternate providers. The magnitude of unreimbursed medical care provided via SM and the use of SM for emergent medical situations creates an urgent need for new practice models. An alternative architecture for triaging, managing, and billing SM could reduce costs and oncologist burnout.
... Twenty-five studies focused on nausea and vomiting as outcomes [34,37,40,[42][43][44]47,48,52,58,[61][62][63][64][65][66][67][68][69][70][71][72][73][74][75]. ...
... Moreover, when the first and third groups were compared, as well as the second and third groups, significant differences in distress levels were found (p < 0.001). However, no significant differences in distress were noted between the first and second groups (p = 1) [75]. ...
... Thirteen studies within this review aimed to alleviate chemotherapy-related diarrhea and constipation with nonpharmacological treatments [34,40,[42][43][44]47,48,53,54,58,59,62,75]. ...
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Background: Despite advancements in cancer treatment, chemotherapy side effects significantly impact patients both physically and emotionally. While pharmacological treatments can mitigate these side effects, they may trigger additional side effects, exacerbating the overall discomfort experienced by patients; moreover, psychological factors influencing physical symptoms are beyond the reach of pharmacological interventions. Nonpharmacological interventions, however, offer the potential for complementary or alternative solutions. Objectives: This review aims to offer a comprehensive analysis of the literature on the effectiveness of nonpharmacological interventions in managing the physical side effects of chemotherapy. Methods: This review, based on a search of PubMed, PsycINFO, and Web of Science databases, identified 46 relevant studies. It categorizes interventions and evaluates their effectiveness in managing common chemotherapy side effects (fatigue, nausea, pain, diarrhea, and constipation). Results: Guided imagery, tailored exercises, and Qigong show promise in reducing fatigue, while interventions like yoga and cognitive-behavioral approaches address nausea and vomiting. Pain benefits result from guided imagery and educational interventions. Limited evidence exists for diarrhea and constipation interventions, necessitating further research. Conclusions: This review offers provisional conclusions, emphasizing the potential of integrating evidence-based nonpharmacological approaches alongside pharmacological interventions to enhance patient outcomes and reduce chemotherapy-induced side effects, considering factors such as accessibility, safety, customization, and adaptability in clinical settings.
... Lu et al. could show that a symptom diary allows patients to reflect on their symptoms [61], aiding treatment discussions. Employing a chatbot to assist with mild side effects offers guidance without burdening medical staff was shown by Tawfik et al. [62]. Several randomized controlled trials have shown that regular collection of patientreported outcomes (PRO) can be combined with an alarm system to manage data efficiently [63,64]. ...
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Standardized treatment pathways should make it easier for medical staff and patients to achieve the best possible individual treatment outcome by making sure all relevant information are taken into consideration. The aim of this paper is to identify gaps in care along the treatment pathway through semi-structured patient interviews. Subsequently, it will be discussed if mobile health applications can close these identified gaps in care. Nine semi-structured interviews of patients with invasive lobular breast cancer were conducted in March 2023 in German at the breast cancer center at Charité Universitätsmedizin Berlin, which were subsequently transcribed word for word and processed using a thematic analysis approach. Eight recurring themes are identified in the patient interviews: 1. Limited capacity to absorb information, 2. Discrepancy between information needs and information provision, 3. Need for individual initiative, 4. Uncertainty, 5. not being seen and heard, 6. Patient’s desires and suggestions for improvement, 7. Use of mobile health apps, 8. Support through an app for patients. The identified gaps in care of breast cancer patients can be largely addressed through the use of digital health solutions after the establishment of regulatory frameworks, thus improving care for patients with early breast cancer. The interviews were done within a registry for which ethical approval was obtained by the Ethics Committee of Charité Universitätsmedizin Berlin EA4/180/17.
... At the moment, the main drawback of chatbots is their requirement for rigorous user testing and iterative development prior to broad deployment [52]. Other literature data from women living with breast cancer show that, in comparison with the "one size fits all" approach used by healthcare workers to provide information, chatbots are practical and affordable tools to help improve and increase self-care practices and reduce the side effects of chemotherapy, and they can also act as empowering tools to support nurses in educating women with breast cancer and empower them to take an active role in dealing with their symptoms [53]. Importantly, a study on women with breast cancer found that the chatbot's EORTC INFO25 scores were not less than the doctors' scores in providing the answers the women needed [54]. ...
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This study investigates the impact of the Community Guidance Model on women’s empowerment in the fishing village of Nelayan, Pangandaran Regency, Indonesia. It explores how this model promotes gender equality by enhancing social support, improving resource access, and driving cultural change. Using a qualitative case study approach, the research focuses on women participating in the community guidance program, selected through purposive sampling. Data collection methods included in-depth interviews, participant observations, and analysis of program documents. Thematic analysis revealed that the Community Guidance Model significantly strengthens social support networks, grants women greater access to economic and educational resources, and fosters a shift in cultural norms that traditionally limit women’s roles. These changes enable women to take on active roles within their communities, enhancing both their welfare and social standing. The study concludes that the Community Guidance Model is an effective strategy for empowering women in fishing villages, offering a pathway to sustainable gender equity and social inclusion. These findings support the expansion of such programs to achieve lasting improvements in the well-being and agency of women across Indonesian coastal communities.