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Background
Parents’ meaningful activities (occupations) and occupational balance are relevant to neonatal care. Valid and reliable self-reported measurement instruments are needed to assess parents’ occupational balance and to evaluate occupational balance interventions in neonatal care. The aims of this study were to develop a self-reported questi...
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Objectives
Informal caregivers often experience a restriction in occupational balance. The self-reported questionnaire on Occupational Balance in Informal Caregivers (OBI-Care) is a measurement instrument to assess occupational balance in informal caregivers. Measurement properties of the German version of the OBI-Care had previously been assessed...
Citations
... In this regard, a study by Günal, et al. also indicated that mothers of children with cerebral palsy have lower occupational balance and quality of life in certain aspects of life (35). The correlation between parents' occupational balance and mental health and well-being has been confirmed in parents of premature infants with a very low birth weight and in parents of children with cerebral palsy (36) The study by Röschel, et al. revealed that informal caregivers of older individuals face challenges in maintaining a balance between work and personal life. They also experience mental and physical health issues, as well as moderate to high levels of anxiety, depression, stress, and caregiver burden (37). ...
Objectives:
To investigate the occupational balance, caregiver burden, and factors affecting them in caregivers of individuals with spinal cord injuries in Iran.
Design:
A cross-sectional study with multiple linear regression analyses to specify factors related to occupational balance and caregiver burden.
Settings:
Community-dwelling individuals with spinal cord injury (SCI).
Participants:
A convenience sample of 84 individuals with SCI.
Interventions:
Not applicable.
Measures:
The Occupational Balance Questionnaire-11, Caregiver Burden Scale (CBS), and Hospital Anxiety and Depression Scale (HADS) were used to assess the occupational balance, caregiver burden, and stress/anxiety levels of the caregivers, respectively. Functional independence, anxiety/depression levels, and the participants' ability for self-management were evaluated using the Barthel index, HADS, Partners In Health (PIH), and Patient Activation Measure (PAM), respectively.
Results:
There was a positive and significant correlation between the self-management skills of the participants and their independence in daily activities with their caregivers' occupational balance. A negative and significant correlation was found between the individuals' self-management skills and their independence in daily activities with caregiver burden. In addition, a significant correlation existed between the anxiety and depression of the participants and their caregivers with occupational balance and caregiver burden. Finally, there was a negative and significant correlation between occupational balance and caregiver burden (P ≤ 0.05).
Conclusion:
This study demonstrated that factors such as participants' self-management skills, their independence in daily activities, and the level of anxiety and depression in participants and caregivers affect the occupational balance and burden experienced by caregivers of individuals with SCIs.
... For instance, parents of preterm infants with a very low birthweight and parents of children with cerebral palsy experienced restrictions in their occupational balance [20,32]. Furthermore, associations between parental occupational balance and subjective health and well-being were identified in parents of preterm infants with a very low birthweight [33] and in parents of children with cerebral palsy [20]. Additionally, an intervention to foster engagement in meaningful activities -and thereby strengthen occupational balance -led to increased subjective health in women who provided care for their spouse [31]. ...
... Participants confirmed to participate voluntarily by the return of the paper survey or the completion of the electronic survey. Part of the data of the current study have been used previously for the investigation of a questionnaire [33] applied in this study. Therefore, sample size calculation followed recommendations for the exploration of measurement properties with Rasch model analyses [35]. ...
... Therefore, sample size calculation followed recommendations for the exploration of measurement properties with Rasch model analyses [35]. Further details on sample size calculation can be found somewhere else [33,36]. ...
Objectives
Population ageing leads to a noticeable increase in demand for informal care. Informal caregivers experience high caregiver burden, such as restricted subjective health and well-being. Occupational balance is associated with subjective health and well-being. However, associations between occupational balance and subjective health and well-being of informal caregivers of older persons have not been investigated yet. Thus, the objective of this study was to explore associations between occupational balance and subjective health and well-being of informal caregivers of older persons.
Methods
From September 2016 to July 2020, a cross-sectional multicenter study design was employed in Austria. Informal caregivers’ occupational balance, subjective health, and well-being as well as comorbidity of persons to be cared for were assessed with seven self-reported questionnaires. Spearman’s rank correlation coefficients rs were calculated to determine associations between occupational balance and subjective health and well-being of informal caregivers of older persons.
Results
In total 118 informal caregivers, 102 (86%) female, and their persons to be cared for, 70 (59%) female, were considered for analyses. Median age was 58 years for informal caregivers and 81 years for persons to be cared for. Informal caregivers reported restrictions in occupational balance, subjective health, and well-being. Persons to be cared for showed comorbid health conditions. Significant associations between occupational balance and determinants of subjective health and well-being were identified (rs − 0.30 – 0.69; p ≤ 0.01).
Conclusions
As population ageing and the demand for informal care progress, efforts to support informal caregivers and to strengthen their occupational balance, subjective health and well-being are vital.
... Subsequently, they were asked to give written and verbal consent, as described elsewhere (41). Participants were asked to complete a sociodemographic data form and to complete a set of self-reported questionnaires to assess occupational balance and subjective health. ...
... Occupational balance was assessed with the Occupational Balance in Informal Caregivers (OBI-Care) (41) questionnaire. It consists of 22 items, assessing the following dimensions of occupational balance: occupational areas (subscale OBI-Care OA), occupational characteristics (subscale OBI-Care OC), and occupational resilience (subscale OBI-Care OR). ...
... Subscales are sum scales of the raw data of scale specific items and range from 5 to 45 (subscale 1), 5 to 35 (subscale 2) and 5 to 30 (subscale 3). Low total scores indicate high satisfaction with one's occupational balance whereas high total scores indicate low satisfaction with one's occupational balance (41). ...
Objective
Very low birthweight (VLBW) infants have an increased risk of mortality and frequently suffer from complications, which affects parental occupational balance. Occupational balance is the satisfaction with one's meaningful activities, which include everyday activities that people need to, want to, and are expected to do. In contrast to work-life balance, the construct of occupational balance addresses different activities equally and it applies to all persons, regardless of whether they are working or not. Parental occupational balance might be related to parents' and VLBW infants' health. Therefore, the objective of this study was to investigate associations between parental occupational balance, subjective health, and clinical characteristics of VLBW infants.
Methods
A cross-sectional multicenter study was conducted in six Austrian neonatal intensive care units. Occupational balance and subjective health of parents of VLBW infants were assessed with six self-reported questionnaires. The following clinical characteristics of VLBW infants were extracted from medical records: gestational age, birthweight, Apgar scores, Clinical Risk for Babies II Score, and complications of prematurity. Spearman's rank coefficients were calculated.
Results
In total, 270 parents, 168 (62%) female and their VLBW infants, 120 (44%) female, were included in this study. Parents' mean age was 33.7 (±6.0) years, mean gestational age of VLBW infants was 27 + 3 (±2) weeks. Associations between parental occupational balance, subjective health, and clinical characteristics of VLBW infants were identified ( r s = 0.13 – 0.56; p ≤ 0.05), such as the correlation between occupational areas ( r s = 0.22, p ≤ 0.01), occupational characteristics ( r s = 0.17, p = 0.01), and occupational resilience ( r s = 0.18, p ≤ 0.01) with bronchopulmonary dysplasia of VLBW infants.
Conclusion
Occupational balance is associated with parents' and VLBW infants' health. Interventions to strengthen parental occupational balance might increase parental health and thereby also improve health and developmental outcomes of their VLBW infants.
... Measurement instruments on occupational balance exist. However, these measurement instruments were not specifically developed with and validated in a sample population of informal caregivers [37,38]. The self-reported questionnaire on Occupational Balance in Informal Caregivers (OBI-Care [37]) is a generic measurement instrument to assess occupational balance in informal caregivers [37]. ...
... However, these measurement instruments were not specifically developed with and validated in a sample population of informal caregivers [37,38]. The self-reported questionnaire on Occupational Balance in Informal Caregivers (OBI-Care [37]) is a generic measurement instrument to assess occupational balance in informal caregivers [37]. It was specifically developed with parents of preterm infants, who are considered to be informal caregivers. ...
... However, these measurement instruments were not specifically developed with and validated in a sample population of informal caregivers [37,38]. The self-reported questionnaire on Occupational Balance in Informal Caregivers (OBI-Care [37]) is a generic measurement instrument to assess occupational balance in informal caregivers [37]. It was specifically developed with parents of preterm infants, who are considered to be informal caregivers. ...
Objectives
Informal caregivers often experience a restriction in occupational balance. The self-reported questionnaire on Occupational Balance in Informal Caregivers (OBI-Care) is a measurement instrument to assess occupational balance in informal caregivers. Measurement properties of the German version of the OBI-Care had previously been assessed in parents of preterm infants exclusively. Thus, the aim of this study was to examine the measurement properties of the questionnaire in a mixed population of informal caregivers.
Methods
A psychometric study was conducted, applying a multicenter cross-sectional design. Measurement properties (construct validity, internal consistency, and interpretability) of each subscale of the German version of the OBI-Care were examined. Construct validity was explored by assessing dimensionality, item fit and overall fit to the Rasch model, and threshold ordering. Internal consistency was examined with inter-item correlations, item-total correlations, Cronbach’s alpha, and person separation index. Interpretability was assessed by inspecting floor and ceiling effects.
Results
A total of 196 informal caregivers, 171 (87.2%) female and 25 (12.8%) male participated in this study. Mean age of participants was 52.27 (±12.6) years. Subscale 1 was multidimensional, subscale 2 and subscale 3 were unidimensional. All items demonstrated item fit and overall fit to the Rasch model and displayed ordered thresholds. Cronbach’s Alpha and person separation index values were excellent for each subscale. There was no evidence of ceiling or floor effects.
Conclusions
We identified satisfying construct validity, internal consistency, and interpretability. Thus, the findings of this study support the application of the German version of the OBI-Care to assess occupational balance in informal caregivers.
Resumen Objetivo Traducir y adaptar transculturalmente el cuestionario de Equilibrio Ocupacional de los Cuidadores Informales (OBI-Care) al español para su uso en padres/madres cuidadores/as. Método Se siguió un proceso de traducción-retrotraducción, incluyendo discusión de expertos y prueba piloto. La versión utilizada en la prueba incluía diferentes preguntas (abiertas y valoraciones numéricas) que recogían comentarios y valoraciones de los participantes. El equipo investigador introdujo los cambios que formaron la versión final del cuestionario. Resultados El informe sobre la traducción directa recoge la comparación entre la traducción A y B y las decisiones del panel de expertos que derivaron en la primera versión del cuestionario adaptado. En él se añadieron modificaciones para mejorar la comprensión (en título, explicación, enunciados de las subescalas e ítems). El informe sobre la retrotraducción no indica diferencias entre las traducciones inversas A y B en cuanto a significado. En la prueba piloto participaron 30 sujetos (11 padres y madres cuidadores/as informales, 7 terapeutas ocupacionales activos y 12 estudiantes de máster) que hicieron diferentes propuestas. Se valoraron y se introdujeron cambios como añadir la definición del equilibrio ocupacional, indicar la finalidad del cuestionario y utilizar un lenguaje de género inclusivo. Así se llegó a la versión final de la adaptación española, que mantiene todos los ítems del cuestionario original. Conclusiones El OBI-Care-E es la versión traducida y adaptada al español del OBI- Care. Esta versión podría ser útil en la evaluación del equilibrio ocupacional de padres y madres cuidadores/as informales, aunque es necesario estudiar sus propiedades psicométricas.
Die unterschiedlichen Konstrukte aus der Occupational Science zu kennen, hilft Ergothera-peut*innen, relevante Erkenntnisse und Beobachtungen aus dem Alltag ihrer Klient*innen zu benennen und zu beschreiben. Am Beispiel von Übergängen zwischen Lebensphasen zeigt der Artikel, wie verschiedene Konstrukte der Occupational Science zusammenwirken.
Ein Gleichgewicht zwischen unseren täglichen Betätigungen ist wichtig für Gesundheit und Wohlbefinden. Deshalb betrachtet Rebecca Herm die Betätigungsbalance aus einem ergotherapeutischen Blickwinkel und stellt sie in einen Zusammenhang mit Erkenntnissen der Occupational Science.