Results from category formation

Results from category formation

Source publication
Article
Full-text available
Background Due to their low prevalence (< 5 in 10,000), rare diseases are an important area of research, with the active participation of those affected being a key factor. In the Citizen Science project “SelEe” (Researching rare diseases in a citizen science approach), citizens collaborate with researchers using a digital application, developed as...

Context in source publication

Context 1
... results of the focus groups (first focus group: 11 participants, second focus group: 9 participants) are presented below, organized by categories. The qualitative content analysis identified three main categories with three to four sub-categories (Fig. 3). References for selected quotations are given for each statement (Additional file 6). Exemplary quotations and field/focus group notes are also listed, abbreviated as "S" (statement/quotation) and "N" (note), and numbered in ascending order (e.g. S1, ...