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Rehabilitation has neglected the spirituality of people with aphasia, a neurogenic impairment of language for communication and thought processes. Aphasia reduces scope for adjustment processes where words are normal currency, such as forgiveness and reconciliation. A single case narrative was generated from a case series exploring the feasibility...
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Context 1
... was illustrated in her SLT assessment by the modified Living with Aphasia Framework for Outcome Measurement (modified A-FROM, Mumby and Whitworth (2013), based on work using the International Classification of Function, (ICF (WHO 2001)) by Kagan et al. (2008)). This holistic selfevaluation (regarding communication within life as a whole) addressed four domains (see Table 3). The scores showed that despite objective progress in her levels of impairment there was little change in her overall self-evaluation. ...Context 2
... Green's SLT assessment using the A-FROM (see Table 3 and Section 2.3) had shown a lower score in the personal domain than the others. This aligned with her perception that she hoped for more progress in the DEEP dimension of WELLHEAD, to enable change in other dimensions of her spirituality (see Section 3.3.5). ...Context 3
... the interview, she acknowledged that Christianity was an influence in her life (though her SHALOM score indicated that religion was of little importance to her now, see Table 3). Her parents were practicing Christians, but she tended not to take part in religious activities because they did not feel authentic. ...Similar publications
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Introduction
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Citations
... Limitations of the study included the small number engaged in this PPI work, representing a particular cross-section of approaches to spirituality, the use of consensus sometimes overshadowing individuals' specific experiences. Seeking to explore individual perceptions of spirituality from people with aphasia thematically, detailed case studies arising from the feasibility study have since been initiated (Mumby, 2019;Mumby, 2023b). During coproduction criteria agreed concerning acceptability were guided by principles of spiritual inclusion, and were substantiated in the feasibility study itself, where a wider range of religious background and views were represented. ...
... The coproduction process did not set out to elucidate individual perspectives about spirituality in the context of aphasia, but this was taken up in the feasibility study, leading to some detailed reports (Mumby & Roddam, 2021;Mumby, 2019) including experience from having logopenic aphasia (Mumby, 2023b). There is further scope to well as productthe co-creation which enables people to experience fulfilment and spiritual growth. ...
... They are often excluded from research studies requiring the use of language [1,2] and from involvement in shaping research [3]. Moreover, the spirituality of people with aphasia has been neglected, despite the incidence and prevalence of aphasia [4], perhaps reflecting perceptions that aphasia is a barrier to addressing concerns about meaning and purpose in life (already reviewed [5,6] and highlighted [7]). Spiritual aspects of aphasia rehabilitation are poorly understood [8], though identified within adjustment [9]. ...
... The author was now working as an SLT in a hospital outpatient setting. Before initiating the research collaboration, she reviewed the existing literature concerning aphasia and spirituality [5,6] and spiritual health assessments potentially suitable in aphasia [39], reflected on her voluntary work, and consulted with experts in the field (from academia, chaplaincy and church contexts, including detailed exchanges with the hospital chaplain finalising the definition of spirituality as 'searching for meaning and purpose'). The author originated the fledgling WELLHEAD framework [6] as input to the PPI process for subsequent modification. ...
... Limitations of the study included the small number engaged in this PPI work, representing a particular cross-section of approaches to spirituality, the use of consensus sometimes overshadowing individuals' specific experiences. Seeking to explore individual perceptions of spirituality from people with aphasia thematically, detailed case studies arising from the feasibility study have since been initiated [5,53]. During coproduction, criteria agreed concerning acceptability were guided by principles of spiritual inclusion, and were substantiated in feasibility study itself, where a wider range of religious background and views were represented. ...
Underrepresented in research coproduction, and in spirituality research, people with aphasia partnered with the author in action research incorporating communication access techniques. They became a coproduction Steering group for a study into assessing and supporting spiritual health in aphasia. The Steering group were embedded at multiple levels in the research process , likened to negotiating locks on a canal. The coproduction evidenced how published standards could be met when including people with communication disability. The process shaped the WELLHEAD Toolkit (for spiritual health assessment and support-the product) in its feasibility study, thus ensuring accessibility and acceptability from a range of spiritual and religious viewpoints. Co-creation (product and process) was valued, with impact upon spirituality of those participating as their perceptions were unlocked. Further work is exploring how far others' perceptions of their spirituality may be unlocked using the WELLHEAD Toolkit techniques, including applications beyond communication disability.
Please note this came to publication in 2025 in the Journal of Disability and Religion. See revised details.
https://www.researchgate.net/publication/388515706_People_with_Aphasia_Shape_Spirituality_Research_Unlocking_Insights_into_Access_and_Acceptability
... Mumby subsequently originated WELLHEAD using a model first reported in Mumby and Hobbs (2017) with theoretical foundations which are described elsewhere aligning with Swinton's (2001) model of spirituality (Mumby & Grace, 2019). Since the WELLHEAD prototype (described in Mumby, 2018) was devised, two further studies confirmed the importance of spirituality for people with aphasia. Laures-Gore et al. (2018) used interviews and a questionnaire to derive themes from 13 individuals with a pre-existing diagnosis of "mild aphasia". ...
... Confidential one-to-one liaison concerning specific results was provided by email with prior consent, and in a limited way in private one-to-one conversations at the feedback sessions. Participants were encouraged to take a role in wider dissemination (contribution to conference presentations, feedback to local stroke-related groups, input into drafting papers where feasible), as exemplified in Mumby (2019). ...
... The third phase of analysis used additional transcription of the WELLHEAD interviews to provide more extensive thematic exploration concerning individual spirituality in comparison with the summaries. Describing Phase 3 here is important as it gives appropriate fuller context to the participant feedback (an example of a Phase 3 narrative may be found in Mumby, 2019). ...
Background: Spiritual aspects of aphasia rehabilitation are poorly understood, though identified within adjustment. Existing spiritual health assessments have not been used with people with aphasia, and no structured program to facilitate intervention has been documented, despite acknowledgements that spirituality is important in health and wellbeing and distinct from quality of life and mental health.
Aims: Mixed methods were used to investigate the accessibility and acceptability of a spiritual health assessment (SHALOM) and WELLHEAD, a toolkit originated by Mumby for spiritual health assessment and intervention, using the religiously neutral dimensions of “WIDE, LONG, HIGH, and DEEP”.
Method: A Steering group (five people with aphasia) shaped the feasibility study cyclically, agreeing that “Meaning and purpose” defined spirituality, and selecting SHALOM. WELLHEAD was modified collaboratively with the Steering group and Hospital Chaplain. A convenience sample of 10 people with aphasia (discharged from therapy) represented diverse aphasia histories, ages, and religious backgrounds. Participants completed a two-hour session using SHALOM, the WELLHEAD toolkit and a feedback questionnaire within video-recorded interviews. Quantitative results from all three components were integrated with a qualitative thematic analysis in NVivo 11 including numerical and descriptive summaries verified by the participants, feedback interview transcripts and field notes with reflections. The thematic analysis was systematically and independently verified by a co-researcher. Feedback from participants was further verified by incorporating their comments from reviewing the overall findings.
Results: Quantitative and qualitative feedback evaluated the materials positively. Thematic analysis provided evidence of the accessibility, acceptability, and positive impact of WELLHEAD irrespective of aphasia severity or aetiology, and religious background. “Belief”, “Faith”, and “Religion” were disambiguated. SHALOM was also linguistically and cognitively accessible with communication support even for those with severe aphasia. Scores from WELLHEAD and SHALOM were compared and set into the context of wider standardisation of SHALOM, providing the first evidence of spiritual health measures in participants with aphasia.
Conclusions: This preliminary work lays foundations for spiritual assessment and intervention in aphasia. Establishing the psychometric properties of SHALOM and WELLHEAD in people with aphasia requires a larger sample. Additional study of intervention is proposed, with clear potential for wider application of WELLHEAD in diverse settings and populations.
... Although the WELLHEAD feasibility study is reported separately (Mumby & Roddam 2018, and in preparation;Mumby 2019), some of the principles will be explored. WELLHEAD evolved from a desire to find common ground on which to look at some questions of spirituality in health and social care, proceeding in terms that were neutral enough to provide an acceptable starting point irrespective of life view, and yet encompassing a rich enough dialogue to explore areas which had potential for greater diversity. ...
Spirituality is a neglected aspect of healthcare and rehabilitation for those with acquired communication difficulties such as aphasia (language impairment) as a consequence of stroke, neurological disease and dementia. Collaborative working between health professionals and chaplaincy services in promoting spiritual health is desirable and necessary in the context of barriers to the delivery of spiritual care, which are explored from a hospital speech and language therapy perspective. Terminological and institutional barriers, restricted care provision, lack of knowledge and awareness, and lack of resources appropriate in communication impairment, gave rise to "WELLHEAD", a novel approach to spiritual health assessment, intervention and outcomes measurement originated by Dr Katharyn Mumby. The article describes the theoretical framework and content of WELLHEAD. Reflections are outlined about the positive collaboration between speech and language therapy, chaplaincy services and people with aphasia in feasibility work with WELLHEAD, an approach offering tools for further application and development.
Pada September 2021, Pertubuhan Pendidikan, Sains dan Kebudayaan Pertubuhan Bangsa-Bangsa Bersatu (UNESCO) telah melancarkan Sidang Kemuncak Pendidikan Transformasi (Transforming Education Summit) sebagai tindak balas kepada krisis global dalam pendidikan. Pelancaran ini merupakan inisiatif UNESCO menggembleng usaha pemulihan COVID-19 dan pemerkasaan Matlamat 4 Pendidikan Berkualiti, Matlamat Pembangunan Mampan (SDG) 2030. Hal ini kerana Pertubuhan Bangsa-Bangsa Bersatu (UN) mendedahkan bahawa COVID-19 telah memburukkan lagi krisis pembelajaran di dunia, 147 juta kanak-kanak tercicir lebih separuh daripada pengajaran dalam kelas sejak tahun 2020. Impak pandemik ini turut mengancam kemenjadian pelajar pelbagai peringkat pendidikan. Selaras dengan misi SDG, Kerajaan Negeri Kelantan komited dalam membangunkan rakyat menjadi insan mulia melalui pendidikan berdasarkan prinsip ketiga dalam Dasar Pendidikan Rabbani Kelantan (DPRK) iaitu Kemenjadian Insan Mulia. Prinsip ini menekankan generasi rabbani memiliki kecintaan ilmu pengetahuan dalam jiwa pelajar. Merujuk perspektif Islam, perbuatan menimba ilmu pengetahuan bermula dari peringkat rendah hingga ke peringkat tinggi perlu ditekankan dalam pembinaan insan mulia. Justeru, inisiatif pembangunan dan pemerkasaan pendidikan serta pemulihan krisis pendidikan merupakan kewajipan setiap individu. Jika kewajipan menimba ilmu hingga ke peringkat tinggi dipandang enteng maka kecintaan ilmu pengetahuan menjadi pudar malah menjejaskan kesejahteraan negara dan ummah. Sehubungan itu, kajian ini dikemukakan bagi membincangkan kelebihan pembangunan pelajar sekolah Yayasan Islam Kelantan (YIK) hasil pelaksanaan prinsip Kemenjadian Insan Mulia berdasarkan dalil al-Quran kecintaan ilmu pengetahuan dalam DPRK. Berasaskan metode analisis tekstual secara tematik, kajian kualitatif ini mendapati pelaksanaan prinsip Kemenjadian Insan Mulia berpotensi membangunkan kecintaan terhadap ilmu pengetahuan dan membantu mengurangkan krisis pendidikan global. Kajian ini turut positif prinsip Kemenjadian Insan Mulia berupaya menambah kualiti pendidikan negara dan mampu melahirkan generasi rabbani. Kesimpulannya, pelaksanaan prinsip DPRK dilihat berkemampuan menyumbang kepada usaha pembangunan pelajar secara holistik sebagai insan mulia yang diperlukan oleh masyarakat dan negara. Kata kunci: Pembangunan, Kemenjadian, Insan Mulia, Pendidikan, DPRK
