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Individual RML Network Data (Example of Data Provided from Survey)

Individual RML Network Data (Example of Data Provided from Survey)

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Background: The demand for solid organ transplantation has spurred countries around the world to search for innovative policies and practices to increase the supply of organs. Spain has become a global reference point for organ donation with the highest transplantation rates. In Ontario, Canada the Ontario Trillium Gift of Life (TGLN) has sought t...

Context in source publication

Context 1
... 2 illustrates one individual RML network and depicts how SNA provides a more detailed examination of individual ego-centric network maps (eg, of RML network depicted in yellow). Table 4 is representative of the many HDPs who seek out this RML for advice on donation, and the frequency of their interactions (eg, weekly, bi-weekly, monthly or > monthly). ...

Citations

Article
Background: There has not been a comprehensive global survey of pediatric-deceased donor allocation practices across all organs since the advent of deceased donor transplantation at the end of the 20th century. As an international community that is responsible for transplanting children, we set out to survey the existing landscape of allocation. We aimed to summarize current practices and provide a snapshot overview of deceased donor allocation practices to children across the world. Methods: The International Registry in Organ Donation and Transplantation (IRODAT, www.irodat.org) was utilized to generate a list of all countries in the world, divided by continent, that performed transplantation. We reviewed the published literature, published allocation policy, individual website references and associated links to publicly available listed allocation policies. Following this, we utilized tools of communication, relationships, and international fellowship to confirm deceased donation pediatric centers and survey pediatric allocation practices for liver, kidney, heart, and lung across the world. We summarize pediatric allocation practices by organ when available using source documents, and personal communication when no source documents were available. Results: The majority of countries had either formal or informal policies directed toward minimizing organ distribution disparity among pediatric patients. Conclusion: Children have long-term life to gain from organ donation yet continue to die while awaiting transplantation. We summarize global strategies that have been employed to provide meaningful and sustained benefit to children on the waitlist.