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While research in healthcare service provision for transgender and gender diverse (TGD) people has seen rapid progress, health information communication technologies (health ICTs) research on this key population is falling behind. Blindspots in the literature risk perpetuating systemic barriers to healthcare access. This critical, cross-disciplinar...
Contexts in source publication
Context 1
... are 'logistical and cultural caveats to using ICD codes to define [TGD] identity in [electronic health record] studies' ( Blosnich et al., 2018, p. 907). Some TGD people do not want or need a documented TGD-related diagnosis (Ehrenfeld et al., 2019), while others have a diagnosis but do not necessarily identify as transgender or gender diverse . Clinicians may have 'purposefully kept [TGD]-related terms out of the notes at the behest of their patients or to protect their patients' privacy' (Blosnich et al., 2018, p. 907). ...
Context 2
... study that advocates for an intersectional lens is . It draws explicit attention to its geographical bias, noting in its limitations section that '[a]ll included articles were from Western countries and cultures, limiting generalizability to other settings and creating a bias for Western ideals and strategies' (Davison et al., 2021, p. 10). The study encourages researchers to involve gender minorities, elderly TGD people, Indigenous TGD people, and TGD immigrants in the research process. ...
Context 3
... provide holistic care for patients, it is important to understand the social determinants and the systemic barriers that shape the lived experiences of the individual, and reliance on TGD-related ICD codes in algorithms does not provide this level of detail. TGD-related ICD codes tend to aggregate the rich diversity of gender expression, removing much of the nuance that would benefit the researcher (Sequeira et al., 2020). This makes it difficult, or even impossible, to disaggregate the patients even into such broad groups as trans feminine, trans masculine and non-binary persons, details that could be highly significant within the research and within the monitoring of health disparities ( . ...
Context 4
... a broad range of contexts that accurately represent the huge range of diversity in TGD people's lives around the world, the publication of scientific, peer-reviewed health ICT research risks legitimizing the voices and experiences from certain contexts over others. This leads to forms of testimonial injustice by reenforcing the preexisting assumption that the needs of TGD people are universal and homogenous, and that the TGD voices from North America accurately represent the voices of all members of the global TGD communities (Fricker, 2007). ...
Context 5
... overall aim of this research agenda is to promote the building of a body of systematic knowledge that improves the development and use of health ICTs that affect the lives of TGD people. It contains four research streams, together with three methodological approaches, and two foundations to orient the research (Figure 2). So doing, it presents not only the work that needs to happen, but also how the work should take place. ...
Context 6
... foundations orient the research within this area. (1) All research in this domain is critical research, and (2) the research domain is contextually contingent (Figure 2). ...
Context 7
... they address major blind spots in the literature in relation to health ICTs and TGD health equity by building systematic knowledge and exploring solutions. The streams of research are (1) structural, systemic issues, (2) burden of change, (3) proxies for TGD identities and (4) privacy and invisibilization (Figure 2). ...
Citations
... The advent of ICTs and computer-based software for PMM, particularly in the late 1980s and early 1990s, significantly propelled the development of new tools and frameworks for performance evaluation (Paolini, 2022). Health ICTs are digital technologies applied in the field of healthcare to improve the management, delivery and accessibility of healthcare services and to improve communication and information exchange between patients and healthcare providers (De Rosis et al., 2020;Wyers, 2024). This technological shift aimed to enhance the timeliness and accuracy of measurement and reporting as well as forecast the impacts of actions on desired performance through cause-and-effect relationships . ...
Purpose
This article aims to provide the current state of the art of the literature on the contribution of information and communication technologies (ICTs) on the measurement and management of performance in the healthcare sector. In particular, the work aims to identify current and emerging ICTs and how these relate to the performance measurement and management (PMM) cycle of healthcare organizations.
Design/methodology/approach
To address the research objective, we adopted a systematic literature review. In particular, we used the preferred reporting items for systematic reviews and meta-analysis (PRISMA) methodology to select articles related to the investigated topic. Based on an initial screening of 560 items retrieved from Scopus and ISI Web of Knowledge, we identified and analyzed 58 articles dealing with ICTs and PMM in the healthcare sector. The last update of the dataset refers to February 2024.
Findings
Although we attempted to address a relevant topic for both research and practice, we noticed that a relatively small sample of articles directly addressed it. Through this literature review, in addition to providing descriptive statistics of research on ICTs and PMM in healthcare, we identified six theoretical clusters of scientific streams focusing on the topic and eleven categories of ICTs effectively tackled by the literature. We then provided a holistic framework to link technologies to the different PMM phases and functions.
Practical implications
Nowadays, the availability of ICTs to support healthcare organizations’ processes and services is extensive. In this context, managers at various organizational levels need to understand and evaluate how each ICT can support different activities to benefit most from their adoption. The findings of this study can offer valuable insights to top and line managers of healthcare organizations for planning their investments in both existing and emerging ICTs to support the various stages of development and functions of PMM.
Originality/value
Most of the current literature focusing on ICTs in the healthcare sector refers to the contribution that technology provides to clinical processes and services, devoting limited attention to the impact of ICTs on administrative processes, such as PMM. To the best of the authors’ knowledge, this represents the first literature review on the contribution of ICTs to PMM in the healthcare sector. The review, differently from other research focused on specific ICTs and/or specific PMM functions, provides a holistic perspective to understand how these technologies may support healthcare organizations and systems in measuring and managing their performance.
This paper reports on findings from 31 semi‐structured interviews with North American Information and Communication Technologies (ICTs)‐based content creators who focus on LGBTQIA+ history. While the research broadly explored the information practices and digital preservation strategies of these content creators, this paper highlights how the participants navigated their respective ICT choices (ranging from personal blogs to Instagram accounts) and what affordances and constraints emerged from these choices. The paper highlights how such potentialities and pitfalls across varied social media and web‐based platforms informed the sociotechnical practices of queer historical knowledge production and how the participants leveraged the features of various ICTs to expand the visibility of queer‐affirming content and resources. The paper concludes by exploring these practices and their theoretical and practical implications for practitioners at the intersection of digital curation and archiving marginalized histories with an explicit emphasis on collaborative rather than extractive opportunities for collaboration between such content creators and cultural heritage institutions.
This editorial introduces the core message and contributions of the Special Issue on Feminist and Queer Approaches to ICT4D. We contextualize our Call for Papers and the published works against the backdrop of the COVID-19 pandemic and the #MeToo and women's marches movements. We also place this Special Issue in the context of adverse digital incorporation, which characterizes present-day ICT4D research and further highlights the importance of a feminist and queer lens within its landscape. We develop a conceptual apparatus to articulate such a lens, integrating feminist and queer theory with views of data justice, algorithmic resistance, decolonial theorization, and the digital technologies in solidarity-making. Using this framework, we present the seven papers from this Special Issue, highlighting their synergies, but also their unique contributions to a feminist and queer view of ICT4D. We conclude with potential future research paths inspired by this Special Issue.
