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Distributed data generators and consumers in translational research.  

Distributed data generators and consumers in translational research.  

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In this paper we review the regulatory landscape and its impact on translational research, and define the key attributes of an “ideal” system to overcome the challenges of conducting translational research while respecting patient privacy.

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... translational research process (Fig. 1) is com- plex, multi-step, and interdisciplinary, with a wide variety of data generators, data types, volumes, types and formats, plus a range of data consumers (Fig. 2). This complexity presents a number of oper- ational challenges that have the potential to impact patient security and privacy, as ...

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