Correlations between the mother's burden and the child's quality of life scores. 

Correlations between the mother's burden and the child's quality of life scores. 

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Objective To evaluate the child’s quality of life (QoL), mother’s burden, and correlation between these parameters in children with spastic cerebral palsy (CP). Methods Children with spastic CP (n = 120; mean age: 8.64 ± 3.45 years; range: 2–17 years) were classified into three groups of diplegia, hemiplegia, and quadriplegia based on topographica...

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... were significant negative correla- tions between the mother's burden and the child's QoL profiles, including physical func- tioning (r ¼ À0.546, p < 0.001), emotional functioning (r ¼ À0.595, p < 0.001), social functioning (r ¼ À0.489, p < 0.001), school functioning (r ¼ À0.464, p < 0.001), psycho- social health (r ¼ À0.428, p<0.001), and the total score (r ¼ À0.400, p < 0.001) (Table 3). No significant correlation was found between the mother's burden and the child's age parameters (r ¼ -0.120). ...

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... This situation causes emotional and physical difficulties, expressed as the care burden (2). Studies have shown that the care burden for the parents of children with chronic disease is greater than for those with acute disease, and the care burden of the parents of those with severe disease is higher than those with mild disease (18,19). It has been reported that the burden of care for children with chronic and complex problems is not related to the severity and type of medical equipment, such as mechanical ventilation (20). ...
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Original Article Determination of the self-efficacy levels of parents with a child with cerebral palsy and the comparison of the parental self-efficacy levels
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... As expected, the largest effect size is in the domain of physical demands of typical home activities, thus reflecting great disparities between two groups of children. Everyday care of a child with profound multiple disabilities, including CP, is often a source of stress and burden on parents [59,60]. Parents of children with complex needs spend more time in child-related care than the general population of parents, and a physical care makes a significant part of that caregiving burden in children with reduced functional ability [61]. ...
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... Bentuk penelitian ini adalah analitik observasional dengan rancangan potong lintang (cross sectional) pada anak usia[1][2][3][4][5][6][7][8][9][10][11][12][13][14][15][16][17][18] tahun yang telah terdiagnosis CP tipe spastik sebelumnya dan kontrol ke Klinik Neuropediatri, klinik Ilmu Kedokteran Fisik dan Rehabilitasi (IKFR) Rumah Sakit Hasan Sadikin (RSHS) Bandung dan Klinik Sekolah Luar Biasa (SLB) Yayasan Pendidikan Anak Cacat (YPAC), pada bulan Mei-Juni 2019. Pemilihan sampel dilakukan dengan cara consecutive sampling. ...
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Latar belakang. Serebral palsi (CP) merupakan penyebab disabilitas kronik tersering pada anak. Anak CP mengalami pertumbuhan kurang baik, seiring dengan bertambah beratnya derajat fungsi motorik kasar. Tebal lipat kulit (TLK) dan lingkar lengan atas (LLA) merupakan parameter antropometri yang dapat digunakan untuk menilai status gizi anak CP tipe spastik.Tujuan. Menganalisis hubungan derajat fungsi motorik kasar dengan status gizi pada anak CP tipe spastikMetode. Penelitian dengan rancang potong lintang. Subjek adalah anak usia 1-18 tahun telah terdiagnosis CP tipe spastik, kontrol ke klinik neuropediatri, ilmu kedokteran fisik dan rehabilitasi (IKFR) RS.Hasan Sadikin Bandung dan klinik sekolah luar biasa Yayasan Pendidikan Anak Cacat (YPAC) Bandung, dipilih secara consecutive sampling pada Mei-Juni 2019. Dilakukan pemeriksaan derajat fungsi motorik kasar menggunakan gross motor function classification system (GMFCS), pengukuran LLA dan TLK triseps. Uji statistik menggunakan Uji chi–kuadrat, dengan nilai kemaknaan p<0,05.Hasil. Enam puluh anak CP tipe spastik mengikuti penelitian, terdiri dari 28 laki-laki dan 32 perempuan. Terdapat 28 anak (46,7%) memiliki status gizi kurang dan 2 anak (3,3%) memiliki status gizi lebih berdasarkan LLA. Terdapat 12 anak (20%) memiliki status gizi kurang berdasarkan TLK triseps. Tidak terdapat hubungan antara derajat fungsi motorik kasar dan status gizi berdasarkan LLA p= 0,388 dan TLK p=0,605. Terdapat hubungan topografi dengan status gizi berdasarkan LLA p=0,016.Kesimpulan. Tidak terdapat hubungan antara derajat fungsi motorik kasar dan status gizi.