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A pie chart showing the amount of funding with strong links to the 83 PeolcPSP questions
Source publication
This report highlights under-researched areas in palliative and end of life care. It provides a snapshot of ongoing and very recent research by mapping research activity in 2014 against 83 questions from patients, carers and health and social care professionals. The questions were identified through the Palliative and end of life care Priority Sett...
Contexts in source publication
Context 1
... Figure 1 shows that in 2014, four of the questions were not addressed by any funding, with no strong or even weak connections to current research. ...
Context 2
... 8 Health and Social Care Research into the provision and delivery of health and social care Services Research services, health policy and studies of research design, measurements and methodologies 0 2,000,000 4,000,000 6,000,000 8,000,000 10,000,000 Figure 10 shows the distribution of the research activity group in relation to each of the top 10 priorities. For all these priorities, most funding sits in research activity groups 7 and 8. ...
Context 3
... is another example of the lack of research on carers. The pie chart (Figure 11b) shows that the highest proportion of research funding relating to bereavement support is from charitable funders, with governmental funders from England and Northern Ireland making up a quarter of the total. Figure 11c shows that most of the indirect funding addressing bereavement related to neurological conditions such as dementia. ...
Context 4
... pie chart (Figure 11b) shows that the highest proportion of research funding relating to bereavement support is from charitable funders, with governmental funders from England and Northern Ireland making up a quarter of the total. Figure 11c shows that most of the indirect funding addressing bereavement related to neurological conditions such as dementia. In addition, the majority of the grants addressing bereavement were qualitative research projects. ...
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Citations
There are many uncertainties regarding Cystic Fibrosis (CF) treatment. Recently, the first James Lind Alliance (JLA) Priority Setting Partnership (PSP) in CF was completed, bringing clinicians, patients and carers together to identify the Top 10 research priorities. Here we investigate how well the current clinical trials landscape reflects these priorities. Trials in CF were identified through searches of research databases (Pubmed, ANZCTR, EU clinical trials register, ClinicalTrials.gov and ISRCTN). Trials meeting inclusion criteria of registered intervention studies in CF published between 01.012016 and 11.09.2017 were matched to the Top 10 priorities. We identified 259 trials, with 193 fulfilling the inclusion criteria. Only 63 (33%) of these matched one or more of the JLA priorities showing that current clinical trials poorly reflect the JLA Top 10. By increasing awareness of the Top 10 priorities, it is hoped that this will fuel future research in areas important to the CF community.
