H McConachie

Publications (3)5.46 Total impact

• Article: Pioneers of service development for children with intellectual disability.

  H McConachie
  Child Care Health and Development 07/2012; 38(6):761-2. · 1.20 Impact Factor
• Article: Finding out what matters: validity of quality of life measurement in young people with ASD.

  L Tavernor, E Barron, J Rodgers, H McConachie
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  ABSTRACT: Background  Compared with other conditions there has been a lack of focus on quality of life (QoL) as an outcome measure for children and young people with Autism Spectrum Disorder (ASD). This pilot study aimed to evaluate the validity of existing QoL questionnaires for use with children with ASD aged 8-12 years. Methods  A literature review (1990-2011) identified the PedsQL (Pediatric Quality of Life Inventory) and Kidscreen as robust measures used with children with neurodevelopmental disorders. These measures were completed by 10 children and 11 parents. In addition semi-structured interviews were conducted with 10 parents and four children to explore their experience of completing the QoL questionnaires. Results  Young people with ASD, and their parents, report lower child QoL compared with a normative sample. Framework analysis of the data highlighted six key themes which may affect the validity of generic QoL measures when administered within an ASD sample and which warrant further investigation. Conclusions  Our results indicate that a new condition-specific measure of QoL, grounded in ASD children's own perspectives of their lives, is needed and that such a measure should assess experiences of anxiety and access to special interests when measuring QoL of children with ASD. Active involvement of young people and their families is critical for the development of a theoretical framework for QoL within ASD, and any future development of an ASD-specific measure.
  Child Care Health and Development 04/2012; · 1.20 Impact Factor
• Article: The relationship between anxiety and repetitive behaviours in autism spectrum disorder.

  J Rodgers, M Glod, B Connolly, H McConachie
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  ABSTRACT: Children with Autism Spectrum Disorder are vulnerable to anxiety. Repetitive behaviours are a core feature of Autism Spectrum Disorder (ASD) and have been associated anxiety. This study examined repetitive behaviours and anxiety in two groups of children with autism spectrum disorder, those with high anxiety and those with lower levels of anxiety. Children with high anxiety had more repetitive behaviours than those without anxiety. Within the anxiety sample, higher levels of insistence on sameness were associated with more anxiety. No association was found between sensory motor repetitive behaviours and anxiety in this group. In the non-anxious sample, anxiety was associated with sensory motor repetitive behaviours. These findings indicate a differential relationship for repetitive behaviours in relation to anxious and non-anxious children with ASD.
  Journal of Autism and Childhood Schizophrenia 04/2012; 42(11):2404-9. · 3.06 Impact Factor