Clive Morris

The Canberra Hospital, Canberra, Australian Capital Territory, Australia

Are you Clive Morris?

Claim your profile

Publications (4)32.52 Total impact

  • Source
    [Show abstract] [Hide abstract]
    ABSTRACT: Data sharing is an essential element of research; however, recent scientific and social developments have challenged conventional methods for protecting privacy. Here we provide guidance for determining data sharing thresholds for human pluripotent stem cell research aimed at a wide range of stakeholders, including research consortia, biorepositories, policy-makers, and funders.
    Cell stem cell 04/2014; 14(4):427-30. DOI:10.1016/j.stem.2014.03.014 · 23.56 Impact Factor
  • Clive Morris
    [Show abstract] [Hide abstract]
    ABSTRACT: NHMRC is Australia’s major governmental funding body for health and medical research and sets national standards for ethics in health care and research. To maximize the benefits to Australia’s health and prosperity NHMRC works in partnership nationally and internationally to direct its efforts towards the most pressing health challenges. New and emerging health threats such as infectious disease, environmental hazards and changes in the human environment were identified as a priority action area in NHMRC’s current 3-year plan. In November 2012, NHMRC reviewed its responses to previous major international infectious disease outbreaks (see http://www.nhmrc.gov.au/media/events/2012/h5n1-are-we-prepared ). It was noted that are always significant delays between onset of the situation, identification of research needs and commencement of research, to the detriment of obtaining effective research outcomes. These delays include setting up calls for applications and awarding of grants through to regulatory and ethics approval processes. In considering how to minimize delays between emergence of major disease threats and the commencement of essential research activities, NHMRC has been exploring mechanisms for having research ‘ready to go’, including agreed protocols, active participation in international networks, and a capacity to undertake research during ‘regular; disease outbreaks (seasonal influenza). This presentation will describe our new future funding model and partnership building strategy which aims to address delays in responding to health emergencies.
    American Association for the Advancement of Science 2015 Annual Meeting; 02/2014
  • Source
    [Show abstract] [Hide abstract]
    ABSTRACT: Prompted by an increased interest of both research participants and the patient advocacy community in obtaining information about research outcomes and on the use of their biological samples; the international community has begun to debate the emergence of an ethical 'duty' to return research results to participants. Furthermore, the use of new technologies (e.g., whole-genome and -exome sequencing) has revealed both genetic data and incidental findings with possible clinical significance. These technologies together with the proliferation of biorepositories, provide a compelling rationale for governments and scientific institutions to adopt prospective policies. Given the scarcity of policies in the context of stem cell research, a discussion on the scientific, ethical and legal implications of disclosing research results for research participants is needed. We present the International Stem Forum Ethics Working Party's Policy Statement and trust that it will stimulate debate and meet the concerns of researchers and research participants alike.
    Regenerative Medicine 05/2012; 7(3):439-48. DOI:10.2217/rme.12.23 · 3.87 Impact Factor
  • Source
    [Show abstract] [Hide abstract]
    ABSTRACT: Novel methods and associated tools permitting individual identification in publicly accessible SNP databases have become a debatable issue. There is growing concern that current technical and ethical safeguards to protect the identities of donors could be insufficient. In the context of human embryonic stem cell research, there are no studies focusing on the probability that an hESC line donor could be identified by analyzing published SNP profiles and associated genotypic and phenotypic information. We present the International Stem Cell Forum (ISCF) Ethics Working Party's Policy Statement on "Publishing SNP Genotypes of Human Embryonic Stem Cell Lines (hESC)". The Statement prospectively addresses issues surrounding the publication of genotypic data and associated annotations of hESC lines in open access databases. It proposes a balanced approach between the goals of open science and data sharing with the respect for fundamental bioethical principles (autonomy, privacy, beneficence, justice and research merit and integrity).
    Stem cell reviews 09/2011; 7(3):482-4. DOI:10.1007/s12015-010-9226-2 · 5.08 Impact Factor

Publication Stats

15 Citations
32.52 Total Impact Points

Institutions

  • 2014
    • The Canberra Hospital
      Canberra, Australian Capital Territory, Australia
  • 2011
    • National Health and Medical Research Council, Australia
      Canberra, Australian Capital Territory, Australia