Bernd Quadder

Bundesärztekammer, Berlín, Berlin, Germany

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Publications (6)0.27 Total impact

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    ABSTRACT: The involvement of patients in the development of clinical guidelines essentially aims at ensuring and improving the quality of patient-centred care. Hence, it becomes an important tool for quality management in medicine since patients are learning the hard way where clinical care is lacking. This may include the inappropriate consideration of current medical knowledge, the unintelligible or insufficient information and education of the patient or information gaps at the interface between care settings. These experiences from the patients' perspective can be purposefully integrated in quality assurance measures, for example, by including the patient perspective in clinical guidelines and patient guidelines. Suitable procedures for the collection and presentation of the experiences of patient organisations are essential for the successful involvement of patients in guideline programmes. Patient organisations collect data on the experiences and attitudes of their members for different purposes. A systematic approach has been sought but hardly practised so far. This is the result demonstrated in a survey among 112 member organisations of the "Bundesarbeitsgemeinschaft SELBSTHILFE von Menschen mit Behinderung und chronischer Erkrankung und ihren Angehörigen e.V." (BAG SELBSTHILFE), a federal German self-help association of disabled and chronically ill people and their relatives. Patient participation in the "Programm for Nationale VersorgungsLeitlinien" ["Programme for National Disease Management Guidelines"] has been practised at the Agency for Quality in Medicine (AEZQ) since 2005. The experiences that have been made by those involved with integrating the concerns of patient representatives provide a starting point for a practical handout for patients and consumers participating in guideline programmes. The "Handbuch Patientenbeteiligung-Beteiligung am Programm für Nationale VersorgungsLeitlinien" [Handbook of Patient Participation in the Programme for National Disease Management Guidelines] is intended to make the process of patient participation in guideline programmes transparent and practicable. It describes the background, the organisation and the process of patient participation and offers useful advice to participating patient organisations and their representatives. In this context the question of how patient experiences might be introduced in the guideline and patient guideline development process in a structured and purposeful manner is of special importance. But so far there is too little experience, both nationally and internationally. A survey among self-help organisations shall provide an initial overview.
    Zeitschrift für Evidenz Fortbildung und Qualität im Gesundheitswesen 02/2009; 103(1):13-6.
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    ABSTRACT: The involvement of patients in the development of clinical guidelines essentially aims at ensuring and improving the quality of patient-centred care. Hence, it becomes an important tool for quality management in medicine since patients are learning the hard way where clinical care is lacking. This may include the inappropriate consideration of current medical knowledge, the unintelligible or insufficient information and education of the patient or information gaps at the interface between care settings. These experiences from the patients’ perspective can be purposefully integrated in quality assurance measures, for example, by including the patient perspective in clinical guidelines and patient guidelines. Suitable procedures for the collection and presentation of the experiences of patient organisations are essential for the successful involvement of patients in guideline programmes. Patient organisations collect data on the experiences and attitudes of their members for different purposes. A systematic approach has been sought but hardly practised so far. This is the result demonstrated in a survey among 112 member organisations of the „Bundesarbeitsgemeinschaft SELBSTHILFE von Menschen mit Behinderung und chronischer Erkrankung und ihren Angehörigen e.V.“ (BAG SELBSTHILFE), a federal German self-help association of disabled and chronically ill people and their relatives. Patient participation in the „Programm für Nationale VersorgungsLeitlinien®“ [“Programme for National Disease Management Guidelines”] has been practised at the Agency for Quality in Medicine (AEZQ) since 2005. The experiences that have been made by those involved with integrating the concerns of patient representatives provide a starting point for a practical handout for patients and consumers participating in guideline programmes. The „Handbuch Patientenbeteiligung – Beteiligung am Programm für Nationale VersorgungsLeitlinien®“ [Handbook of Patient Participation in the Programme for National Disease Management Guidelines] is intended to make the process of patient participation in guideline programmes transparent and practicable. It describes the background, the organisation and the process of patient participation and offers useful advice to participating patient organisations and their representatives. In this context the question of how patient experiences might be introduced in the guideline and patient guideline development process in a structured and purposeful manner is of special importance. But so far there is too little experience, both nationally and internationally. A survey among self-help organisations shall provide an initial overview.
    Zeitschrift für Evidenz Fortbildung und Qualität im Gesundheitswesen 01/2009; 103(1). DOI:10.1016/j.zefq.2008.12.018
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    ABSTRACT: In discussions on the quality of cross-sectorial health-care services high importance is attributed to patient education and patient counseling, with guideline-based patient information being considered a crucial tool. Guideline-based patient information is supposed to serve patients as a decision-making basis and, in addition, to also support the implementation of the guidelines themselves. The article highlights how patient guidelines for National Disease Management Guidelines in Germany--within the scope of patient education and patient counseling--may provide a uniform information platform for physicians and patients aiming to promote shared decision-making. The authors will also address the issue which contents should be included in patient guidelines in order to meet these requirements and which measures are required to review their quality. The present paper continues the series of articles on the Program for German National Disease Management Guidelines.
    Medizinische Klinik 07/2007; 102(6):474-9. · 0.27 Impact Factor
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    ABSTRACT: In Qualitätsdebatten zur sektorenübergreifenden Versorgung wird der Patientenaufklärung und -beratung eine große Bedeutung beigemessen. Als ein entscheidendes Medium hierfür werden leitlinienbasierte Patienteninformationen angesehen. Sie sollen Patienten als Entscheidungsgrundlage dienen und darüber hinaus die Implementierung der Leitlinien selbst unterstützen. Der Beitrag stellt heraus, dass PatientenLeitlinien zu Nationalen VersorgungsLeitlinien als einheitliche Informationsbasis für Arzt und Patient im Rahmen der Aufklärung und Beratung mit dem Ziel einer gemeinsamen Entscheidungsfindung dienen können. Er geht darauf ein, welche Inhalte PatientenLeitlinien haben sollten, um diesen Anforderungen gerecht zu werden, und welche Maßnahmen zur Überprüfung ihrer Qualität erforderlich sind. Der vorliegende Beitrag setzt die Serie über das Programm für Nationale VersorgungsLeitlinien fort. In discussions on the quality of cross-sectorial health-care services high importance is attributed to patient education and patient counseling, with guideline-based patient information being considered a crucial tool. Guideline-based patient information is supposed to serve patients as a decision-making basis and, in addition, to also support the implementation of the guidelines themselves. The article highlights how patient guidelines for National Disease Management Guidelines in Germany – within the scope of patient education and patient counseling – may provide a uniform information platform for physicians and patients aiming to promote shared decision-making. The authors will also address the issue which contents should be included in patient guidelines in order to meet these requirements and which measures are required to review their quality. The present paper continues the series of articles on the Program for German National Disease Management Guidelines.
    Medizinische Klinik 05/2007; 102(6):474-479. DOI:10.1007/s00063-007-1060-1
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    ABSTRACT: 1 rztliches Zentrum fü r Qualitä t in der Medizin (ZQ), Berlin 2 SND-Netz in Aktion, Mü nster 3 ilco – Deutsche Ileostomie – Colostomie – Urostomie – Vereinigung e.V., Bonn 4 Deutsche Sarkoidose Vereinigung e.V., Meerbusch Zusammenfassung Die Beteiligung von Patientenvertretern am Programm fü r Nationale Ver-sorgungsLeitlinien wird seit 2005 umgesetzt. Derzeit wird sie hauptsahl-ich im Rahmen der patientenseitigen Kommentierung von Konsultationspapieren zu Nationalen VersorgungsLeitlinien (NVL) und in der Erstellung NVL-basierter PatientenLeitlinien (PL) realisiert. Die redak-tionelle Arbeit an den PatientenLeitlinien erfolgt von Beginn bis hin zur Verö ffentlichung in einer engen Zusammenarbeit mit den vom Patienten-forum benannten Patientenvertretern. Zwischen Juni 2005 und September 2006 wurden drei NVL und drei PL zu den Themen Asthma, chronisch obstruktive Lungenerkrankung und chronische koronare Herzkrankheit mit Patientenbeteiligung erarbeitet. Die erstellten Informationen sind un-ter der Adresse http://www.versorgungsleitlinien.de frei zugaglich. Dieser Beitrag fokussiert auf die Erstellung von PatientenLeitlinien. Er beschreibt den gegenwä rtigen Stand der Einbeziehung und gemeinsamen Arbeit und zeigt Konsequenzen auf, die sich hieraus fü r die Patientenbeteiligung am NVL-Programm ableiten lassen. So werden Erfahrungen, die sich aus der bisherigen NVL-und PL-Entwicklung ergeben, begleitend zum Beteili-gungsverfahren kontinuierlich in Hinblick auf Mö glichkeiten zur metho-dischen Weiterentwicklung der Patientenbeteiligung von einer Arbeitsgruppe des Patientenforums im Kontakt mit den beteiligten Pati-entenorganisationen untersucht. Dabei sollen insbesondere auch die sich aus der intensiveren Patientenbeteiligung bei der PL-Entwicklung erge-benden Verfahrensweisen auf ihre Relevanz fü r eine Ausweitung der Pa-tientenbeteiligung an der NVL-Entwicklung ü berprü ft werden.
    03/2007; 101:109-116. DOI:10.1016/j.zgesun.2007.01.005
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    ABSTRACT: Patient involvement has been implemented in the Program for National Disease Management Guidelines since 2005. Currently patient/consumer participation is being incorporated in terms of patients' comments of consultation papers on National Disease Management Guidelines (NDMG) and in the development of NDMG-based patient guidelines (PG). The editorial activities in patient guideline development from the beginnings to its publication are conducted in close cooperation with the patient representatives appointed by the Patient Forum. Between June 2005 and September 2006, three NDMG and three patient guidelines on asthma, chronic obstructive pulmonary disease (COPD) and chronic coronary artery disease (CAD) were produced by including patients in the guideline development process. The information provided in these guidelines is freely accessible at http://www.versorgungsleitlinien.de. The present contribution focuses on the development of patient guidelines. It describes the current state of patient involvement and joint work and indicates the implications that can be derived from patient participation in the NDMG Program. Accompanying the involvement procedures, experiences resulting from previous NDMG and PG development activities are continuously investigated for the possibility of further methodological development of consumer participation by a work group of the Patient Forum in coordination with the patient organizations involved. In particular, the procedures resulting from more intensive patient participation in patient guideline development are to be examined as to their relevance for the expansion of patient involvement in NDMG development.
    02/2007; 101(2):109-16.