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Publications (4)0.88 Total impact

  • Annalyn Valdez-Dadia, Marjorie Kagawa-Singer
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    ABSTRACT: Purpose: This study characterizes the structure of two successful Asian American and Pacific Islander (AAPI) cancer support groups to identify potential culturally-specific elements that differentiate them from mainstream programs. Methods: Inductive qualitative interviews were conducted in San Gabriel and Carson, California, with a total of 54 individuals from 3 different (AAPI) ethnic groups (Chinese-American, Samoan, and Pilipino-Americans): 22 cancer survivors, 26 caregivers and family members, and 6 key informants. Results: The cultural elements (i.e. language, cultural etiquette, and spiritual support) provided by these AAPI groups enabled patients, survivors, family, and friends to develop new social networks needed to achieve a greater sense of well-being. However, although the common goal for the support groups was the acceptance of the individuals’ identity as a cancer survivor, the goals of the AAPI culturally-based groups appeared to differ from those mainstream non-Hispanic white culturally-based groups. The goal for the AAPI groups was to experience a shared journey and sense of belonging to build a new “family.” This is in contrast to the more individualized sense of integrity implicitly promoted in support groups that use a dominant U.S. societal definition of personhood. Conclusions/Implications for Cancer Survivors: These findings indicate that ethnic-specific cultural values and concepts of personhood need to be included in the creation of support groups in diverse populations. Findings from this study could inform the development of a culturally-based cancer support group model that could be used to assess the salient objectives, culturally-grounded goals, and modes of social support for other ethnic groups.
    142nd APHA Annual Meeting and Exposition 2014; 11/2014
  • Annalyn Valdez-Dadia
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    ABSTRACT: Background: Cultural and linguistic barriers are often contributing factors in accessing health services at different points on the cancer care continuum. Proper assistance and guidance from patient navigators may serve as a mechanism for addressing delays in utilization and receipt of cancer care services among Southeast Asian breast cancer (SEA-BC) patients. Purpose: This study examines whether the Patient Navigator Outreach and Chronic Disease Prevention Act (PNA) served as a catalyst for increasing the availability of cancer patient navigation programs (PNPs) in Los Angeles and Orange County hospitals and if the availability of PNPs had an impact on improving timeliness between diagnosis and treatment. Methods: Hospital personnel were surveyed by mail or telephone to assess: 1) facility awareness of the PNA, 2) the role legislation in establishing PNPs, and 3) the quality of established PNPs in providing services to SEA-BC patients. Two surveys categorized hospitals as PNP-Available (PNPs established 2006-2010), or PNP-Unavailable (no PNPs and PNPs established post-2010). Regional registry data provided aggregated patient data in the surrounding census tracts of each facility and grouped according to PNP availability. Time between diagnosis and surgery was compared between facilities according to PNP availability. Results: The surveys informed the categorization of 13 facilities (4 PNP-Available and 9 PNP-Unavailable). Survey responses indicated that the PNA was not related to PNP availability, highlighted the diversity of available PNPs, and provided information pertaining to implementation of PNPs. Registry data showed no differences in time to treatment between PNP-Available facilities or between PNP-Available and PNP-Unavailable facilities. Conclusions: A larger sample of facilities with PNPs and analysis of time to treatment for patients using PNPs versus those not using PNPs may provide a better assessment of the association between PNPs and timeliness to care, and would allow for control of other confounding factors that may impact treatment delay.
    142nd APHA Annual Meeting and Exposition 2014; 11/2014
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    ABSTRACT: We examined whether the impact of medical interpretation services was associated with the receipt of a mammogram, clinical breast exam, and Pap smear. We conducted a large cross-sectional study involving four Asian American and Pacific Islander (AAPI) communities with high proportions of individuals with limited English proficiency (LEP). Participants were recruited from community clinics, churches and temples, supermarkets, and other community gathering sites in Northern and Southern California. Among those that responded, 98% completed the survey rendering a total of 1,708 AAPI women. In a series of multivariate logistic regression models, it was found that women who typically used a medical interpreter had a greater odds of having received a mammogram (odds ratio [OR] = 1.85; 95% confidence interval [CI] = 1.21, 2.83), clinical breast exam (OR = 3.03; 95% CI = 1.82, 5.03), and a Pap smear (OR = 2.34; 95% CI = 1.38, 3.97) than those who did not usually use an interpreter. The study provides support for increasing language access in healthcare settings. In particular, medical interpreters may help increase the utilization of breast and cervical cancer screening among LEP AAPI women.
    Journal of Cancer Education 03/2010; 25(2):253-62. · 0.88 Impact Factor
  • Marjorie Kagawa-Singer, Annalyn Valdez-Dadia, Lindsay Gervacio
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    ABSTRACT: Background/Significance: Few Asian American and Pacific Islander (AAPI) cancer survivors receive any support services throughout the cancer continuum. In addition to the growing number of AAPIs suffering from cancer, the paucity of support groups and culturally salient resources make a compelling argument for the evaluation of existing support services so as to define the distinct cultural variations that make these groups effective. Objective/Purpose: To identify culturally specific support group elements that impact the well-being of cancer patients, survivors, and their family/friends, and to identify how these variations differ from mainstream support groups. Methods: Forty support group participants (20 patients/survivors and 20 friends/family members) and 6 key informants (3 from each community) were recruited for a focus group or individual interview. Each patient/survivor involved in the support group was asked to identify a family member/friend who was part of their support network to participate in the study. Key informants were identified by two AAPI community-based agency leaders. Results: Culturally specific cancer support group programs increase the likelihood of survival and improve the lives of breast cancer patients/survivors as well as their caregivers, family members and friends. These support groups provide distinct cultural elements that enable cancer patients/survivors, family members and friends to access the services needed to achieve a greater sense of well-being. Conclusion: The resources, services and social support provided by the AAPI support groups have improved the lives of breast cancer patients, survivors, and their family members and friends by developing a greater sense of community, advocacy and self-empowerment.
    137st APHA Annual Meeting and Exposition 2009; 11/2009