Ginny Mason

Publications (4)4.53 Total impact

• Article: The Patient Advocate View.

  G Owen Johnson, Marilyn Kirschenbaum, Ginny Mason, Linda Riley Rush
  [show abstract] [hide abstract]
  ABSTRACT: Inflammatory breast cancer (IBC) is considered a rare disease by researchers and clinicians, and is classified as such by the Office of Rare Diseases by having a prevalence of fewer than 200,000 affected persons in the United States [1]. To affected persons, their family and friends, however, IBC is not rare; it is real, it is here, it is pain, its treatment is often filled with its own pain. As with many other diseases, IBC demands that patients be their own best advocate; no one is pre-trained for this role, it is all on-the-job-training. The "IBC Community" is comprised of those who have been diagnosed with IBC, their family, their friends, and interested other persons. It is a passionate, committed community, knit together principally by the Internet, e-mail, and telephone. The Inflammatory Breast Cancer Research Foundation was founded in 1999 by advocates, and focuses on education and awareness of IBC symptoms, diagnosis, and treatment, as well as assisting researchers and clinicians investigate IBC, the results of which will be of diagnostic and treatment value.
  Breast disease 10/2009; 22:3-8.
• Article: Management of a patient with inflammatory breast cancer.

  Ginny Mason
  [show abstract] [hide abstract]
  ABSTRACT: IBC is an aggressive breast cancer, sometimes mistaken for contact dermatitis, in which many patients do not have a palpable mass. Management of this deadly disease is evolving.
  Oncology (Williston Park, N.Y.) 07/2008; 22(8 Suppl Nurse Ed):29-32. · 1.03 Impact Factor
• Article: Inflammatory breast cancer: patient advocate view.

  Ginny Mason, Owen Johnson
  [show abstract] [hide abstract]
  ABSTRACT: Inflammatory breast cancer (IBC) is the most aggressive form of breast cancer, often presenting with distant metastasis. While controversy exists regarding the actual incidence of the disease, there is agreement that IBC causes a disproportionate number of breast cancer deaths. Those with typical IBC symptoms face a healthcare system that is often dismissive of their concerns. This is especially true for pregnant, lactating, and younger women. IBC remains poorly understood and diagnosis is frequently delayed due to a lack of knowledge in both the lay and medical communities. The IBC Research Foundation is committed to facilitating research that will improve diagnosis and treatment of IBC, as well as working to raise awareness of the disease in the medical community and general population.
  Seminars in Oncology 03/2008; 35(1):87-91. · 3.50 Impact Factor
• Article: Thanks for spotlighting this little known from of breast CA.

  Ginny Mason
  RN 08/2004; 67(7):12.