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ABSTRACT: ObjectivesTo determine age and gender differences in health-related quality of life (HRQOL) in children and adolescents across 12 European
countries using a newly developed HRQOL measure (KIDSCREEN).
MethodsThe KIDSCREEN-52 questionnaire was filled in by 21,590 children and adolescents aged 8–18 from 12 countries. We used multilevel
regression analyses to model the hierarchical structure of the data. In addition, effect sizes were computed to test for gender
differences within each age group.
ResultsChildren generally showed better HRQOL than adolescents (P<0.001). While boys and girls had similar HRQOL at young age, girls’ HRQOL declined more than boys’ (P<0.001) with increasing age, depending on the HRQOL scale. There was significant variation between countries both at the
youngest age and for age trajectories.
ConclusionsFor the first time, gender and age differences in children’s and adolescents’ HRQOL across Europe were assessed using a comprehensive
and standardised instrument. Gender and age differences exist for most HRQOL scales. Differences in HRQOL across Europe point
to the importance of national contexts for youth’s well-being.
Quality of Life Research 04/2012; 18(9):1147-1157. · 2.30 Impact Factor
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Ulrike Ravens-Sieberer,
Michael Erhart,
Luis Rajmil,
Michael Herdman,
Pascal Auquier,
Jeanet Bruil,
Mick Power,
Wolfgang Duer, Thomas Abel,
Ladislav Czemy,
Joanna Mazur,
Agnes Czimbalmos,
Yannis Tountas,
Curt Hagquist,
Jean Kilroe
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ABSTRACT: To assess the criterion and construct validity of the KIDSCREEN-10 well-being and health-related quality of life (HRQoL) score, a short version of the KIDSCREEN-52 and KIDSCREEN-27 instruments.
The child self-report and parent report versions of the KIDSCREEN-10 were tested in a sample of 22,830 European children and adolescents aged 8-18 and their parents (n = 16,237). Correlation with the KIDSCREEN-52 and associations with other generic HRQoL measures, physical and mental health, and socioeconomic status were examined. Score differences by age, gender, and country were investigated.
Correlations between the 10-item KIDSCREEN score and KIDSCREEN-52 scales ranged from r = 0.24 to 0.72 (r = 0.27-0.72) for the self-report version (proxy-report version). Coefficients below r = 0.5 were observed for the KIDSCREEN-52 dimensions Financial Resources and Being Bullied only. Cronbach alpha was 0.82 (0.78), test-retest reliability was ICC = 0.70 (0.67) for the self- (proxy-)report version. Correlations between other children self-completed HRQoL questionnaires and KIDSCREEN-10 ranged from r = 0.43 to r = 0.63 for the KIDSCREEN children self-report and r = 0.22-0.40 for the KIDSCREEN parent proxy report. Known group differences in HRQoL between physically/mentally healthy and ill children were observed in the KIDSCREEN-10 self and proxy scores. Associations with self-reported psychosomatic complaints were r = -0.52 (-0.36) for the KIDSCREEN-10 self-report (proxy-report). Statistically significant differences in KIDSCREEN-10 self and proxy scores were found by socioeconomic status, age, and gender.
Our results indicate that the KIDSCREEN-10 provides a valid measure of a general HRQoL factor in children and adolescents, but the instrument does not represent well most of the single dimensions of the original KIDSCREEN-52. Test-retest reliability was slightly below a priori defined thresholds.
Quality of Life Research 12/2010; 19(10):1487-500. · 2.30 Impact Factor
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[show abstract]
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ABSTRACT: To determine age and gender differences in health-related quality of life (HRQOL) in children and adolescents across 12 European countries using a newly developed HRQOL measure (KIDSCREEN).
The KIDSCREEN-52 questionnaire was filled in by 21,590 children and adolescents aged 8-18 from 12 countries. We used multilevel regression analyses to model the hierarchical structure of the data. In addition, effect sizes were computed to test for gender differences within each age group.
Children generally showed better HRQOL than adolescents (P < 0.001). While boys and girls had similar HRQOL at young age, girls' HRQOL declined more than boys' (P < 0.001) with increasing age, depending on the HRQOL scale. There was significant variation between countries both at the youngest age and for age trajectories.
For the first time, gender and age differences in children's and adolescents' HRQOL across Europe were assessed using a comprehensive and standardised instrument. Gender and age differences exist for most HRQOL scales. Differences in HRQOL across Europe point to the importance of national contexts for youth's well-being.
Quality of Life Research 09/2009; 18(9):1147-57. · 2.30 Impact Factor
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ABSTRACT: The present literature review conceptualises landscape as a health resource that promotes physical, mental, and social well-being. Different health-promoting landscape characteristics are discussed.
This article is based on a scoping study which represents a special kind of qualitative literature review. Over 120 studies have been reviewed in a five-step-procedure, resulting in a heuristic device.
A set of meaningful pathways that link landscape and health have been identified. Landscapes have the potential to promote mental well-being through attention restoration, stress reduction, and the evocation of positive emotions; physical well-being through the promotion of physical activity in daily life as well as leisure time and through walkable environments; and social well-being through social integration, social engagement and participation, and through social support and security.
This scoping study allows us to systematically describe the potential of landscape as a resource for physical, mental and social well-being. A heuristic framework is presented that can be applied in future studies, facilitating systematic and focused research approaches and informing practical public health interventions.
International Journal of Public Health 09/2009; 55(1):59-69. · 2.54 Impact Factor
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ABSTRACT: Many patients use the Internet to obtain health-related information. It is assumed that health-related Internet information (HRII) will change the consultation practice of physicians. This article explores the strategies, benefits and difficulties from the patients' and physicians' perspective.
Semi-structured interviews were conducted independently with 32 patients and 20 physicians. Data collection, processing and analysis followed the core principles of Grounded Theory.
Patients experienced difficulties in the interpretation of the personal relevance and the meaning of HRII. Therefore they relied on their physicians' interpretation and contextualisation of this information. Discussing patients' concerns and answering patients' questions were important elements of successful consultations with Internet-informed patients to achieve clarity, orientation and certainty. Discussing HRII with patients was appreciated by most of the physicians but misleading interpretations by patients and contrary views compared to physicians caused conflicts during consultations.
HRII is a valuable source of knowledge for an increasing number of patients. Patients use the consultation to increase their understanding of health and illness. Determinants such as a patient-centred consultation and timely resources are decisive for a successful, empowering consultation with Internet-informed patients.
If HRII is routinely integrated in the anamnestic interview as a new source of knowledge, the Internet can be used as a link between physicians' expertise and patient knowledge. The critical appraisal of HRII during the consultation is becoming a new field of work for physicians.
Patient Education and Counseling 06/2009; 77(2):266-71. · 2.31 Impact Factor
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Thomas Abel
International Journal of Public Health 02/2007; 52(1):1. · 2.54 Impact Factor
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ABSTRACT: Objectives: To assess whether gender and age differences can be found in different aspects of health-related quality of life (HRQOL)
of children and adolescents, and to what extent these results correspond to theoretical and empirical findings from developmental
psychology.
Methods: A newly developed HRQOL questionnaire was completed by 3 710 youths aged nine to 17years in seven European countries. The
“Kidscreen 52” questionnaire consists of 10 scales operationalising aspects of the physical, psychological and social dimensions
of HRQOL. With the use of ANOVA and effect sizes, the influence of age and gender on aspects of HRQOL is reported.
Results: Children report a very good quality of life largely independent of gender. After 12years, HRQOL decreases in the majority
of aspects. In the physical and psychological dimensions, a stronger decrease is found for females than for males.
Conclusions: Children have higher HRQOL than adolescents in many aspects. With increasing age, HRQOL is frequently worse for females than
for males. Examination of the individual aspects leads to a differentiation of the results with relevance for public health.
Gesundheitsbezogene Lebensqualität: Geschlechtsunterschiede in Kindheit und Jugend
Fragestellung: Die Studie geht der Frage nach, in welchen Aspekten der gesundheitsbezogenen Lebensqualität (HRQOL) von Kindern und Jugendlichen
Geschlechts- und Altersunterschiede zu finden sind und wie weit sie damit theoretischen und empirischen entwicklungspsychologischen
Erkenntnissen entsprechen.
Methode: Ein neu entwickelter HRQOL-Fragebogen wurde von 3 710 Kindern und Jugendlichen von neun bis 17 Jahren aus sieben europäischen
Ländern beantwortet. Der “Kidscreen 52”-Fragebogen besteht aus 10 Skalen, welche Aspekte der physischen, psychischen und sozialen
Dimensionen der HRQOL operationalisieren. Der Einfluss von Alter und Geschlecht auf die verschiedenen HRQOL-Aspekte wird mit
Hilfe von ANOVA und Effektstärken detailliert berichtet.
Ergebnisse: Kinder bis zum Alter von etwa 12 Jahren berichten weitgehend unabhängig vom Geschlecht über eine sehr gute Lebensqualität.
Danach sinkt die Lebensqualität in der Mehrheit ihrer Aspekte. In der körperlichen und psychischen Dimension ist für die weiblichen
Jugendlichen eine stärkere Abnahme zu beobachten als für die männlichen Jugendlichen, was bei den älteren Jugendlichen zu
einem bedeutend weniger guten Befinden der jungen Frauen führt.
Schlussfolgerung: Die HRQOL von Kindern ist in vielen Aspekten höher als jene der Jugendlichen, mit zunehmendem Alter ist die HRQOL von weiblichen
Jugendlichen häufig weniger gut als jene der männlichen Jugendlichen. Eine Betrachtung der einzelnen Aspekte führt zu einer
Differenzierung der Ergebnisse mit konkreter Relevanz für Public Health.
Qualité de vie en lien avec la santé: différences entre les sexes chez les enfants et les adolescents
Objectifs: Analyser l’effet du genre et de l’âge sur différents aspects de la qualité de vie en lien avec la santé (HRQOL). Voir dans
quelle mesure ces résultats correspondent à des connaissances théoriques et empiriques issues de la psychologie développementale.
Méthodes: 3 710 enfants et adolescents de neuf à 17 ans de sept pays européens ont répondu à un questionnaire indiquant la HRQOL. Cet
instrument, «Kidscreen 52», se compose de 10 échelles qui mesurent des aspects des dimensions physiques, psychiques et sociales
de la HRQOL. L’influence de l’âge et du sexe sur les différents aspects de HRQOL est analysée à l’aide de ANOVA.
Résultats: Les enfants rapportent une qualité de vie très bonne jusqu’à l’âge de 12 ans environ, indépendamment du sexe. Ensuite la
qualité de vie baisse. En ce qui concerne les aspects physiques et psychiques, une diminution plus forte est observée chez
les jeunes femmes que chez les jeunes hommes. La qualité de vie est ensuite nettement moins bonne chez les jeunes femmes plus
âgées.
Conclusion: La HRQOL des enfants est globalement meilleure que celle des adolescents. Avec l’âge, la HRQOL est fréquemment moins bonne
pour les jeunes femmes que pour les jeunes hommes. Il faut tenir compte de ces différents aspects pour des actions de santé
publique.
Sozial- und Präaventivmedizin SPM 09/2005; 50(5):281-291. · 0.82 Impact Factor
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Ulrike Ravens-Sieberer,
Angela Gosch,
Luis Rajmil,
Michael Erhart,
Jeanet Bruil,
Wolfgang Duer,
Pascal Auquier,
Mick Power, Thomas Abel,
Ladislav Czemy,
Joanna Mazur,
Agnes Czimbalmos,
Yannis Tountas,
Curt Hagquist,
Jean Kilroe,
European Kidscreen Group
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ABSTRACT: This study describes the development and reports the first psychometric results of the European KIDSCREEN-52 generic health-related quality-of-life questionnaire for children and adolescents. The KIDSCREEN-52, including ten dimensions, was applied in a European survey involving 12 countries (i.e., Austria, Switzerland, Czech Republic, Germany, Greece, Spain, France, Hungary, The Netherlands, Poland, Sweden and the UK) and 22,110 children and adolescents aged between 8 and 18 years of age. Questionnaire development included a literature search, expert consultation, and focus group discussions with children and adolescents. After definition of dimensions and collection of items, a translation process following international translation guidelines, cognitive interviews and a pilot test were performed. Analysis regarding psychometric properties showed Cronbach-alpha ranged from 0.77 to 0.89. Correlation coefficients between KINDL(R) and KIDSCREEN-52 dimensions were high for those assessing similar constructs (r = 0.51-0.68). All KIDSCREEN-52 dimensions showed a gradient according to socioeconomic status and most dimensions showed a gradient according to psychosomatic health complaints. The first results demonstrate that the KIDSCREEN-52 questionnaire is a promising cross-cultural measure of health-related quality-of-life assessment for children and adolescents in Europe.
Expert Review of Pharmacoeconomics & Outcomes Research 06/2005; 5(3):353-64.
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ABSTRACT: To assess whether gender and age differences can be found in different aspects of health-related quality of life (HRQOL) of children and adolescents, and to what extent these results correspond to theoretical and empirical findings from developmental psychology.
A newly developed HRQOL questionnaire was completed by 3,710 youths aged nine to 17 years in seven European countries. The "Kidscreen 52" questionnaire consists of 10 scales operationalising aspects of the physical, psychological and social dimensions of HRQOL. With the use of ANOVA and effect sizes, the influence of age and gender on aspects of HRQOL is reported.
Children report a very good quality of life largely independent of gender. After 12 years, HRQOL decreases in the majority of aspects. In the physical and psychological dimensions, a stronger decrease is found for females than for males.
Children have higher HRQOL than adolescents in many aspects. With increasing age, HRQOL is frequently worse for females than for males. Examination of the individual aspects leads to a differentiation of the results with relevance for public health.
Sozial- und Präaventivmedizin SPM 02/2005; 50(5):281-91. · 0.82 Impact Factor
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ABSTRACT: In a cohort survey on health-related lifestyles, four different measures of health were analysed with regard to their associations with gender, socio-economic and psychosocial factors.
The survey was carried out in Berne, Switzerland. Response rate was 64% in the initial interview and 83% in the second interview, from which the data presented were derived, resulting in 923 participants aged 56 to 66 years. Along with socio-economic and psychosocial parameters, four self-report health measures were obtained, namely self-rated health, physical fitness, number of medical conditions and restrictions caused by medical conditions. Regression analysis was used to investigate and compare their associations with gender, socio-economic and psychosocial factors and relevant interaction terms.
Gender was statistically significantly associated with physical fitness, number of medical conditions and subsequent restrictions. Education and income showed statistically significant associations with self-rated health and fitness. Psychological factors were statistically significantly associated with all health measures. Gender showed to interact with education, income interacted with internal health locus of control. Analyses with separated genders showed that the association of socio-economic status with self-rated health and fitness was statistically significant in women only.
The different health measures showed considerable variation in strengths of association with health-related factors, most noticeably so with gender and socio-economic status. The choice of health measures in population studies should comply with the intention to analyse its associations with any of those related factors, or, in reverse, with the wish to prevent their confounding properties.
The European Journal of Public Health 01/2004; 13(4):313-9. · 2.73 Impact Factor
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ABSTRACT: To examine a linear regression model to predict physical fitness using an alternative concept to analyse gender interactions.
Data were obtained from the Berne Lifestyle Panel, a survey on health and lifestyles of 56-66 years old Bernese citizens. A measure of physical fitness was regressed on gender, education and their interaction as central explanatory variables and age as confounding factor. For ease of interpretation, two dummy variables of education are introduced, one for female, the other for male education. The model with education dummy variables is compared to a linear regression model without interaction stratified by gender, and with a model with the multiplicative gender-education interaction term without stratification.
The use of dummy variables ensures an accurate description of both women's and men's associations of education with the dependant variable, without losing any explanatory power due to stratification.
The results show that the use of dummy variables is a rewarding alternative to stratification and conventional gender interaction analysis, providing both sufficient statistical information and a basis for straightforward interpretation.
Sozial- und Präaventivmedizin SPM 02/2003; 48(4):252-6. · 0.82 Impact Factor
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ABSTRACT: Gender-specific attitudes and communication styles are known to influence both the content and outcome of medical visits. Therefore, gender-specific differences in response to cost containment may also occur.
The purpose of this study was to assess the effect of physician gender on changes in prescribing patterns of angiotensin-converting enzyme (ACE) inhibitors after the implementation of reference pricing for prescription drugs in British Columbia, Canada.
Reference pricing is a cost-sharing policy by which use of high-priced medication requires out-of-pocket payment of the price difference between the cost-sharing drug and a lower-cost drug within the same class. In British Columbia, reference pricing for ACE inhibitors was introduced on January 1, 1997. Analysis was carried out on linked pharmacy and medical service claims data on 927 female and 2922 male physicians treating 47,680 Pharmacare Plan A enrollees who were aged >-65 years and were prescribed a high-priced ACE inhibitors before the implementation of reference pricing.
Female physicians (24.1% of all physicians) were younger, treated more female patients, had patients with fewer chronic illnesses, and worked more often as general practitioners than did male physicians. The patients of female physicians were more likely to receive a written physician-requested exemption from copayment, according to a multivariate logistic regression analysis (odds ratio [OR], 1.25; 95% CI, 1.04-1.50). Data suggested that patients of female physicians were more likely to stop antihypertensive drug therapy (OR, 1.43; 95% CI, 0.96-2.13); however, this was independent of the new copayment policy.
The results provide empirical evidence that physician gender is associated with slightly different patient management strategies regarding physician-requested exemptions after the start of a new drug cost-sharing policy. However, these differences are unlikely to have meaningful clinical or economic consequences.
Clinical Therapeutics 01/2003; 25(1):273-84. · 2.32 Impact Factor
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ABSTRACT: ObjectivesDespite their generally more health promoting behaviours, women are found to participate less in physical activity than men. This study explores possible gender bias in measurement of physical activity in population studies.MethodsData collected by telephone (CATI) from the Berne Lifestyle Panel in 1996 is utilised. A representative sample of the population of the city of Berne comprised N=1119 cases. Gender differences are assessed for the weekly frequency of three measurements of physical activities.ResultsAn indicator of sport and exercise showed higher physical activity among men, while the indicator of habitual physical activity showed higher rates of daily walking and biking among women. A combined indicator of general physical activity showed no significant gender differences.ConclusionsThe results provide empirical evidence on potential risk of underestimation of physical activity among women and of misclassification with respect to high or low risk behaviour patterns.FragestellungObwohl sie sich im Allgemeinen gesnder verhalten, zeigen Frauen im Vergleich zu Mnnern geringere Beteiligungen an Sport und krperlichen Aktivitten. Die vorliegende Arbeit exploriert mgliche gender-bias-Effekte in der Messung von krperlicher Aktivitt in Bevlkerungsstudien.MethodenCATI-basierte Daten des Berner Lebensstil Panels von 1996 werden analysiert. Der Datensatz bildet ein reprsentatives Sample der Stadt Berner Bevlkerung mit N=1119. Geschlechterunterschiede werden im Hinblick auf den Einsatz von drei unterschiedlichen Indikatoren fr krperliche Aktivitten untersucht.ErgebnisseEin Indikator fr sportliche Aktivitt zeigt hhere krperliche Aktivitt unter Mnnern. Ein Indikator fr habituelle Aktivitt erbringt dagegen hhere Raten von Zufussgehen und Radfahren bei Frauen. Ein Kombinationsindikator zeigt keine signifikanten Unterschiede nach Geschlecht.SchlussfolgerungenDie Ergebnisse liefern Hinweise auf potentielle Risiken der Unterschtzung von krperlicher Aktivitt bei Frauen und von Fehlklassifizierungen in Bezug auf gesundheitsrelevante Verhaltensmuster.ObjectifsBien qu'elles aient en gnral des attitudes plus saines, les femmes sembleraient avoir moins d'activits physiques que les hommes. Cette tude explore la possibilit qu'il y ait un biais li au sexe dans la mesure de l'activit physique dans les tudes de population.MthodeDonnes rcoltes par tlphone (CATI) dans le cadre de la Bern Lifestyle Panel en 1996. Un chantillon reprsentatif de la population de la ville de Berne comprenant n=119 personnes. Les diffrences lies au sexe portent sur la frquence hebdomadaire de trois mesures d'activit physique.RsultatsUn indicateur de sport et d'exercice a montr plus d'activit physique chez les hommes, alors que les femmes se situent plus haut sur l'indicateur d'activit physique habituel en terme de marche et de vlo. L'indicateur combin d'activit physique gnrale ne montrait pas de diffrence entre les sexes.ConclusionsCes rsultats fournissent des preuves empiriques d'un risque potentiel de sous-estimation de l'activit physique chez les femmes et de biais de classement par rapport des profils de comportement haut ou bas risque.
Sozial- und Präaventivmedizin SPM 06/2001; 46(4):268-272. · 0.82 Impact Factor
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ABSTRACT: ObjectivesThe measurement of health-related quality of life (HRQOL) is increasingly important as a means of monitoring population health status over time, of detecting sub-groups within the general population with poor HRQOL, and of assessing the impact of public health interventions within a given population. At present, no standardised instrument exists which can be applied with equal relevance in pediatric populations in different European populations.The collaborative European KIDSCREEN project aims to develop a standardised screening instrument for children's quality of life which will be used in representative national and European health surveys. Participants of the project are centres from Austria, France, Germany, Netherlands, Spain, Switzerland, and United Kingdom. By including the instrument in health services research and health reporting, it also aims at identifying children at risk in terms of their subjective health, thereby allowing the possibility of early intervention.MethodsInstrument development will be based on constructing a psychometrically sound HRQOL instrument taking into account the existing state of the art. Development will centre on literature searches, expert consultation (Delphi Methods) and focus groups with children and adolescents (8–17 years). According to international guidelines, items will be translated into the languages of the seven participating countries for a pilot test with 2100 children and their parents in Europe.The final instrument will be used in representative mail and telephone surveys of HRQOL in 1800 children and their parents per country (total n=25200) and normative data will be produced. The potential for implementing the measurement tool in health services and health reporting will also be evaluated in several different research and public health settings. The final analysis will involve national and cross cultural-analysis of the instrument.ResultsThe international, collaborative nature of the KIDSCREEN project means it is likely to provide many challenges in terms of producing an instrument which is conceptually and linguistically appropriate for use in many different countries, but it will also provide the opportunity to develop, test and implement the first truly cross-national HRQOL instrument developed for use in children and adolescents. This will help to contribute to a better understanding of perceived health in children and adolescents and to identify populations at risk.FragestellungDas von der EU gefrderte Projekt trgt den deutschen Titel Screening und Frderung der gesundheitsbezogenen Lebensqualitt von Kindern und Jugendlichen in Europa-eine Public-Health-Perspektive. Das Projekt wird von Deutschland aus geleitet und in Zusammenarbeit mit sieben europischen Lndern (Deutschland, Schweiz, sterreich, Frankreich, Spanien, Grossbritannien und die Niederlande) durchgefhrt. Im Mittelpunkt steht die Entwicklung eines standardisierten Untersuchungsinstrumentariums zur krankheitsbergreifenden Erfassung der gesundheitsbezogenen Lebensqualitt von Kindern und Jugendlichen im Alter von 8–17 Jahren sowie deren Familien. Das Untersuchungsinstrumentarium wird nach Entwicklung in den jeweiligen Lndern in reprsentativen Gesundheitssurveys eingesetzt, wobei ein Fokus der Untersuchungen die Identifizierung der Gesundheitsstrungen von Kinder und Jugendlichen darstellt.MethodenIn einem ersten Arbeitsschritt erfolgt die Entwicklung eines Untersuchungsinstrumentariums zur populationsbasierten Erfassung gesundheitsbezogener Lebensqualitt von Kinder und Jugendlichen. Das Untersuchungsinstrumentarium wird mit Hilfe von Experten aus dem Gesundheitsbereich generiert, zustzlich werden Kinder und Jugendliche hinzugezogen und bezglich relevanter Themen befragt. Der so entwickelte Fragebogen wird nach internationalen Richtlinien in die Sprachen der teilnehmenden Lnder bersetzt und in einer Pilotstudie getestet. In einem zweiten Arbeitsschritt werden sieben reprsentative Erhebungen zur gesundheitsbezogenen Lebensqualitt und zum Gesundheitszustand bei je 1800 Kindern/Jugendlichen und ihren Familien in jedem Land durchgefhrt. Nach Auswertung dieser Umfrage wird in einem dritten Schritt das entwickelte Untersuchungsinstrumentarium in die nationalen Gesundheitsstrukturen implementiert und auf europischer Ebene vorgestellt und evaluiert.ErgebnisseDie Studie mchte dazu beitragen, aktuelle Informationen zur Kinder- und Jugendgesundheit sowohl auf europischer Ebene als auch in den einzelnen Lndern zu gewinnen. Ziel ist es auch, diejenigen Kinder und Jugendlichen zu identifizieren, bei denen ein besonderer Interventionsbedarf besteht. Die Ergebnisse sollen dazu beitragen, Hinweise fr die Richtlinien zuknftiger Gesundheitspolitik in Europa zu geben.ObjectifsLa mesure de la qualit de vie acquiert une importance croissante comme moyen d'observer l'volution de l'tat de sant de la population, de dtecter des sous-groupes au sein de la population gnrale ayant une mauvaise qualit de vie et d'estimer l'impact des interventions de sant publique au sein d'une population donne. Il n'existe actuellement aucun instrument standardis qui peut tre appliqu de faon uniforme parmi la population pdiatrique de diffrentes populations europennes. Le projet de collaboration europen KIDSCREEN a pour objectif de dvelopper un instrument standardis de dpistage de la qualit de vie des enfants qui pourra tre appliqu dans des enqutes reprsentatives nationales et des enqutes de sant europennes. L'introduction de cet instrument dans la recherche et dans les services de sant permet d'identifier des enfants risque du point de vue de leur sant subjective et permettre ainsi des interventions plus prcoces.MthodesLe dveloppement d'instruments consistera construire des instruments de mesure de la qualit de vie de bonne qualit psychomtrique, selon l'tat actuel des connaissances. Le dveloppement sera bas sur la recherche de la littrature, la consultation d'experts (mthode Delphi) et sur des focus groupes avec des enfants et des adolescents (8 17 ans). Selon les recommandations internationales, les lments seront traduits dans les langues des sept pays europens participant a un test pilote avec 2100 enfants et leurs parents. L'instrument final sera utilis dans des enqutes reprsentatives par courrier et tlphone sur la qualit de vie de 1800 enfants et parents par pays (n total=12600) et des donnes standardises seront produites. Le potentiel d'utilisation de cet instrument de mesure dans les services de sant et dans les rapports sanitaires sera galement valu dans diffrentes institutions de recherche et de sant publique. L'analyse finale impliquera des comparaisons nationales et inter-culturelles de l'instrument.RsultatsLa collaboration internationale dans le projet KIDSCREEN permettra de relever de nombreux dfis quant la production d'un instrument qui soit conceptuellement et linguistiquement appropri pour tre utilis dans diffrents pays. Ce projet donnera aussi l'occasion de dvelopper, tester et appliquer le premier instrument international de mesure de la qualit de vie chez les enfants et les adolescents. Ceci contribuera une meilleure comprhension de la faon dont les enfants et les adolescents peroivent leur sant et une meilleure identification des populations risque.
Sozial- und Präaventivmedizin SPM 01/2001; 46(5):294-302. · 0.82 Impact Factor
