[Show abstract][Hide abstract] ABSTRACT: Aim
The aim of this intervention study was to evaluate the effectiveness of using mobile phones to enhance self-care, adjustment and engagement in non-disclosed youth living with HIV.
Young people 15-24 represent 45% of all new HIV infections globally. A significant number of youth living with HIV, who are aware of their status, do not disclose it or go to HCT health facilities because of the fear of stigma, but rely on the internet for health-maintenance information. They access counselling and treatment only when they are very immune-compromised and in crisis. This study shows how non-disclosed youth living with HIV (NDYLH) can be reached and assisted through the use of mobile phones to enhance their self-care and adjustment to the disease.
Pre-test/post test design was used in this intervention study. Mobile phones were used to give information, motivation, support and counselling to nineteen voluntary, purposively recruited NDYLH. The patient activation (PAM), psychological adjustment and modified self-care capacity scales were used to collect data. Data were analyzed using PASW 18.0.
Scores on self-care capacity, psychological adjustment and engagement (PAM) increased significantly at post test. HIV-related visits to health facilities did not improve significantly even at 6 months post test. Participants still preferred to consult health care providers through the mobile phone for health-maintenance information.
The obvious limitation of this study is the small sample size. Participation was limited to adolescents and young adults (15-24 years) living with HIV but have not disclosed.
Mobile phones enhance self-care and psychological adjustment and facilitate engagement in non-disclosed youth living with HIV, and can increase care coverage.
Implications for Nursing and Health Policy
Findings underline the importance of policies and proactive strategies to enhance locating, counselling and engaging HIV-infected persons in care.
Key words: Adjustment, Engagement, HIV/AIDS, Mobile phones, Non-disclosed youth, Self-care
International Council of Nurses, Seoul, South Korea; 06/2015
[Show abstract][Hide abstract] ABSTRACT: Background: How important is early home visiting (EVH) to new mothers? What is the nature of the role played by public health nurses (PHNs) in EHV? How do mothers, PHNs, and managers perceive EHV (i.e. universal and targeted)? This paper will discuss the findings of a recent study that addressed these questions. This three-year funded Canadian qualitative study explored how EHV programs are organized, delivered, and experienced
Methods: Feminist Poststructuralism guided the study design. Semi structured interviews; focus groups and documentary analysis were used to reveal the experiences of 16 PHNs, 16 mothers, and 4 managers. Interview and focus group data were transcribed verbatim and analyzed through a discourse analysis lens, by all members of the research team identifying common themes as well as unique or different experiences.
Results: EHV programs positively impact the health of mothers, babies and families in both targeted and universal groups. PHNs play an essential role in EHV by providing a more comprehensive and accurate assessment than in other settings. In the home, PHNs start by building positive, trusting, non-judgemental and client-centered relationships – an essential skill which puts the mother at ease and creates a climate in which the PHN can provide support relating to breastfeeding, reducing stress, reassuring and building the mother’s confidence, and promoting the physical and mental health of the mother and the baby.
Conclusions: The kinds of important work/ “soft” supports outlined above are not always credited, and can contribute to rendering PHN’s work invisible, misunderstood, and undervalued.
142nd APHA Annual Meeting and Exposition 2014; 11/2014
[Show abstract][Hide abstract] ABSTRACT: Background: Although African Nova Scotians have lived in Canada for centuries, they continue to face barriers to health care,. and they are under-represented in the health research, and health policy arenas. This paper presents a key theme from the findings of a three year study that investigated the health status and health care experiences of Black women living in rural and remote regions of Nova Scotia, Canada.
Methods: Mixed method guided by the tenets of participatory action research (PAR). Data was collected through interviews, focus groups and demographic questionnaire. 237 women participated in the study. Qualitative data was transcribed verbatim and analyzed using thematic analysis. Atlas ti computer software facilitated data management and storage.
Results: Black women in rural communities face significant challenges in their interactions with the health care system as evident in wait-times, health care providers’ attitudes and the overall quality of care. Unlike their urban counterparts, these issues are further compounded by geographical isolation. Even when Black women have the financial resources to access health services, they may not find culturally responsive providers, programs, or facilities available within a reasonable distance. This mesh of corrosive conditions compromises the health of African Canadians.
Conclusions: Despite Canada’s ethno-racially diverse population, health care policies including those that govern education of health professionals are still shaped by Eurocentric ideology. This has significant health implications for the care of African Canadians. These sub-populations need to be involved in the design and implementation of strategies for improving their health and health care.
142nd APHA Annual Meeting and Exposition 2014; 11/2014
[Show abstract][Hide abstract] ABSTRACT: Nurses are knowledgeable about issues that affect quality and equity of care and are well qualified to inform policy, yet their expertise is seldom acknowledged and their input infrequently invited. In 2007, a large multidisciplinary team of researchers and decision-makers from Canada and five low- and middle-income countries (Barbados, Jamaica, Uganda, Kenya, and South Africa) received funding to implement a participatory action research (PAR) program entitled “Strengthening Nurses’ Capacity for HIV Policy Development in sub-Saharan Africa and the Caribbean.” The goal of the research program was to explore and promote nurses’ involvement in HIV policy development and to improve nursing practice in countries with a high HIV disease burden. A core element of the PAR program was the enhancement of the research capacity, and particularly qualitative capacity, of nurses through the use of mentorship, role-modeling, and the enhancement of institutional support. In this article we: (a) describe the PAR program and research team; (b) situate the research program by discussing attitudes to qualitative research in the study countries; (c) highlight the incremental formal and informal qualitative research capacity building initiatives undertaken as part of this PAR program; (d) describe the approaches used to maintain rigor while implementing a complex research program; and (e) identify strategies to ensure that capacity building was locally-owned. We conclude with a discussion of challenges and opportunities and provide an informal analysis of the research capacity that was developed within our international team using a PAR approach.
The International Journal of Qualitative Methods 05/2014; 13(1):151.
[Show abstract][Hide abstract] ABSTRACT: Nurses account for a significant proportion of the health care workforce in most countries. In the African continent, it is estimated that nurses constitute about 80% of the health care professionals; however they are marginally represented in health research investigations and policy/decision making roles. A descriptive research design was used to obtain data from 120 registered nurses in Calabar municipality, Nigeria. The study aimed at assessing the extent of nurses' involvement in research and policy development. The findings revealed that only 30 (25.0%) of the respondents indicated that they had been involved in research activity. Majority 74 (61.7%) utilized research findings and perceived research as a tool to enhance development of nursing, 93 (77.5%) respondents were not aware of any financial support for research and only 4(3.3%) had ever received research grant to support research activities. The results also revealed minimal 8(6.7%) involvement of nurses in health care policy development. A significant relationship (P<0.05) existed between nursing educational qualification and involvement in research activities after school. These findings therefore suggest the building of supportive research environments and strengthening nurses' research capacity for effective participation of nurses in health care policy decisions in low and middle income countries (LMICs) and global health priorities.
[Show abstract][Hide abstract] ABSTRACT: Richter M.S., Mill J., Muller C.E., Kahwa E., Etowa J., Dawkins P. & Hepburn C. (2013) Nurses' engagement in AIDS policy development. International Nursing Review60, 52–58
Background: A multidisciplinary team of 20 researchers and research users from six countries – Canada, Jamaica, Barbados, Kenya, Uganda and South Africa – are collaborating on a 5-year (2007–12) program of research and capacity building project. This program of research situates nurses as leaders in building capacity and promotes collaborative action with other health professionals and decision-makers to improve health systems for human immunodeficiency virus (HIV) and acquired immunodeficiency syndrome (AIDS) nursing care. One of the projects within this program of research focused on the influence of workplace policies on nursing care for individuals and families living with HIV. Nurses are at the forefront of HIV prevention and AIDS care in these countries but have limited involvement in related policy decisions and development. In this paper, we present findings related to the barriers and facilitators for nurses' engagement in policymaking.
Methods: A participatory action research design guided the program of research. Purposive sampling was used to recruit 51 nurses (unit managers, clinic and healthcare managers, and senior nurse officers) for interviews.
Findings: Participants expressed the urgent need to develop policies related to AIDS care. The need to raise awareness and to ‘protect’ not only the workers but also the patients were critical reason to develop policies. Nurses in all of the participating countries commented on their lack of involvement in policy development. Lack of communication from the top down and lack of information sharing were mentioned as barriers to participation in policy development. Resources were often not available to implement the policy requirement. Strong support from the management team is necessary to facilitate nurses involvement in policy development.
Conclusions: The findings of this study clearly express the need for nurses and all other stakeholders to mobilize nurses' involvement in policy development. Long-term and sustained actions are needed to address gaps on the education, research and practice level.
International Nursing Review 03/2013; 60(1):52-8. DOI:10.1111/j.1466-7657.2012.01010.x · 0.95 Impact Factor
[Show abstract][Hide abstract] ABSTRACT: premji s. & etowa j.b. (2012) Journal of Nursing Management Workforce utilization of visible and linguistic minorities in Canadian nursing Aim This study seeks to develop a diversity profile of the nursing workforce in Canada and its major cities. Background There is ample evidence of ethnic and linguistic segregation in the Canadian labour market. However, it is unknown if there is equitable representation of visible and linguistic minorities in nursing professions. Methods We cross-tabulated aggregate data from Statistics Canada's 2006 Census. Analyses examined the distribution of visible and linguistic minorities, including visible minority sub-groups, among health managers, head nurses, registered nurses, licensed nurses and nurse aides for Canada and major cities as well as by gender. Results In Canada and its major cities, a pyramidal structure was found whereby visible and linguistic minorities, women in particular, were under-represented in managerial positions and over-represented in lower ranking positions. Blacks and Filipinos were generally well represented across nursing professions; however, other visible minority sub-groups lacked representation. Conclusions Diversity initiatives at all levels can play a role in promoting better access to and quality of care for minority populations through the increased cultural and linguistic competence of care providers and organizations. Implications for Nursing Management Efforts to increase diversity in nursing need to be accompanied by commitment and resources to effectively manage diversity within organizations.
[Show abstract][Hide abstract] ABSTRACT: Purpose
. Indigenous Peoples are underrepresented in the health professions. This paper examines indigenous identity and the quality and nature of nursing work-life. The knowledge generated should enhance strategies to increase representation of indigenous peoples in nursing to reduce health inequities.
. Community-based participatory research employing Grounded Theory as the method was the design for this study. Theoretical sampling and constant comparison guided the data collection and analysis, and a number of validation strategies including member checks were employed to ensure rigor of the research process.
. Twenty-two Aboriginal nurses in Atlantic Canada.
. Six major themes emerged from the study: Cultural Context of Work-life, Becoming a Nurse, Navigating Nursing, Race Racism and Nursing, Socio-Political Context of Aboriginal Nursing, and Way Forward. Race and racism in nursing and related subthemes are the focus of this paper.
. The experiences of Aboriginal nurses as described in this paper illuminate the need to understand the interplay of race and racism in the health care system. Our paper concludes with Aboriginal nurses’ suggestions for systemic change at various levels.
[Show abstract][Hide abstract] ABSTRACT: This mixed-methods study explored the racism-related experiences of 50 mid-life African-heritage women living in Nova Scotia, Canada, along with their use of spirituality as a coping strategy for dealing with racism-related stress. Four standardised instruments, along with qualitative in-depth interviews, were used to examine women's experiences of racism, depression, stress, and spirituality. Spirituality provided a key coping mechanism for racism-related stress, providing church community, spiritual community, faith, guidance, a personal relationship with God, and a source of meaning-making. For some women, spiritual belief provided a means of cognitive reinterpretation, allowing them to make sense of racism and other life challenges, recasting these as tests and trials which they were capable of surmounting with God's blessing and protection. Implications for mental health practitioners include working with spiritual and religious venues to help lessen stigma against mental health problems.
[Show abstract][Hide abstract] ABSTRACT: This article explores the meanings and functions of spiritually-related occupations for 50 African Canadian women in Nova Scotia, Canada. All but two women were affiliated with a Christian church. Using qualitative in-depth interviews, several spiritual occupations were identified by participants: prayer, Bible study, reading other sacred texts, private devotion, singing spiritual songs, and church-related activities such as committees, community ministry, choir, and leading Sunday school. These occupations were part of a holistic conception of health, and helped to protect against the psychological effects of racism. They connected women with church and spiritual communities, including ancestors. These communities and personal relationships with God gave women moral guidance for living according to their values and principles. Spiritual occupations were central to meaning-making, helping women reinterpret suffering as challenges accompanied by God's blessing, and providing hope through transcendence. For these women, spiritual occupations were part of surviving in the context of racism.
Journal of Occupational Science 08/2011; 18(3-3):277-290. DOI:10.1080/14427591.2011.594548
[Show abstract][Hide abstract] ABSTRACT: This qualitative study examines the meanings that African Canadians living in Nova Scotia, Canada, ascribe to their experiences with cancer, family caregiving, and their use of complementary and alternative medicine (CAM) at end of life.
Case study methodology using in-depth interviews were used to examine the experiences of caregivers of decedents who died from cancer in three families.
For many African Canadians end of life is characterized by care provided by family and friends in the home setting, community involvement, a focus on spirituality, and an avoidance of institutionalized health services. Caregivers and their families experience multiple challenges (and multiple demands). There is evidence to suggest that the use of CAM and home remedies at end of life are common.
The delivery of palliative care to African Canadian families should consider and support their preference to provide end-of-life care in the home setting.
[Show abstract][Hide abstract] ABSTRACT: Occupational therapy has increasingly explored the impact of cultural differences on occupations but has not yet begun to explore the impact of racism on human occupation.
This study with 50 African Canadian women used mixed methods to explore the effects of racism on their occupational experiences.
Women aged 40-65 were interviewed in-depth about everyday experiences with racism and overall well-being. Three standardized instruments assessed frequency and stressfulness of race-related experiences.
Everyday racism had subtle, almost intangible, impacts, shaping women's engagement with and the meaning of leisure, productive, and caring occupations.
As occupational therapy increasingly attends to issues of cultural difference, it is critical to also attend to racism. This means learning to ask thoughtful questions about how racism may shape clients' occupations. Attention to this aspect of the social environment will enhance practice with African-heritage clients and clients from other racial minority groups.
Canadian Journal of Occupational Therapy 10/2009; 76(4):285-93. DOI:10.1177/000841740907600407 · 0.92 Impact Factor
[Show abstract][Hide abstract] ABSTRACT: Using the grounded theory method, a substantive theory of surviving on the margin of a profession emerged as the core variable that explains the patterns of behavior of black nurses in Canada. Data were collected through audiotaped in-depth interviews of 20 black nurses. The three phases of this theory are realizing, surviving, and thriving and the three critical transitions points are the center, the margin, and the proving ground. The phases and transitions points, as well as the conditions that influence variations in the theory are the focus of this paper. These conditions include racism, diversity, and worklife issues such as healthy workplaces.