The PedsQL Multidimensional Fatigue Scale in pediatric rheumatology: reliability and validity.
ABSTRACT OBJECTIVE:. The PedsQL (Pediatric Quality of Life Inventory) is a modular instrument designed to measure health related quality of life (HRQOL) in children and adolescents ages 2-18 years. The recently developed 18-item PedsQL Multidimensional Fatigue Scale was designed to measure fatigue in pediatric patients and comprises the General Fatigue Scale (6 items), Sleep/Rest Fatigue Scale (6 items), and Cognitive Fatigue Scale (6 items). The PedsQL 4.0 Generic Core Scales were developed as the generic core measure to be integrated with the PedsQL Disease-Specific Modules. The PedsQL 3.0 Rheumatology Module was designed to measure pediatric rheumatology-specific HRQOL. Methods. The PedsQL Multidimensional Fatigue Scale, Generic Core Scales, and Rheumatology Module were administered to 163 children and 154 parents (183 families accrued overall) recruited from a pediatric rheumatology clinic. Results. Internal consistency reliability for the PedsQL Multidimensional Fatigue Scale Total Score (a = 0.95 child, 0.95 parent report), General Fatigue Scale (a = 0.93 child, 0.92 parent), Sleep/Rest Fatigue Scale (a = 0.88 child, 0.90 parent), and Cognitive Fatigue Scale (a = 0.93 child, 0.96 parent) were excellent for group and individual comparisons. The validity of the PedsQL Multidimensional Fatigue Scale was confirmed through hypothesized intercorrelations with dimensions of generic and rheumatology-specific HRQOL. The PedsQL Multidimensional Fatigue Scale distinguished between healthy children and children with rheumatic diseases as a group, and was associated with greater disease severity. Children with fibromyalgia manifested greater fatigue than children with other rheumatic diseases. CONCLUSION: The results confirm the initial reliability and validity of the PedsQL Multidimensional Fatigue Scale in pediatric rheumatology.
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ABSTRACT: Teachers and parents have long believed that children with hearing loss (CHL) are at increased risk for fatigue. CHL may be physically and mentally " worn out " as a result of focusing so intently on a teacher's speech and on conversations with other students. Moreover, increased listening effort, stress, and subsequent fatigue could compromise a child's ability to learn in a noisy classroom environment. Only recently, however, have we begun to see empirical studies supporting the notion that some CHL experience more fatigue than children with normal hearing (CNH). The purpose of this paper is to enhance the awareness of fatigue in school-age CHL among educational audiologists. To this end, an overview on the topic of fatigue in CHL is provided including its importance, definitions, consequences, and preliminary findings from a large-scale study at Vanderbilt University. In addition, we discuss the role of the educational audiologist in the identification and management of CHL who are fatigued. Research on fatigue in CHL is lacking and the importance of, and need for, scientific exploration in this area is emphasized.Journal of Educational Audiology. 01/2014; 20.
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ABSTRACT: Article Introduction Despite advances in diagnostic procedures and strategies for multimodal treatment, childhood cancer remains a challenge for public health officials, patients, families, and physicians (Kaatsch, 2010). Among the main factors that affect patients' quality of life, fatigue is a significant symptom experienced by both adults and children during treatment, affecting from 50% to 90% of patients depend-ing on the type of cancer (Baggott et al., 2010; Campos, Hassan, Riechelmann, & Del Giglio, 2011; Miaskowski et al., 2010), treatment, and evaluation method (Jacobsen, 2004). In some cases, fatigue may also persist for up to approximately 10 years following treatment (Goedendorp, Gielissen, Verhagen, & Bleijenberg, 2013; Kuhnt et al., 2009). In Brazil, cancer affects 11 530 children and adoles-cents afed 1 to 19 each year (Instituto Nacional de Câncer, 2011). Despite this high incidence in children and adoles-cents, there has been no reliable and valid scale available to evaluate fatigue in these patients.11/2014;
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ABSTRACT: Background Inborn errors of metabolism (IEM) form an important cause of movement disorders in children. The impact of metabolic diseases and concordant movement disorders upon children¿s health-related quality of life (HRQOL) and its physical and psychosocial domains of functioning has never been investigated. We therefore conducted a case study on the HRQOL and development of adaptive functioning in children with an IEM and a movement disorder.Methods Children with co-existent IEM and movement disorders were recruited from paediatric outpatient clinics. We systematically collected clinical data and videotaped examinations. The movement disorders were diagnosed by a panel of specialists. The Pediatric Quality of Life Inventory 4.0 and the Vineland Adaptive Behavior Scale were used to assess the HRQOL and adaptive functioning, respectively.ResultsWe recruited 24 children (10 boys, mean age 7y 5 m). Six types of movement disorders were recognised by the expert panel, most frequently dystonia (16/24), myoclonus (7/24) and ataxia (6/24). Mean HRQOL (49.63, SD 21.78) was significantly lower than for other chronic disorders in childhood (e.g. malignancy, diabetes mellitus, rheumatic disease, psychiatric disorders; p <0.001) and tended to diminish with the severity of the movement disorder. The majority of participants had delayed adaptive functioning, most evident in their activities of daily living (51.92%, SD 27.34). Delay in adaptive functioning had a significant impact upon HRQOL (p =0.018).ConclusionsA broad spectrum of movement disorders was seen in patients with IEM, although only five were receiving treatment. The overall HRQOL in this population is significantly reduced. Delay in adaptive functioning, most frequently seen in relation to activities of daily living, and the severity of the movement disorder contribute to this lower HRQOL. We plead for a greater awareness of movement disorders and that specialists should be asked to diagnose and treat these wherever possible.Orphanet Journal of Rare Diseases 11/2014; 9(1):177. · 3.96 Impact Factor