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Commentary: SES, ethnicity and goodness-of-fit in clinician-parent communication during pediatric cancer trials.

Center for Ethics Education, Fordham University, Department of Psychology, Dealy Hall, 441 East Fordham Road, Bronx, New York 10458, USA.
Journal of Pediatric Psychology (Impact Factor: 2.91). 02/2005; 30(3):231-4. DOI: 10.1093/jpepsy/jsi033
Source: PubMed

ABSTRACT leukemia. In particular, their findings should encourage other investigators to evaluate the multidimensional factors influencing whether parental permission for child- ren's participation in cancer trials is informed, rationale, and voluntary. First, they selected sites that enabled examination of ICC assets and barriers posed by parent socioeconomic status and ethnicity. Second, they devel- oped a model to test previously unexamined causal links among parent demographics, clinician communication styles, parental questions during the ICC, and parental emotional reactions to and understanding of ICC com- munication about pediatric cancer trials. Third, they used a multi-method approach to provide both contem- poraneous behavioral and retrospective attitudinal data relevant to the effectiveness of the ICC. Finally, drawing upon previous measures of clinician efficacy and paren- tal distress, they operationalized partnership building, rapport building, information-giving, and information- seeking into measurable clinician and parent behaviors and obtained quantifiable self-reports of parental anxiety and control. Their approach is a model of theory testing that takes into account the contributions of both parent and clinician factors to family understanding and anxi- ety following informed consent.

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    • "). This context may facilitate a blurring of treatment and research goals (Fisher, 2005; Levi, Marsick, Drotar, & Kodish, 2000). Levi et al. discuss the possible positive and negative reactions that parents and youth may have to research recruitment efforts in clinical trials involving children with cancer. "
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