Making Sense of It All: Consumer Providers' Theories about Factors Facilitating and Impeding Recovery from Psychiatric Disabilities.

St. Louis University, School of Social Service, St. Louis, MO 63139, USA.
Psychiatric Rehabilitation Journal (Impact Factor: 1.16). 02/2005; 29(1):48-55. DOI: 10.2975/29.2005.48.55
Source: PubMed

ABSTRACT This qualitative study examined the accounts of fifteen adults regarding how they recovered from serious psychiatric disability. Interviews were analyzed using a grounded theory approach within a framework of Symbolic Interactionism. Recovery was identified as a dynamic process of personal growth and transformation. Barriers to recovery included paternalistic and coercive treatment systems, indifferent professionals, side effects from medication, and psychiatric symptoms. The existence of supportive relationships, meaningful activities and effective traditional and alternative treatments were identified as influential in facilitating recovery. The consumer providers who participated in this study provided important findings and fresh understanding about the recovery process.

1 Follower
  • Source
    [Show description] [Hide description]
    DESCRIPTION: For contemporary mental health policy to realise its commitment to enhance consumer participation and to promote the establishment of progressive mental health service delivery, progressing robust and effective roles for people with a lived experience of significant mental health challenges is essential. However, the emergent lived experience workforce in Australia faces a vast range of barriers including a lack of formal employment structures and awards, professional defensiveness from non-lived experience colleagues and stigma and discrimination in the workplace. Previously, there has been limited focused inquiry into the experience of employment for lived experience practitioners. The aim of this research is to provide a comprehensive exploration of the perspectives of lived experience practitioners of their employment within the mental health workforce, with a specific emphasis on factors that assist and inhibit the roles. Using a grounded theory approach, in-depth semi-structured interviews and focus groups were conducted. Lived experience practitioners employed in diverse roles within government, non-government and lived experience-run services from metropolitan, regional and rural settings across several states participated. Employing constant comparative analysis, the substantive theory Risk to self, resulting from stigma (seen and unseen) impacting on the LEP role emerged. Stigma, both seen and unseen was found to underlie and impact upon the LEP experience. As a result lived experience practitioners knowingly risked themselves and their own well-being within roles for the benefit of current mental health consumers. When workplaces were perceived as including greater supportive factors and were seen as less stigmatising, there was a correspondingly lower risk to LEP and greater consumer benefits. Conversely when more inhibiting factors existed, greater risk to LEP was posed and less consumer benefits occurred. For lived experience roles to evolve into full potentiality; to the benefit of mental health consumers and the well-being of LEP, the underlying stigma that is often ‘unseen’ must be recognised and addressed and supportive factors enhanced. The findings of this study will inform the on-going development of policy, service design and education of the professional and lived experience workforce, by identifying existing barriers, providing a framework to increase positive factors and ultimately contribute to a more collaborative, inclusive and therefore effective workplace culture for lived experience practitioners.
  • [Show abstract] [Hide abstract]
    ABSTRACT: Studies examining recovery through the service users' perspectives have mainly included persons with schizophrenia or bipolar disorder. Giving voice to those with borderline personality disorder (BPD) would enrich our understanding of recovery, as their specific experiences may bring new dimensions, obstacles and facilitators. The objective of this study was to qualitatively capture the experience of recovery in women with BPD. Participants were women between 18 and 65 years old who had a diagnosis of BPD and completed at least 2 years in a program for persons with BPD. During the first meeting, they produced a picture collage, followed by an interview on their experience of recovery. The second meeting was a phone interview to discuss new thoughts. In addition, their medical records were reviewed. A thematic analysis of the interviews was conducted and organized with the Person-Environment-Occupation model. Although recovery was not the best term to name their experience, they all talked about a process towards stability and wellbeing (n = 12). Dimensions of recovery included, for example, letting go of the past (person), being involved in meaningful activities (occupation) and having healthy relationships (environment). Facilitators included social support and participation in a specialized therapy program. The main obstacle was unstable family relationships. The findings from this study showed similar dimensions to previous recovery studies, new perspectives on certain dimensions, as well as new ones. They also reinforced the importance to incorporate intervention outcomes that target the person with BPD, their social environment and meaningful occupations.
    Psychiatric Quarterly 03/2015; DOI:10.1007/s11126-015-9350-x · 1.26 Impact Factor
  • [Show abstract] [Hide abstract]
    ABSTRACT: This qualitative analysis applied the theory of self–efficacy to results from a study that used grounded theory to identify the factors that influenced the recoveries of 15 psychiatric survivors. Participants identified the development of a more competent and efficacious sense of self as a central aspect contributing to their recoveries. Analysis also revealed four factors related to this development: meaningful activities, supportive professional relationships, peer-support and choice among a variety of treatment alternatives. Participants' description of the recovery process and how they were able to develop a competent sense of self, possessed several parallels with Bandura's social cognitive theory of self–efficacy. This article argues that self–efficacy may provide practitioners with a useful guide for creating the contexts that facilitate the recovery process. Implications for practice and research will be explored.
    Qualitative Social Work 03/2007; 6(1):49-74. DOI:10.1177/1473325007074166