Relationship of Internet health information use with patient behavior and self-efficacy: experiences of newly diagnosed cancer patients who contact the National Cancer Institute's Cancer Information Service
ABSTRACT This study examines the relationship of Internet health information use with patient behavior and self-efficacy among 498 newly diagnosed cancer patients. Subjects were classified by types of Internet use: direct use (used Internet health information themselves), indirect use (used information accessed by friends or family), and non-use (never accessing Internet information). Subjects were recruited from callers of the National Cancer Institute's (NCI's) Cancer Information Service, Atlantic Region. They were classified by type of Internet use at enrollment and interviewed by telephone after 8 weeks. There were significant relationships among Internet use and key study variables: subject characteristics, patient task behavior, and self-efficacy. Subjects' Internet use changed significantly from enrollment to 8 week follow-up; 19% of nonusers and indirect users moved to a higher level of Internet use. Significant relationships also were found among Internet use and perceived patient-provider relationship, question asking, and treatment compliance. Finally, Internet use was also significantly associated with self-efficacy variables (confidence in actively participating in treatment decisions, asking physicians questions, and sharing feelings of concern). The results of this study show that patients who are newly diagnosed with cancer perceive the Internet as a powerful tool, both for acquiring information and for enhancing confidence to make informed decisions.
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- "Given this expansive, growing use of the Internet among the general adult population, a host of health related commercial and research websites have been developed (Impicciatore, Pandolfini, Casella, & Bonati, 1997). Research has shown that the Internet may empower patients to improve their health behaviors and to take a more active role in their health care (Bass et al., 2006). Web-based educational interventions may represent an important way to educate relevant populations about critical health issues and to spur the uptake of recommended disease prevention behaviors. "
ABSTRACT: Given the extensive use of the Internet for health information, Web-based health promotion interventions are widely perceived as an effective communication channel. The authors conducted this study to determine use of a Web-based intervention intended to improve colorectal cancer screening in a population of women who are at average risk and noncompliant to current screening recommendations. The study was a randomized controlled trial designed to compare the effectiveness of colorectal cancer screening educational materials delivered using the Internet versus a printed format. In 3 years, 391 women seen for routine obstetrics/gynecology follow-up at 2 academic centers provided relevant survey information. Of these, 130 were randomized to the Web intervention. Participants received voluntary access to a password-protected, study-specific Web site that provided information about colorectal cancer and colorectal cancer screening options. The main outcome measures were self-reported and actual Web site use. Only 24.6% of women logged onto the Web site. Age was the only variable that differentiated users from nonusers (p = .03). In contrast, 16% of participants self-reported Web use. There was significant discordance between the veracity of actual and self-reported use (p = .004). Among true users, most (81%) logged on once only. These findings raise questions about how to increase use of important health communication interventions.Journal of Health Communication 01/2012; 17(1):41-53. DOI:10.1080/10810730.2011.571338 · 1.61 Impact Factor
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- "Is education associated with pre-clinic and/or in-clinic parental information seeking? There is evidence for a positive association between pre-clinic and in-clinic information seeking (Bass et al., 2006). Alternatively, patients may not seek info because they lack knowledge, and thus the language, with which to pursue their interests (Korsch, Gozzi, & Francis, 1968). "
ABSTRACT: This investigation focused on the information-seeking behaviors of parents (N = 38) whose newborn had received a positive screening result for cystic fibrosis. Roughly half of the participants actively sought information about their child's potential disease prior to the clinic visit. The most common sources of information were the Internet, pediatricians, and family physicians. Analysis of behavior during the clinic visit showed rates of question asking that were judged as low, but they were comparable to the results of other studies. It was observed that parents occasionally would collaborate in the production of a single question. More educated parents tended to produce such questions more frequently. Importantly, frequency of collaborative questions was positively correlated with enhanced knowledge of cystic fibrosis six weeks after the clinic visit and with apparent dissatisfaction with the counseling interaction.Journal of Health Communication 12/2010; 15(8):880-94. DOI:10.1080/10810730.2010.522226 · 1.61 Impact Factor
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- "Little empirical research has been conducted to examine the role of the Internet in patients' preferences for medical decision making . A majority of previous studies have used small convenience samples and are cross-sectional (which precludes any evaluation of causality)  . Other studies have mainly focused on the general population, not cancer patients  . "
ABSTRACT: This study examines whether cancer patients' Internet use leads them to prefer a more active role in medical decision making and whether the effects of Internet use on active participation preferences vary according to patients' education levels. Randomly drawn sample (N=2013) from the Pennsylvania Cancer Registry, comprised of breast, prostate, and colon cancer patients, completed mail surveys in the fall of 2006 (overall response rate=64%). Of 2013 baseline respondents, 85% agreed to participate in follow-up survey (N=1703). Of those who agreed, 76% (N=1293) completed follow-up surveys in the fall of 2007. Cancer patients' Internet use for health information at wave one led them to want to be more active participants in medical decision making at wave two (β=.06, p<.05). This applied to all cancer patients regardless of their education levels. Higher levels of Internet use among cancer patients may lead patients to want to be more actively involved in medical decision making. Considering the beneficial effects of patients' active participation in medical decision making, it will be worthwhile for health educators to recommend Internet use to cancer patients.Patient Education and Counseling 10/2010; 81 Suppl:S63-9. DOI:10.1016/j.pec.2010.09.004 · 2.60 Impact Factor