Relationship of Internet Health Information Use With Patient Behavior and Self-Efficacy: Experiences of Newly Diagnosed Cancer Patients Who Contact the National Cancer Institute's Cancer Information Service

Temple University Department of Public Health, Philadelphia, Pennsylvania 19122, USA.
Journal of Health Communication (Impact Factor: 1.61). 04/2006; 11(2):219-36. DOI: 10.1080/10810730500526794
Source: PubMed


This study examines the relationship of Internet health information use with patient behavior and self-efficacy among 498 newly diagnosed cancer patients. Subjects were classified by types of Internet use: direct use (used Internet health information themselves), indirect use (used information accessed by friends or family), and non-use (never accessing Internet information). Subjects were recruited from callers of the National Cancer Institute's (NCI's) Cancer Information Service, Atlantic Region. They were classified by type of Internet use at enrollment and interviewed by telephone after 8 weeks. There were significant relationships among Internet use and key study variables: subject characteristics, patient task behavior, and self-efficacy. Subjects' Internet use changed significantly from enrollment to 8 week follow-up; 19% of nonusers and indirect users moved to a higher level of Internet use. Significant relationships also were found among Internet use and perceived patient-provider relationship, question asking, and treatment compliance. Finally, Internet use was also significantly associated with self-efficacy variables (confidence in actively participating in treatment decisions, asking physicians questions, and sharing feelings of concern). The results of this study show that patients who are newly diagnosed with cancer perceive the Internet as a powerful tool, both for acquiring information and for enhancing confidence to make informed decisions.

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    • "Given this expansive, growing use of the Internet among the general adult population, a host of health related commercial and research websites have been developed (Impicciatore, Pandolfini, Casella, & Bonati, 1997). Research has shown that the Internet may empower patients to improve their health behaviors and to take a more active role in their health care (Bass et al., 2006). Web-based educational interventions may represent an important way to educate relevant populations about critical health issues and to spur the uptake of recommended disease prevention behaviors. "
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    ABSTRACT: Given the extensive use of the Internet for health information, Web-based health promotion interventions are widely perceived as an effective communication channel. The authors conducted this study to determine use of a Web-based intervention intended to improve colorectal cancer screening in a population of women who are at average risk and noncompliant to current screening recommendations. The study was a randomized controlled trial designed to compare the effectiveness of colorectal cancer screening educational materials delivered using the Internet versus a printed format. In 3 years, 391 women seen for routine obstetrics/gynecology follow-up at 2 academic centers provided relevant survey information. Of these, 130 were randomized to the Web intervention. Participants received voluntary access to a password-protected, study-specific Web site that provided information about colorectal cancer and colorectal cancer screening options. The main outcome measures were self-reported and actual Web site use. Only 24.6% of women logged onto the Web site. Age was the only variable that differentiated users from nonusers (p = .03). In contrast, 16% of participants self-reported Web use. There was significant discordance between the veracity of actual and self-reported use (p = .004). Among true users, most (81%) logged on once only. These findings raise questions about how to increase use of important health communication interventions.
    Journal of Health Communication 01/2012; 17(1):41-53. DOI:10.1080/10810730.2011.571338 · 1.61 Impact Factor
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    • "Little is known about the effects on health conditions, however, weak evidence was found that on-line health companion contact contributed to reducing healthcare consumption ([14, 17]). Several studies focus on the ‘service side’ of on-line patient support groups and report how often certain on-line health companion groups were visited and how often people sent postings to these groups during a certain period ([22, 23]). "
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    ABSTRACT: A health companion is a patient who supports another patient or patient group with a similar health condition. Health companions deliver more and more support by the Internet. However, little is known about the characteristics of the users, their motivation, type of technology used and effects on health and the healthcare delivery process. The objective of the paper is to understand motivation, technology and effects of on-line health companion contact in the Netherlands concerning chronic diseases (DBM, COPD, CHF, CRD, CMD). The On-line Health Companion Contact Model was created to frame the research process. An extensive on-line questionnaire was taken from patients with various chronic disorders and using on-line health companion contact to obtain quantitative and qualitative data. Obtaining information was found the key motivation for applying on-line health companion contact and several characteristics play a role in the selection to use a specific website, including: closed access; the topics discussed; the easy use; the type of users and a clear structure. Respondents prefer website facilitated by a forum or social networking site. Other factors are the possibility to share experiences with other patients, to find recognition and understanding and to meet new people. These positive aspects are of greater importance than the perceived barriers including privacy concerns, negative stories and whining other users and concerns regarding the quality of information. On-line health companion contact can increase the quality of life and self-management because respondents perceived to be better informed, better able to accept their disease, better deal with their situation and to receive an increased amount of social support.
    Health and Technology 08/2011; 1(1):5-23. DOI:10.1007/s12553-011-0003-2
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    • "Is education associated with pre-clinic and/or in-clinic parental information seeking? There is evidence for a positive association between pre-clinic and in-clinic information seeking (Bass et al., 2006). Alternatively, patients may not seek info because they lack knowledge, and thus the language, with which to pursue their interests (Korsch, Gozzi, & Francis, 1968). "
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    ABSTRACT: This investigation focused on the information-seeking behaviors of parents (N = 38) whose newborn had received a positive screening result for cystic fibrosis. Roughly half of the participants actively sought information about their child's potential disease prior to the clinic visit. The most common sources of information were the Internet, pediatricians, and family physicians. Analysis of behavior during the clinic visit showed rates of question asking that were judged as low, but they were comparable to the results of other studies. It was observed that parents occasionally would collaborate in the production of a single question. More educated parents tended to produce such questions more frequently. Importantly, frequency of collaborative questions was positively correlated with enhanced knowledge of cystic fibrosis six weeks after the clinic visit and with apparent dissatisfaction with the counseling interaction.
    Journal of Health Communication 12/2010; 15(8):880-94. DOI:10.1080/10810730.2010.522226 · 1.61 Impact Factor
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