Knowledge, attitudes, and behaviors of youths in the US hemophilia population: results of a National survey

National Hemophilia Foundation, New York, NY 10001, USA.
American Journal of Public Health (Impact Factor: 4.23). 10/2006; 96(9):1618-22. DOI: 10.2105/AJPH.2005.075234
Source: PubMed

ABSTRACT The National Hemophilia Foundation and the Centers for Disease Control and Prevention conducted a national survey focusing on knowledge about, attitudes toward, and behaviors associated with key prevention activities among youths with hemophilia and used the data gathered to design a health promotion campaign.
A national, random sample of 459 patients was drawn from 20 hemophilia treatment centers and 8 hemophilia associations; 110 (24%) of the respondents were young people. A telephone questionnaire was used to measure knowledge, behaviors, and barriers to prevention.
Thirty-six percent of the youth respondents believed that joint disease cannot be prevented; 60% managed hemophilia by avoiding physical activity. Only 31% of the respondents treated bleeding episodes within 1 hour. Although hepatitis was a clear threat to this hemophilic cohort, 78% did now know transmission routes for hepatitis C, and 67% did not know transmission routes for hepatitis B.
Young people with chronic disorders need help understanding that they can prevent complications. We identified key messages for a hemophilia prevention campaign, including exercising to ensure healthy joints and treating bleeding episodes early and adequately.

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    • "en la revisión por áreas temáticas relacionados con la condición física, la actividad y el ejercicio físico y deporte en el paciente hemofílico. Áreas temáticas afines Referencias Artículos de revisión Mulder et al (2004); Wind et al (2004); Von Mackensen (2007); Morris et al (2008); Petrini y Seuser (2009); Gomis et al (2009); Philpott et al (2010) Trabajos observacionales, retrospectivos, y experiencias clínicas que estudian aspectos específicos de la condición física Greenan-Fowler et al (1987); Buzzard (1996); Falk et al (2000); Heijnen et al (2000); Schoenmakers et al (2001); Hilberg et al (2001); Falk et al (2005); Van der Net et al (2006); Mihalova (2007); González et al (2007); Fromme et al (2007); Engelbert et al (2008); Tlacuilo-Parra et al (2008); Gallach et al (2008); Tiktinsky et al (2009); Koiter et al (2009); Douma-Van Riet et al (2009); Herbsleb y Hilberg (2009); Ross et al (2009); Hassan et al (2010); Broderick et al (2010); Buxbaum et al (2010); Fearn et al (2010); Sherlock et al (2010); Hill et al (2010) Trabajos observacionales y experiencias clínicas relacionados con la condición física Toy et al (2001); Barnes (2004); Nazzaro et al (2006); Wallny et al (2007); Seuser et al (2007); Hofstede et al (2008); Lobet et al (2008); Khawaji et al (2010) Recomendaciones generales sobre realización de actividad física, ejercicio físico y deporte "
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