Parental beliefs about autism Implications for the treating physician

Department of Pediatrics, New York Medical College,Valhalla, NY 10595, USA.
Autism (Impact Factor: 3.5). 10/2006; 10(5):452-62. DOI: 10.1177/1362361306066609
Source: PubMed


This study investigated parental beliefs about the etiology, diagnosis, and treatment of autism spectrum disorders. Sixty-two families of affected children completed a questionnaire asking when the parent first noticed developmental or behavioral problems, when they were told the diagnosis, how confident they were about the ability of their child's physician to recognize autism, whether they believed anything specific might have caused their child's autism, and what medications and complementary or alternative therapies they had tried. Two-thirds of parents suspected a specific cause, and three-quarters questioned their physician's ability. Parents who perceived a greater delay in diagnosis or who had tried more different therapies both tended to have less confidence in their physician (p = 0.20 and p = 0.07, respectively). Physicians should inquire about parental beliefs concerning etiology, learn what treatments the children are receiving, perform screening at the 18 month visit, and make referrals for further evaluation as soon as a child begins to exhibit signs suggestive of autism.

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Available from: Donald A Brand, Jan 06, 2014
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    • "Previous surveys among various groups of healthcare providers reported gaps in knowledge about ASD, deficiencies in diagnostic abilities, and a lack of self-perceived competency in treating children with autism (Bakare et al. 2009, 2008; Eseigbe et al. 2015; Garg et al. 2014; Golnik et al. 2009; Hartley-McAndrew et al. 2014; Heidgerken et al. 2005; Igwe et al. 2011; Imran et al. 2011; Khanna and Jariwala 2012; Nicolaidis et al. 2015; Oskoui and Wolfson 2012; Rahbar et al. 2011). Parents of children with autism also expressed low confidence in (Harrington et al. 2006) and dissatisfaction with their children's physicians (Liptak et al. 2006). As children with ASD age, their healthcare services move from the pediatric department to adult medicine, yet very little is known about providers' readiness to provide optimal care for adults with ASD. "
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    ABSTRACT: We conducted an online survey of adult health care providers at Kaiser Permanente Northern California and semi-structured interviews with a subset of physicians. The survey assessed providers' ability to recognize autism spectrum disorder (ASD), asked them to rate their autism knowledge, comfort level in treating affected patients, and evaluated training and resource needs. 922 providers completed the survey (response rate 25.3 %), and 9 were interviewed by telephone regarding their autism training and experiences caring for patients with autism. Most providers reported lacking skills and tools to care for this adult patient population. A high proportion of adult providers were not aware that they had patients with ASD. These findings underscore the need to educate physicians caring for adults with ASD.
    Journal of Autism and Developmental Disorders 09/2015; DOI:10.1007/s10803-015-2579-2 · 3.06 Impact Factor
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    • "Such treatments may be of special concern when seemingly extraordinary results are guaranteed. Such concerns may be confounded when physicians fail to anticipate or understand the feelings of desperation that accompany some parents of children with ASD when they come into the office [2]. The combination of desperation and a lack of effective treatment options provided by the physician may lead parents to pursue treatments with little or no empirical support. "
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    ABSTRACT: The purpose of this paper is to review and critique studies that have been conducted on dolphin-assisted therapy for children with various disorders. Studies have been released claiming swimming with dolphins is therapeutic and beneficial for children with autism, attention deficit hyperactivity disorder, physical disabilities, and other psychological disorders. The majority of the studies conducted supporting the effectiveness of dolphin-assisted therapy have been found to have major methodological concerns making it impossible to draw valid conclusions. Readers will be informed of the history of, theory behind, and variations of dolphin-assisted therapy along with a review and critique of studies published which purportedly support its use.
    07/2012; 2012:839792. DOI:10.1155/2012/839792
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    • "Traditionally, ASD assessment and diagnosis is a stage by stage process, which is limited to establishing the presence or absence of categorically (World Health Organization, 1992) or dimensionally described behavioural features (Wing et al., 2002). Initial presentation can be to a wide range of professionals in primary care, education or social services and there may be considerable delay in cases being presented even at this stage, together with low confidence in the abilities of these professionals to recognise ASD (Harrington et al., 2006). Inevitably, most cases of ASD are then referred on to specialist services and it is at this stage in the process that waiting lists develop. "
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    ABSTRACT: Early diagnosis of autism spectrum disorders (ASD) is of crucial importance, but lengthy delays are common. We examined whether this issue could be reliably addressed by local teams trained by a specialist ASD assessment team. Four local teams were trained in diagnostic assessment. Their assessments of 38 children and young people using the Autism Diagnostic Observation Schedule-Generic (ADOS-G) were video recorded and independently assessed by the specialist team. There was a high level of correspondence between the diagnoses of the local teams and of the specialist team. The number of assessments carried out increased and there was a considerable reduction in waiting times. This study has demonstrated the potential feasibility of creating local, multi-agency ASD assessment teams, which will serve to reduce waiting times, improve clinical skills at a lower level of specialism and thereby improve the overall quality of ASD services.
    Autism 10/2010; 14(6):589-603. DOI:10.1177/1362361310373369 · 3.50 Impact Factor
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